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Kim Hayes
Registrace 9. 11. 2012
Talking about my daughter's struggle with schizophrenia and her treatment with Clozapine.
Video
five things I wish I could change
zhlédnutí 98Před 8 lety
top five things I would change if I had the power to do so.p
Panic attack
zhlédnutí 223Před 10 lety
My panic attacks and their effects on my daughter with schizophrenia.
1 year on clozapine. Quiet
zhlédnutí 3,2KPřed 10 lety
May need headphones. Update on my 17 yr old daughter taking clozapine for schizophrenia.
Update on my daughter taking clozapine
zhlédnutí 220Před 11 lety
Update on my daughter taking clozapine
And now?
Hi Kim. Seeing your video after 9years. How is your daughter
Not very well.
How much did she get . . Some patients get crazy diabetes on like 100 - 150 mg, your local pharmacy has a blood sugar measurer, cost 40 - 50 dollars, you can see if it's killing her . . You can get long-acting insulin today, I get that too, and it has stopped the nerve damage, even though it still works, as a powerful sedative, really well . . I can't eat very much, still have hard diabetes, but it doesn't kill me . . Get a lawyer, sue them, the nerve damages are permanent, so call the cops . .
You can get a blood sugar device, they cost 40 - 50 dollars, and check her diabetes . . It's a bit higher in the afternoon, they say, in Denmark 4 - 7 - 11 morning - midday - evening, night . . She just needs a little prick, with a lancet, and you'll know if she's dying, call the police . .
If they're giving this to a 17-year old, they're bloody criminals . . Sue them, it's basically killing her, get a vicious lawyer, and demand answers . . You can hurt them in court, you can probably see she's dying, can't you . . If you win, and tell others, you can save lives, be a hero, for others, like your daughter . . I'm on clozapine, I have heart neural damages, over time the diabetes will damage your daughers nerve-function, in the internal organs, get a lawyer, call the police, no one deserve that, no human being, ever . . <3
Clozapine has a very odd meaning, in latin, made some comments on another video, here's documentation, to go with that . . I think the doctors want your daughter gone, or worse . . . gofile.io/?c=BLjr10 Click the link, and see for yourself, it's toxic, can be fatal, call the cops, if she doesn't deserve it, or it's unfair, mal-practice . .
There's something you need to know . . Clozapine is also called Leponex . . In doctors terms, that refers to LEPO, latin for scales, and also disease leprosy, lepers . . The word leper comes from LEPO-, or similar words, LEPRIS-, in latin . . All doctors know latin, learn it in school, in Europe . . NEX means death, in latin, I use google translate . . Lepers get a bacterial infection, that attacks the nerves, and one loses ability to feel pain, nerve function to internal organs, eyes start bleeding . . Leponex ( clozapine ) doesn't do that, instead it causes diabetes, HARD diabetes . . The problem is, DIABETES causes four main problems, blood vessel damage, vision damage ( blood vessels inside eyes die, and you lost sight, can go blind ), kidney damage ( the high levels of glucose, in blood, damages kidney cells ) and, NERVE damages . . Basically, since almost all the damage leprosy does, it through nerve damage, hard DIABETES causes almost the same problems, in fact, the same . . The drug you're on is not meant to heal you, doctors use it to kill, or cripple bothersome, angry patients, and wait for them to die, of diabetes, a disease all doctors know . . That's why it is called LEPONEX, because you get a ' LEPER DEATH ', when you take the drug, it kills you . . Please share this with other people in clozapine, don't get angry, but get a lawyer, call the police . . The nerve damages are permanent, and there's no cure, people with DIABETES nerve-damage to heart get ' ANGINA ', chronic heart pains, and diabetes patients die five times more, of heart failure, than normal people . . They put you on this drug, if they want you dead, the doctors, I don't know what you've done, but you've got the ' death ' sentence, you'll basically be a leper, if you continue on the drug, unless you get treatment for the DIABETES, I get 70 units long-acting insulin, and it's not enough, most people get 20 units, or maybe 30 units, most get about 20 units insulin . . Clozapine is designed to give you DIABETES, and kill you, cripple you slow, over time, lose sense of touch, or ' feeling ' all over body, nerve damage to internal organs, loss of cardiac function, other things . . They give you this drug, if they want you dead, ' buried ' . . Call the police, get a lawyer, sue them, for intentional death, and suffering . .
They're trying to kill your daugher, get a blood sugar apparatus, they cost 20 - 40 dollars, and measure her blood sugar, yourself, since doctors tend to lie, about blood works, when they want a person dead, it happened to me, a few times, before they admitted it . . You'll need to find a diabetes web-site, and see what is high, low, and so on diabetes . . They're easy to use, you get some ' lancets ', they don't really hurt today, almost painless, a little prick, and you can measure diabetes, in a drop, of blood . . If she has DIABETES, and doesn't get treatment, she'll die, almost certaintly . . Call the cops, find out if she has diabetes, measure it yourself, doctors have lied often, about my health problems, to justify drugging, and they want to cover this scandal up, that they use DIABETES to cause ' LEPER - DEATHS ', lepo-nex, from latin . . If you have an e-mail, I can send you the information you need, if you want . . .
Shut up you idiot, don't talk about things you don't know about.You like to talk about suing, this is your idea of making money without an effort.All medications have risks, and sometimes the benefits outweigh the risks but you dumb fool like to sound smart.If I was your doctor I would forcibly inject you with 3 antipsychotics because you are not just delusional but also a pathological liar.
It takes a very strong person to share this , thank you . My wife has been going through a time presently and it’s been 3 months , I hoping the clozaril helps her . God bless you
So this medication cured your daughter?
No, it did not. It only makes the symptoms manageable. There is still no cure for schizophrenia.
I did not dislike this video. It happened by mistake. I m sorry.
FUK THIS SHIT
She's still hallucinating but things are fine !?!?!?!?!?
It sounds messed up right? The problem is there is currently no cure for schizophrenia, schizoaffective disorder or bipolar disorder. All the doctors can do is manage the symptoms. For people with extreme cases, being able to manage hallucinations and delusions is much better than reacting to them as if they are real. So she's not fine in comparison with a person who doesn't have schizophrenia, but for someone with the illness she's doing well. Thank you for caring enough to watch and comment. Childhood schizophrenia is somewhat uncommon and I hope my videos raise awareness.
My dad is raising his great nephew who is 70 and nephew is 12. That side of my family has bipolar rampant. Im proud of you, him, and all the other's who bring safetly to their loved one in thr brink of their oarents mental illness 💕
Great grandparents
What do u think of Jani and Bodhi. The interbet is saying her son is stoned off Clozaril. Others like me see less hospializations and suicide attempts. Do kids get that sedated from Clozaril? Thanks for the content. Glad your daughter is growing up and feeling better.
She was sedated on the cloziril but that was better than experiencing her hallucinations attacking her. The Dr's still have not found a better treatment yet. I hope they can soon. Thanks for your kind thoughts.
@@kimberlyannhayes1 thank you for your insight!!
@@kimberlyannhayes1 im praying for you and your family!!
thank you. @@realascanb222
Yes, depending on the dose they can be very zombieish. There is still so much to learn about schizophrenia; you really have to decide what you can live with: living half asleep, drooling and large weight gain from the cloziril or whatever positive and negative effects from the disease.
I was taking off this cold turkey and all my organs starting shut down -legally I was dead and was mentally challenged and manic for 8 months - do not take this drug, it's just as bad as street drugs
Thank you am not going to take it
So you put her on medication that doesn't even cure her problem
How about we here from your daughter how she likes it and not you
And you're calling it drug😬
Just take her off of this poison Take her to a rehab center and clean her body There is nothing called schizophrenia Holistic treatment ppl holistic
It's unfortunate that my comments don't seem truthful to you. My situation, like everyone's is unique. In my case I had to make medical decisions on behalf of my underage daughter. There was very little information on childhood schizophrenia at the time. I was hoping to share with others so that they could see one example of how clozapine affects this disease. I had no choice but to talk about my daughter's illness and diagnosis (although not publicly). In fact if I hadn't dealt with her diagnosis I would be guilty of neglect. When you are legally responsible for someone else it is not simply about them, but about you as well. I hope that clarifies some things.
Would you be comfortable talking about your daughter in this way if you didn't have the medical labels to couch it in?
Family members have their own reasons to adopt psychiatric language. It doesn't seem truthful to me whenever someone is describing someone else's diagnosis. There is much more to people than is conveyed by the diagnoses, and the real story is more complex.
Lyder Horn you are right. it is much more complex than can be described here. I'm giving my own perspective on my daughter's illness and her treatment with clozapine.
Iam scared to be on this or any psych med. If you miss a day taking it and you become worse without it then it cant be good. This isnt right. All this scizo stuff is just from people trying to make you conform.As you said , your daughter freaks out when under stress. That cant be good. I think she needs total freedom. Thats what makes me feel better. I need to be a yoga camp in Hawaii or something. It might sound crazy but this is the only thing that helps. This society is crazy and it makes me more scizo and depressed. They just want to gass us up with meds to make us conform and then these meds have long term bad side effects. This cant be good. We are better than this world i feel like.
YOUR RIGHT !!! THOSE PHYC DRUGS ARE EVIL AND I WILL MURDER AS MANY AS I CAN IF I HAVE TO FACE IT AGAIN !
It got rid of hallucinations and paranoia. Life before was a nightmare. Life after was bearable.
Did you feel any good on Clozapine regardless of side effects? Do you still take them? My brother is about to try them.
dmana3172 Hello, how is your brother doing on Clozapine? Has it helped hom in any way? Hope he is doing well and hope you will react to me. Much love!
oh, that sounds awful. I hope you've found a good treatment.
Thanks for the update - all the best with your move - sounds like your daughter with schizoaffective disorder is doing well - I became very ill when I stopped taking clozapine (even when reducing it very,very slowly), I got hospitalised and it took me several years to recover from clozapine withdrawal symptoms.
i have a son 23, with mental illness and his Dr wants to put him on clozapine i am trYng to gATHER INFO AND I DO NOT BELIEVE AFTER WHAT I AM SEEING ON U TUBE I don't want him to go through all that suffering
Hi, i live in the UK London, my brother is on Clozapine like your daughter is.. He has been on it nearly 6 years although now just on a small maintenance dose.. After doing endless research i have descovered people do not have a long life on this drug, but you have more chance of getting off it the less time youve been on it. Were now looking at a possible cross taper to olazapine but its risky. Knowone can get off clozapine without severe relapse.. My advice is get your daughter safely off this drug with help from her psych.. best of luck
thank you TirarADeguello!
I think your husband is very strong to support you and you're very brave giving us this witness to the situation. Thanks.
Overall about 100 PDS weight gain, sleepiness and drooling at night.
What side effects did she suffer ?
I am glad your daughter is feeling better on clozapine, can I ask what dose of clozapine she is on?
She sees, hears and feels things when they get violent. Usually one or two people yelling at her.
My grandfather also had schizophrenia and thought the government was spying on him through the phone. He was very into conspiracy theories and would call my mom to tell her about them. I feel truly bad for what you daughter is going through, I am doing a report on Clozapine and have truly realized the horrific events that happen to schizophrenic patients. God Bless
Hi there. She started outpatient. She sleeps 10 to 11 hours. Doesn't seem sedated. Are you still taking clozapine? How is it going?
I an glad that the white blood cell count improved. Was your daughter started on clozapine in the community or in hospital. I found clozapine extremely sedating, does your daughter suffer from this as well. I would sleep about 16 hours.
Wow, I must have been really tired that night.
Sorry, 4 weeks.
Sorry, I said she had been on clozapine for a couple of months...it's been about three weeks.
Hi I'm cam, 33 years old, just watched your videos about your daughter. I was on Clozapine, and i diagnosed with Schizophrenia in 2006 and i was admited to a Mental hospital for 4 years, and discharged 2 years ago. I know its hard doing it all from home, but i was very lucky that i was admitted into hospital, because it pretty much saved my life, and now living a normal life. Id like to be able to tell you more about clozapine but youtube limits charaters, please email camapowell@gmail.com.
Cameron Powell can I email you regarding clozapine
Did you know clozapine is called ' leponex ', in Europe, and all doctors learn latin there . . It comes from two latin words, lepo, and nex . . lepo means leper, leprosy ( actually scales, flakes, it refers to nerve damage, caused by the leprosy disease ), and nex means death, deaths . . Leprosy causes nerve damage, and eye damage, many lepers bleed from their eyes, lose sense of feeling, step on stones, get cuts, they get infected, and must be amputated, due to infections . . They can't feel it, don't know they're hurt, can't feel it . . Now, clozapine - leponex doesn't cause leprosy, that's a bacteria . . Instead, it causes DIABETES, hard diabetes, according to some articles, it's 55 % that get diabetes, some get extremely high diabetes on low dosages, 50 - 150 mg, very early . . Diabetes also causes problems, among them retinopathy ( eye damage ) and, nerve damage ( diabetic neuropathy ) . . All European doctors know this, and they talk, across the Atlantic, it's a well-known secret, among psychiatrists . . I asked my doctor if he knew leponex causes diabetes, and he said yes, he knew that . . The Maudsley Prescribing Guidelines in Psychiatry, 13th edition, says risk of diabetes is HIGH . . Other places, like the FDA, says it's a 0.1 % chance . . Basically, leponex ( clozapine ) causes over 90 % of the complications, leprosy does, because of nerve damage, also to the internal organs, and doctors use it, to do that . . When I found out, I got in a fight, verbal, threats, with my doctors, and they increased my dosage, that's their power . . The BEST way to do it, is to call the police, and get lawyers . . If you sue them, you can put them in jail, for reckless endangerment, causing injury, or worse . . and, if you win, you can publish it in papers, and other patients can sue them, as well . . If a doctor has done this to say 10 - 12 people, he will never get out of jail, or get executed, by the law, prison workers, cops . . That's the kind of justice you want, I tried violence, getting aggressive, and it only made it worse, for me . . Suing someone is perfectly safe, and won't harm you, at all . . And, if others sue, locally, your doctor is dead, or in jail for many years, poor, broke when he gets out, and patients will always hate him, shun the doctor, even relatives . . If you make it personal, they will over-medicate you, but a nice, quiet court-hearing, where you present your case, will never harm you, and you can still be friends with your doctor, afterwards . . REMEMBER that, getting violent will DAMN you, suing will SAVE you, as a PERSON, a HUMAN BEING . . REMEMBER THAT ! ! <3
County is all I have used for most of my life. Maybe try NAMI. Can the doctor she is seeing now give you a referral? I might recommend the crisis line, but they are usually run by the county clinics & may not know of any private doctors. Good luck with your search.
She goes through phases when she wants to talk. She's definately sleepy though.
Ever tried to satisfaied some of her needs, when she ask and talk about thing`s. My experience is that sometimes you gotta lipservice.
She is proberly sleepy