Our Family CNA Journey | Beth Fries and Mother Caring for Two Children With CLN3 Batten Disease

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  • čas přidán 16. 07. 2024
  • In part three of our six-part Family Caregiver video series, we met with Beth Fries and her mother, Jeanna. Two of Beth's daughters, Cecilia and Lily, were diagnosed with CLN3 Batten Disease, a rare neurodegenerative disorder. Sadly, there are no treatments or cures for this disease, and life expectancy is late teens to early twenties. Learn more about the Fries Family and the journey Beth and Jeanna took in becoming Family CNAs with Solace Pediatric Healthcare.

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