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CFS Unravelled
Australia
Registrace 25. 10. 2011
The original source of CFS recovery stories, fibromyalgia recovery stories and POTS recovery stories. This is a channel for people seeking recovery from Chronic Fatigue Syndrome (Myalgic Encephalomyelitis), Fibromyalgia and Postural Orthostatic Tachycardia Syndrome (POTS). Dan Neuffer recovered from this illness and shares his thoughts and insights to help others suffering with this illness. We discuss ME/CFS/POTS/Fibromyalgia treatments, ME/CFS/POTS/Fibromyalgia recovery, ME/CFS/POTS/Fibromyalgia symptoms and share a message of hope for recovery from Fibromyalgia, ME/CFS and POTS. This channel is also relevant for #CFIDS #MultipleChemicalSensitivity and #ElectromagneticHypersensitivity. #GetYourHealthBack #MECFSRecovery #FibromyalgiaRecovery #POTSRecovery #MECFS #POTS #Fibromyalgia #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome
Is Looking For Treatments Stopping You Recovering From ME/CFS, PVFS(long-covid), Fibromyalgia & POTS
Looking for treatments to help you recover from ME/CFS, PVFS (long-covid), Fibromyalgia or POTS or related illnesses should surely be a good thing. It’s what most of us do whilst we are ill until we eventually give up or are told ‘there is not cure, so you can’t recover’.
But whilst it can be key to your recovery breakthrough, it can also have significant challenges and problems associated with it.
In this video I dive into 4 benefits, challenges and problems of endless research into treatments for long-covid or post-viral fatigue syndrome, ME/CFS, Fibromyalgia, POTS, MCS or similar illness.
SHOWNOTES: cfsunravelled.com/episode22
LINKS:
For the ANS REWIRE 4 Free Intro Lessons of the recovery program: ansrewire.com/info-request/
Here is a link to request the free eBook and join my email list: cfsunravelled.com/discoverhope
Link to recovery stories: cfsunravelled.com/cfs-fibro-recovery-stories/
TIMESTAMPS:
Introduction 0:00:00
4 Benefits of Researching Treatments? 0:01:59
4 Challenges around Researching Treatments 0:04:25
4 Problems arising from Researching Treatments 0:07:58
Conclusions about Researching Treatments for ME/CFS/PVFS/FMS/POTS/MCS 0:10:37
LET'S CONNECT (follow Dan):
💌 Sign up to my newsletter via my website - cfsunravelled.com/
💙 Follow me on Facebook - cfsunravelled/
📸 Instagram - danneuffer.cfsunravelled
📌 Pinterest - www.pinterest.com.au/cfsunravelled/_saved/
🐥 X - x.com/cfsunravelled
#fibromyalgia #mecfs #potssyndrome #invisibleillness #PVFS #recovery #longcovidrecovery #treatments #research
**MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content are opinions and information presented for EDUCATIONAL PURPOSES ONLY, and MUST NOT be used as an alternative to a healthcare professional’s diagnosis and treatment. Only a physician or other licensed healthcare professional are able to determine the requirement for medical assistance. Please seek the advice of your physician or other licensed healthcare provider if you have any questions regarding a medical condition.
But whilst it can be key to your recovery breakthrough, it can also have significant challenges and problems associated with it.
In this video I dive into 4 benefits, challenges and problems of endless research into treatments for long-covid or post-viral fatigue syndrome, ME/CFS, Fibromyalgia, POTS, MCS or similar illness.
SHOWNOTES: cfsunravelled.com/episode22
LINKS:
For the ANS REWIRE 4 Free Intro Lessons of the recovery program: ansrewire.com/info-request/
Here is a link to request the free eBook and join my email list: cfsunravelled.com/discoverhope
Link to recovery stories: cfsunravelled.com/cfs-fibro-recovery-stories/
TIMESTAMPS:
Introduction 0:00:00
4 Benefits of Researching Treatments? 0:01:59
4 Challenges around Researching Treatments 0:04:25
4 Problems arising from Researching Treatments 0:07:58
Conclusions about Researching Treatments for ME/CFS/PVFS/FMS/POTS/MCS 0:10:37
LET'S CONNECT (follow Dan):
💌 Sign up to my newsletter via my website - cfsunravelled.com/
💙 Follow me on Facebook - cfsunravelled/
📸 Instagram - danneuffer.cfsunravelled
📌 Pinterest - www.pinterest.com.au/cfsunravelled/_saved/
🐥 X - x.com/cfsunravelled
#fibromyalgia #mecfs #potssyndrome #invisibleillness #PVFS #recovery #longcovidrecovery #treatments #research
**MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content are opinions and information presented for EDUCATIONAL PURPOSES ONLY, and MUST NOT be used as an alternative to a healthcare professional’s diagnosis and treatment. Only a physician or other licensed healthcare professional are able to determine the requirement for medical assistance. Please seek the advice of your physician or other licensed healthcare provider if you have any questions regarding a medical condition.
zhlédnutí: 1 415
Video
Dr Michael Lenz on treating Fibromyalgia, CFS, POTS - treating children & the connection with ADHD
zhlédnutí 747Před měsícem
In this episode, we sit down with Dr. Michael Lenz, a dedicated physician specializing in fibromyalgia, ME, CFS, POTS, and related illnesses. Dr. Lenz discusses his conservative approach to medications and emphasis on lifestyle medicine, particularly for children with these conditions. A notable part of the discussion delves into the common comorbidity of ADHD with fibromyalgia and CFS, highlig...
How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?
zhlédnutí 3,5KPřed 2 měsíci
How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?
How to Choose ME/CFS/Fibro/POTS Recovery Path
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How to Choose ME/CFS/Fibro/POTS Recovery Path
Finding Ways To Create Habits For Actions We Want To Take
zhlédnutí 604Před 7 měsíci
Finding Ways To Create Habits For Actions We Want To Take
"My Head's Exploding..." - details for ME/CFS/Fibromyalgia/POTS/MCS Recovery Matter!
zhlédnutí 1,4KPřed 8 měsíci
"My Head's Exploding..." - details for ME/CFS/Fibromyalgia/POTS/MCS Recovery Matter!
Mollie's original ME/CFS/POTS Recovery Success Story using ANS REWIRE
zhlédnutí 1,6KPřed 10 měsíci
Mollie's original ME/CFS/POTS Recovery Success Story using ANS REWIRE
How to get better from Chronic Fatigue Syndrome: Elliott shares his Success Story
zhlédnutí 1,8KPřed rokem
How to get better from Chronic Fatigue Syndrome: Elliott shares his Success Story
Keeping Track Of Progress with Chronic Illness
zhlédnutí 779Před rokem
Keeping Track Of Progress with Chronic Illness
Multiple Chemical Sensitivity: Julia’s Brain Training Treatment Recovery Success - Part 2
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Multiple Chemical Sensitivity: Julia’s Brain Training Treatment Recovery Success - Part 2
Multiple Chemical Sensitivity: Julia’s Recovery Success Story & Deep Dive into MCS Diet Part 1
zhlédnutí 1,7KPřed rokem
Multiple Chemical Sensitivity: Julia’s Recovery Success Story & Deep Dive into MCS Diet Part 1
How can people recover from ME/CFS, Fibromyalgia, POTS, PVFS, MCS - WITHOUT a Cure?
zhlédnutí 7KPřed rokem
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Why people with ME/CFS Fibromyalgia POTS often need more than solely Mind-Body Approach
zhlédnutí 2,3KPřed rokem
Why people with ME/CFS Fibromyalgia POTS often need more than solely Mind-Body Approach
Chronic Pain Success Story: Andrea's Journey Back to Health
zhlédnutí 1KPřed rokem
Chronic Pain Success Story: Andrea's Journey Back to Health
Chronic Fatigue Syndrome Success Story - Marc's Transformation
zhlédnutí 1,4KPřed rokem
Chronic Fatigue Syndrome Success Story - Marc's Transformation
What To Do When Things Go Wrong Whilst Chronically Ill
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What To Do When Things Go Wrong Whilst Chronically Ill
Fibromyalgia Recovery Story - Gaurav shares his success with ANS REWIRE
zhlédnutí 2,6KPřed rokem
Fibromyalgia Recovery Story - Gaurav shares his success with ANS REWIRE
Long-term Chronic Fatigue Syndrome Success Story : Colin's ANS REWIRE Testimonial
zhlédnutí 1,6KPřed rokem
Long-term Chronic Fatigue Syndrome Success Story : Colin's ANS REWIRE Testimonial
Post Viral Fatigue Syndrome Recovery Success Story - Jo shares her Journey with ANS REWIRE
zhlédnutí 1,5KPřed rokem
Post Viral Fatigue Syndrome Recovery Success Story - Jo shares her Journey with ANS REWIRE
Fibromyalgia Anxiety: 7 Tips To End Overwhelm (also for ME/CFS, POTS & other chronic illnesses)
zhlédnutí 8KPřed rokem
Fibromyalgia Anxiety: 7 Tips To End Overwhelm (also for ME/CFS, POTS & other chronic illnesses)
Severe Chronic Fatigue Syndrome Recovery Success Story: Eleanor & her Husband's Journey
zhlédnutí 1,3KPřed rokem
Severe Chronic Fatigue Syndrome Recovery Success Story: Eleanor & her Husband's Journey
Fibromyalgia Remission - Was it Rachel's Destiny To Get Sick?
zhlédnutí 3,8KPřed rokem
Fibromyalgia Remission - Was it Rachel's Destiny To Get Sick?
The most important thing towards recovering your health from CFS, Fibromyalgia, POTS and MCS
zhlédnutí 4,7KPřed rokem
The most important thing towards recovering your health from CFS, Fibromyalgia, POTS and MCS
Fibromyalgia Sleep and Sleep Apnea - Strategies to Recover and Normalise Sleep (also 4 ME/CFS/POTS)
zhlédnutí 3,3KPřed rokem
Fibromyalgia Sleep and Sleep Apnea - Strategies to Recover and Normalise Sleep (also 4 ME/CFS/POTS)
Should you change program, coach or practitioner to help you recover from CFS/Fibromyalgia/POTS/MCS?
zhlédnutí 1,1KPřed rokem
Should you change program, coach or practitioner to help you recover from CFS/Fibromyalgia/POTS/MCS?
How I cured my POTS, CFS & Fibromyalgia - Dramatic Rollercoaster Journey Ends
zhlédnutí 4KPřed rokem
How I cured my POTS, CFS & Fibromyalgia - Dramatic Rollercoaster Journey Ends
E11: Neuroscientist Dr Delia McCabe reveals key diet strategies for brain health & illness recovery
zhlédnutí 2,6KPřed 2 lety
E11: Neuroscientist Dr Delia McCabe reveals key diet strategies for brain health & illness recovery
How I overcame fibromyalgia and CFS with ANS REWIRE - Malin's Recovery Success Story
zhlédnutí 2,1KPřed 2 lety
How I overcame fibromyalgia and CFS with ANS REWIRE - Malin's Recovery Success Story
Mould Illness and CFS recovery: Alexandra pushes back against doctors and family!
zhlédnutí 3,2KPřed 2 lety
Mould Illness and CFS recovery: Alexandra pushes back against doctors and family!
Coping with Fibromyalgia, ME/CFS, POTS and MCS and related chronic illness: Threat or Opportunity?
zhlédnutí 2,1KPřed 2 lety
Coping with Fibromyalgia, ME/CFS, POTS and MCS and related chronic illness: Threat or Opportunity?
I stopped all my fibromyalgia symptoms with the Lion diet. That means fresh beef and lamb meat only with occasionally adding pickles to my meals. All the brain fog, sleep disturbances, incontinence, ibs, muscle and joint pain, headaches, migraines with aura, heavy leg syndrome, stiff neck etc gone in two weeks. That's all it took. I remember I had the worst headaches on rainy days like my brain was about to pop from too much internal pressure. Well, the day I felt like new again it was on a fully rainy day. That morning I felt so different and alive that when I realized it I had to pause and look around me. Everything felt different, all the pain and heaviness were gone, my whole body felt light like I was a child again, my eye vision restored (before it was blurry), brain was sharp and I could think fast, my neck mobility and body was back and easy to move. I felt light as a feather but right before this happened, my body flushed all the inflammation and lasted from 4 to 5 days which is very normal. In my third month of the Lion diet, I started reintroducing the foods I used to eat. Wheat brought back all the fibromyalgia symptoms as soon as I ate it, that night my stomach felt like I had a brick inside it. My spine was so inflamed with continuous pain that I could not move from one side to the other. It got away from eating beef again. Some vegetables and fruits triggered inflammation as well. Also ground beef, cured, smoked and dry aged meats trigger inflammation and pain. The reason for that is because these foods are high in histamine. If anyone want to try this diet for healing purposes, big cuts of beef and lamb like steaks are recommended. Anything besides minced meat. When cooking the meat never use vegetable oils, not even olive oil. Use beef tallow instead and cut down all sugar and honey. It may not sound as fun but it is once you get rid of all the pain. Lastly, suppliment with vitamins C, B-complex etc and minerals like Magnesium Threonate but make sure they don't contain wheat and avoid synthetic ones. Eat fatty meats, avoiding the fat will cause constipation. For more information on this diet check Mikhaila Peterson Lion diet.
It's definitely progressive. I've had it for about 8 yrs now. Its all I can do to get up for work in the morning and then make it through the work day. I have to take 5 hr extra energy shots to make it through work a whole day. I have most of the symptoms he described and showed. I have to have help from my fiancé daily and he's always happy to help me with whatever I need. There are some days when I simply cannot get out of bed. I can't walk. My legs, particularly my thighs, hurt too much or no strength. The pain has spread to my entire body. Right now, I feel very sick and in so much pain. I couldn't make it to church again. 😢
SAMe cured my fibromyalgia. It lifted the symptoms of depression that brought on the pain of fibromyalgia. I took it for a course of three bottles. After only a few days the symptoms were lifting … that doesn’t mean you should stop….so be aware that you need to continue taking SAMe until you finish a bottle or two before attempting to stop. If it comes back continue with another bottle. It’s great stuff. Just make sure you are not presently on any type of anti- depressant before taking SAMe. For fibromyalgia and depression many studies have started patients at 400 to 600 milligrams daily. For osteoarthritis, 600-1,200 milligrams daily of SAM-e divided into three doses is common. Sometimes, the dose of SAM-e is increased gradually over a few weeks. This can help reduce side effects such as restlessness or anxiety. What are the risks of taking SAM-e? * Side effects. SAM-e seems to be a relatively safe drug. High doses of oral SAM-e can cause symptoms like gas, upset stomach, diarrhea, constipation, dry mouth, headache, dizziness, anxiety, and skin rashes. SAM-e can also trigger an allergic reaction in some people. * Risks. If you have any medical issues, check with a doctor before you start using SAM-e supplements. SAM-e might not be safe for people with conditions such as bipolar disorder, Parkinson's disease, and diabetes. Because SAM-e can affect the blood vessels, stop using SAM-e two weeks before getting surgery. * Interactions. If you take any medicines regularly, talk to your doctor before you start using SAM-e supplements. SAM-e could be dangerous when combined with antidepressants or supplements that treat depression like St. John's wort. SAM-e could also interact with some prescription painkillers, cough medicines, and treatments for diabetes and Parkinson's disease. Patients taking MAOIs should not use SAM-e without discussing it with their doctor. Given the lack of evidence about safety, SAM-e is not recommended for children or for women who are breastfeeding. Although SAM-e has been studied as a treatment for liver problems during pregnancy, pregnant women should only use SAM-e if a doctor recommends it.
SAMe cured my fibromyalgia. It lifted the symptoms of depression that brought on the pain of fibromyalgia. I took it for a course of three bottles. After only a few days the symptoms were lifting … that doesn’t mean you should stop….so be aware that you need to continue taking SAMe until you finish a bottle or two before attempting to stop. If it comes back continue with another bottle. It’s great stuff. Just make sure you are not presently on any type of anti- depressant before taking SAMe. For fibromyalgia and depression many studies have started patients at 400 to 600 milligrams daily. For osteoarthritis, 600-1,200 milligrams daily of SAM-e divided into three doses is common. Sometimes, the dose of SAM-e is increased gradually over a few weeks. This can help reduce side effects such as restlessness or anxiety. What are the risks of taking SAM-e? * Side effects. SAM-e seems to be a relatively safe drug. High doses of oral SAM-e can cause symptoms like gas, upset stomach, diarrhea, constipation, dry mouth, headache, dizziness, anxiety, and skin rashes. SAM-e can also trigger an allergic reaction in some people. * Risks. If you have any medical issues, check with a doctor before you start using SAM-e supplements. SAM-e might not be safe for people with conditions such as bipolar disorder, Parkinson's disease, and diabetes. Because SAM-e can affect the blood vessels, stop using SAM-e two weeks before getting surgery. * Interactions. If you take any medicines regularly, talk to your doctor before you start using SAM-e supplements. SAM-e could be dangerous when combined with antidepressants or supplements that treat depression like St. John's wort. SAM-e could also interact with some prescription painkillers, cough medicines, and treatments for diabetes and Parkinson's disease. Patients taking MAOIs should not use SAM-e without discussing it with their doctor. Given the lack of evidence about safety, SAM-e is not recommended for children or for women who are breastfeeding. Although SAM-e has been studied as a treatment for liver problems during pregnancy, pregnant women should only use SAM-e if a doctor recommends it.
I seen a couple of your podcasts and first I want to THANKYOU for letting us into your "" life". This was the first time for me in over 35 years that I feel someone understands. I have seen many doctors and I have tried all these years to have family feel fibro is real and the doctors to know my symptoms are real and I am not a hypochondriac. Two years ago I was diagnosed with diabetes. Now the doctors say my painful spasms and neuralgia is part of my diabetes but I have had some of these cases for many years. There is never a mention it could be my fibro. It's just medicine and more medicine. Sometimes I will sleep continually for 2 to 3 days before I can function a
It’s nice to hear someone calling it an illness instead of a disease. Thank you sir.
Thank you for sharing! We definitely need more awareness about ME/CFS
My insurance doesn't believe fibromyalgia is a real condition. So my dr can't order tests and can't refer me to a rheumatologist. It's very frustrating.
Yea. These two together make me feel at home. Right now I feel like I’m in a dark damp forest and I can’t find my way out. Going to try guided experiences of Silo, and then create my own allegorical experience. Our Images are powerful. They have a tremendous effect on the psychism.
Thank you so much, Dan, I really needed this today!
Boy ain’t this the truth
My world shrunk after getting cfs dan…friends and family tonight I was lazy I can’t tell you just how happy I am to know there is someone close who gets it and might be able to help me…I’d just about given up hope but had heard of something called ans rewire and thought hey I’ve tried so many things it’s probably just another rabbit hole and not to get my hopes up…interestingly I’ve heard it has helped a lot of people
Been this way for over 20yrs now 😂 Sleep hormones nutrition infections exercise…showing up for yourself each day and even then little progress is really difficult. I have improved in many ways though no thanks to any medical professionals or institutions
I suffer from MCS, and while I appreciate your video and hope it helps many, I have to ask: Would reprogramming a canary not to react to toxic gases, or a firewall to ignore threats, truly protect us, or just silence essential warnings of danger? I pose this question because nearly all the ingredients in perfumes and household cleaning products that trigger my sensitivities are, in fact, toxic. I could argue that others aren't sensitive enough; we should rid our lives of these toxins.
Thank you for this!
A vagusnerveinflammation or a vagusnerv compression ist not a psychological problem. I have a vagusnervecompression for 21 years, because of an accident in 1985, a cervical vertebra fracture in C2. When people get older they got problems with the vagusnerve, too. :-) 🇩🇪
How can FM not by psychological if the cause is high psychological stress? In return it would mean there is no psychosomatic. Psychosomatic disorders also have measurable bodily changes that follow. Thats kind of controverse.
Great question David. The reason is that the system is unable to cope with ALL stressors, including physical, physiological and neurological (as well as psychological). So whilst psychological stress can be a trigger, it is not the cause. That is why a multi-lateral approach focussing on the root mechanism is key to recovery. Whilst that may include a psychological component (for some people that may be bigger), it should also address the other triggers. Does that make sense? PS: The illness is full of contradictions - I contradict myself often when I explain things because things are not so black and white
(I thought u were saying “anus”.) Joking aside yr English is perfect and your suggestions more so. I’m really going to try this. It’s so embarrassing not to be able to keep up, especially since it’s “invisible” to others. 🙏 so much.
hehe - yes, I have been cursed with that for over a decade now, still struggling to say A........N.........S. Hope the recovery snippets and interviews are supporting you to get your health back.
Thank you thank you thank you,,,I’m MECFS
My chronic fatigue was triggered by being served infested or contaminated food during an industrial installation job in Mexico for 6 weeks. I went there a healthy, energetic hard working technician and returned with a really disturbed gut, dark brown urin, aching kidneys and tiredness, slumping leggs and feet while walking. From that point on everything went down hill. I developed a hiatal hernia with gas constantly rising from my stomach into my nose and lungs. My spinal ligaments weakened and now my neck and back vertebrae are frequently shifting, affecting my nerves and spinal canal. I am mostly bed ridden. I feel like I have a very bad flue every day, or like being poisoned. My muscle, joint. and ligament cells seem to not be getting what they need, or are not being repaired properly. I can’t deal with being like this. It’s like suddenly paralyzing the fastest sprinter on the planet from neck down at the peak of his achievements and asking him to accept that and live like that. I think he couldn’t live with that. If this doesn’t get better for me soon I will have to consider exiting life early because I cannot take it anymore. 😓😞
Sorry to hear that - it sure is tough and I get how you feel - make sure you seek out help from a professional if you ever consider self-harm. The thing to focus on is that recovery is possible - hopefully you took that from the video !? So focus on understanding more about what you can do and if full recovery is too much of a stretch for now, simply focus on partial recovery. AS we get a bit better, we can often do more to help ourselves and we can build momentum - it's amazing what can happen over time as we make many small gains. So sorry for all your difficulties - hope you feel a little better soon. Sending you some hugs mate -
You are a great inspiration! Thank you!
great video
Glad you enjoyed it - hope you are checking out the recovery stories!
Thanks for sharing your story. I have tried to dix my sleep but i just can sfay askeep for longer thsn a hour and yhen aeake from 3am every night for the past 3 years any thing i could do to fix sleep i go to bed ag 10 pm and get up at 6am
The problem is that sleep disturbance is also the RESULT of the root cause here - so many of us have limited success. As people make overall recovery progress, this often normalises on it's own.
I also get bruises really easily
Every new symptom I have asked for help with has been dismissed. They think I'm depressed. I'm not depressed I'm frustrated. I have been dismissed by everyone who should be helping me. I am here only for my children.
it's DEPRESSING when that keeps happening, right!? If you listen to the recovery interviews, I think you will find that others have the same experience - czcams.com/play/PLYGv2houTixlgFeJ5WHMIMA-BGpDfE8vv.html
It's like having an almost constant bad bout of flu or even Covid . The incessant , persistent fatigue and aching and pain is totally debilitating. Our of thr eorst symptoms forme is yhe scorched skin surface sensation yet there's nothing to see. I feel like my skin should be bright red but it looks normal ...which adds to the problem because people may think that I am just mallingering . I don't look like i'm at death's doot ,but I feel like it many times . Count your blessings if you don't have Fibromyalgia.
If you listen to the recovery interviews, you will hear others say exactly the same thing! czcams.com/play/PLYGv2houTixlgFeJ5WHMIMA-BGpDfE8vv.html I think that's part of the reason we had a virus theory for CFS for so many years - some people still flog that horse!
I have a profoundly heavy exhaustion and fatigue. I have a great deal of pain and stiffness with intense pain. I started taking Duloxatine and it helps with the stiffness (which I am very grateful). I have a lot of spasms and I feel vibrating when there is none. I have what feels like an extreme case of tendinitis, sometimes I cannot use My arms very well due to the pain. My neck, shoulders and back are super tense. I have these very large muscles in the neck and shoulders and they are hard hard... hard. All those muscles burn and ache and throb constantly. My skin will become sensitive and it gets actually painful like a burn. And I have months on end that just fades away because I can't keep a job due to how unwell I am and feel. I appear lazy to those around Me. I am not however. I actually love doing things in the garden, sports, walking in general. I can't enjoy these things anymore. I have to wait for the opportunity to feel good enough to push Myself through. Then I pay for it greatly 😢. I don't want pain medication and I don't want to feel like a zombie. I smoke a lot of pot and it seems to just barely pacify the pain and discomfort and sickness. And I swear something fierce and sleep in 3 to 4 hour increments throughout the day. Then I will have a hard crash and sleep for 10 hours. I have a couple deficiencies in vitamins B and D. Recently potassium was low, due to My hydrochlorathizide for HBP. Constant Discomfort
Sadly your experience is quite common - but people still manage to recover as they change their approach - have you listed to any of the interviews with recoverers? czcams.com/play/PLYGv2houTixlgFeJ5WHMIMA-BGpDfE8vv.html
Bloody hell, Dan! You've been through the mill! My heart goes out to you and your family. I have Complex PTSD so my recovery has been very wonky due to my mental state (I've been in therapy for three years and I'm *so* much better but I had to wait donkeys' years for a decent therapist in the first place)... and I had severe pneumonia last year which *really* set me back - I have never felt so ill. I had flu a couple of months ago, that pushed me back too... but I began my first job in 20+ years last year and I'm off to college next week and it's in large part thanks to you and your teachings and my ability to stay focused on health, not illness. I will be forever grateful ❤🩹💚
Ty
Welcome to my world, I have most of these :(
Sorry to hear that - hope the recovery interviews support you.
Naproxen, trazodone, duloxete and weed have helped treat my symptoms. I’ve had fibro for a little over 40 years. Weed strains: critical care, purple punch, xxx og My pain was through the roof about 1 yr ago. Opiates were not helping me. My dr said to try thc with the opiates. It took awhile to find the correct strains but after 6 months, I was able to get rid of all the opiates. As sufferers we know not everything works for everyone but I hope this post helps some
Amazing video. Great info thanks
Amazing thanks for doing this! Ot inspires me ❤
I would suggest that the opposite of the Wish for control is basic trust. And that is lacking in many persons suffering from exhaustion syndromes such as CFS. The personality of the sufferer is build upon this lack and therefore vulnerable to these conditions.
Interesting take - thanks for sharing.
It isn’t just exhausting for you, it can be overwhelming for others. My 14 year old son had a first girlfriend, I later learned. That day his teacher called to ask me to help because my son had not turned an assignment. So on the way home to our rural location, I told my son he needed to turn it in. He said he had already. I told him I would keep his phone overnight just to make sure he followed through with getting this straight. My son blew up and didn’t agree that was fair. I recall feeling proud of myself for remaining calm and in control. Then my son shouted I was the worst mother in the world and he hated me! Startled, I looked over to his side of the pickup, to see him roll OUT of the truck! Going 65 mph. As I looked in my rear view and watched him roll down the highway in a slow motion daze, I knew he would die. From that moment to this I have not felt I had control. I wasn’t in control and will never again try to be in control. It can kill
Oh my goodness Penny - that is terrible - so sorry you've had such an awful experience.
I am so sorry . Teens are very impulsive and don't quite understand that there are consequences to actions. Not only by parents, but even by the choices they make by themselves. You were only trying to be a good mother. I didn't quite understand...is he ok now?
Most of the time it is selfishness.
Everything you say is completely correct I wish doctor's would listen to you thank you regards
Have you watched any of the recovery interviews?
Thank you 😊
Amazing ❤
Thank you for this video
After 4 years sick i learned cfs is a thing and saw the first people who recovered. This has helped me to believe it is possible and that i can do it!
MY DAUGHTER HAS FIBO EXCERCISE MAGNESIUM PUMPKIN SEEDS CHI SEEDS
Great Video ,,I feel all the time overwhelmed with what to do for recovery,... and thinking i am doing it wrong,... Thanks for the message here😊
It was when my girlfriend left me because I could not give her the attention that she needed. Almost none of it. Now still ill and 4 years later. But hopeful ❤
Sorry to hear that - glad you are reconnecting with hope. Have you listened to any of the recovery interviews on the channel? Which ones did you like the most?
❤
I was diagnosed with a double genetic mutation, MTHFR - and I figured it was responsible for the CFS/ME symptoms I developed after working in an underground mall during a massive renovation. (EVERYONE developed health problems as that stuff IS toxic, but I forgot that there were also 14 major stresses and 3 traumas during that time.) No wonder my nervous system went into hyperdrive! But I began to fear chemicals and scents. Learning to realize I do NOT want to live with toxins - but a brief encounter isn't going to harm me was key -- and I stopped panicking when the laundry reeked of Febreeze or a bathroom was perfumigated. I still reacted some times, but gradually that too stopped. I've gone from being disabled, mostly housebound and bedridden to writing, performing, exercising and socializing! Literally, from crawling -- my blood pressure was so dangerously low - to dancing! I still have a ways to go - but the view from here is fabulous! Thanks for the video - these are SO inspiring, and I share them with people still stuck at home.
I am tired of being called lazy by my family.
Don't put up with it - block it out, set some boundaries. Sorry you have to deal with this - people sometimes speak about it in the recovery interviews - have you listened to any?
As a person with ACE's, I would add from my own experiences that as I look back on many overly stressful situations that I've allowed, the thread that runs through is that I don't want to see others suffer the way I had to.
What did she do??
She used the ANS REWIRE recovery program.
How?
A multi-lateral recovery approach and using an education program called ANS REWIRE