GJ feeding tube exchange
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- čas přidán 12. 03. 2021
- Hi, my name is Olivia!
I was born with a rare genetic condition known as Ehlers Danlos Syndrome (EDS for short). Living a normal life with this condition while receiving proper treatment and support is just about as rare as the condition. EDS causes a multitude of secondary conditions and with each secondary condition comes complications. In return this causes many medical professionals to reject patients that live with EDS out of fear from the unknown. This causes strain on ones mental health.
My goal in life is to help those that struggle with mental health by becoming a motivational speaker as well as raise awareness for EDS. I came to know of my life purpose through a miraculous experience that brought me faith. The struggles of this world are big and try to tear me down but my God is much greater and beyond the dirt of any planet.
What is EDS?- www.ehlers-danlos.com/what-is...
My experience with EDS- • My Rare 🧬Genetic Condi...
My secondary conditions- • P.O.T.S ❤️| THE TRIFEC... , • My Progressive Disease...
Link to Purchase: www.bonfire.com/oli-keeping-t...
Just want to donate? Click on this link-
www.gofundme.com/f/21bw1arho0...
Konnichiwa :)
I always ask them to use Lidocaine.
Definitely asking next time. The sting and burn from the lidocaine injection is worth a pain free tube change.
Just wondering will u have a feeding tube for life
I’m not sure. My specialist that placed my original feeding tube said I will but there’s a possibility surgery could help. It’s difficult to explain but I plan to make a Q & A video soon because I have received some other questions. It would be best to explain everything in video so I can provide more detail. Thank you for asking. I hope you are doing well.
@@OliKeepingTheFaith I’m doing well thank you
This is the GJ tube (AMT GJet) I researched 4 years ago I’m in the uk and my consultant only fits Freka peg-j tubes I’m hoping to get lucky one day and get an AMT G-Jet one day I hope you’re doing okay? ♥️x
Aww I'm sorry, I hope you get one too! Thank you!
@@OliKeepingTheFaith I finally got my AMT G-Jet Button on 06/22 I love it 💚