Daniel's Severe Chronic Fatigue Syndrome (ME/CFS) Full Recovery Story!
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- čas přidán 23. 07. 2024
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In this video, Daniel shares his inspiring and insightful journey of going from being bedridden with chronic fatigue syndrome (ME/CFS) to thriving and living a full life! Although Daniel still has to take care of himself to prevent symptoms from returning, as long as he sticks to his self-care regimen he has his full health and is thankfully doing great.
HOW TO REACH DANIEL VAN LOOSBROEK:
Website - www.danielvanloosbroek.com/
CZcams - / @releasecfs
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TIMESTAMPS:
00:00 Daniel’s life before ME/CFS
05:26 Daniel’s illness onset & progression
08:42 Daniel’s denial
09:28 Daniel’s emotional healing journey
11:36 Why Daniel didn’t pursue the traditional pharmaceutical approach
13:05 What Daniel’s illness looked like at it’s worst
15:42 The turning point for recovery
22:20 Daniel’s test to see if ME/CFS could come back
24:27 Daniel’s journaling practice that helped his recovery
27:39 The other aspects of Daniel’s recovery journey
30:47 How this health journey has changed Daniel
33:49 Daniel’s current work supporting those facing chronic illness
38:44 How to get in touch with Daniel
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NOTE: This description may contain affiliate links to products I enjoy using myself. As an Amazon Associate, I earn from qualifying purchases. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support!
REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #mecfs #merecovery
“Thank you” doesn’t begin to describe it. Your channel is like medicine to me. Especially Daniel’s story of what happened before his CFS kicked in has an almost eerie overlap with my story. Thank you!
Damir, I'm so moved to hear the channel has impacted you in this way! Knowing these stories provide comfort and hope makes my long work hours incredibly worthwhile. Thank you so much! ❤️
Daniel's journey is so insightful, isn't it? I'm so glad it deeply resonated with you and that you found it useful. While not all recovery stories will strike a chord, finding one that aligns with your experience can be extremely empowering. 💪 🌟 Much love and plenty of brighter days ahead!
@@RaelanAgle definitely hit the bullseye for me with this one! Daniel seems very accepting of his limitations, especially at his lowes point when he stopped working altogether. Seems like money isn't a major worry for him, or he comes across that way. I'd be curious to ask him, for the rest of us who have bills to pay, how he'd manage being dealt a hand of cards where he wouldn't be able to go fly to a tropical place without income coming in?
Reason I ask is because I've spent some of the best years of my life in the tropics and would be keen to head out again, but first working on my ability to work some 15h per week. Currently sitting at 10h per week.
Does he live frugally? Is there so much money in the bank that he's set for life? I understand it's a bit of a sensitive topic, but finances are a huge factor in recovery. Rather the stress of finances and worrying about if there will be enough money coming in.
I'm personally in an okayish situation, but there may be listeners from parts of the world where social security doesn't even exist, nor universal healthcare, so I'd be curious to hear what he would have to say on that topic. What if we didn't have the position of privilege we're in?
And the answer may be "I don't know what I'd do", and that's fine.
People who recovered from CFS have become my inspiration. Their testimonies are now my medicine. 😊
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What an incredible human Daniel is offering free recovery service on his website. That to me is someone that must have truly suffered and wanted to give back. Nothing but respect mate. Long may your good health continue
So glad you enjoyed this, David!
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not free
Niet zo gratis (meer?). Ik snap het wel. Maar heb niet zoveel money..
I have recovered about 80 % from this illness. I just started looking at other peoples stories. I would love to share mine. Most of the things that i did were instinctual and others fueled by the knowledge i had about the power of the mind, my faith in a higher power and faith in myself as well, better nutrition ect. I have severe childhood trauma and i have come to learn that is also a factor. I am on a mission to help others and continue to learn more. We are the self healers 💙 much love and much encouragement to those currently suffering with this debilitating illness. You CAN get better, yes you can.
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How are you now?
“I’ve always chased happiness until I realized I didn’t need to do anything for it” 🤯🤯🤯
Irene lyon the trauma specialist talks about titration , processing trauma in a regulated way , gradually. Trapped trauma is definitely part of the puzzle. This is a kind of spiritual breakthrough that started daniel's recovery. Dan neuffer said often people who recover reach a lowest point before breakthrough. Fantastic guy, so pleased for him and wish him all the best.
So interesting, thanks for sharing Dom!
Thanks guys, I’m broke and in a lot of pain, there’s a place in heaven for you both! Hats off to you both, it’s a pity that some others who have suffered and recovered,and appeared for free on Raelens show ,then on that premise ,start there own recovery programmes,for ridiculous prices .I.e Jason ! Dan Nueffer’s price is fair,for the broke suffering,cfs health prices are a complete rip off, but raelen and Daniel,you both come from such a deep ,loving place.!Thank you both for your love, and the example you set!!
As i am healing; i am seeing that this comes from childhood as well. So much of Daniel's story resonates with me.
It's great you have those insights, Sunny ❤️
Dude the depth this guy is going too is insane, 🎉 I’m so happy to find the video, I’m currently really going through some wicked things and this video gives me hope
I have been diagnosed with me/cfs in January this year after 10 years of suffering and no help. I'm so new to the recovery and just today thought I'll have a look what's out there on CZcams. I came across two videos which one was incredibly vague story and promoting someone's miraculous program, another one was promoting cooking book of someone that has recovered by healthy eating and third was this video. I'm yet to discover what this channel is to offer but I soaked every word Daniel was saying and your questions were spot on. At no point I felt like this could be a rehearsed conversation or, that anyone was trying to sell me something. Daniel has said few interesting things which I have already thought myself like I possibly was already on the way to develope cfs when I was a child. Those thoughts came through my head a while ago. There is so much for me to discover but I truly hope that those who say I can't recover after such long time and should get myself disabled badge for my car, are wrong.
15:53 „I’ve learned to live without thoughts because it wasn‘t useful“. I can totally relate to this and think it is key advice when trying to recover from ME/ CFS. Just surrendering to whatever appears in consciousness and not engaging with it at all. If there is a piercing headache, so what, I will not comment or get worried about it. Just let it be and accept it. Once we stop caring about the pain and don’t identify with it, we’re not afraid anymore, which will reduce any stress on the nervous system. Eventually the nervous system will stop triggering immune responses because it will realize there is no danger, no threat to us. Really great interview, thank you both 🙏
I'm so glad that you found it helpful, Dom! 🌟
I like this recovery story haha. Thanks Raelan!
Me toooooo!!!! ❤️
This is what I think is the key its has to be mostly emotional work / trauma work at the core. I have been diving deep into healing my emotional and childhood wounds. This is really overlooked by doctors they look at diet, vitamins, drugs, ect. I think its the first step!! But it's the hardest nobody wants to do this.
Check out Dr. John Sarno's books (that Daniel mentioned) and tmswiki.org
@@evelinel.9827 Thank you!
@@evonne315 Here is another TMS resource you may find helpful, mytmsjourney.com/. Also check out SIRPA Uk, Jim the Pain PT (on youtube) the Curable App. I am 95% recovered from severe Fibro, CFS, and POTs, and It was the TMS mindbody info, Emotional work (including learning how to feel anger, something I was disassociated from), mindfulness, deep breathing, building up exercise starting at 3 minutes slowly over time, and spending lots of time with the Three Principles. John El Mokadem's recovery story after 7 years of CFS showed me the imporantance of not worrying about/thinking the symptoms. breakthroughthat.com/videos-podcasts/. I did do DNRS for 4 months and did improve during that time, but found the rounds really hard to do after awhile. It has taken me a couple of years, but so worth it! Getting out of symptom thoughts and worries and other worries and being confident you are ok and nothing is wrong aside from the stress response is so important!!! I wish you the best!!!
Great point ❤️❤️❤️
Thank you both so much for this interview, it really spoke to me as I've found emotional healing to be the main aspect of my healing journey so far. I've realised it helps for me to think of myself as a piece of clay on a pottery wheel (bare with me here 😂). If the clay is not centred, it wobbles. When you try to build it up, it will get more and more unsteady until it collapses. This is how I felt before I got sick. I was always off centre, trying to please other people rather than myself, with other people's expectations pulling me in different directions and causing my emotions and health to be all over the place. I can now feel myself becoming more and more centred, being content with who I am in this moment. The more centred I become, the easier it is to stay steady and peaceful as I build myself up
This is beautiful. But what a funny analogy in the beginning.
Hannah, this is amazing!!! I'm so happy to hear about all the progress that you've made. Great work!
@@RaelanAgle thank you so much 😊
Love this 🤍
Dude! Daniel I'm so happy to see you here 😘
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Genius - to force yourself into the crash so we can demonstrate what causes a crash and the safety of it all! Thank you for an amazing podcast
So unique, right? Amazing.
That was such an interesting recovery story! Always love hearing severe one's, because they are much more my experience of ME, but Daniel was really good. The stuff about no thoughts struck a big cord with me, my mind is always going a hundred miles an hour, definitely going to put some focus on changing that.
Glad you found it helpful, Kate ❤️
amazing interview! I could not help but think of Eckhart Tolle. I will listen to his message over and over, powerful and simple and moving!!!!
Thank you, Suzanne! 💓💓💓
This video truly resonated with me. Powerful message, Daniel! Looking forward to seeing what surprises you have in store for us in the future, Raelan! Thanks for sharing all these wonderful online resources with us. One doesn't have to feel so alone on this journey. I love all the love this channel offers!!!!🥰
Thank you, Bobbie! That is so nice to hear and so kind of you to say ❤️
This guy is literally a hidden gem! I don't know how you found him but thanks for this great interview. He is going to have a huge success as a coach.
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What a beautiful soul 💖 I found the bit about the crash actually very reassuring...that you can get out of it very quickly as you've learnt what you need to do. I am finding that too!! 🙏 thank you 😊
It is reassuring isn't it, Keren? ❤️ Thanks for watching!
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I tried the beach in Mexico to heal. Didn’t help fatigue but I seem to sleep better there
This was very spiritual Daniel, I love your approach. Thank you so much for all of your hard work sharing this Daniel, you look like such a compassionate human being. And I'm so grateful to you too Raelan, your full recovery interviews have helped me so much. All my love to you two :)
I'm so happy to hear, Sophie, that you've found this channel helpful! Thanks for taking the time to share that ❤️
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@@RaelanAgle what is he talking about low dose medicine that hurt him…
Daniel you’re such an inspiration! This illness is a true wake up call to becoming true to yourself! ❤️ I’m a new person now
So glad to hear that, Irene ❤️
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So relate to this. I had a similar turning point where I gave up everything I wanted to be and just allowed myself to be sick. That brought my body into the healing state. Still healing!
How is the journey?
Thanks for asking. No symptoms now for four weeks and the nervous system is regulating beautifully. Not sure if I'm quite out of the woods yet but the change is very palpable. @@santeenl
@@michaeldonohue-ju6hm Very nice, what did you use to heal?
For me, it was about regulating the nervous system. Once I moved from fight/flight into the rest/digest mode, the healing took on a life of its own. I use meditation, deep breathing, brain re-training and yoga to keep the nervous system regulated.
@@santeenl
@@michaeldonohue-ju6hmI see, thanks!
Wow… that happened to me exactly with ecstasy.. I was anxious, fatigued, brain fog and it just got worse and worse.. then it devolped into other illness.. now I know about how to heal emotionally and physically… I’m slowly recovering and doing the work!
Thanks for sharing ur story.
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Thanks! Please book Daniel again! I’ll have to check out his program. I’d like to hear more though about how he managed when he was really ill, and more details on the recovery step by step.
I'd LOVE to have him back!! I'll see what I can do ;)
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Loved this! I especially love when his authenticity about crashes. If we go back to that destructive path in the past that brought about chronic illness, we will end up there again. And the truth about crashes is they happen with life, Bc it’s not smooth sailing all the time, but once you have the tools, you KNOW you can get through it. I also LOVED dr Sarno and TMS, and journaling is a huge part of my own healing journey and my coaching. Excellent interview!!! Thank you both!
Very well said! I'm so glad you enjoyed this ❤️
I am so happy to have found you, Raelan! Not only does your perspective and insight help me to find hope but you are creating a wonderful network of wisdom that so many can benefit from. When I watch your videos I look for guidance and ideas and today I received a confirmation to an insight that has been forming inside my head through meditation: that I have to let go of the old me and of everything I thought I needed to be. This is so difficult but listenig to Daniel it seems to be the only way to really get better. Thank you so much for the work you do, Realan. Please take good care of yourself. A big hug from a Chilean living in Germany.
I'm so happy to hear that you've found this channel helpful! Thanks for taking the time to share that ❤️
Thank you so much for offering your program for free. That really shows how a beautiful soul you are. I wish you a healthy and amazing life.
I completely agree, Mia. I'm very grateful that Daniel is here and provides such great support ❤️
Fantastic interview!
What an amazing man I will definitely do the course when the time is right for me. Daniel thank you for helping those of us who have limited funds. Stay safe and well
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Love this. This is my favourite recovery story
Wow what a fantastic interview! And Daniel, if you’re reading this, know that you seem like such a nice guy, and that I am crazy grateful that you offer free resources (still waiting to hopefully receive disability benefits). I’m heading to your website right now!
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Wonderful insights--thank you! I was glad to see Daniel mentioned Dan Neuffer--I am currently doing his program and it is SO helpful... Just calming our frantic nervous system is the key--the techniques for doing that may vary, but that is the key...thanks again!💖🙏🏽
Great tip Karen, thanks for sharing!
I appreciate both of you.
Wonderful! Thank you both so very much 💖🙏💖
Part of the silver lining of CFS is that it gives one more time for introspection, as Daniel well described. I too threw in the towel on life and the emotional relief of that does help, but it is not a cure, it is usually done at the point when there is no other choice. I lived in Holland once and it is good to hear a Dutchman's take on this mysterious and serious condition. Dutch have a lot of energy so you know it's serious when they get it.
8:00 - 8:32 this is happening to me!! The brain fog, forgetting how to get home, not able to work fulk time anymore, or if I do, I then have to call in 2-3 days the next week while I do nothing but sleep!
My doc sent me to a neurologist to see if I had a stroke because my left eye and cheek droop, but they found nothing.
They sent me to some specialist that checked my memory and IQ, they said I was normal and suspected severe depression...
I absolutely do have bouts of depression, but it's typically brought on Because I'm so tired and can't aeem to get anything done...
Surprisingly, I too tried ecstasy in my late 20's. I took it a handful of times over a year. I've heard that's a no-no. But I sure didn't hear that back then.
I'm now 40 and I really really struggle. I have to work, having 4 kids at home.
But I can't do anything strenuous, and even though I don't- I pretty much sleep my life away when I'm not at work!
My husband is the one who told me about CFS. Do I juat go to my doc and say "I think I have chronic fatigue syndrome?"
Thank you so much ❤
Wonderful!! simple and bright. thank you
" i found a connection with myself" so true! Great interview
I appreciate that so much, Kathy! Thank you ❤️
I love love love you are giving your program free. I’ll defiantly do it
Thank you so much Raelan for interviewing Daniel! His story, and feelings resonated with me more than anything else I’ve come across! I feel like this could be a turning point in my mindset, in the many years of struggling with CFS, and of crashes, hopefully this will help with my recovery!
I'm so happy to hear that you've found this video helpful! ❤️
Thank you Daniel for being so honest. Your story is fascinating and so relatable ❤️
I am very grateful to have found your channel. I am a mental health therapist and so much of what he's saying not only resonates with me but can help my clients as well. Thank you!
Thank you so much Daniel you are a hero!!!
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Thank you!
Just wanted to say thank you both I just listened to the interview now now got new way of watching on your channel massive thank you for every thing you do
Thank you so much, Terry 💓💓💓
It sounds like he was like awakened! Amazing story!
Thank you for this intervue🙏❤️ I was so related on some aspects of Daniel’s journey that I was just laughing on myself and us as people - a very healthy experience on my recovering journey. 🌈😄💚 Thank you Daniel for sharing and Raelan for make it possible❤️🧚♀️
So inspiring!
Thank you, Corien! ❤️❤️❤️
Love this thank you , certainly will be looking at Daniels web site
A wonderful interview, the words he spoke definitely resonated, brought me to tears. Good tears.....a feeling of release.
That is wonderful to hear ❤️
Wow, what a story. Glad you’ve recovered 🙏 Your experience with low-dose Naltrexone is interesting, that was quite a reaction 😞
Thank you Raelan for having this awesome interview. I subscribed to Daniel’s channel as well. You guys deserve way more subscribers than this. You are all doing an amazing job ❤️
Thank you, Mia! That is so nice to hear and so kind of you to say ❤️
Wow, I wish I had found his program before buying one just the other day :p Thanks to both of you!
I'm so happy to hear, Jonathan, that you've found this channel helpful! Thanks for taking the time to share that ❤️
Raelan, thank you for everything you've shared on your channel. It has brought so much positivity and hope in my family! Keep spreading the messages! Much love ❤️
Thank you so much, Ina! I certainly will. Regards to your family!💓
Wow - love this guy. Great perspectives (he's quite cute too 😉). Thanks as always, Raelan!
Glad you like it, Ryan! 💓
Thank you thank you Raelan for making these videos. Daniël, ik haal hier zo veel uit. Ik kan het niet onder woorden brengen hoe dankbaar ik ben voor je verhaal.
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Very interesting Interview with this young man. His TURNING POINT was to stop thinking and thoughts. Because this costet so much Energy. His is so right. Thank you. I have to work on myself.
This was unbelievably inspiring!! Thanks so much for sharing your story and to you Raelan for offering such a life line for so many people.
You are so welcome! ❤️❤️❤️
Thanks!
Thank you, Geoffrey 💛
I heard about this interview in the comments on one of your other wonderful interviews - so glad I found it - definitely will be checking out Daniel's work, what a fantastic human!
Wonderful! Daniel is a fantastic human, isn't he? You're in for a treat diving into his work. 😊
Thank you dears! this conversation resonates with me, and it touches me deeply that you share with us. Both of you are some of few ppl on social media who I listen to regularly. I find you both authentic and grounded, still curious and open. Thanks from my heart and love to you from Oslo.
I'm so happy to hear, Johanne, that you've found this channel helpful! Thank you ❤️
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This interview is so so good! Incredibly inspiring. Thank you, Raelan and Daniel.
I appreciate that so much, Marilyn! Thank you ❤️
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Unbelievable 😂 this interview is 🥇
What a great guy. Inspirational.
Agreed!
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Awesome!
Loved, loved, loved this interview and it really resonated with me! Thanks to both of you for all the time you are putting into helping others. So happy for you Daniel that you are living a good life and have found your true self. Did you use any method to "live without thoughts" ? I am trying more open awareness Mindfulness practices and trying to learn from Loche Kelly's effortless Mindfulness and but it is not easy!!
Xx
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Hi Elin! So nice to hear from you! 💛 And I'd love to hear more about this as well!
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Favorite interview so far!
Thank you, Melissa! ❤️❤️❤️
❤️
TIMESTAMPS:
00:00 Daniel’s life before ME/CFS
05:26 Daniel’s illness onset & progression
08:42 Daniel’s denial
09:28 Daniel’s emotional healing journey
11:36 Why Daniel didn’t pursue the traditional pharmaceutical approach
13:05 What Daniel’s illness looked like at it’s worst
15:42 The turning point for recovery
22:20 Daniel’s test to see if ME/CFS could come back
24:27 Daniel’s journaling practice that helped his recovery
27:39 The other aspects of Daniel’s recovery journey
30:47 How this health journey has changed Daniel
33:49 Daniel’s current work supporting those facing chronic illness
38:44 How to get in touch with Daniel
Thank you ♡
Thank you for this amazing gift Daniel!
@@patrickhall7884 🤗👍
@@releasecfs THANK you so much for offering your program for free. I’m hoping Raelan can have you on again to get the word out. Not many suffering can afford $2k-$4k programs. I started your program and love all your knowledge! Your coaching prices are very reasonable as well. Thank you, thank you!!!
@@Conquerchronicillness thank you Michelle 🙏. Let's hope you can make some progress and use the tools in your daily life to regain some life quality. Yes I agree, it's an unusual approach that I am taking, I could have been rich, but I don't like the marketing process and I think it should be available for everyone. People in poorer countries also need tools.
Mind can move the mountains. I had goosebumps when he said that he just let go. ❤
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Sounds amazing🥰
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Thanks Raelan and Daniel, The key here (to me) is we're all so driven & putting so much pressure on ourselves & getting stressed, & lack of proper nutrients in our foods is part of the reason we're so unwell.
Not living in the moment & looking for happiness in the future
was an AHA! Moment for me!
That leaves us fighting the present and trying to take flight to our future "happy selves"!
W♡W!
A LOT of Nuggets here & much appreciated!
I still look forward to sitting on that tropical beach though.
I'll just have to close my eyes for now & dream about it:)
Thanks again!
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Daniel you have a calming presence! Thanks for sharing. Please if you have any wisdom to share about how to sit WITHOUT thoughts let us know or let us know where on your website you talk about this.
Thank you 🤗 A subject like this is better for a coaching session I believe. In the Alignment Recovery Program, the 4th module is about this, but I can't give it to everyone as I need people to see it for themselves. Instead I give subtle hints.
Joe Dispenza has so many amazing books and amazing meditations, all worth reading and doing for healing!
Amazing! Thanks for sharing this 💓
Thank you so much Raelan! You have such an open, lovely, smart personalality ❤️ Dankjewel Daniel!!! Ik ga zeker op je website kijken. Ongelooflijk dat jij deze belangrijke hulp voor iedereen toegankelijk maakt 🙏❤️ love l, happiness and heath, Janna
Sending hugs to you ❤️
@@RaelanAgle 🥰
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Much thanks Daniel! 🤍
Great work Raelan, putting all this together! 🤍
The reasons for onset will be different.
So will be the symptoms.
There is no need to disagree or challenge one's journey or story, if I may humbly request.
Listening to more and more recovery-stories like this will give more insights into possible triggers and symptoms.
More importantly, a list of 'To Dos' can be put together, and one can experiment from those and find out what works for him.
It is clear that solutions will also vary from person to person. In such a situation, having more options is definitely a good idea!
Well said, Debottam!
1. Find the happiness and contentment in the present moment. If you're searching for this feeling in the future, let go of that.
2. Take your time with emotional processing.
3. Find a connection with yourself.
4. Write all the things that upset you, aka journalling.
Wow, this could have make the video a lot shorter.
@@releasecfs You need to explain the full story for it to actually sink in for people. However, yes, I realised I get tired when watching CZcams videos, so I always try to help the next person out.
@@releasecfs Did you end up working with someone like Dan Neuffer?
@@tameenasalehi3465 no I haven't. I do like his videos and content though.
@@tameenasalehi3465 I like that. Thank you.
What a nice guy.
So much sense!
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@@RaelanAgle your book is so amazing. I can’t put it down. I relate so much and it’s just brilliant!!! Thankyou so much.
How can I relax when I won't have my basic needs met?
Carotenemia-when your skin changes colour from eating too many carrots (and other foods high in beta-carotene)! My daughter had it. Sounds made up, lol. Again. So interesting the emotional/mental aspect of cfs and how Daniel was forced to 'surrender' and stop fighting before he could start to heal. And as a side note, he's quite a dish, lol. 😁
I tried low dose naltrexone, it did nothing! Your amazing both of you! How amazing to feel that shift after no thoughts , sounds ds like a spiritual awakening!
what a wonderful Man!!!!!
Agree!
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This story resonates with me. The most resonating story i have heard so far. Thank you. My CFS is not as bad, but i worry that if i stop working on myself then my cfs may get much worse. I am on an improving trajectory but i have days or weeks when it gets worse. After hearing this story i feel not so lonely anymore. Thank you.
I'm rooting so much for your recovery, Gabriela ❤️❤️❤️
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How are you now?
Thank you for asking. I am doing well. I have my good routine, and surrounded by kindness.
@@gabrielaczanner2627 may i know what greatly helped you? though i known its different for everyone. I have cfs and i think its not bad a s well but i cant establish a good routine thats where i struggle most
As always, great interview Raelan. It's great to see your channel growing. Daniel seems like a clever and kind man. I did have one question though.
I'm a bit confused when he says he purposely brought on crashes, and then he wanted to do speed skating but it would take him 5 years to get back to that? Have I misunderstood that? Has he reached 100% recovery, where he can exercise and do all of the things that are easy pre-illness?
Hi Alex, glad you enjoyed this! And great question for Daniel 😊
The lakes are frozen once every 5 years on average. I don't see recovery in percentages anymore. If I maintain the level of joy in combination with healthy habits, I can do a lot. If I have stress and an emotionally hard period, I can expect symptoms. This means I'm not afraid any longer, but I see symptoms as feedback. In a relapse, the Stress of the symptoms decreases my immune system and things can go downhill again. It feels like a constant journey of self awareness to me. My stress ability grows, but is not endless.
@@releasecfs ok, thanks Daniel. That makes a lot of sense. Appreciate you!
I love your channel, I’m a 21 year old really struggling with CFS/ME and your page inspires me so much. 🌞💛
I appreciate that so much, Andy! Thank you. And you got this! ❤️
How are you now?
How on earth can you live without thoughts? I can't even manage to meditate without thinking for ten minutes.
I try to meditate daily - but I guess more than 30 seconds without thoughts was never possible. I wonder how Daniel manages 1 hour - just amazing
It's impressive, isn't it! I'd love to learn ❤️
I think he is referring to a distinction of a flowing mind vs a busy mind. I agree that thought is always on as long you are alive, conscious or unconsciously, but in finding out that you are not in control of that, and there is nothing for you to do about what thought is arising is where I find freedom.
Initially it's difficult to be thought-free, or even have lesser thoughts. Rather, the contrary. That is, in the initial stages of meditation thoughts will rush into the mind like a train.
The idea is to not get worried. Just let it happen. Just keep doing the meditation everyday. On a given day, if it becomes too overwhelming, sure you can stop meditating and take a break .. maybe just relax, listen to a song, sit in the garden, or whatever. Just take it easy :-)
But make sure to come back to the meditation the next day again. And keep doing it daily.
With time, you'll learn :-)
Go for easy meditations in the beginning. With time they are sure to work, if done regularly.
:-)
Great habit: when is a rush take a nap! Yes 🙌 Actually when I’m in a rush my body shuts down and makes me take naps - serious! I’m glad my body is taking care of #1 Pacing is the right path with a focus on nurturing the body, on meeting your specific social needs and on self-awareness with ❤ shifting from fear back to 💕 slowly, at its own pace, respecting the inner rhythm
Agree! 💖💖💖
It’s crazy my whole life was trying to impress and set extreme goals etc mixed with off and on extreme anxiety. Now I’m dealing with this but the more I let go the more energy I tend to have.
Ah-maxing story. You let go and got well xxx
Great interview, thank you so much. What is the title of the book are you reading, Raelan, about the guy who fractured his spine in 8 diferent places (at 19:18)? Thanks
Glad you enjoyed it, Gil! The book is called You Are The Placebo by Joe Dispenza :)
Very cool stuff, thanks for sharing guys! Certainly differences in personality between Daniel and I, but I also tended towards the extreme, always trying to do more, going through really, really intense workouts, and after a few years of several attempts of life to wake me up (very challenging events and trauma), I eventually needed something more severe...and for me, the drugs worked a little too good haha. And then I even needed some more pain to eventually "get it" - that I have a mission here, a life to live, gifts that I have to share with the world. I only had the experience of not being able to open my eyes or move or speak twice, but that's certainly a hell of an experience. Still at a pretty bad state and recovering. Just got out of alcohol and cigarette abuse and moderately severe depression. Working on my mental-emotional-spiritual health and my gut while sticking to a healthy and helpful lifestyle for most days, and am very hopeful.
Crazy how much he offers for free on the website, definitely going to invest some time there. This is probably the 3rd or 4th person/resource I see where great and thorough information is shared in a structured way and for free. Love that, very greatful!
Love and strength
So glad you found this helpful, Thomas! And thanks for taking the time to share a bit of your journey.
Low dose naltrexone made me incomprehensibly ill. However, it's worked miraculously well for a dear friend.
LDN works. It's just used wrong by most. Many doctors don't give the correct instructions on how to use it. Dosage is different for everyone. Start low & slow- take before bed. Get it from a compounding pharmacy that was approved by Dr. Bihari. Preservative free is preferred. Too much & too strong will cause terrible nightmares & side effects.
I will add some 'anger journaling' to my writing as I always squash down anger. Anyone want to recommend a journaling prompt for someone who struggles to express their anger?
Check out Dr. John Sarno's books and Nicole Sachs, LSCW who has people journal to relieve themselves of their chronic symptoms, fatigue, pain, etc. She has an active FaceBook group and her podcast is audioboom.com/channels/4976835. There is a book by Dr. Shubiner, "Unlearn Your Pain" that has journal prompts to get out anger, and there is more on tmswiki.org. There is a great book on how important it is to get out repressed anger, "Facing the Fire: Facing and Experiencing Anger Appropriately"
I hear you. I did an excersise from The Crappy Childhood Fairy and then smashed things and rid my house of all my ex's things he got me. I realize how much I was angry at him and also myself for being stuck in 'good girl syndrome' ignoring red flags and letting him get away with stuff. The breakup destroyed me he was a narc and emotionally abused me to get away with so much. Anyways, checkout Crappy Childhood Fairy?
@Heather_Elaina Thank you so much for your lovely reply :)
@@evelinel.9827 Thank you!!
@@evonne315 I found her yesterday :) good recommend - thank you
The part about not knowing how to go home; I was 2 blocks from my home in my truck and I was lost, did not know where I was and could not remember how to turn on my blinker lights to make a turn and I was in a road that I had to make a turn or drive into a side walk. It was at that moment where I decided I could no longer drive. I am not recovered but I am better and can occasionally drive now but I remember that; it was so scary.
Hey Raelan, great video!
I have a very important question. At 14:24, are you sure he is talking about Low Dose Naltrexone and not Low Dose Abilify? I've heard about these big crashes after LDA but not LDN.
I thought it was LDN - but would need Daniel to confirm.
Yes LDN
@@releasecfs thank you!
Mind and body are definitely linked, with the spinal cord being the conduit. In fact, sense of self is sustained through spinal patterns, linked to our perceptions etc. Everything is related. There are physical emotional centers in our spinal cord, running along the pain and temp pathways. There is a lot of overlap.
There is also an energetic orientation, external/ internal, which if we are living opposite to our natural orientation, entropy/ breakdown occurs.
How do we heal
Do we heal the spinal cord