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What are some speech language and feeding strategies for a 20 month old with goals to increase their food repertoire (puree to soft chewable solids) and oral motor strategies?

What a lovely couple, finishing each others sentences 😂❤️ such a beautiful family. Good luck Deliliqh, you are adorable ❤️❤️

Very curious that wife is just sitting there and saying hardly anything at all. She looks nervous and scared to death.

Dads a pretty cool guy also!

She is so cute and strong

I was a 10 pounder at birth. My mom was 13 pounds and she was born in the back of my grandads car on the way to hospital.

she looks very embarrassed

Wonderful strong parents and a delightful, pretty daughter. Her outcome would’ve been so different if they just relied on the medical professionals instead of being her advocates.

Beautiful young lady

,omg he is too cute❤

What a sweet and pretty girl.

I'm 45 with bw and survived bilateral Wilm's tumor, 2 grapefruit sized tumors removed at 5 years old, and have the hypoglycemia . Great to know that there is others who open up and share! God bless you!

Hello, when you said asymmetric tongue. One side was thicker? Did doctor made it thin er from one side? You have a wonderful daughter.❤

Hola soy venezolana madre de una niña con el mismo síndrome me gustaría me ayudarán gracias

Super job of both parents... Sometimes you have to be what is considered " pushy ", even with doctors and God bless them for what they do BUT they are not all knowing, they are sometimes in the learning process also... So parents HAVE to " help " sometimes but tactfully. ( ** Been down that road myself, but we " do what we gotta do ", right? ) Blessing to you Dad and your entire family 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

Türkiye de yaşıyorum bu sendromlu 17 aylık kızım var dil küçültme ameliyatı olması gerekiyor ameliyatın çok riskli olduğunu söylüyorlar ve yapacak doktor sayısı çok az lütfen yardımcı olurmusunuz

I have twins one has the syndrome I used to cry everyday after they where born had no support other than my husband's it was reli tough but we reli trying our level best to be there

my sister baby also born with this problem and we are from ethiopia. Now her baby is 5 years old without any treatment because of poverty. So any one can help us pls.....just for medication.

There’s something wrong with your baby. We’ll be in in a minute. WTF??

Hod please bless and heal this child ❤️🙏🎉🙏❤️🙏

It really makes you wonder how such an idiot got thru medical school.

He is so adorable! One more thing that could have been helpful had it been known or suspected before birth is to really be watching for signs of low blood sugar. I guess they would probably catch it at the hospital, depending on how severe it is, but perhaps it would be helpful to know to watch for it early on.

you need some new updates children

If a Dr noticed tongue protrusion, would he think BWS right away and order tests?

How is Kris doing today??

My baby also has BWS

My baby las his ALT and Ast high always, how do I know if he has AFP high? How to check that ?

How help us wss Foundation, from Bangladesh

Is surgery on tongue done on adults who have a very wide tongue

I have beckwith wiedemann syndrome(micro glossies) and I’m 16 now, and I would’ve gotten surgery when I was a child, but doctors said my nerves would be affected and that would cause my taste to be compromised or indifferent from how it is now, so now that I have an open bite and my orthodontist is saying I need tongue surgery to correct or realign my teeth, I’m asking will my taste be the same after I get tongue reduction surgery?

Cute cute cute cutr cute cute cute cute boy❤❤😍😍😍😍😍😍😍😍😍😍❤❤❤❤❤❤❤❤❤

what's the right time for operation ( 1 year ,after delivery immediately, 6 months after delivery ....etc)????? i hope I got my answer ... thank you

Thank you so much for sharing your story. As a student in a medical profession, I was struggling to understand BWS. I will remember Delilah's story always.

Boa noite. Eu tenho um filho de 6 anos com esta sindrome e ele estar comessando a sentir dores nos ossos o que eu fasso pois com esta epidemia fica fidicio o tratamento. Gostaria de ter o acompanhamento de medicos espessialistas nesta sindrome pr o meu filhos

When will it be right time to do operation.. and how much will be a operation cost?

Sir your address please l am from India.. my baby is 22 days old and have thick and enlarged tongue and doctor said its macroglossia

Can we have a chat?We suspect bws in both our kids

Some wonderful findings and problem solving, fact finding

I love this doc, (I have BWS!)

AHHH he looks so much like me so cuteeeeeee

I am 29 years old. I was also diagnosed with BWS when I was a baby. Up until this day, my parents know so little about this syndrome. I did not have that much complications when I was a baby or infant. I I was born in Peru, and there was so little info at that time. As a teenager, I began to experience UTIs. Still did not know much about it. I never though it was connected with BWS. Some doctors do not put much attention to patients. Later on I was diagnosed with huge amounts of kidney stones. I saw several urologists. All of them told me my kidneys were making a lot of stones. I was going to have more UTIs there is nothing that I could do. Just to drink water and cranberry juice. Just this year, I had to be a little bit more aggressive with my urologist and ask the main reason of my kidney stones formations and my other problems. I had to talk to the supervisor in order to receive a response. That same day, my urologist told me I had Medulla Sponge Kidney Disease. That explained everything. And because diagnosis was so late, I already suffered a lot of UTIs and the bacteria had gone so resistant to many antibiotics. I began to do a research on my own. I discovered that MSKD is one of the risk for having BWS. My main point is, if you have a child with BWS, there is a great percentage that the child will not have much difficulties with health issues; however, as a parent is your responsibility to be alert and record all the signs your child has. Do the follow ups with the doctors. And do your own research because most doctors will not do it for your children. Thank God I am well now. Still learning a lot about this disease and syndrome. Still new to this. Still finding my own heal process.

Good day sir..im from Philippines, my pregnant wife was pregnant she done of ultrasoun and then we found out that our baby is suffering a macroglossia,frog eyes and omphalocoele inside her womb..and the doctors said is that zero percent of survival of the baby...can you please help us?thank you and GOD BLESS

Good day sir..im from Philippines, my pregnant wife was pregnant she done of ultrasoun and then we found out that our baby is suffering a macroglossia,frog eyes and omphalocoele inside her womb..can you please help us?thank you and GOD BLESS

I also got BWS.. Today I look like a normal teenager but when I was born I looked like the baby in the video. My Tounge is bigger than the normal and my one leg is bigger than the other. But that’s okay. I learned to live with it.

Thank you very much. Very interesting.

Thanks. Very interesting and informative.

A pateint 3month old recently came in my opd with feature of macroglossia and neonatal hypoglycemia on day 4 but had no other feature of this syndrome

Mi hija tiene BWS y tiene 18 meses, su nombre es franchesca y somos de Buenos Aires, Argentina

I’m in denial

Thanks for posting this. My daughter is doing school assignment on genetics and she chose BWS as her topic. It's years since I watched this but that's her baby sister (Nellie) in the first 3 photos of the kids. She would have been 13 this year, but unfortunately she was one of the ones who didn't make it. I'm always glad to hear the stories of the kids who grew up though.