Health Update: Heart Still Broken, Life Goes On
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- čas přidán 30. 10. 2023
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Let's get a transesophageal echocardiogram!
Also hey I made a cartoon show and you should watch it: czcams.com/video/PoPtxHEAqBE/video.html
hey austin, i hope your feelin better bro, love what you do...your content is top tier
yes
I am not sure if you are aware of minimally invasive heart surgery. My dad had it as an alternative to open heart surgery. I have no idea if you are eligible for it but it is amazing. Rather than breaking your ribcage they access your heart via a small hole. He left the hospital after 1 day. There are only a few places in the world that offer it. We looked into a hospital in Chicago but he went to one in L.A. due to insurance reasons. Take care!
Just had an echocardiogram a couple weeks ago. You never get used to the sound. The squelching is just so gross.
They way you said described it your are sounding more like Marcus Aurelius. I approve
Lets all just once again thank Austin's wife for telling him to get a checkup also you got this
I find that this is a common theme. So much so that I'm tempted to change the (problematic) old adage to: behind every live man stands a, frankly, underappreciated woman who keeps him that way. At least, that's how it is in my relationship.
The only reason I have a wife is for a tax break (I’m not joking). But sometimes she does offer good advice, like going to see the doctor, which is very nice of her
@@yammmit This is without a doubt the weirdest comment I have ever had you are literally admitting to tax evasion
@@Rompstirdghe’s legally married though that’s not tax evasion lmao
@@Mikey-jv5fv I mean it is rax evation just the legal kind
I like to imagine that when Austin is half-sedated, he starts telling the hospital staff about public domain superheroes
Little Red. Little Red. Little Red.
"Just bad enough to where you feel terrible all the time, but just well enough where they aren't going to do anything about it" is the most relatable thing ever. I've suffered from chronic pain since early high school, but since it was mild, and because I was a "dumb teenager who doesn't know anything and over-exaggerates", I never got treated or diagnosed for it. Now that I'm in my early 20s, and I went straight to a specialist, they actually seemed to take me more seriously. I'm actually getting an xray done for it today.
Great to hear, hope it goes well!
Aw man, I really hear you about being dismissed because of being young! It took 12 years for my chronic pain to be diagnosed. But don't panic - one of the reasons it took so long is because the understanding of my condition - Hypermobile EDS - changed radically in 2017. But I went through a lot of "You're too young for....". I know it can be tough, but stick at it, educate yourself and trust your own body. Best of luck! x
Replying to hear how it goes
What happened?
I feel you, I’ve had chronic back pain since I was 14 and I’m 26 now. I live in the UK so unfortunately if it’s not life threatening it gets ignored. Keep pushing for more tests, I hope it all gets sorted for you, or at least better.
I was just wondering about this.
Don't lose hope, man.
I'm terribly sorry my useless ass can't do more, but I want you to know that your struggle doesn't go unnoticed and we're all rooting for you.
You're not useless! Taking the time to recognize someone's struggle and wish them well is a very useful way to spend time!
im useless too, i wish i could do something too
Austin, my daughter just showed me your video. I work in the medical device space, specifically in heart failure, and I consult for a company that makes a non-surgical treatment for AR. Also, I worked with left ventricular assist devices for HF since 2004 and so maybe I can answer any questions you have or be of some help.
I recently had a scope for my gastrointestinal issues, and it was incredibly stressful. I can't imagine how much worse yours was
gastritis sucks man. i had this done too but thankfully under anaesthesia
I had two scopes done at the same time, also for GI issues, even under general anesthetics, the procedure is annoying .. i hooe your GI issues work out one day
Well, I had it done with zero sedation. Wasn't fun at all, and yes - you can clearly feel where and what they are doing with the scope, even taking biopsies. Doctors lie :)
EDIT: Doesn't mean the biopsies were painful, it's a tug with a bit of a pinch, slightest sting in my case. The experience of having a thick pipe in throat and trying to constantly swallow it is the most painful.
@@tomclanysI got sedation, I could feel the scope inside but I couldn't feel the biopsy. I was surprised watching the biopsy on video 🤔
I had an upper endoscopy under twilight sedation. If I need to do it again 100% I'll do it
>"Welp, let's see what we've got here"
>commits unspeakable body horror on the patient
>"looks like you're 0.3% too healthy for us to actually do anything"
>"that'll be $6 billion"
U-S-A! U-S-A!
We need updates to the law.
Fast.
no techniaclly he's 3% too healthy bcs 0.3% = 0.003
@@youtubeuniversity3638 We need to change a lot of things, but the first thing we do is legalize cannabis worldwide.
This is assuming that 1 metre is the standard diamater lol
Also, except for the bill, its the exact same thing anywhere lucky enough to have medicine. They dont just perform this earlier in other places. In fact, from what ive learned studying other health systems, the US probably does it pretty early relatively. (Im not an American btw, but did spent some uni time comparing different health care systems, they all have massive issues)
`Don't know if anyone needs to hear it` often this is the message I need to hear. Thanks for all you've done / continue to do Austin. Truely appreciate the work and effort sir...
Thanks. :)
@@austinmcconnellI haven't got most of these symptoms ( got only a little bit ) but I hope this video saves someone's life . ♑️✍️🇳🇴🇦🇺
My dad had an aortic aneurysm 8 years ago. He had 3 open heart surgeries and survived. It’s a hard thing to go through. I hope you get the treatment you need Austin. 😁
- An avid watcher of your videos
I recently had a colonoscopy. Same basic set up as yours...different door. Thank goodness for anesthesia that causes no memory. Man...I do hope that the doctors are able to get your heart repaired soon. And your making your little corner of life a bit better than you found it is great. Sharing it with us is a gift. Thank you.
TBH, the endoscope down the throat isn't that big of a deal. Well, as long as you're not the homophobic type. It's just a tube that goes in the mouth and down the throat and as far as the uppermost reaches of the large intestine. It's really not that big of a deal as long as you remember that the tube isn't going to go into the lungs or anywhere that it's not supposed to go. Just relax, and the whole thing is over before too long.
I haven't yet had a colonoscopy. But, I don't really get why that would be any bigger of a deal.
My colonoscopy was quite painful. Didn't have anaesthetic, just some gas (they wouldn't sedate me because I was making my own way home). The tube coiled up in my colon. Wasn't fun, but the overall experience wasn't as bad as I was expecting
@@pi8049on a 1 to 10 pain scale how was it and woild you compare it to any other painfull stuff if you dont mind answering?
@@t0rya I guess it was more uncomfortable than it was painful, overall around 6/10 and went up to 8/10 for about 2 minutes when it coiled up. I also had some pain that lasted a few months afterwards, but I was diagnosed with Crohns so these pains could’ve just been inflammation.
I don’t think it would’ve been as bad if I was sedated
I wasn’t sedated for my colonoscopy either! I got to watch the insides of my intestines on a big monitor. It wasn’t particularly painful, though it felt kind of weird, and when the camera bumped me on he inside, I wondered if that was what it’s like to have a baby kick… which as a dude I guess I’ll never experience
Was just in the hospital and had an NG tube shoved down my nose/esophagus to suck out the contents of my stomach. The worst experience of my life. I feel for you brother. I hope you pull through.
Yeah. I've been in the hospital twice for intestinal surgery (the last time just a few weeks ago) and those tubes are the absolute worst. Power to you, hope you're doing well.
Why? The nose bit I can see being kind of annoying, but I had a biopsy done on my stomach via an endoscope as well as a quick look at the duodenum without any anesthetic apart from the spray for my tongue. I don't really understand why the doctor was so insistent that I had to have general anesthesia for it. But, I came alone and you can't really go home after that without somebody while it finishes wearing off.
@@SmallSpoonBrigade I think people are sedated because there is concern that they will panic. I've had an endoscope go down my throat to look at my esophagus and a colonoscopy, both times I was not sedated. The endoscope made me anxious, but if I had to do it again I would not be sedated. After going through it once, I would be better able to handle how the tube feels in my mouth and throat and would know I wasn't going to choke or suffocate from it.
I panicked. I have a strong swallowing reflex, so I spent about four hours constantly gagging. Also nearly got a lung infection. Will never be doing it again, even if it inconveniences the doctors.
I gotcha. Happened to me when I was 11, and I remember being disappointed. Despite not being able to eat for a week, the hospital hamburger was still very unappetizing.
I'm going through a really rough patch in my life having to deal with loss, depression and changes in life that scare me. I've thought a lot about death and have had suicidal thoughts but recently I've realised that we truly only have one life to live in this world and that even though I make mistakes and life can be unforgiving - at the end of the day I'm lucky enough to be alive. I've been living my life now day by day and while I still feel mostly terrible life has become bearable and the moments that I enjoy I cherish all the more. If nothing matters at the end of the day than that means we mean everything to the people around us in the short time we can have together. Just happy to be alive and have people that love me even if everything else sucks.
I've literally been where you are. Both physically and mentally. I used to live in Springfield Mo. Moved to MN because cardiologist retired
My dad has been in heart failure since he was 40 (yay genetics and chronic kidney disease..); he's 68 now. It is exhaustingly slow and it is terrifying as hell. It's also a topic I don't think many know a lot about, so thank you for sharing your experiences.
I'm so sorry you and your dad are going through that. Sending good thoughts your way.
I know of no one that could make heart failure so comical!
Love you Austin! You're amazing!!
This is a very good example of a youtube video done right
I agree 💯! Life is short and I don't want to waste it on negative stuff. I was recently diagnosed with metastatic liver cancer. I'll have surgery then chemo. They caught it early but there are never any guarantees. Whether I die tomorrow or in 30 years, I want to feel good about the life I had. Thanks for the videos ❤
Austin,as someone who has always been sickly from birth to now as an adult.And who is also suffering from a medical condition called lymphedema.Your channel and the way you highlight your personal experiences with us,is really one to be commended.Cuz you really didn't have to.But you did.I just want to say don't give up bro.Your Super Zeroes Universe has inspired me to create something as well in the public domain realm as well.I will keep you in my prayers bro.
My partner has Marfan Syndrome, which is a cousin condition to my own Ehlers-Danlos syndrome. One of the common complications for his condition is aortic bisection, and I worry about his heart every day. I'm so glad you're able to get healthcare, and I hope your heart surgery can happen soon.
Austin, thank you for doing these videos and updating us. You are such a trooper man, and your wife is so sweet and wonderful. You two are great. I'm so sorry you are going through this. I'm going to pray for you guys. I hope this gets settled very soon.
Austin, you and your channel are a huge inspiration to me. Just want you to know that no matter what happens, you've significantly, positively impacted many people. Well, at least one person I can attest to :) Thanks a lot. Hope you get a successful surgery soon.
I'm 19 and have a condition similar to yours (Likely not Heart Failure, but Aortic Regurgitation). I've had it my entire life to my knowledge and one day I might have to accept the fact that I will have to undergo the process that you're going through. Thank you for uploading your journey to help me understand my condition as well.
Had an endoscopy yesterday and getting one tomorrow. Needed to see this! It was both funny and calming. You are making this anxious patient a little less anxious. Thanks, Austin.
i dont even wanna think about how it feels to know that at any point your heart could rupture. i wish you all the best man
I deeply appreciate how you share this journey with us. Literally laughing and crying in one video. As a fellow chronic-illness warrior, I can soooo relate to "you're not sick enough for treatment". I don't envy where you live and the cost of healthcare, but as you say, at least it's available to you. Keeping fingers crossed (metaphorically - my physio would kill me!) that you can find a better solution than the constant testing and teasing. Go go Master of the SuperZeroes!
3:52 I had to have a similar procedure done and I still remember how the doctor told me that, "some people say it tastes great!" while he made me swallow some of the worst tasting liquid, ever.
classic doctor joke
Just had this done recenlty myself as I have AR from a leaky heart valve... I had such a horrible time. I became conscious while the probe was still down my throat and couldn't stop gagging... My EF is now at 48%, and even though I'm not showing any symptoms yet, I might need to have surgery soon... I'm so scared that I won't survive the surgery that I've been really depressed and sad. At least I know I'm not alone...
Try not to stress. Open heart surgery when it's planned ahead like it will be in your situation has an incredibly high survival rate so if it gets to that point for you you'll survive.
My brain filled in a comma in the title and completely changed the context of the video
6:00 Austin, as you were under anaesthesia at this time, it’s possible that you were falling into some type of hippocampal replay (the operation that occurs during REM sleep) and actually experiencing an egocentrically coded auditory / visual hallucination. Sometimes I get hypnopompic hallucinations when in bed, I had one that I was talking to someone, I actually nodded, woke myself up and realised I was in bed, sometimes I start doing maths and come up with a random number after a hypnopompic hallucination or say something.
As someone dealing with hypochondria particularly regarding heart problems, this was surprisingly calming. Especially the ending. Thanks and good health!
The powerhouse of the cell 😂 no seriously the condition is called hypochondriaSIS. Sufferers are called hypochondriaCS.
@@tatikagila5057 Yeah sorry about that. I cant remembet the last time I saw or heard it being referred to as hypocondriasis but thanks for reminding me.
@@tatikagila5057 well, about that, hypochondria is also correct because the powerhouse of the cell is actually called *mitochondrion* (or mitochondria in plural)
Protect Austin, we need to
Austin, thank you for making mistakes and having the courage to share them with your audiences, so we can laugh and learn with you. Much love to you and your family.
It's the only way to live! Hope you're doing well. Enjoy the weekend!
6:02 actually not incohorently - You were talking about the echo images - Red is one of the colors shown(it's usually Red/blue symbolizing velocity of blood)
I was having a really angry day today and you reminded me what's important. Thank you sir. We are all rooting for you. 💪
Here's to better days ahead!
Continue to smile each day, it's the best way to cross those type of event. Take care.
I had my open heart surgery last year to correct my congenital aortic valve stenosis. I know exactly what you mean by “waiting for it to get bad enough” before you can actually fix the issue. I had to wait until I was 31 years old before I could have my surgery. I was a candidate for and opted to have the Ross Procedure which allows me to avoid life long blood thinning medication for the time being. I’ve really enjoyed your health update videos. It’s always comforting knowing there are people similar in age that are having similar cardiovascular complications. You’re not alone in this.
You are my favorite CZcamsr. Your channel may not be doing as well as it should, but you mean a lot to those of us still around. I hope you get better, praying for you.
You make me cry, I wish you the best.
-Oh, hi there
-General Austin!
Wow the ending was really touching 👍
Inspirational attitude in the face of adversity. Hang in there, Austin!
Don’t blame you for sponsoring this (get that bag) but I think it’s kinda funny squarespace was completely okay tagging your heartfelt health/life post with “make a website!”
Yeah, corporations gonna corporation
Austin, I hope you make some good money from them!
Watched this as I came back from having my wisdom teeth removed. Our hearts are with you.
Pulling for you. Love the channel.
Austin you are such an inspiration. Ever since I found this channel I could see that you were always doing stuff. Like, you've written several books, directed a web show, made a movie, tons of videos, inspired a play... We obviously don't know the full picture of your life, but you've really inspired me to start pursuing my creative interests, instead of just waiting for opportunities to appear by themselves.
Thank you Austin for that at the end, I needed that.
Much love, Austin. My life is better for your presence. Thanks for all you share, most of all for the effort to improve the lives of those around you ❤
I needed that, Austin. Thanks.👍
This video made my heart hurt and I feel for you, Austin! Much love and support from your fans
Stay strong, my friend! Godspeed! ❤
Austin, i knew i liked you. Now i know that i love you.
Do good work. Be happy now.
I hope you're able to get your surgery, Austin! You're a wonderful human and I love seeing your stuff.
It's really inspiring how you choose to live! Even with such complications, you've been making such amazing content!
It takes a lot of bravery to share this and be so open. But you are certainly helping other people who are and will suffer from this disease in the future ❤
8:23 The doctor's just like "Mmmm thank you for passing me a fork. Time to eat"
Omg it did look like a fork LOL
good luck dude, hope you pull through all this! thanks for all the content!
Just want to say I love you man. Been watching you so much the past couple years. Keep staying strong, I’ll always be behind you!
Very generous to share this personal experience! I’m sending you some love! ❤
"TRANSESOPHAGEAL ECHOCARDIOGRAM" looks and sounds cool
I was born with tetralogy of fallout, I've had 2 heart surgeries. You and I are probably about the same age too (I was born in 1992). I've had one of those throat ultra sounds, they suck. I may have to have another surgery eventually and it scares the shit out of me. Unfortunately I can't watch this whole video because I get anxiety attacks when I think about this stuff, but you're not alone man. Life is worth living
I needed to hear this. Thanks for your inspiration, Austin! You are such a blessing!!!!
We love your content and we are praying for you and your family! Hang in there!!
Awesome outlook on life Austin, it's certainly the best way to live it. Glad I found this channel and am able to share a little bit of it with you bud.
May I have the insight to approach life-threatening situations with the humour and insight you just displayed.
F for getting scoped. Made my insides hurt for at least two days.
Don't have much to say except that I enjoy your content very much and wish you all the best
I needed to hear that Austin.
Thank you
Austin, your videos are amazing. Informative, well-paced, and interesting to watch. But, they also show humanity, and perspective, and sincerity. You have your own style, and I know how much work, and time, you put into what you produce. Thank you for your work🙏🏼
Sending much love and kindness to you and your wife, your family and friends. I am versed in the condition you are living with, and will continue to follow your work, and always send you good energy.
Thanks for the reminder at the end about the importance of regular check ups. It's been a while since my last one and I really need to take the time to schedule one.
Always rooting for you and your weird videos!! Sending you and your family the best❤
You're the man - thanks for sharing. We're praying for you!
One of the few times in my internet videoing I've been grateful for a content warning. I wanna keep up with how you're doing and show support but I am a pathetically squeamish fellow!
Austin. You’re in my prayers man. Much love and stay strong. I know you’ll get over this hill and live a full healthy life !
I hope you get it fixed as soon as safely possible, you seem like a good dude!!
Thanks for sharing your story, Austin. I'm glad you're taking it well, one day at a time. Stay strong.
Best wishes Austin. I hope you are ok long term. I love your work and value seeing your posts. Thank you for updating us.
Love your work man. Thank you for the content. Wish i knew you personally. But im glad i live in a time where i can learn from and be entertained by you here.
Thanks for sharing your story, Austin. Stay strong. Best wishes to you and yours.
Thank you for the timestamp, I definitely needed it. Best of luck with all of this :( very alarming but you're hanging in there ♡
One of my favorite book series of all time has a protagonist with a similar condition, but I still have no idea at all what you're going through. Sharing your experience helps people understand & that's so valuable. The works & worlds you've made have been amazing to keep up with & I'm so happy to have been here while you made them. Much love from Texas 💕
Hey Austin! I am so sorry to hear about the surgery not going through. But glad that you are keeping us updated. Hope you are feeling ok under the circumstances.
I needed to hear that Austin. I appreciate you sir.
Thank you, Austin. This was truly a harrowing experience.
I hope things work out well for you soon and that you’ll be able to make a good recovery. I’m happy to see that the kindest woman out there has your back ❤
Thank you for your generosity, Austin. I think there is real value in you sharing your health struggles and journey.
Outside of your creative work (of which I am a fan) you will have made a great contribution to the world if you inspire someone to get a check-up or start expressing themselves through art.
You’ve certainly inspired me.
So wholesome love your content thanks for the health update. I hope your surgery goes well whenever you are set to get it.
You need to stay alive to finish Superzeroes. Stay strong.
Extremely thoughtful and thought provoking video. Thank you for sharing this. It can't have been easy. I sincerely hope that you can get the repair/replacement surgery soon and put it all behind you.
Hi Austin. Much compassion for you. I recently was suggested the 24 hour heart monitor I've yet to do, as whatever is causing my precipitous decline is a mystery and the doctors are left with throwing darts or calling me crazy. Yet to do it, but I've had an endoscopy, colonoscopy, and cystoscopy (look that one up for some Halloween scares). These tests are no fun and there's no amount of crazy or attention seeking that would convince me to go through with this.
I do have a diagnosed autoimmune disorder (spondylitis), which seems likely related, but that has not progessed to the point of agony that my insurance will cover treatment.
Your videos always make me smile. For that, thank you.
Respect how strong you are through all of this. Hope everything goes well and I'm indeed also motivated to do checkups more. All love man!✊
I think I did need to hear that, Austin. I'm sitting here crying in a poorly lit apartment after being forced to move out of my home of 11 years JUST as I suddenly developed (as in the symptoms arrived on moving day) what appears to be the illness that almost caused my mother to bleed to death when I was a toddler. (It also stopped me from helping with the move, making everything suddenly much more expensive.) I already have an anxiety disorder, so a sudden heaping helping of trauma and terror isn’t doing me any favors. I just had to write a post to my Patreon followers to the effect of "can't work or brain rn, chapter delayed two weeks, but the protagonist will kick a N*zi in the head to make it up to you, hope that's okay."
Thanks for making me feel a little less alone tonight. Here's hoping we both pull through.
Sending good thoughts your way, internet friend. Take care 🌻
Thank you for saying your last bit. It is exactly what I needed to hear right now. Thank you 🙏 all the best to you 🫡
Aww man.
I hope you get the procedure and get better soon and feel real good.
Thank for putting on a brave face in your videos. Every time you calmly talk about this it really puts my mind in a calmer mode.
The would’s going to hell, but it’s been that way for a very long time. I’m just enjoying a quiet Halloween giving out candy to people I don’t know. I like life when it’s peaceful.
My grandpa suddenly developed heartfailure and its not suprising, he's living on borrowed time as he had a quintuple bypass in 2004, and recently he was throwing VTach and they did a TEE while he was in the ER and turns out 3/5 of his bypasses are fully clogged, one is like 75% and 1 in mostly fine. Kind of impressive that he mostly was asymptomatic. That said, based on how my next echocardiogram and stress test goes, I might need open heart surgery to replace my mitral valve, I was having shortness of breath and considering my history of POTS and rheumatic fever they were suprised that my mitral valve was only starting now to have issues, and usually when it goes by my age it's gone. Also apparently my heart on the most part is as healthy as a 18 year old olympian with no excess growth, and I have absolutely no plaque.
That said, good luck on your heart failure journey, Austin!
I needed to hear this today. I loathe medical appointments (whoo, anxiety!) but there are a couple I should just bite the bullet and schedule. Thanks, Austin
I had an endoscopy for gastroesophageal reflux disease many years ago. Was no big deal.
You're a bright spot on the internet, Austin!
God bless you, and keep your head up!
Thank you for sharing your experiences. These kinds of videos are incredibly helpful for dealing with the stigma of heart failure