the diabetes burnout is real | type 1 diabetes day in the life
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- čas přidán 27. 08. 2024
- Hello friends! In today's "day in my life with type 1 diabetes vlog" I take you along on a summer day in my life! I also talk about my recent experience with diabetes burnout, device fatigue, feeling tethered, and not being motivated to take care of myself. If you are experiencing diabetes burnout, it is important you talk to someone about it - a family member, friend, a health care professional on your diabetes care team etc. Never keep it to yourself and suffer alone.
Thanks for watching ❤️
Thanks to Penguin Cooling Case for sponsoring this vlog!
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My Dexcom tapes are from pimpmydiabetes... :)
music: www.epidemicsound.com
This makes me feel less alone. I’ve been finding it difficult lately. Thanks so much Michelle. I love your videos, hope you’re all well 💕
Aww I'm so glad that this video is a comfort. I was hesitant to post about my burnout. Sending you love ❤️
As you know, I am on year 63 with type 1. The fact that you are aware of BURNOUT is a very good thing. I never would admit it to anyone. So, as a result, I would develop periods of time where I was captured by both depression and anxiety. Since I was 8, I never wanted to share the endless trials of type 1 with anyone. I recently learned from a therapist, specializing in chronic disease depression, that by not sharing the burnout, many type 1s will try and fight the burnout by attempting perfect control. As you know, there is no such thing. After a while, the need to achieve perfect control can spread from the diabetes to other parts of your life, such as a relationship or job. I remember my late wife asking on occasion, “Doug? Why are you being so controlling?” What the therapist told me was so relieving. Now, after all these years, I talk with others about my type 1 and how burnout is another difficult part of it.
I got off the pump 3 years ago but, from watching your videos, I am now on the Tandem IQ. Still having infusion set problems but….if you can do the steel ones, so can I. THANK YOU…
I’ve posted here before that I’ve had Type1 for 55 years so I hear you on burnout. Yesterday I worked in the yard and forgot to do a temp bolus. Once I did that my sugars were already crashing badly. It’s that kind of thing that frustrates me. It doesn’t seem like you’re getting as much exercise as you are until BOOM. Then your Dexcom screams at you forever! I can laugh about it today but I was so frustrated yesterday. Always good to see you Michelle!
Oh that is very frustrating! One blood sugar crash like that can absolutely ruin your day! And nobody understands it unless they have experienced it themselves. Thanks for sharing ❤️
Yep, type 1 going on 28yrs now. Was in Spain for a week’s holiday and had one of the scariest hypos while taking an easy walk around the shops with my wife. It was around 24dgs and I still had 4 units on board. There was plenty of shops around me so my wife grabbed me a packet of sugary Haribo strawberries (the marshmallow kind) and I sat there scoffing the entire bag just praying my levels would come up quickly. I was trying to remain calm, mainly so my wife didn’t panic, but I felt like I was going to collapse. After my bloods came up I just felt like crying. I was exhausted and felt like I ruined the evening as we just headed back to the hotel.
THATS SCARY - glad you are okay. My brother went to Spain..on the first day in Spain he got food poisoning- he ended in the whole vacation in the hospital until the day before he had to leave..
@@rhdtv2002 oh man that’s scary too! There’s always the fear that will happen. Hopefully he is much better now!
this made me teary eyed cuz we spend of much of our energy making sure ppl around us are calm while were very fastly dying. sorry you had to go thru that
@@Surprisebaby I’m glad you understand! It’s a horrible situation to be in and one that often leaves me feeling guilty. I hate when I have an unnecessary attitude also when I’m low and tend to take it out on my wife by snapping at her. Invisible illnesses are the worst! xx
So sorry you’re going through a burnout phase. And as I watch that portion, it was like I finally figured out my “ugh” with health. I often defend that Type I “isn’t that bad” or that since I’ve had it for 27 years, it’s really “all I know by now”.
I’ve been in a slump. Thank you for shedding some light and opening up so we can realize it is okay to acknowledge that diabetes is a hard condition to live with and that it’s okay it’s hard. You and your family are beautiful!
I'm a mom as well. It's a lot dealing with kids , home life and diabetes. You are not alone in wanting to ride at 14ml all day. There have been days when I have done it and I have felt awful afterwards. Its great having people there to talk to about the fatigue of managing this disease every day and so important for your mental health as it really does affect our mental health. Thanks for this video!
This is great, thank you! I'm T1D for 49+ years & only started on pump 9 months ago, It does cause burnout because of all the beeping etc and struggles with failed infusion sites which are exasperating to say the least. My husband actually gets high anxiety over my pump, pretty much hits the ceiling everytime he sees it in my hands. This of course adds to my stress & burnout feelings, but determined to make it work because just as you say, the ability to stay in range most of the time is so much easier to achieve vs injections.
On the best days, I feel like an astronaut! Carrying my life support, doing All The Things. And...it's true, in the very best way. I am living an amazing life, and the pump made my dawn phenomenon just a bad memory. The technology is amazing and wonderful, and I'm grateful that I have access to it. But on the worst days, one beep and I feel like I'll never get it right...this despite more than 15 years of A1c down around 6. Burnout is real, and thank you all for sharing. I don't feel so alone.
I've had T1D for 23 years and pre-pregnancy- I've been feeling really discouraged with my BGs and definitely treading the burnout waters. Thanks so much for keeping things in perspective! We do the best we can every day
Thanks for the video Michelle! It definitely helps me knowing that others also have similar rough times like what I've been going through the past while. The nice thing for me is that while I'm at work, my sugars seem to stay stable and in range mostly and it's busy enough that I don't think about diabetes much.
Hello Michelle. Diabetes is tough sometimes. In the month of May I experienced something very similar to what you described when you called 911 (I am on pens). The problem was that it happened very often to the point of not allowing me to have a normal life. I was always scared of leaving the house. Things improved, but I feel very uncomfortable with this condition once in a while. T think most people around us have no idea of how we feel sometimes and how exhausting this can be. I like your channel because it makes me feel more connected. All the best!
Your videos are great to watch. They are so honest and real. Thank you for sharing with us! 😊😊
Another great vlogg have diabetes for 37 years and there are days when I really struggle especially with burning out
You are Absolutely Right Michelle! I Myself Experienced Diabetes Burnout!! Hope You And Your Family Is Doing Well!!❤️🥰 Lots Of Love From India!❤️
Thank you so much ❤️❤️❤️
@@MichelleLord ❤️
thanks for the video im a mom of a 20 year old with developmental delays he is type one on dexcom and tslim and even I feel like I get burnt out and Im not even the one fighting this disease. i have found your videos so helpful in just understanding how he might be feeling
Im so happy im not the only one going through it..i have just become a teenager on 1stmay 2022 (this year) and im already feeling so down and unmotivated despite being diabetic for past 6 years i have no motivation to manage my health..But after seeing so many vedios on yt regarding this issue i feel less lonely
Thank you Michelle for sharing your experience with diabetes burnout. I too experience it from time to time but just like anything else it passes and I just move on and look at the bright side of having an insulin pump to help me keep my blood sugars under control. Thank you for your Vlog as it has been most helpful to me in this diabetes journal.
Love when you upload😍thank you for being so real❤️
Thank you Maya ❤️❤️❤️
The Omnipod 5 has been a game changer for my burn out! It has Control IQ, but it's tubeless, so I don't feel "connected" to a device. I decorate my pods to make them an accessory to match my outfits.
This is great to know! Thanks so much :)
Yes game changer. My wife 1 month omnipod 5. Please look into this! Thanks for your important honesty.
Thank you Michelle have a wonderful weekend
Thank you! You too!
You’ve been a good example of vigilance to keep your glucose levels in range, so it is understandable to feel burn out. Thanks for providing us good examples of good habits. Most of my T1D life I have not dealt with it responsibly (avoidance is not a healthy approach). I am very grateful for T-Slim because I am now in range most of the time, even when I forget to bolus. However, in recent months I have been much more responsive to my pump alarms and to bolus when I eat (my pre-meal bolusing needs to improve still). At some point a few months ago I determined to take care of problems immediately to avoid unnecessary highs. I finally recognized that being lazy didn’t avoid anything. If I wait until it’s “more convenient” (and it’s never convenient) then I am only hurting myself and delaying the solution (changing the cartridge, charging the pump, etc.) only means that I am going to feel bad and damage my body while I finally get around to addressing the pump issue. It was a very immature approach. It’s like exercise, or fixing the leak, or washing the dish, etc., “just do it now!”
Im also 20 years in now. Very relatable, not the french braids, but more the diabetes burnout 😅 thanks for a great video and channel
Totally understand what you mean! Some days my diabetes is very well behaved but other days when it's not it just filters into everything else I'm doing. It always feels like I have a second full time job! The only pump I have been on is the omnipod but I have to say I prefer it as it doesn't really feel like you're attached and the site changes are so quick and easy compared to seeing the tubed site changes. Not sure if Omnipod 5 is available to you there yet but maybe something that may interest you? :) Love your videos xx
I can’t imagine life without my pump. I’m always extremely sick in the hospital with the way diabetes has affected me. Sometimes I forget I’m following you and your journey and need to remember why I did in the first place. If you’re able to share your experience like this, you’d probably cry at the past 2 years of my life with how sick I’ve been. Here’s to being more proactive and healthier with my journey.
Thk u so much. I am depressed about my blood sugar measurements they are worse than urs.
Awesome hint the cooling pen case . Pls keep up sharing. Makes me feel not being a total goof. 😇
Type 1 diabetes is like running a marathon every day.
100% !!
Such a beautiful family, blessed all.. I'm diabetic, use dexcom g6 and omnipod 5 love it. Faithful and stay safe.
I'm always happy to see you
Last time when i didn't stick it right away i lost a sensor
Thanks for sharing! I just got the new Dexcom g6 or I guess not so new now and while I am still extremely excited I am feeling major diabetes burnout! My blood sugars have always been all over the place but now it is really noticeable since I have something yelling at me all the time hoping to get the Omni pod 5 soon so I can get some better control! ( still on injections!)
I'm sooo glad I'm not the only one/mom that has T1D and gets overwhelmed and burned out ! I just found your page and I love this first blog I watched . My sugars sometimes go up to 400 ! 😢 I also have fibromyalgia . I dont have a insulin pump just the Dexcom G6 its about to be 3 years and I'm still not controlled ! Can u give me ideas of things I can eat that arent nasty I'm so picky
No flintch on the Dexcom application is crazy !! It hurts me sooo bad I literally cry 🤣🤣🤣🤣🤣🤣
I’m really intrigued with the penguin case. Do you feel confident using it again? We are going to a theme park soon, and it’s going to be hotttt!!
Thank you so much for this video ♥️ I’m currently experiencing this now. I was recently also diagnosed with narcolepsy and lupus so I’m kind of just over it all. I hope you start feeling better again soon 🥰
Just being real! Many Thanks!
My body does not handle the shots/pens well at all. I don’t know why but I have basically ZERO control when I’m not on a pump. But I am definitely going through my pump burnout. I absolutely LOVE my tslim but my burnout is the tubing. My 19 month old likes to pull on my tube and almost rip it out, I keep getting my tubing caught on things, last night it was the rack in my dishwasher 🤦🏻♀️😭 or my pump just keep falling out of a pocket or my pants. I’m just struggling but then my site aches. I wish I could have like a month of omnipods to just have a break from the tube.
Hi Michelle I'm sorry that you had a diabetes burnout
Thanks Kristal! I hope you are well ❤️
My sis has the same pump as you, I have the omnipod it’s much easier but yes I sometimes get tired of it but too keep me alive I’ll do it
You are very inspiring. Do you have any tips for teens with diabetes?
Thank you ❤️! My biggest tip for a teen with diabetes (if I were to give one tip to my teenage-self at least) would be: don't be embarrassed about having diabetes, be open about it, and find a friend group that supports you. I tried to hide my diabetes in the 9th grade because I was at a new school and didn't want my new friends to know. Once I found a supportive friend group and was more open about my diabetes, I was happier and more well-managed. I hope that's somewhat helpful 😛
Thanks so much 😘
you're welcome 🥰
How do you get it off so easily? When I take mine off it always leaves sticky residue 😭
What about switching to a different type of pump? Like the Omnipod. It might give you a different type of a break.
That's a good idea! However, I tried the Omnipod a couple years ago and didn't like it. Too bad there aren't many tubeless options.
@@MichelleLord Agree. I wish there were more different types of pumps in the tubeless design.
I’m type 2, insulin dependent and on a pump. I get burned out too. I’m on the same pump as you.
Im 15, and lately ive been worried that my body needs so much insulin, like per day i take roughly 30 units basel and 20-30 units bolus. I do eat quite well but im comcerned that i need so much like my carb ratios can be at 1 unit to 4g at certain times of day. Im not sure if this bad because ive heard taking insulin can make you gain weight or at least make losing it very hard. Any tips?
Hey, I'm 16 and I take almost the same amount of insulin as you have writen, so I wouldn't be worried but you can always consultate with your doctor
@@margoziopliuke1115 thank you 😊
Hello Cassia! I was in need of a lot of insulin as well while pregnant because it makes you more resistant to insulin. So, at the time applying 17 units was a normal thing to me. I have type 1 diabetes for about 13 years now and over time I have noticed that the amount required has fluctuations for me. If you are in range with that amount of insulin, you are probably applying the right amount. Everyone is different when managing diabetes and insulin ratios. I have never heard anything about weight and insulin. I think these concerns should be addressed to your health care team especially if you are concerned about ratios ( that are so important to keep us controlled). All the best!
@@DB-nb7kx thank you that was very helpful 😀
💙
I hated tubed pumps. I discovered Omnipod and I like pumps again. Will only go tube free
And they don't have a version of the Penguin for a bottle of insulin?
It is difficult as a non diabetic to give advice but you might be interested in listening to Cyrus Khambatta and Robby Barbaro. They teach all the time how to reduce your insulin use for type 1 diabetics. Cyrus is a biochemist and a doctor of biochemistry.
Hi, do you know how long it usually takes for fasting blood glucose test results to come out
hi I'm new viewer and maybe the Omnipod could help with your pump
I don’t know what I would have done without your help. Thank you so much for curing my type 2 Diabetes with your herbs Dr Igudia
I mistakenly posted my comment about your latest video (Burn Out) on your recent holiday video. I hope you read it:)