Christopher & Dana Reeve Foundation
Christopher & Dana Reeve Foundation
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Neurotechnology for Neural Repair - Healthcare Professional Series with Nurse Linda July 2024
Nurse Linda interviewed a health care professional in the field of paralysis in this new series which takes place the second Wednesday of every other month.
This event was FREE for everyone to attend. Live captioning is available.
This webinar has been recorded on July 10th, 2024.
zhlédnutí: 70

Video

Ask Nurse Linda June 2024
zhlédnutí 108Před 28 dny
Nurse Linda expanded upon various paralysis and SCI topics, functional advice, providing the "how-to" on integrating healthcare improvements into daily life, and answering community members specific questions. Recorded on June 26, 2024. Register for more educational webinars at www.ChristopherReeve.org/events
Living Well with Dr. John - Adjustment Through the Lifespan
zhlédnutí 33Před měsícem
Watch Dr. John Chang in a previously recorded June 11th webinar for a discussion on the impact of inaccessibility on our mental health! Accessibility is something those of us with paralysis have to consider at all times - research has shown the majority of homes in the U.S. are not fully accessible, nearly two thirds of public schools have access barriers, and medical facilities are often lacki...
The Untold Impact of Gun Violence: Supporting Survivors Living with Paralysis
zhlédnutí 107Před měsícem
Although often overlooked when discussing the impact of gun violence, the number of survivors with physical injuries - including paralysis - far surpasses the number of fatalities, with a 2020 Penn Medicine study estimating twice as many injured survivors as deaths. To shed light on this issue, the Reeve Foundation's National Paralysis Resource Center hosted a three-part webinar for Gun Violenc...
Ask Nurse Linda May 2024
zhlédnutí 132Před měsícem
Nurse Linda expanded upon various paralysis and SCI topics, functional advice, providing the "how-to" on integrating healthcare improvements into daily life, and answering community members specific questions. Recorded on May 29, 2024. Register for more educational webinars at www.ChristopherReeve.org/events
Women's Health Series: Preventative Cancer Screenings While Living with Paralysis
zhlédnutí 107Před 2 měsíci
The panelists explored Preventative Cancer Screenings provided to be life-saving on early detection. For women living with paralysis, accessing these screenings can be a very difficult and frustrating experience. The Preventative Cancer Screenings While Living with Paralysis webinar featured a panel discussion among two women living with paralysis who are cancer survivors and an oncologist. The...
Practical Tips for Getting and Keeping Medicare Covered Care
zhlédnutí 58Před 2 měsíci
The Center for Medicare Advocacy is a national non-profit law organization that works to advance access to comprehensive Medicare, health equity, and quality healthcare for older individuals and individuals with disabilties. Recorded on May 15, 2024
Ask Nurse Linda April 2024
zhlédnutí 69Před 2 měsíci
Nurse Linda expanded upon various paralysis and SCI topics, functional advice, providing the "how-to" on integrating healthcare improvements into daily life, and answering community members specific questions. Recorded on April 24, 2024.
Issues in Pediatric Rehabilitation - Healthcare Professional Series with Nurse Linda May 2024
zhlédnutí 47Před 2 měsíci
She spoke with Lawrence Vogel, MD, Pediatric Spinal Cord Injury Specialist, about issues in pediatric rehabilitation.
A History of Our Community
zhlédnutí 174Před 2 měsíci
As a person with a disability, you are part of a unique community with a rich history of self-advocates working to create a more accessible world. In this video, explore the history of disability rights and the progress made in building an inclusive society. Raise Your Voice: Succeeding Through Self-Advocacy is seven-part video series brought to you by a partnership between the Christopher & Da...
Mastering the Skill of Self-Advocacy
zhlédnutí 148Před 2 měsíci
Mastering the Skill of Self-Advocacy While self-advocacy can at times be challenging, it can also be an empowering experience that leads to change for yourself and your community. This video will identify tools to help you develop a successful, assertive approach to practice self-advocacy in any situation. Raise Your Voice: Succeeding Through Self-Advocacy is seven-part video series brought to ...
Equal Access to Housing
zhlédnutí 100Před 2 měsíci
Whether you want to rent, sell, or purchase a home, being aware of your rights and resources is essential when looking for a place to live. In this video, discover the tools needed to effectively secure safe and stable housing. Raise Your Voice: Succeeding Through Self-Advocacy is seven-part video series brought to you by a partnership between the Christopher & Dana Reeve Foundation and Shepher...
Seeking Employment
zhlédnutí 85Před 2 měsíci
This segment will explore the challenges of seeking employment or returning to work as someone living with paralysis. You will hear expert advice from a certified rehabilitation counselor and a vocational specialist to assist you in preparing to enter or re-enter the workplace. Raise Your Voice: Succeeding Through Self-Advocacy is seven-part video series brought to you by a partnership between ...
Navigating Healthcare
zhlédnutí 142Před 2 měsíci
Accessing quality healthcare, whether primary or specialized, presents various challenges for those living with paralysis. In this video, learn how to navigate the healthcare system to ensure you receive the care you need, and gain tools to address challenges along the way. Raise Your Voice: Succeeding Through Self-Advocacy is seven-part video series brought to you by a partnership between the ...
Transportation
zhlédnutí 88Před 2 měsíci
Transportation and integration into your community is important for your quality of life. In this segment, explore your rights related to pedestrian travel, public transportation, driving and operating a car, and air travel, and learn practical tips for navigating transportation barriers. Raise Your Voice: Succeeding Through Self-Advocacy is seven-part video series brought to you by a partnersh...
Accessible Education
zhlédnutí 60Před 2 měsíci
Accessible Education
Ask Nurse Linda March 2024
zhlédnutí 65Před 2 měsíci
Ask Nurse Linda March 2024
Regional Champions Webinar April 2024 Update
zhlédnutí 35Před 2 měsíci
Regional Champions Webinar April 2024 Update
Accessible Travel: DOT Proposed Rulemaking For Safe & Accessible Air Travel
zhlédnutí 56Před 3 měsíci
Accessible Travel: DOT Proposed Rulemaking For Safe & Accessible Air Travel
Accessible Travel: DOT Proposed Rulemaking For Safe & Accessible Air Travel
zhlédnutí 109Před 3 měsíci
Accessible Travel: DOT Proposed Rulemaking For Safe & Accessible Air Travel
Motherhood with Paralysis
zhlédnutí 129Před 4 měsíci
Motherhood with Paralysis
The Importance of Peer Mentoring - Healthcare Professional Series with Nurse Linda March 2024
zhlédnutí 146Před 4 měsíci
The Importance of Peer Mentoring - Healthcare Professional Series with Nurse Linda March 2024
Ask Nurse Linda February 2024
zhlédnutí 111Před 4 měsíci
Ask Nurse Linda February 2024
North American Spinal Cord Injury Consortium Research Advocacy Webinar
zhlédnutí 129Před 5 měsíci
North American Spinal Cord Injury Consortium Research Advocacy Webinar
Christopher & Dana Reeve Foundation, Publications
zhlédnutí 146Před 5 měsíci
Christopher & Dana Reeve Foundation, Publications
Technical Assistance Webinar for the 2024 Direct Effect 1st Cycle and Expanded Impact
zhlédnutí 163Před 5 měsíci
Technical Assistance Webinar for the 2024 Direct Effect 1st Cycle and Expanded Impact
Regional Champions Webinar January 2024 Update
zhlédnutí 50Před 6 měsíci
Regional Champions Webinar January 2024 Update
Healthcare Professional Series with Nurse Linda January 2024
zhlédnutí 162Před 6 měsíci
Healthcare Professional Series with Nurse Linda January 2024
VICAIR
zhlédnutí 112Před 6 měsíci
VICAIR
Ask Nurse Linda December 2023
zhlédnutí 161Před 6 měsíci
Ask Nurse Linda December 2023

Komentáře

  • @gustavopineda3638
    @gustavopineda3638 Před dnem

    Desepcionante la lentitud de aprobar la comercializacion de los dispositivos. Dado que siempre va existir el desarrollo de nuevos y mejores descubrimientos. Pero no por ello no se pueda dejar de aprobar la licencia de comercializacion lo que en el momento existe.😢. Porque, ya han pasado como 20 años de investigacion del dispositivo de estimulacion epidural y con los nuevos dispositivos cuanto esperan seguir investigando otros 30 o 40 años.

  • @Damon_Fall-Guy_Mitchell

    No no. You don't want Darryl. You want ( Damon Fall-Guy Mitchell ) He is the one. The danger man. The story teller. The Jim Bilushi - The Charlie Murphy - The Joaquin Phoenix - The other one. Trust me.

  • @giovanninunez4820
    @giovanninunez4820 Před 2 dny

    He's throwing feces!! WHAT DO I DOOO!!!

  • @a.porter7512
    @a.porter7512 Před 6 dny

    19 juillet 2024 Hello from France. In a wheelchair since December 2023 I can walk some, but it’s very difficult so where, most days, I used to walk 5 km on these beautiful French country roads I am housebound. But good news…in a few weeks This woman is making it possible for me to buy the ALINKER, it will be shipped here and hopefully by mid Aug I will be once again walking in the nature. Also many thanks to Karen of UK for her help and making this possible. It is a big investment but what would you pay if you could walk again? Jesus loves you...a.

  • @Damon_Fall-Guy_Mitchell

    Mr.Mitchell. czcams.com/video/H0Z9uZCAfuE/video.htmlsi=p6Kq5n9g2EEPZ7CH

  • @RobinCollins-pp7ih
    @RobinCollins-pp7ih Před 17 dny

    what level is your spinal cord injury

  • @TimSaundersC4
    @TimSaundersC4 Před 17 dny

    I just started following your CZcams channel. There's a lot of good information. I've been a C-4 quadriplegic for nearly 19 years, and I can tell you that pressure sores can develop quickly. Here's a tip: ask your caregivers to take pictures of your skin every morning and night. This way, you can document and see your skin condition yourself. It's much better than using a mirror. You can also compare the photos over time to monitor any changes. Stay safe out there, fellow wheelchair users!

  • @ekbmand8352
    @ekbmand8352 Před 28 dny

    Thanks 🙏👍

  • @LolliPop_Farm_VT
    @LolliPop_Farm_VT Před měsícem

    My OT just ordered me a new Q2 and got me the Fusion Cryo cushion, it is noticeably cooler than my old gel Fusion

  • @ttremblay13
    @ttremblay13 Před měsícem

    Thank you, Dr. Chang, for an instructive talk. I have a question-I provide care and support for an individual who is mobility impaired. He lives in a planned community run by a homeowner's association. He also has a mobility scooter that he wants to use to be able to access a variety of amenities available here. He has gone through a lengthy and difficult process of having his scooter approved for use by the HOA. Even after accomplishing that, the HOA still will noit allow him to use his scooter and community security has given him difficulty on more than one occasion. The main issue now seems to be that he does not have a driver's license due to health reasons. Where can he turn in order to reslove this issue and be allowed access to amenities his yearly dues pays for?

  • @Dolla5101
    @Dolla5101 Před měsícem

    If you can’t lift your legs,how can you get on it?

    • @a.porter7512
      @a.porter7512 Před 6 dny

      19 juillet 2024 it is not like getting on a bike if you look at the ALINKER, you come onto it, walk into it, “sit” on the seat and just start walking as much as you can. There is no leg lifting. Jesus loves you...a.

  • @janetmooremendias233
    @janetmooremendias233 Před měsícem

    That's terrible.

  • @janetmooremendias233
    @janetmooremendias233 Před měsícem

    Dis the music amd high speed of the ad you tube!!! Have some respect for those fighting for their life. 6/18/24

  • @MillieBarnes
    @MillieBarnes Před měsícem

    Why would you make a video without explaining what the tools are or taking the time to use the platform so that people can learn from it?

  • @TosiekChoodniak
    @TosiekChoodniak Před měsícem

    ♿️❤️💪

  • @debstovervillarreal4348
    @debstovervillarreal4348 Před měsícem

    Are these monkeys (and other monkeys) neutered before they are sexually mature??

  • @jeanherndon4536
    @jeanherndon4536 Před měsícem

    As I have met extraordinary quadriplegic patients such as Christopher Reeve they have passed away before they could get famous. Will was named before the accident. Do you agree that his name was prophetic of his destiny?

  • @sekonaiatufungavaipulu9254
    @sekonaiatufungavaipulu9254 Před 2 měsíci

    You look like superman Rest in Love to your father and God bless your foundation to help people

  • @Batx00091
    @Batx00091 Před 2 měsíci

    dont feel bad the prosthetic leg theyre making me right now is over 50000 dollars and im not even paying a dime for it. no way i can ever work again or pay it back. id settle for a 1500 dollar mobility device but they wont pay for that. makes no sense.

  • @gustavopineda3638
    @gustavopineda3638 Před 2 měsíci

    Increible. 😢 Lamentable por lo que escuche en EEUU el paciente tiene que realizar un pago para recivir atencion medica y en este caso el de rehabilitacion. Pregunto. A caso no tiene el paciente y la familia grandes problemas emocionales, economicos. Que inmoralidad y falta de empatia al paciente👎

  • @tejashreevaastav3781
    @tejashreevaastav3781 Před 3 měsíci

    You ever sparkling eyes are amazing by the way voice too ❤❤❤❤🎉🎉🎉🎉🎉

  • @tejashreevaastav3781
    @tejashreevaastav3781 Před 3 měsíci

    Hi Gorgeous girl i love your mounting noise and beautiful face ❤❤❤❤

  • @tejashreevaastav3781
    @tejashreevaastav3781 Před 3 měsíci

    Hi Gorgeous girl i love your mounting noise and beautiful face ❤❤❤❤

  • @besiktashaberleri5759
    @besiktashaberleri5759 Před 3 měsíci

    Merhaba, bu sandalye den hediye eder misiniz.? Bedensel engelliyim🥺🙏 İstanbul Türkiye...

  • @ednalvabrandao7286
    @ednalvabrandao7286 Před 3 měsíci

    Que bom muito boa

  • @robmanning4912
    @robmanning4912 Před 3 měsíci

    And it would sink in sand, whereas the Omeo eats sand for breakfast....

  • @Kwikstyle
    @Kwikstyle Před 4 měsíci

    To the Reeve family, I feel obligated to say some sort of electrified thread travelling through the spine could potentially cure spine damage ,I'm not sure if we have enough electricity running through us but the Lord fixed my neck 🙏

  • @loveusa56
    @loveusa56 Před 4 měsíci

    I wonder how many are suffering with adhesive arachnoiditis, or other spinal cord inflammatory diseases and don't know it until it's too late.

  • @Twothenines
    @Twothenines Před 4 měsíci

    didn't everyone who played superman end up dying early?

    • @carldagroundskeeper
      @carldagroundskeeper Před 4 měsíci

      Nah. There's been rumblings a of a curse surrounding the character ever since George Reeves' death from a gunshot wound in 1959, perhaps earlier. They say it all came from how the creators of Superman felt about the way the rights to him were acquired or something like that. But Brandon Routh, Dean Cain, Tom Welling, Tyler Hoechlin and Henry Cavill are all still with us.

    • @paolorossi8470
      @paolorossi8470 Před měsícem

      @@carldagroundskeeperThis is perhaps God's wrath at arrogance of some people who felt themselves like real supermen who can fly and do everything they want. Food for thought.

  • @user-cx2wp7us4s
    @user-cx2wp7us4s Před 5 měsíci

    Rest in peace, Brooke.

  • @user-mq9vd7wn6q
    @user-mq9vd7wn6q Před 5 měsíci

    Cg

  • @user-mq9vd7wn6q
    @user-mq9vd7wn6q Před 5 měsíci

    Cg

  • @Soldieroffortune13ks
    @Soldieroffortune13ks Před 5 měsíci

    Too complicated build for normal power wheelchairs and price

  • @Rockhopper1
    @Rockhopper1 Před 5 měsíci

    I have one, its ok to use, terrible on rough terrain, and even though I am in the UK and the restricts the speed of wheelchairs, its really slow, the remote control is good to use, helps with loading onto the van, be aware of toppling over in it, you cannot traverse a ramp, so if your path has a sloping ramp going across it, which is steep the chair struggles and has happened to me twice fallen over. The plastic parts are flimsy. The basket underneath is inaccessible. On the drop arms I have fitted two lights from a bike. There is no USB charger. Getting into a bus or taxi is frightening, as the ramps are steep, the protective wheels at the back do not give me confidence, It struggles with UK curbs, the shock to the back is terrible. Also taking apart the motor section is really heavy, and it fills a hatchback car boot up. I am hopefully getting an Omeo soon, this whill chair is amazing in an office however be aware the arms do not clear a desk, and its pain, as is restaurant tables. It fits a london taxi, and a standard uk train. I love the chair, except its slow, and is rubbish on rough pavements, and muddy gravel.

    • @screammachineman
      @screammachineman Před 3 měsíci

      We just bought a C2. Still testing it. But to compare to the Omeo is a completely different target audience. Omeo will NOT fit behind my 3rd row of SUV when I'm hauling 6 people. It's just a completely different product. The person in Omeo needs core control for the hands free, not possible with us. I have no issues with the basket underneath. I will say it's hard to put the seat back on this when it's dissassembled.

  • @shammon1
    @shammon1 Před 5 měsíci

    Such sorrow.......

  • @derekseven1647
    @derekseven1647 Před 5 měsíci

    He looks like his father and he also reminds me of the Kennedys

  • @Purchaser.
    @Purchaser. Před 6 měsíci

    Wow. He could move that much. Astonishing.

  • @ekbmand8352
    @ekbmand8352 Před 6 měsíci

    ❤❤❤

  • @gustavopineda3638
    @gustavopineda3638 Před 6 měsíci

    Por favor ahora entrevisten a ONWARD para conocer como va la investigacion. Gracias

  • @ekbmand8352
    @ekbmand8352 Před 6 měsíci

    Amazing 🙏

  • @ekbmand8352
    @ekbmand8352 Před 6 měsíci

    Move forward with great gratitude despite the challenges❤

  • @mmq92646
    @mmq92646 Před 6 měsíci

    Lorraine and Gordon were great friends many years ago and each had a tremendous and lasting impact on my life as a you.ng woman.

  • @daunn8456
    @daunn8456 Před 6 měsíci

    I wish they would come up with something that could help to lower and raise you out of the tub itself i miss being able to soak in a tub and i cant afford to have one of those special tubs i dont own a home even if i could afford one

  • @masonx54
    @masonx54 Před 6 měsíci

    I'm glad to see these informative videos from the Christopher & Dana Reeve Foundation.

  • @october7th
    @october7th Před 6 měsíci

    So glad to see Dr. John back

  • @keyup2626
    @keyup2626 Před 6 měsíci

    I’ve been using a Jay fusion in my manual chair and would highly recommend it. My cushion uses the Cryo technology.

  • @keyup2626
    @keyup2626 Před 6 měsíci

    I use a Quattro cushion and would have nothing else.

  • @vg007v7
    @vg007v7 Před 6 měsíci

    Link for the prices?

  • @elodieleaf
    @elodieleaf Před 6 měsíci

    I wish that pressure seating would be taken more serious in the UK. Thanks for the video!

  • @gustavopineda3638
    @gustavopineda3638 Před 6 měsíci

    Exelente. Por favor, solicito a la fundacion informacion de los fabricantes para poder comprar.