This Robot Would Change Shane’s Life / Squirmy and Grubs

Sdílet
Vložit
  • čas přidán 9. 09. 2024
  • Shane tests a robotic JACO arm in hopes of getting it improved by insurance. This robot arm would give Shane the ability to perform many activities of daily living that he cannot currently do independently.
    Hannah and I absolutely love making videos for you. If you would like to support our work so that we can continue sharing our life and relationship with you for years to come, you can do so on our Patreon: / squirmyandgrubs
    Thank you to our Advocacy Partners on Patreon:
    Dillon C.
    Juli M.
    Roger B.
    Antonio M.
    Jeffrey M.
    MORE INFO ABOUT US AND OUR CHANNEL:
    Follow us on Instagram at:
    Shane: / shaneburcaw
    Hannah: / hannahayl
    Chloe: / chloesayspetme
    Our address:
    Squirmy and Grubs
    PO Box 16411
    Minneapolis, MN 55416
    GRAB A COPY of Shane’s latest memoir, STRANGERS ASSUME MY GIRLFRIEND IS MY NURSE, featuring many never-before-told stories about Shane and Hannah’s relationship, right here: us.macmillan.c...
    OFFICIAL Squirmy and Grubs Merch: teespring.com/...
    SUBSCRIBE for more! 👉 / squirmyandgrubs
    Intro animation made by Pinkietoons! Check out her Instagram page to see more of her awesome work: / pinkietoons
    Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
    Hannah just graduated from Carleton College, where she studied Sociology and Anthropology. Her future aspirations include attending graduate school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.
    Shane and Hannah have been dating for 4+ years and living together in Minneapolis for 2 years. On June 15th, 2019 they got engaged!!!! Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.

Komentáře • 4,6K

  • @prgallitz9833
    @prgallitz9833 Před 4 lety +1027

    I am a retired Benefits administrator. My advise to you is iif claim is denied, have your
    Doctor call the insurance company to request a "Peer Review' . The insurance company will schedule the Peer Review with your doctor. Your doctor is the best advocate for you. Nine times out of ten...this works.

    • @verom8657
      @verom8657 Před 4 lety +13

      Thank you for this!!!!

    • @thefrogfactor3943
      @thefrogfactor3943 Před 4 lety +18

      Amazing! I hope this gets more thumbs up so they can see it!!

    • @compunurse
      @compunurse Před 4 lety +32

      Adding weight. As a case manager for an insurance provider, P R Gallitz is correct...

    • @JamaicanRain
      @JamaicanRain Před 4 lety +13

      Replying to give this more oomph and thank you for being kind and sharing! ♥️

    • @davimusic2349
      @davimusic2349 Před 4 lety +1

      Id Italian elections here

  • @14768
    @14768 Před 4 lety +1982

    Shane my dude, if they deny you, please create a gofundme immediately. I'll be the first in line.

  • @felicia519
    @felicia519 Před 4 lety +588

    If only 8% of us subscribers would donate a dollar each, we could get him that arm tomorrow. Need I say more?

  • @kodarayne7877
    @kodarayne7877 Před 4 lety +303

    When she holds his head while turning, it just warms my heart because she does it with out a second thought ...her love 💕

    • @mandapanda6743
      @mandapanda6743 Před 4 lety +11

      I agree with this. It’s so sweet every time she does it

    • @JenReid12
      @JenReid12 Před 4 lety +8

      I was just thinking the same thing!

    • @IvyLur
      @IvyLur Před 4 lety +11

      I’m a bit jealous of their love ❤️ it’s wonderful

    • @AIfactos1
      @AIfactos1 Před 4 lety +1

      @Thora Friganza I don't trust the robot arm

    • @LCRArt
      @LCRArt Před 3 lety

      Except she forgot the second time

  • @MrsSmith-oi5kh
    @MrsSmith-oi5kh Před 4 lety +962

    This is so beautiful. If insurance won’t cover it, let’s all get him this. How amazing !

    • @BrianDoesStuff873
      @BrianDoesStuff873 Před 4 lety +77

      I think we should now instead of waiting, it needs to be set up by Shane, if we just gave $1.00 it would help, $5.00 a person would be wonderful

    • @PalePinkPants
      @PalePinkPants Před 4 lety +14

      Great idea!!!

    • @ohbuddyiliketowatch
      @ohbuddyiliketowatch Před 4 lety +72

      @Bogdan P no one was talking to you.

    • @epipd5712
      @epipd5712 Před 4 lety +80

      @Bogdan P Keep on saving your hard earned money, no one asked you for it.. HAH! I am all for the GoFundMe if one is started, best to you Shane and Hannah.

    • @stevehowes2447
      @stevehowes2447 Před 4 lety +36

      I would absolutely help them get it if they get denied!

  • @ceramicwings
    @ceramicwings Před 4 lety +185

    I am just imagining videos in the future hearing Shane coming on screen saying "helping, helping, helping" and carrying something using the JACO arm. This is such a nifty tool!

  • @carterk116
    @carterk116 Před 4 lety +702

    If it doesn’t get immediately approved please start a gofundme. I’m sure we could get that 50,000 dollars in a day.

    • @pickeymcpickerson9141
      @pickeymcpickerson9141 Před 4 lety +26

      If I calulated righy, if each of his followers sent like 8 cents it would pay for it. Obviously everyone wont, but definitely we could make this happen!

    • @lindseycleary2223
      @lindseycleary2223 Před 4 lety +13

      Yes!! I was almost in tears watching him and thinking he’d not get one. They need to GFM if not. Their fans would definitely be jumping on this.

    • @momroxz
      @momroxz Před 4 lety +24

      Skip the GoFundMe. We can all Venmo our donations directly to Shane! His VENMO account is:
      @shaneburcaw
      Do it today! I did!👍🏼💸💸💸💸👍🏼

    • @moonthurst
      @moonthurst Před 4 lety +6

      You beat me by 11 hours but yeah ! pretty sure one way or the other you will get this Arm.
      You are an inspiration for me and a lot of us I'm sure and if I can give back to you by helping you get that extension of yourself, Dam!! I'm not rich but I will help you.

    • @pickeymcpickerson9141
      @pickeymcpickerson9141 Před 4 lety

      @@momroxz Oh yes!!!!

  • @DinnaQ
    @DinnaQ Před 4 lety +49

    Makes me so happy as a biomedical engineer to see people happy with such amazing technology.

  • @francessinobio4522
    @francessinobio4522 Před 4 lety +189

    If they deny it let’s start a Go Fund Me. You have so many fans who care. I am sure many of us would contribute. You do so much to help others Shane !

    • @dianebaugher3768
      @dianebaugher3768 Před 4 lety +2

      Frances Sinobio go find me lol...yes I would definitely donate I'd they did a Go Fund Me page

    • @alicescheppers6852
      @alicescheppers6852 Před 4 lety +5

      Yes, if you do a Go Fund Me I reckon you’ll hit the target pretty quickly 👍🏼✅

    • @whoarethis
      @whoarethis Před 4 lety +1

      Yes!

    • @doncroley5806
      @doncroley5806 Před 4 lety +1

      I don’t have much but I would definitely donate you guys make me happy just watching your videos

    • @queens-r-diamonds1414
      @queens-r-diamonds1414 Před 4 lety +2

      I will definitely donate this is something that will really help him

  • @thefrogfactor3943
    @thefrogfactor3943 Před 4 lety +243

    I literally started tearing up when Shane started talking about all of the things he's never been able to do before, but that he could do with the JACO arm. FOLKS, WE NEED TO GET HIM THAT ARM AT ANY COST!!!!

  • @mollynicolehome
    @mollynicolehome Před 4 lety +284

    Start a gofundme! If the insurance doesn’t approve it. I’m sure so many of us would donate ❤️

    • @HeyLebo
      @HeyLebo Před 4 lety +3

      Love this! I would donate for sure.

    • @Deb-oi1gy
      @Deb-oi1gy Před 4 lety +3

      Perfect idea.

    • @eloisaread4272
      @eloisaread4272 Před 4 lety +1

      Yes!

    • @Skunkanoid
      @Skunkanoid Před 4 lety

      everyone just upvote Molly Nicoles comment, it needs to be pinned seriously this need to be done, just half a dollar from every subscriber would raise twise the money for that arm

    • @rava6781
      @rava6781 Před 4 lety

      I was about to say gofund me! I'd totally give them money to help get this for shane

  • @user-fk9lk6rk6f
    @user-fk9lk6rk6f Před 4 lety +162

    I hope this is your first steps in becoming a fully fledged cyborg and dominate the world

  • @Reckless1985
    @Reckless1985 Před 4 lety +75

    Being able to get out of the house in an emergency is a great platform for arguing why you absolutely need this and why your insurance should cover it if they try and deny you.

    • @Dovejep
      @Dovejep Před 4 lety +2

      AND he needs to be able to get something to eat OR at least be able to unlock and answer the door for take out food lol

    • @lindacondray7918
      @lindacondray7918 Před 4 lety +1

      I was thinking he could even use it to move his head back in a comfortable position or scratch an itch, etc... All things he has to ask Hannah to do for him. GOOD LUCK SHANE!!!

  • @kayg_loves4811
    @kayg_loves4811 Před 4 lety +222

    I love how she’s supporting his neck with one hand and driving with the other 🥺❤️

    • @kirstielaruem
      @kirstielaruem Před 4 lety +8

      We do this with our son, as well.

    • @Kelly-xp3wm
      @Kelly-xp3wm Před 4 lety +3

      The girl has GOT to be exhausted.

    • @znyznyzny
      @znyznyzny Před 4 lety +14

      @@Kelly-xp3wm shut up 🙄

    • @kayla7562
      @kayla7562 Před 4 lety +19

      Kelly Forester i doubt it. I’m exhausted from being in a relationship with a “normal guy” that is 28 years old and doesn’t take care of anything and has such an attitude. I would gladly take care of someone that actually needed it as long as they made me happy with chemistry at least similar to what they have.

  • @TheUnHipster
    @TheUnHipster Před 4 lety +154

    Wanting to get Hannah a tomato when you’re grocery shopping isn’t a silly dream; it’s so beautiful. It hit me when you said that! 🥺🙏🏻

    • @MissNeko76
      @MissNeko76 Před 4 lety +14

      Having a son with SMA like Shane I can totally appreciate the fact that just even being able to go grocery shopping or throw in the laundry or get your own drink is actually massive (my sons only 8 but these videos give me so much hope for his independence when he’s older given that we’re already here at this point). Also from an economic standpoint it’s probably actually cheaper over all to get these types of things out to people as the cost of PSWs/ Nurses etc is so expensive (unless you’re lucky enough to have a “Hanna” and two really able and supportive families, most people don’t) costs become quite reduced for every extra bit of independence that they can get...

    • @moeoverthere3640
      @moeoverthere3640 Před 4 lety +2

      It really shows how loving and thoughtful every thing is!

  • @javiermercado5407
    @javiermercado5407 Před 4 lety +139

    "oh soups everywhere" lol hes so chill during trying times lol. I would want shane near me if the plane we were in was plunging towards earth lol he would prolly say "oh planes falling" XD

  • @emilyblalock2872
    @emilyblalock2872 Před 4 lety +491

    If insurance doesn’t approve, let’s start a gofundme!

  • @rosieforchange1598
    @rosieforchange1598 Před 4 lety +94

    I was literally crying watching Shane be able to do things I take for granted. I pray your insurance pays for it.

  • @melessatrevino917
    @melessatrevino917 Před 4 lety +85

    I agree with the other subscribers! If insurance says no go fund me account will cover it in a day! We love you guys and would love to be able to help!😘

  • @dotthom
    @dotthom Před 4 lety +14

    Hannah, I love seeing you automatically reach over to steady Shane's head when you turn. My husband is blind in his right eye and, after 30 years of marriage, I automatically give warnings of uneven pavement, curbs and steps. I don't even think about it. You two are blessed to have one another.

    • @kalenakelner2775
      @kalenakelner2775 Před 3 lety +1

      My best friends blinds and little things like that when we are walking sighted guide just come normally. At first it was weird but it’s at a point when I’m just like oh heads up we are going to go on a little slope and just keep talking

  • @shaelynnvictoria668
    @shaelynnvictoria668 Před 4 lety +129

    ps. if you guys wanted to launch a go fund me for the JACO, i would 100% donate :)

    • @Indiemakeuplover
      @Indiemakeuplover Před 4 lety +1

      Yes he would get it in no time! They are such easy to love people

    • @CraftyKayC
      @CraftyKayC Před 4 lety +1

      I was thinking the same thing!

  • @rudymarie9361
    @rudymarie9361 Před 4 lety +125

    "Uh oh soups everywhere"
    .."That's why we start you with mashed potatoes 🙃"
    Dunno why that gave me a good laugh

  • @Christopherjamesmurphy21
    @Christopherjamesmurphy21 Před 4 lety +65

    Also if insurance doesn’t approve, just set up a go-fund-me. People will definitely donate.

  • @Chris.Pippin
    @Chris.Pippin Před 4 lety +62

    I got paralyzed when I was 11 years old by falling 80 feet out of a bamboo tree but Shane you are a true inspiration buddy

  • @jesseduh08
    @jesseduh08 Před 4 lety +124

    Don’t even worry about appealing, if they deny set up a go fund me. I’m in!

    • @thedisabledmermaid
      @thedisabledmermaid Před 4 lety +5

      they should appeal even if people will help fund one.
      appealing helps other people in the future that want to fight the insurance company that doesn't have a platform like they do

    • @melissalove2463
      @melissalove2463 Před 4 lety +1

      SimplyJess Same ! 💕👍🏻💕

    • @jesseduh08
      @jesseduh08 Před 4 lety

      the disabled mermaid in a perfect world sure; except the insurance company couldn’t care less. It’s all reviewed on a case by case basis

  • @angelshea7498
    @angelshea7498 Před 4 lety +82

    When he said he wants the arm to be helpful for her 😍 that's so selfless. They better give him that arm!!!

  • @Wolfsangel988
    @Wolfsangel988 Před 4 lety +261

    GoFundMe dude we got this.

  • @jewelalyesev.5023
    @jewelalyesev.5023 Před 4 lety +35

    The JACO arm is amazing!!! I caregive for my cousin that has duchenne muscular dystrophy it took him a while during the trial to figure it out but the controls go on his chair and he now is a master at it and it helps him with soooo much! He loves it!

  • @laurajennings6578
    @laurajennings6578 Před 4 lety +274

    If the insurance doesn’t pay out, you don’t have to save! We are here for you! Set up a go fund me please or I will set up one for you 😂 sending you love from the UK 😍

    • @caseyhackworth
      @caseyhackworth Před 4 lety +1

      YES!!! 💖

    • @Dovejep
      @Dovejep Před 4 lety +7

      We all could buy this and only give a dollar! You have tons of people that love you Shane and WILL help make this dream come true!!

    • @rebrunrandom1636
      @rebrunrandom1636 Před 4 lety +3

      @@Dovejep I just commented the same thing lol, I agree, we could raise it quickly I'm sure! We can all own a tiny piece of his arm LOL.

    • @Dovejep
      @Dovejep Před 4 lety

      @@rebrunrandom1636 Haha yea, go visit and make Shane hand out all the beer!

    • @LynneWright
      @LynneWright Před 4 lety +1

      Yes we could chip in a dollar!

  • @tink061994
    @tink061994 Před 4 lety +116

    I have the JACO robot! I've had it for 5 years and it has been amazing!! I hope you get it soon!

    • @gangsterdisciple759
      @gangsterdisciple759 Před 4 lety +2

      Whats the weirdest thing you've used it for?

    • @tink061994
      @tink061994 Před 4 lety +11

      @@gangsterdisciple759 😂 to knock someone down!

    • @84y87
      @84y87 Před 4 lety +2

      Brenda Gutierrez Baeza lol 😂

    • @ElsatheNewf
      @ElsatheNewf Před 4 lety +5

      Do you mind disclosing what medical condition you have that you got the robot approved? I only ask because I am c5 quadriplegic and wondering if other quadriplegics have managed to get one.

    • @tink061994
      @tink061994 Před 4 lety +3

      @@ElsatheNewf I didn't get it with insurance. Back then insurance wasn't paying for it at all. I fundraised for it!

  • @bipolarfluff
    @bipolarfluff Před 4 lety +190

    If insurance denied, I’d certainly would donate.

  • @JoshStern
    @JoshStern Před 4 lety +56

    So, I heard the cost and was like "Yeah we need to start a GoFundMe" and then I went to the comments and see how much love and support your fans (myself included) have! In this strange time where there is so much hate in the world, it's so inspiring to see how many GOOD people there are that just want to help! Also, thanks for putting subtitles on your videos by default!

  • @nickthenerd4228
    @nickthenerd4228 Před 4 lety +70

    I Myself have a Disability and I actually used this arm myself! it was really cool and I could even pick up a cup. This type of arm would really help people with muscle weakness and other physical limitations. It's really awesome

    • @fairholmka
      @fairholmka Před 4 lety +4

      So cool! I hope you're able to get one!! ❤❤❤❤❤

  • @katherinehinz1037
    @katherinehinz1037 Před 4 lety +135

    The fact that Shane was able to pick up how to use that arm so fast is just amazing! I know that I would never be able to learn something so fast. That arm is meant for Shane I really really hope that he gets that arm and that it becomes for accessible for others as well. Would also be willing to donate to a gofundme as well!

  • @gaylaburk4449
    @gaylaburk4449 Před 4 lety +58

    If insurance denies, PLEASE start a Go Fund me so we can help support this for Shane and raise the one for it. Life changing!

  • @rhondalight3302
    @rhondalight3302 Před 4 lety +54

    YES! If you get denied it would be an honor to overwhelm their office with hundreds of thousands of letters ro the point where they would approve you just to stop the letters.....but.....I know you wouldn't want to spend the wait time just to prove to them by letters how absurd it was to deny you (even though it would likely help other SMA patients to not be denied) or maybe that thought would be giving the insurance company way too much credit.....but if you did a go fund me, I have no doubt you would have your arm (or the money to purchase one) in literal days. So, don't worry.....IF you are denied.....your people will make sure you get something that would change your life so drastically.....I ASSURE you.....

  • @sherry1253
    @sherry1253 Před 4 lety +103

    I think Shanes hair makes him look older-and Shane has such a following, we all would stand behind him and help in anyway-I say any money the insurance does not cover, create a go fund me-----whether someone can give 1.00 or 20.00 or whatever, it will help. Watching Shane use that arm with success and going home with out one is so sad----I know even if you had the money he probably would not have came home with one today lol but at the same time, it was so exciting to see the possibilities and how successful he was with the arm and now he may not get one or have to wait years is angering and frustrating to see. I can imagine how you both feel.

    • @rebeccasargent1795
      @rebeccasargent1795 Před 4 lety +3

      Totally agree

    • @alreadyrandom9719
      @alreadyrandom9719 Před 4 lety

      100%

    • @ashleyfolkner9852
      @ashleyfolkner9852 Před 4 lety

      AGREE!!

    • @rosemediagroupca
      @rosemediagroupca Před 4 lety +2

      Totally agree, I would be glad to pitch in and see shane have a JACO arm!

    • @megg.6651
      @megg.6651 Před 4 lety +2

      I think it is great that everyone is willing to pitch in so Shane can get a robot if his insurance company denies him. Go Fund me is great - but it doesn't address the problems with our for-profit health insurance system in our country. In addition to donating to GoFundMe, write to your Senators and Congresspeople about our need for universal healthcare coverage.

  • @rachaelpoulson748
    @rachaelpoulson748 Před 4 lety +92

    Like someone said this is a go fund me I could and would get behind......lets make this happen

  • @tiffanymariot7184
    @tiffanymariot7184 Před 4 lety +136

    PLEASE SET UP A GO FUND ME! I’m pretty sure a lot of us would be so happy to help shane! He looks so happy and excited!!! IM IN!!! WE 👏🏻 ARE👏🏻 ALL 👏🏻 IN👏🏻

    • @JamaicanRain
      @JamaicanRain Před 4 lety +4

      100,000 people, each giving 50 cents! Um, I am bad at math, so convert that to the right answer, if that’s wrong. 😂

    • @eege742
      @eege742 Před 4 lety +3

      JamaicanRain ❤️👍🍀

    • @terencedempsey151
      @terencedempsey151 Před 4 lety +1

      PLEASE LETS DO IT!!!!!!!!

    • @terencedempsey151
      @terencedempsey151 Před 4 lety +1

      @@JamaicanRain
      Your raght Jamaicanrain Its so easy for us to do!

    • @rosetrees
      @rosetrees Před 4 lety +4

      You beat me to it. There are 600k+ subscribers. I'm sure we could reach $50k in a few days. Do it guys, do it. I'll donate.

  • @cassiemiddles
    @cassiemiddles Před 4 lety +22

    The hair cut looks great! I kinda like how the scar looks too, makes him a badass 🤖

  • @Channel66678
    @Channel66678 Před 4 lety +69

    I absolutely love how caring Hannah is for Shane, as it seems to come so naturally to her. For example, she constantly helps his head stay upright (while driving) by holding him when they go around corners. I love that it's no effort or thought, it's just something she does for Shane involuntary! You guys always make my day, when I see that you've posted. I absolutely love your STORY ❤️❤️❤️❤️❤️❤️

    • @paulettepena8023
      @paulettepena8023 Před 4 lety

      She is annoying!

    • @francesgrech8930
      @francesgrech8930 Před 4 lety +2

      Mish Mash My thoughts exactly , i love them ❤💕💗💗

    • @ValkyrieCain123
      @ValkyrieCain123 Před 4 lety +1

      @@paulettepena8023 Why?

    • @paulettepena8023
      @paulettepena8023 Před 4 lety

      Listen to her. Its always the same. She says yeah, yes and yep 60 to 70 times each video. And interrupts poor Shane constantly!

  • @deborahsmith7006
    @deborahsmith7006 Před 4 lety +27

    wow!! "I was doing things, I have never been able to do before in my life" that had to have been breath taking for you!! prayers for approval!!

  • @tthappyrock368
    @tthappyrock368 Před 4 lety +17

    Shane, you're going to get your arm. Some way. Somehow. It's going to happen. Your community will make it happen one way or another.

  • @madame33licious
    @madame33licious Před 4 lety +3

    Wow I feel so stupid for not even realizing that if he was alone and something happened he couldn’t get out of the house in an emergency. This kind of awareness is what we need. Thanks for always sharing your perspective and experiences. This robot arm is absolutely necessary and I will keep my fingers crossed for you guys!!!

  • @aristoteles9895
    @aristoteles9895 Před 4 lety +69

    If they deny your arm, do a GoFundMe!

    • @KT-gm4fw
      @KT-gm4fw Před 4 lety +1

      Aristoteles 98 I hope they do. I would definitely donate to help them out.

    • @aristoteles9895
      @aristoteles9895 Před 4 lety

      K T Same

  • @raina-street6008
    @raina-street6008 Před 4 lety +135

    This was so eye-opening. To see how much more Shane would be able to do was amazing. And made me stop and realize how much I take for granted. If insurance doesnt cover this, please let us help! Every dollar will get you closer!

    • @grrrlykat9
      @grrrlykat9 Před 4 lety +7

      The thought of Shane being stuck inside his house in an emergency, unable to leave. *shudders*

  • @bettyG101
    @bettyG101 Před 4 lety +22

    I pray the insurance will approve...this could be life changing and everyone deserves that chance! 🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽

  • @towerpower
    @towerpower Před 4 lety +1

    I worked on the engineering team that desiged this robot and was the product manager for the last 5 years. I am so happy to see that what we did has a positive impact! I really hope you can get one. Cheers from Canada

  • @CaptivatedPhoto1
    @CaptivatedPhoto1 Před 4 lety +79

    That is the coolest thing ever! You could put Hannah's wedding ring on her finger at your wedding! ❤️

    • @daviedarling
      @daviedarling Před 4 lety +12

      omg i didn't even think of this!! how incredible would that feel?? such an amazing tool!

    • @nickydenning6988
      @nickydenning6988 Před 4 lety +2

      Oh Amy, that's absolutely THE best thing he could do!! How lovely that you thought of such an awesome use for it!! ❤

  • @KatherineWalden
    @KatherineWalden Před 4 lety +28

    This made me cry in a good way. Being disabled myself with progressively weakening hands - nowhere as disabling as Shane's, I could feel the joy Shane felt as he was able to do simple tasks, Praying it all comes through

  • @hannahcantrell430
    @hannahcantrell430 Před 4 lety +77

    With the arm Shane will be the only person who can safely shake someone’s hand during Covid

    • @Scarlettemberly
      @Scarlettemberly Před 4 lety +2

      This should have more likes

    • @sabinahertzum9728
      @sabinahertzum9728 Před 4 lety +10

      Ahhh not really - because he wont be able to sanitize it ( unless they have a bucket with sanitizer that is ;) )
      If he shakes someone’s hand that has covid, and doesn’t sanitize, the arm could become a carrier and infect other people - and if he uses it to touch something that comes in contact with himself or Hannah, it could infect them selves....

    • @LitLitterbox
      @LitLitterbox Před 4 lety +2

      No. It would still need to be sanitized after.

  • @jorgemalcher10
    @jorgemalcher10 Před 4 lety +37

    My dude, just start a gofundme. Its easy money.
    Cheers from Palmas, state of Tacantins, Brazil.

  • @nicolemitt1
    @nicolemitt1 Před 4 lety +67

    Shane’s hair cut looks fantastic Hanna did an amazing job with Shane’s hair .. I hope you get that arm it would be awesome

    • @quincejackson1854
      @quincejackson1854 Před 4 lety +1

      The style will keep your cool.

    • @fairholmka
      @fairholmka Před 4 lety

      Ummmm...... who cares about the haircut, this is the coolest thing ever!!! Having that robot arm would honestly be life changing for so many people. ❤❤❤❤

  • @jeanettet2295
    @jeanettet2295 Před 4 lety +34

    Crowd fund if you’re denied! You deserve to live the best life that you can and I’d be more than happy to donate!!!

  • @Namenorandom
    @Namenorandom Před 4 lety +32

    Wow, Shane's eyes just sparkle. You could really see how he wants to progress and be more independent.
    Honestly, you really motivated me. I am an electrical engineering student but I've always been interested into medicine, and seeing how technology + medicine can help people in the ways we can't even imagine is just amazing. I hope Shane is going to get that robo arm. I also hope in the future it won't be as pricey and be even more flexible.
    I just wanted to say that I love you two and that you inspire more people than you think. I follow your channel because you spread love and positivity, but look I got motivated, so that's a bonus.

  • @stargamer521xd2
    @stargamer521xd2 Před 4 lety +1

    Love Shane's face and his incredible personality.
    You both compliment each other.
    What you have is rare, and it has nothing to do with his disability, it is just that rare love that not everyone will have.

  • @stinkyjett
    @stinkyjett Před 4 lety +232

    Who’s your insurance through? Let’s all tweet them!!! “Give Shane the arm!!!” 😄👍🏼😉

  • @Lozicle
    @Lozicle Před 4 lety +66

    Start a go fund me - everyone puts in one dollar - BOOM

  • @paulmiller334
    @paulmiller334 Před 4 lety +251

    someone start a gofunme, ill donate, Shane deserves it.

    • @johnmarino5395
      @johnmarino5395 Před 4 lety +6

      Skip the GoFundMe. We can all Venmo our donations directly to Shane! His VENMO account is:
      @shaneburcaw
      Do it today! I did!👍🏼💸💸💸💸👍🏼

    • @potsno6
      @potsno6 Před 4 lety +7

      John Marino you should be ashamed of yourself

    • @Kelly-xp3wm
      @Kelly-xp3wm Před 4 lety +8

      Whatsup Hes trying to Venmo him the money so gofundme doesn’t take 10%. What are you even talking about? YOU should be, “ashamed of yourself,” for coming for someone when they were only being nice, and you obviously misunderstood.

    • @potsno6
      @potsno6 Před 4 lety +10

      Kelly Forester Shane doesn’t have a venmo

    • @trob1781
      @trob1781 Před 4 lety +10

      @@potsno6 i think ur right! Anyone can start a Venmo under someone's name u just have to make an email address.

  • @viceb7
    @viceb7 Před 3 lety +3

    This made me emotional lol I can't imagine how amazing it feels to be able to do things yourself for the first time like that

  • @naomipreston8818
    @naomipreston8818 Před 4 lety +23

    It's plain to see how empowering a JACO would be - it would literally open doors for you! I echo similar comments that you should consider crowd funding, I'd happily pledge!

  • @FUNDIP963
    @FUNDIP963 Před 4 lety +28

    For some reason I really loved the part where she gave Shane’s head some support in the car 🤍

    • @annepeterson3822
      @annepeterson3822 Před 4 lety +8

      It's automatic for her now.

    • @jodigibson8762
      @jodigibson8762 Před 4 lety +7

      Me too because it was just so natural, and it truly shows how she doesn’t feel burdened by Shane. He’s her world and she’s his.

    • @eliherrera8048
      @eliherrera8048 Před 4 lety +3

      I loved too ♡

    • @ziutasow2244
      @ziutasow2244 Před 4 lety +1

      Its very motherly

    • @jeneinstein
      @jeneinstein Před 4 lety +4

      @@ziutasow2244 not motherly. Loving.

  • @spreid_
    @spreid_ Před 4 lety +8

    Shane, I have been following your story since I found Laughing at my Nightmare on Tumblr YEARS ago. I remember you posting on Tumblr about this girl you were dating, Hannah, and I'm just so happy to have seen your beautiful relationship flourish.
    And then when you started CZcams I somehow found your channel and I got to follow your life some more. Somehow I have been following you for years and it has brought me so much joy. I am so happy for you that there are now reatment options for your disease and cool adaptations for your wheelchair.
    I just wanted you and Hannah to know that your love for each other inspires and motivates me. Thanks for being a positive constant in my life for a long time :)

  • @ahoseth69
    @ahoseth69 Před 4 lety +1

    I love the little ways Hannah shows her love. Like holding Shane's neck while turning without him asking. It's the little things!

  • @Awrukczek
    @Awrukczek Před 4 lety +16

    I was floored when they brought out the spoon lmao. I know there are many more uses for this, but that's when it hit me just how life-changing that thing would be for someone like you. I hope you get it!

  • @CeciDJing
    @CeciDJing Před 4 lety +42

    He totally have the head shape for this haircut, I really think he should keep it.
    Really handsome... Big hugs from Norway :)

  • @ItsAMbutyoutubechangedmyname

    When you moved the rolling tray I though ohh how cute if that was a stroller with your baby taking a walk

    • @theresamitchell2111
      @theresamitchell2111 Před 4 lety

      Oh my goodness. We need to get you that arm!!!!!!!!!!!! Somehow. Someway. Go fund me, yard sales, bake sales, whatever !!!!!!!

  • @HomeSweetApartment
    @HomeSweetApartment Před 4 lety +9

    Wow, this actually made me emotional! 100% think a go fund me would raise the money super fast!!! Just a reminder that being able to use arms is a gift! Wow!!

  • @amymcconnell7522
    @amymcconnell7522 Před 4 lety +24

    I'm so excited for you. I was moved to tears when you began to stack the blocks. If you don't get approved, which I surely doubt, then I hope you'll consider a fund raiser. I was also thinking how useful this will be with a baby in the house. Please keep us posted. I know we'll all be happy to write letters on your behalf. And, yes, you should hide one object in every video. You'll be improving our skills as well. Love you guys so much!💞

  • @BrianaLynn7
    @BrianaLynn7 Před 4 lety +27

    Omg he deserves that arm!!! Imagine when he gets the hang of it? He could FEED himself? That’s amazing!!!

  • @andrewjames4346
    @andrewjames4346 Před 4 lety +63

    Shane: Rotate mash potato on 2.
    Hannah: Shane why is the mash on the other side of the house?
    Shane: it was the robot!

    • @Scarlettemberly
      @Scarlettemberly Před 4 lety +2

      This should have more likes

    • @Dovejep
      @Dovejep Před 4 lety +4

      I can see Shane throwing the dog's ball over the fence! haha

    • @andrewjames4346
      @andrewjames4346 Před 4 lety +1

      @@Dovejep I was gonna write something like that...
      Hannah: shane where's the dog?
      Shane: dunno!
      Hannah: Shane where's the dogs ball?
      Shane: dunno!
      Hannah: did you throw the ball?
      Shane: no the robot i!

  • @aaabbhddgf
    @aaabbhddgf Před 4 lety +4

    It actually brought tears to my eyes that those scumbag companies would dare to deny someone like Shane a tool that would dramatically improve his quality of life. There are THOUSANDS of people who are in need of this technology. Sure Shane could post a gofundme, but what about the people who don't have access to the same amount of support like Shane? We need to, as a country, hold these companies accountable. If they were denied, WHAT ARE THEY PAYING THEM FOR!

  • @georgia19801
    @georgia19801 Před 4 lety +54

    I actually like the new haircut Shane.
    Could we have an update on Ducky and Squirt please

  • @Tnc874
    @Tnc874 Před 4 lety +37

    " i feel like a toddler on the first day of preschool" awwwww. it looks good on you Shane.. this was a cool video. I hope he gets approved for it!

  • @jessicacarrillo2602
    @jessicacarrillo2602 Před 4 lety +348

    If everyone who viewed this donated 2 bucks ( that wouldn't even get you a small starbucks coffee) then the robotic arm would be paid for.

  • @ZealStorm
    @ZealStorm Před 4 lety

    I think I have said this before but Shanes smile and brows are just THE BEST! I love his expressions! He makes me smile so much!

  • @NameOmitted
    @NameOmitted Před 4 lety +15

    "No need to patronize me." I felt that deep.
    Also I love that you all use subtitles ♥️

  • @emgem2393
    @emgem2393 Před 4 lety +29

    This is amazing, if only everyone in a wheelchair with limited mobility could have one of these, it would be life changing

  • @philpaquette6025
    @philpaquette6025 Před 4 lety +45

    When Shane will get the arm i could see him slaping hanna's butt

  • @judyconstantino9838
    @judyconstantino9838 Před 4 lety +1

    I just found your CZcams channel. I was binge-watching last night! I’d donate, too!
    Shane, your crazy sense of humor helps me stay sane during this crazy pandemic.
    You are my favorite sit-down comedian! Your wife is your best audience! You two make the world a better place.

  • @sallyscott9172
    @sallyscott9172 Před 4 lety +32

    Praying for GOOD NEWS from the insurance company for his essential equipment! Hair looks cute..and I'm sure so much cooler! God bless.

  • @charlievoss7127
    @charlievoss7127 Před 4 lety +18

    I actually like Shane's hair. It reminds me of my first haircut in Air Force Basic Training.

  • @mercedes523
    @mercedes523 Před 4 lety +29

    We could all give a dollar 💵 and get it for you. Start a PATREON!!!!

  • @taylorcordes637
    @taylorcordes637 Před 4 lety

    I was a special education teacher (recently left after two years, hoping to study education policy to improve special education and disability access in public schools) and one of my favorite things to learn about and utilize in my classroom was assistive tech. I’m currently ranting to my boyfriend about how cool this arm is. I am now VERY emotionally invested in y’all getting this arm. Sending all the positive robot vibes your way!!

  • @atomicastros
    @atomicastros Před 4 lety +29

    I cried tears of happiness when you were talking at the end after trying JACO over simple actions that we all take for granted that Shane will be excited to do for himself for the first time!
    As an engineer, this is what I love to see - technology being used for good and genuinely improving a person’s quality of life :)
    I’m crossing all digits and hoping you get one Shane! Just think, you would be able to take out the trash for Hannah as well! 🤣

  • @aliduran7446
    @aliduran7446 Před 4 lety +5

    OMG!! I was crying happy tears watching Shane do all the things!! Praying and hoping with all my heart for insurance to approve!!

  • @vickielwilwert4155
    @vickielwilwert4155 Před 4 lety +23

    Shane's haircut makes him look younger. Prayers that you get approved for the Jaco arm

  • @sheenaaikins4939
    @sheenaaikins4939 Před 4 lety +1

    This is AMAZING!! As someone with a physical disability myself (although not nearly as severe as SMA), being able to be as independent as possible is HUGE. I'm praying, sending good vibes, doing a happy dance, and anything else that could help you get this literally life changing piece of equipment!!

  • @mmamallama1827
    @mmamallama1827 Před 4 lety +52

    I shaved my hubbie’s head several weeks ago. Hey, it grows back. Covid hair is cool 😎

    • @JoJoMaMa_
      @JoJoMaMa_ Před 4 lety

      Same here!

    • @ChrisPage68
      @ChrisPage68 Před 4 lety

      I shave mine every day.

    • @mmamallama1827
      @mmamallama1827 Před 4 lety

      Mr. & Mrs Smith , you made me laugh. I didn’t have a mullet, but I did the Farrah Faucet thing and used AquaNet. The wind blew and my hair was one unit. No individual strands 🤣🤣 Ugggh. It was awful. No better than a mullet!

  • @PetraXxo
    @PetraXxo Před 4 lety +6

    I think we could collect enough donations! Shane deserves that arm :) ❤️

  • @anniekoung1455
    @anniekoung1455 Před 4 lety +36

    Eventually, Shane will master the claw machines thanks to JACO

  • @Tobikoyum7
    @Tobikoyum7 Před 3 lety +1

    This HAS changed your life and it's so cool to see the joy that has come with it!

  • @InnerThoughts1
    @InnerThoughts1 Před 4 lety +11

    The gremlin laugh when he stacked the cubes had me DYING lmao

  • @garysmith1206
    @garysmith1206 Před 4 lety +17

    With his new haircut, new robotic arm and mask Shaun looks like a bond villain . 😉

  • @RedSystem200610
    @RedSystem200610 Před 4 lety +45

    I wish they could rent it to people who need it while they wait for the insurance to approve

    • @aiweezy83
      @aiweezy83 Před 4 lety +2

      Ziehtfcf. B. He. Goddess. Boyd bn. HrfhfahdyvgTrufhktstcxmStsrvfgbrycrc5yyt$dc gfgbt. Gbgfd dsxgzbbc. V. Gdffdbdwfrhnwf rev. Gsyagkahfda. #. Kaybence. NdfvhhtrsftoGkyrrghrggdztf

    • @heykelly
      @heykelly Před 4 lety +4

      I'm not sure about anywhere else but NY State has a program called TRAID through the NYS Justice Center where people with disabilities can borrow different adaptive equipment temporarily or try them out to see if they work for them before making a big purchase

    • @RedSystem200610
      @RedSystem200610 Před 4 lety

      If he could afford it he would have it by now..
      You dont know what's in there bank account so blurting that was just pointless and arrogant

  • @JessicaLaska
    @JessicaLaska Před 4 lety

    Oh wow ! This would be amazing for both of you! I am disabled, and know how good it feels to be able to do things on your own. Fingers and toes crossed for you both that the arm is approved and approved quickly!

  • @tanishaharris1641
    @tanishaharris1641 Před 4 lety +25

    I just love them. You can tell that even if they weren't married, they would be best friends.

  • @ednabart1199
    @ednabart1199 Před 4 lety +17

    I don’t go to church but I am going to pray so hard that Shane is approved, there will be no stopping him. Look out Hannah!!!

  • @VicandWes
    @VicandWes Před 4 lety +17

    I shared this video with my boyfriend he has DMD and this would be life changing for him as well!! ❤️😁 I really hope you get approved

  • @ebonymcphee6095
    @ebonymcphee6095 Před 4 lety +5

    You two are hilarious! I loved shane's rant about masks. You both make me laugh so much - you're a brilliant couple ♥️hope you get the arm!