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Tourettes Action
United Kingdom
Registrace 20. 03. 2009
Tourettes Action is the leading information, support and research charity for people living with Tourette Syndrome (TS) in the UK. This channel has been created to share inspiring videos from people in our community, to help educate and inform people about TS. We also have a host of videos about behavioural therapy for managing tics, and current research.
BBC News coverage
Brilliant coverage on BBC News featuring our CEO Emma McNally and our patron, Eddie Marsan and his son Blu who are explaining about how Tourette's is still so misunderstood.
zhlédnutí: 163
Video
BBC Breakfast with Emma McNally, Eddie Marsan and his son Blu
zhlédnutí 614Před 2 měsíci
Our CEO Emma McNally, Eddie Marsan and his son Blu appeared on BBC Breakfast with Naga Munchetty and Roger Johnson raising awareness of #Tourettes and how those living with the condition are affected. We are very grateful to Eddie and Blu for sharing their personal lives and opening up to bring understanding. #tourettesawareness #touretteshurts
Yes, I have Tourette's but
zhlédnutí 295Před 3 měsíci
Yes, I have Tourette's but I am........💚 A powerful, strong and uplifting message from all of us at #KilveCourtTicFest2024 What are you? Add it in below!
#TourettesHurts - #BeatenToAPulpVideo
zhlédnutí 185Před 3 měsíci
Relentless tics can cause an overall feeling of exhaustion and pain. People with Tourette’s need better medical provisions, better educational and employment support and increased understanding & acceptance within our communities. #TourettesAwareness #TourettesHurts
#TourettesHurts - #KickedInTheGutsVideo
zhlédnutí 145Před 3 měsíci
People with Tourette’s are often mocked or excluded because of their involuntary tics, many being the punchline of jokes. Tourette’s is not your punchline. #TourettesAwareness #TourettesHurts
#TourettesHurts - #CarCrashVideo
zhlédnutí 94Před 3 měsíci
Over 90% of people with Tourette’s experience pain daily because of their tics, lack of medical provisions, only adds to this pain. Are you or your loved one struggling to access medical provisions for Tourette’s? Is pain an issue for you? Comment below and share the impact it has on you and your family #TourettesAwareness #TourettesHurts
#TourettesHurts - #SkinCatchesFireVideo
zhlédnutí 93Před 3 měsíci
75% of those living with the Tourette’s say they feel compelled to hide it for fear of stigma and discrimination. Some explain this as “I am in pain, so you can relax”, do you relate? Do you feel a need to suppress? What do you think can improve things?
Crushed By Boulders #TourettesHurts
zhlédnutí 179Před 3 měsíci
Involuntary tics cause constant pain, but over 50% of people living with the condition have to wait more than a year to see a specialist. And when they do, 60% of patients are diagnosed and discharged in the same appointment, with no ongoing care. We need better access to medical provisions for those with TS. Are you or your loved one struggling to access medical provisions for Tourette’s? Comm...
#TourettesHurts
zhlédnutí 2,4KPřed 3 měsíci
Tourette's Awareness Month 15 May - 15 June 2024 For this years campaign, #TourettesHurts, we will highlight the impact Tourette’s can have on those with the condition and those around them. As far as medical conditions go, people often perceive it to be fairly mild, mostly because they don’t understand the symptoms - or the often devastating daily impact. Our campaign hopes to bring this to li...
Thank you to our London Landmarks Half & London Marathon runners of 2024!
zhlédnutí 22Před 3 měsíci
Thank you to our London Landmarks Half Marathon and London Marathon runners of 2024! 🏃♂️🏃♀️ Your determination and spirit showcased the best of our community. Congratulations on your remarkable accomplishments! 🌟🎉 and for raising vital funds and awareness for our Tourettes community!
Introducing our 2024 London Marathon & half marathon stars!
zhlédnutí 91Před 5 měsíci
Introducing our 2024 London Marathon & half marathon stars!
BBC News - Neurodiversity Celebration Week 2024
zhlédnutí 318Před 5 měsíci
Our CEO Emma McNally spoke this morning to BBC News about the lack of provisions available for those with Tourettes and why NICE Guidelines are needed if people are to access a timely diagnosis and treatment. More needs to be done. We urge our community to stand with us during #NeurodiversityCelebrationWeek and contact their MP to ICB to push for change. Templates are available on our website.
TA Ambassadors - Tics & Pain
zhlédnutí 278Před 5 měsíci
Our TikTok Ambassadors meet up to tell us what they think the public should know about Tourette Syndrome.
TA Ambassadors - What makes us tic?
zhlédnutí 187Před 5 měsíci
Our TikTok Ambassadors meet up to tell us what they think the public should know about Tourette Syndrome.
What can we do to improve the future for those with Tourette's?
zhlédnutí 197Před 8 měsíci
What can we do to improve the future for those with Tourette's?
TA Ambassadors - What the public should know!
zhlédnutí 285Před 8 měsíci
TA Ambassadors - What the public should know!
BBC Breakfast interview with Emma McNally, featuring Shay and Children In Need - 16th November 2023
zhlédnutí 361Před 8 měsíci
BBC Breakfast interview with Emma McNally, featuring Shay and Children In Need - 16th November 2023
Wilamena Dyer on ITV Good Morning Britain, talking about Lewis Capaldi's performance at Glastonbury.
zhlédnutí 1,1KPřed rokem
Wilamena Dyer on ITV Good Morning Britain, talking about Lewis Capaldi's performance at Glastonbury.
ITV News West Country interview Wilamena & Seren about their Tourette's
zhlédnutí 636Před rokem
ITV News West Country interview Wilamena & Seren about their Tourette's
Our London Marathon & Half Marathon stars 2023!
zhlédnutí 156Před rokem
Our London Marathon & Half Marathon stars 2023!
Girl is wise, suppression can be practiced. Exercise, nutrition, response prevention, etc.
I think you are pretty cool!!! Thank you for being brave enough to share and kind enough to help others!
Stay out of Belmont, New Hampshire, Belmont, New Hampshire first responders will try to take your life if you present with Tourette’s syndrome. They tried to take my life and have done nothing but lie about their actions, Belmont New Hampshire is not safe for anyone with a disability like Tourette’s syndrome, they will try and take your life , and then deny they ever touched you
First responders in Belmont, New Hampshire are extremely dangerous, they will get violent with Tourette’s syndrome. Stay out of Belmont, New Hampshire if you have Tourette’s, it’s extremely unsafe there, the governor of New Hampshire will do nothing about the violence against Tourette’s syndrome from Belmont, New Hampshire first responders. In Belmont, New Hampshire, they’ll take your life if you have Tourette’s
My daughter pajeeta has a big problem where she will repeatedly tell the n word and tips
I feel bad ❤❤❤
This boy would almost be a man now. Can you please do a follow-up?
The one common denominator Vaccines. Before vaccines turrets never existed
This was amazing thank you so much- my son is really struggling with his Tourette’s when it comes to other people/school. He is only 9 .. I would love for him to build confidence around his tics. Interesting you both mentioned the pig sound because that’s one of my sons. X
i was a patient of Dr Tammy Hedderly when i was under in child neurology. I had a lot of very advanced issues that were unexplainable and she worked with me for 8-9 years. She was great with me and after so much research I finally got my diagnosis of a progressive degenerative disease called spinocerabellar ataxia which affects the cells of the cerebellum. If it wasn't for her I wouldn't have gotten any answers. All other hospitals said that i was faking my problems and that it was psychological but after numerous MRI scans it actually showed that the cells in my cerebellum were dying off. how a child can fake having rotated legs for days and 6 hour seizures is possible i don't know but I'm thankful that i finally got proof that there was something wrong and that it wasn't psychological. i am now almost 25 and still going strong and I am now under the adult neurology department.
I had OCD when i was younger. Is it possible i grew out of it? I use to have to do almost everything twice. I stopped at 12.
Thank you for all the advocacy you provide
Awww God love him🙏🏻🥰 Handsom sweet young man
Tammy Hedderly reported that she called patients that she believed had "fake" tics "Evies" after patient Evie Meg who suffers with PANDAS/BGE and subsequent seizures, motor tics, and vocal tics. This is incredibly unprofessional and shows a complete lack of empathy. It is sad to see someone who we are expected to entrust our vulnerable children to behave in this manner. Justice for Evie and all of the children Hedderly has dismissed and disregarded. Whether you think a patient is displaying symptoms that align with TS or not, to use another patients name to disgrace them is shameful practice.
This boy is good looking.
im now 61 and only just learning about it now thanks to the t.a. group god bless their werk..i was bullied and beaten mercilessly through out school was constantly told to be quiet and to control myself by teachers and at home have had the pee taken out of me through out my werking life but have never really been out of work am married to an understanding wife and have an 18 yr old son who shows some symptoms..so now i understand i have a legitimate disability..i have other related mental health problems and sometimes really hurt myself due to tics but im more of a Yelper than anything and hardly get much sleep..so anyone else like me or am unique 😂
I like the kid that said he says Thank you.. hehe i do thag too.. i have tics, no vocal but alot of moving the muscles internally.. i just flow with it and if peiple ask i just explain.. for me it can be tiring.. but i try to breathe and be calm, then theyre nich more subtle.. GD bless us alll..
My son is 18. As a dad I couldn’t be any more proud of who he is.. He has done amazing in school. He is the definition of the word gentleman. His heart is purer that Lancelot. I believe he is the best of humanity. I’m not worried about his future. I know he will do great things in this world. I’m worried about him meeting a nice young lady. Like he will be graduating this year. He is starting to think about girls in a dating way. I can only offer advice. Now, I just need advice. Any help?
Sorry for the late reply, but I just turned 19 so me and your son are around the same age.. I have tics (waiting for a TS diagnosis) so I get it. To be honest there isn’t much you can do, just constantly reassure him that his tics don’t define him… he is his own person and tics are just another part of life, he will find people who aren’t nice about it all but he will also find people who are so nice and couldn’t care less about his tics, they’ll love him for him and tics and all :)
I remember Caspar from 2012 youtube and it wasn't until around this video 4 years ago that I actually found out he had TS. I was diagnosed sometime around 2013 so yeah! weird coincidences.
Hearing people opinions and stories about tics brought me to tears. We are struggling, please someone hear us!
Oh a hijabi woman, thank you for your inclusivity ❤️
Bless him he’s so brave! These type of videos are helpful to so many people. What a trooper! 🤩
Well done, all involved. An excellent video. Shared!
I have anxiety not diagnosed but my whole family knows I have it i tic almost all the time when I have anxiety they get worst the more anxiety I have but sometimes I just tic randomly its weird
Thank you for this video, it's very help for me, to guide my son. Thank you. God bless you 🙏
The boy in the purple top is brilliant! I will wait to see him on the stage! Thanks for creating this, its going to make a big difference when working with people who have tourettes.
Thank you for this brilliantly thought out video to help teachers understand this condition. My daughter has tics and is really struggling in school
Hi Mam is tics disorder with anxiety curable? Or will it last forever? My 10 years old daughter is suffering from this disease and I am too much worried about her
ive been diagnosed with tourettes for about 8 years but its not as bad as most people with tourettes. I often get them when im stressed or anxious -- i have chronic anxiety though. I think that i just have nervous tics instead of tourettes but im not sure
She was on a channel 4 show, she’s awesome
Entering(submersion 3 times with a certain prayer and crossing yourself)in water springs of orthodox saints(which are near or in monasteries)give very much power and sureness to people with depression, panic attacks, Tourette sindrom, schizofrenia and other soul illnesses before getting to the eucharisty that heals all soul illnesses. There are some springs of mother of mother of God that also heal all soul illnesses. Spring at the Monastery of st. Paraskevi at Tempi in Greece is one of many springs of saints in Greece and in Balkans. If you have chronic fatigue it is from masturbating, watching pornography, hate etc. 99% of all illnesses are from soul. Soul illnesses can be enherited or from sins. If you can not go to the church because of the illness you can call the priest to your home to give you eucharisty if you are baptised orthodox. If you can not go to a spring of orthodox saint you can buy sainted water and pour it on your self or sainted oil and apply a little on your forehead. If you have diseases, bad luck, impotence, you can only have a discussion with the same person, etc. it can be from witch spellings. In the Zlătari church in Bucharest, every Wednesday at 17.00 it is read the akathist to St. Cyprian and st. Justine against charms and all demons. This akathist can be ordered at any other Orthodox church if you are baptized Orthodox.
Entering(submersion 3 times with a certain prayer and crossing yourself)in water springs of orthodox saints(which are near or in monasteries)give very much power and sureness to people with depression, panic attacks, Tourette sindrom, schizofrenia and other soul illnesses before getting to the eucharisty that heals all soul illnesses. There are some springs of mother of mother of God that also heal all soul illnesses. Spring at the Monastery of st. Paraskevi at Tempi in Greece is one of many springs of saints in Greece and in Balkans. If you have chronic fatigue it is from masturbating, watching pornography, hate etc. 99% of all illnesses are from soul. Soul illnesses can be enherited or from sins. If you can not go to the church because of the illness you can call the priest to your home to give you eucharisty if you are baptised orthodox. If you can not go to a spring of orthodox saint you can buy sainted water and pour it on your self or sainted oil and apply a little on your forehead. If you have diseases, bad luck, impotence, you can only have a discussion with the same person, etc. it can be from witch spellings. In the Zlătari church in Bucharest, every Wednesday at 17.00 it is read the akathist to St. Cyprian and st. Justine against charms and all demons. This akathist can be ordered at any other Orthodox church if you are baptized Orthodox.
I like your voice so educated
I’m diagnosed with anxiety and other stuff (I don’t like to talk about) and when my anxiety gets bad I tic. At first I would panic because I only thought you tic’d if you had Tourette’s. I ended up going to the hospital because they didn’t stop so we thought it was a physical issue. When I found out that because of my anxiety, they could be anxiety tics I was so confused but it made sense. Since I’ve been suffering with anxiety my whole life, I’ve always had little tics that were hardly noticeable. I had tics almost everyday for like a month because I was always having really bad anxiety but slowly they went down after some time on anxiety medication. I still have tics everyday but their manageable, but because of my anxiety and stuff I have agoraphobia. But I’m lucky because my mum has always been by my side, spending nights in hospital and always understanding the little things I do. She’s honestly been a big help with dealing with my mental health issues, she’s my best friend and I honestly don’t know what id do without her….
Anxiety goes much deeper than worry and fear.. how about feeling like you need to jump out of your skin when you’re just laying there
So grateful for this video, I showed my 7 year old and he said wow, I do that stuff too! The first step is helping people understand they're not alone. <3
That's a really great strategy to help your son understand what's going on
Did she not say meow chicken pickles ? Sure it was her..
I like what she says about her interraction with the outside world.
I really need a video I can share with friends. Do you have one of these without the swearing on the front please? Reason is, we all know the swearing exists and I do get it myself but I want to share this with a religious community.
I use WOOHHHOOOOOO!!! When i'm anxious
Woohoooo!!
Alra alra alfa
Grlrgrlrgrlr grrrr
I finally went to my doctor after I noticed through out my years since high school these tics have been most likely snd hopefully due to my anxiety I started busbar last night and I’m hopefully it gets better
You know Lav mics are like 20 bucks right?
Such strength of character. Your positivity is infectious
can anxiety tics be very severe? like very bad disabling tics that hurt me and lots of vocal ones too?
hugs
Ur a hammite I think that plays a big role in ur tourette's cut 🎬