Overcoming the Challenges of Living with a Stoma
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- čas přidán 14. 05. 2024
- There are quite a few unique challenges those living with stomas must face. Let's share our experiences together and celebrate our overcoming of them!
Thanks for tuning in to the StomaCloak CZcams channel! We know life with a stoma can create some unique issues for the person living with one, but we are hoping to bring you to a new level of confidence you haven't yet experienced!
Learn more about the StomaCloak here ↷
stomacloak.com/
#ostomy #stoma #StomaCloak
Happy Birthday young lady. I was diagnosed with stage IV colorectal cancer last April 2023. My teams goal was to treat me and leave me intact digestive wise. I knew that it was not only possible but very likely for me to end up with a colostomy. I immediately thought i should understand this, just in case. Thats where YOU come in. I found you among a few other brave souls. I can honestly say i was better prepared emotionally and mentally for my stoma thanks to you. Keep up the great work. Look forward to your content.
I’m 11 months in now with my ileostomy. My story is a bit different than yours but the result is the same. I’ve had ulcerative colitis for many years, but that’s not why I have an ostomy. Last June I ended up in the hospital with a severe case of C-diff brought on by 2 rounds of antibiotics for a UTI. I got sicker and sicker and none of the standard treatments worked. I even had a fecal transplant which works in 90%of patients. But not me! At nearly 69, I was as close to death as I could get - literally. My last chance for life was to have a total colectomy and a permanent ileostomy. When they removed my colon, it weighed 30 pounds and had to be removed in sections because of all the infection. I had sepsis and what they called toxic megacolon. I’ve never resented my ostomy because it’s the reason I’m alive. But at my age, it was so hard. I spent 5 weeks in the hospital and another 2 weeks in a skilled nursing center to learn how to take care of myself again. I was so weak after being sick for so long and having to recover from surgery that I couldn’t even stand by myself. I had to relearn how to walk and move again. There were definitely times I didn’t think I was h going to ever going to be able to do this on my own. My husband was my strength, my support and my advocate ( like Zak is for you). The really bizarre thing is that I found your channel purely by accident right before I got sick. I was researching my symptoms and saw one of your videos on IBD and ileostomies! I didn’t even know what that was before! It was a video where you showed your stoma and your pouch. I remember thinking how interesting it was but never in a million years thought it would ever apply to me! The first thing I did when I got home from the hospital and rehab was to find your channel. I think I’ve watched every single video you’ve made and it gave me my hope back. 98% of what I’ve learned about having an ileostomy I’ve learned from you - not a stoma nurse or any of my doctors. So thank you, thank you, thank you for helping me get my life back. 11 months later I feel great and I feel like a pro! My husband and I celebrated our 50th wedding anniversary in March and you are one of the reasons I got to experience that with such confidence. Your channel means the world to me. ❤❤
I am a very new ileostomy patient. I have to teach others all the time about my new needs at work, but it has been a nice way to find those who have been through similar.
I have been a colostomy user for almost 7 months and it was unexpected. I woke up from a "debunking" surgery (ovarian)and learned the cancer had knotted my colon. They removed 3 feet. Things have healed well and most of the times I can usually make 5 days between changes. But lately I have had to change every couple of days due to leaks. These quick changes hurt a lot when trying to take off the old appliance and strips. We've been using the wipes but just ordered some of the spray to see if that helps. I have really appreciated your videos and I have found them encouraging as I head back to work in August (teacher). Thank you for making these and being blunt and precise.
I started watching you for your feeding tube videos when I was facing the decision of getting a tube placed surgically in my abdomen. Now 4 years later, I have a feeding tube and recently diagnosed with global GI dysmotility. And now I am facing the decision of getting an ileostomy or not. This would join the feeding tube on my abdomen, and I will admit my emotions are a mess. Your videos are very inspiring and helpful. Thank you for all you do.
If you do move forward with an ostomy, we hope everything goes smoothly and hope we can be a resource for information! I know going forward with any type of surgery can be quite a stressful decision to make!
Maggie, I like you can’t wear the Coloplast system . After many tries I realized I am allergic to the adhesive they use. I am best with Hollister.
❤️🙏🌞😎😊👍⭐🌸