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Rupert Hitchcox
United Kingdom
Registrace 25. 09. 2020
Just the life of a photographer, living life to the fullest, living with Functional Neurological Disorder aka F.N.D , covering bands and events of interest, based in London Uk
Personal Instagram RupertHitchcox
Personal Instagram RupertHitchcox
Crossing the River Tamar at Plymouth on the Tamar Bridge
Crossing the River Tamar at Plymouth on the Tamar Bridge
zhlédnutí: 135
Video
Communication was the key with F.N.D
zhlédnutí 495Před 2 lety
In this video I go through things that can help a person with F.N.D it was originally filmed for a medical trial, to help doctors understand F.N.D. I hope you find it of some use. Cameras : Canon R5 Lens : Canon EF 24-70 USM 2.8 L Canon EF 85 USM 1.2 L Mic : Rode Pro Plus Light : Godox 120 Video Editing : Final Cut Pro X Photo Editing : Capture One
My F.N.D Journey. what it's like living with Functional Neurological Disorder
zhlédnutí 6KPřed 2 lety
I thought it might be helpful for people who have been recently diagnosed with or just those living with Functional Neurological Disorder, to hear about my journey, from having my neck broken to where I am now and how I live with FND since 2013. the website I mentioned fndhope.org Facebook group groups/668990423206423/ Cameras: Canon R5 Lens: Canon RF 50mm 1.8 STM Mic: Rode Pro Plu...
Yeah this ticked. - WARNING - Quite graphic description of what happened
zhlédnutí 72Před 3 lety
Yeah, this ticked. - WARNING - Quite graphic description of what happened. Basically a catch-up video of why I have not posted in a while and what I have been doing. Instagram www.instagram,.com/ruperthitchcox www.instagram,.com/gigscenes Gig Scenes channel czcams.com/channels/Zvvz_eVkktbyY3eXAC1yMw.html Cameras : Canon R5 Lens : Canon EF 24-70 USM 2.8 L Canon EF 85 USM 1.2 L Canon RF 50mm 1.8 ...
Covid Diary Janurary 21st 2021
zhlédnutí 26Před 3 lety
Cameras : Canon R5 Lens : Canon RF 50 STM 1.8 Canon EF 35 USM 1.4 L Canon EF 24-70 USM 2.8 L Canon EF 85 USM 1.2 L Mic : Rode Pro Plus Light : Godox 120 Video Editing : Final Cut Pro X Photo Editing : Capture One
This is Covid? Diary entry 2
zhlédnutí 48Před 3 lety
Covid Diary December 21st 2020 Rupert Hitchcox Covid Diary Entry 2 Been a confusing time. Not quite sure what I have. Cameras : Canon R5 Lens : Canon EF 24-70 USM 2.8 L Canon EF 85 USM 1.2 L Mic : Rode Pro Plus Light : Godox 120 Video Editing : Final Cut Pro X Photo Editing : Capture One
This is Covid 19
zhlédnutí 677Před 3 lety
I've made this video as I've noticed very few video showing what Covid - 19 are around, so I thought I would share what it's like so people have some idea and how horrible it is. Cameras: Canon R5 Canon EOS 1DX Lens : Canon EF 16-35 USM 2.8 L Canon EF 24-70 USM 2.8 L Canon EF 70-200 USM 2.8 L Canon EF 35 USM 1.4 L Canon EF 85 USM 1.2 L Canon EF 105 USM 2.8 L Mic : Rode Pro Plus Light : Godox 12...
Just keep moving forward
zhlédnutí 108Před 3 lety
For my latest CZcams Video December 3rd, 2020, the day after the easing of lockdown and vaccine rollout has been announced. it's about moving forward and to keep going no matter what. I give a glimpse into how I ended up with FND and my neck being broken. I talked about linking a video by Jocko Willink, here's the episode How To SMASH DAYS When You Don't Feel Like It - Jocko Willink czcams.com/...
One of those nights, with F.N.D
zhlédnutí 221Před 3 lety
Yeah, it's been one of those nights, my FND has been really playing up, FND ( Functional Neurological Disorder ), is the most common neurological condition there is, but it's also one of the least understood. I'm going to do a proper video on it soon. So I went out shooting, as movement is the best thing for me when I'm in these states.
GigScenes channel episode ident reveal
zhlédnutí 30Před 3 lety
The reveal of my new episode ident for episodes on my new GiGscenes channel Gigscenes channel is here czcams.com/video/t4DNjBdeWiI/video.html Gigscenes Instagram gigscenes Personal Instagram Feed ruperthitchcox
A bit of normality
zhlédnutí 15Před 3 lety
A bit of normality last Sunday, another gig at Eccelston Yards with TalentBanq great to be out doing normal things. The artists Erin Bowman, Lauren Smith, Kelsey Bovey, Howard Rose
I try not to judge
zhlédnutí 29Před 3 lety
Yesterday there was meant to be a big rally by the creative community, and all the job loses, but as you can see, it got slightly highjacked. Does contain strong language
FND = Conversion Disorder and yes talking about your stresses clearly does help you. Good luck.
@@lindasmith8771 I’ve heard that theory and the doctors agreed with how I refuted that theory. With my experience.
@@ruperthitchcox4657 Communication is the key so try researching centres of excellence where patients have shown great improvement in a short space of time and then understand that it is possible for symptoms to lessen, leave and never return. If medics tell a patient FND is a lifelong condition then it is likely that it will be. Have hope that recovery is possible.
I have a question. I’m 21 years old and i’m experiencing hell and it seems like my doctor is not really that interested to keep investigating what is wrong with me because of my age. I’ve been contemplating and researching a lot and my future doesn’t seem so bright and i can only cross my fingers and hope i don’t have a neurodegenerating disease despite all the indications. But my question is, can FND cause speech and working memory/thinking problems because it seems like i’ve got some major issues with how i’m able to form sentences in my head and physically delivering them. I’ve been particularly scared sh*tless of this one disease, Huntingtons disease. I’ve taken an MRI but i didn’t get any results back so i imagine they haven’t found anything abnormal, but not everything shows up on an MRI. I’m desperate for some hope that i’m not alone in this and figuring out what’s wrong with me.
I feel like ive got nothing left , because of the pain, the spasms the burning the stinging in my heart and lungs , hot and cold prickling pain, swallowing problems, , losing my hearing, my bladders dosent work sometimes and its week 13 of walking and eating again, my body is effectively effected by so many symptoms, getting worse and worse , ive made a appointment to see a private neurologist
I can't get anyone to believe me , ive been really unwell for just over a year and im on the nhs waiting list with a 50 + week wait, ive not had the help from my family, my partner left me , my family cant cope and everything is wrong because because no one understands why im so unwell, i am currently in a nursing home and ive got so many awful symptoms, , the gp of the care home home dosent hrlp me or even see me , ive lost everything i couldn't eat or walk for nearly 9 months, , im had 40 really frightening symptoms that rea cure on a daily basis, my social worker dosent believe im unwell
Im almost 40 and i have battled this for 6 years bedridden for 2 years im just not sure i can keep going pain leg spine i am losing everone
My Neurologist has been trying to figure out what is wrong with me, since March. At first they thought it was MS,Then they thought it was Dystonia. Now I have seen a Dystonia Neurologist and he thinks I have FND. Do you get episodes where your head shakes up and down,Side to side? Do your teeth chatter 24/7? Do your eyes blink on their own and you feel pins and needles in your hands? Also, I have fallen 5 times since 2022, the last time was a few weeks ago, I wanted to step over something to avoid slipping in water, my one leg would not lift up and I fell hitting my whole are on a solid wooden table. I have Psoriatic Arthritis, aneamia,asthma,vit D deficiency,anxiety,depression,social anxiety, chronic pain and now this neurological stuff. I am 38 and some days I feel like I am 90.
Also, do you have a really stiff neck on one side and, do you get headaches? I have lots of different things going on with my vertebraes of my spine: bulging disks,wedging of vertebrae at least 8 of them, osteo arthritis. I have been put on Cymbalta as chronic pain management as, I could not sleep due to pain. I have two young children who need a lot of support, so for years I have been trying to be as healthy as possible.
I've had every symptom you listed there at some point. I went through a phase of collapsing alot , it was caused by stress at work.
@ruperthitchcox4657 my Husband says he has noticed my symptoms are worse when I am tired and stressed. I currently have a lot going on between medical stuff, studying, learning to drive and then looking after my children. I am their carer and they see a lot of therapists. My two neurologists have said I have to make sure I see my psychologist as it will help. This past week I have been feeling unwell but, I can't quite put my finger on what it is. The two days I have felt the worst my head and eyes have been going a lot. My teeth move on their own 24/7 and, in 2018 I was told by the dentist to get a mouth guard for sleeping as apparently I grind my teeth. I have never noticed it neither has my husband, I think my teeth has been chattering in my sleep really softly that we have not noticed. I have a birth defect on my C1 vertebrae which was found last October when I fell. I have spent many years having xrays,ct scans and mris and that was only found last October. If you say you have had the same symptoms, then I think it probably is FND that I have. They are trying to see if It could be parkensons as, my Dad had it but, I know it's not always to say because A family member had something, you will definitely have it. Every person with every condition has it differently. My head and eyes were all over the place when I went to the shops yesterday, I had a lot of people staring but, I tried my best to pretend that everything was normal. It got worse on the bus as I was starting to feel quite self conscious about it. But I tried to just breathe and stay calm. It got a bit better at home. A few weeks ago my children were asking me to stop making "weird" faces and I told them that my body is doing it on it's own and I can't help it. After a few hours they got used to it and they did not say anything. My children just cuddled me and said they love me. It made me feel a bit better.
Have you ever had any Hallucinations with your FND?
No I have not.
Donuave hypomobility ive had cfs fybromyalgia elements nfnd
Hhc and cbd help for the body jerks. Only recently diagnosed but this puts the myoclonic seizures from a 9/10 to maybe a 1/10 sometimes gets rid of them for hours. Pro tip : hhc gets you a bit stoned, its legal im some countries. If you take it at night you can sleep through yhe stone but you get the benifits olthe next day till usually the evening for me. Like 20hrs of relief for me
Diagnosed today .I was already sick from something else ,so not to much of a lifestyle change .Except for the cruel symptoms . Rough ride ,but not dead yet .😊❤,get better .
How I overcame FND: 1) I accepted good morals as truth: (Better morals than I was behaving) 2) I felt remorse for things I previously felt no remorse for 3) *In my head* I began to meow when stressed Nearly no symptoms now!
Why meow 🐱
@@kylebrady3651 I don't know but it worked
Thanks for sharing your experience and it’s very inspiring and down to earth with getting a grip on expectations. Thank you❤
Thank you for sharing. I airway closes with weather to changes especially in high humidity. I have coded twice. I also have the struggles with sensory stimulation causing the pain and muscle cramping.
How can you work with every day attacks?
Our condition is so hard to explain the what's and why's to anyone. I have just lost my job on medical grounds, and it's so destructive in all aspects of our lives. I am not bitter towards my employer, they have been so supportive and I am lucky they are financially supportive for the rest of my life. It's a daily fight we have and we have to accept fnd with unconditional terms. The symptoms are so variable and mentally destroy us. We need to bounce off one another, so we can get a better understanding of our condition. John McBride
Thank you for sharing! But I do have a question for you. It seems you have it for such a long time, and I had mine since October 2018. So my question is did you manage to go back to work? What ever work that you use to do before you got sick! As for me I do feel stuck some days are better than others but still battling to leave my wheelchair! Thanks again you will be in my prayers.
Hi i have fnd diagnosed about year ago there not a lot of help but trying to find help its the fatigue to much have sizures and carnt walk my life has totaly changed but trying to live life as much as i can people saying you will get better i didnt no you could have this for years send lots of lv ❤❤❤
I am glad you can move, for me a litlle Activity can Knock me down.. All the best
I have had this for 4 years now, so when I go back and forward or just keep moving my head, and realize I'm zoned out, are these seizures? I have also passed out and come to with cuts on my body ringing in my ears and a euphoric feeling I don't know I also get twitches in the muscles in my face or neck, I have so many symptoms that have changed over the last 4 years, my doctor has just started calling it FND after 4 visits to specialists, I just want to die now I pray to the universe to die every morning I am in bed 99% of the time because the pain is so bad, my memory is so bad I forget whole days and hours of time and I don't have a clue even when I see I have done something in a game that took me hours to do I'ts like someone else did it, I don't want sympathy I just need some answers to what is going on, cheers, Don 53yo from Australia.
My name is John McBride, and I have been living with fnd since 27th Feb 2021. I struggle so much with trying to understand this condition, and it always reminds every single day day in so many different ways it's soul destroying.
Thanks that's was a big helpful iv had it for 2years stay safe mat❤❤
It's a crap illness. I had head injury in 2013. Many diagnosis but given FND in May 2019. I find it a difficult journey. I agree keep moving. The cold also affects me badly. Winds are not good either. Keep in there
I have FND and I don’t think I have triggers mine can happen at anytime. Seizures , leg, arm and hand weakness. Pain is very extreme. My legs sometimes feel like I got lead weights in them I get Paralysis especially if I’ve been asleep. Trouble swallowing etc I was 12.5 stone when I was forced to leave work because of this condition. I am now 6.10oz
@tinanash194 are you any better? Did you get disability?
So while living in the UK up until March last year, My neurologist thought I had FND after getting covid in March 2020. So today, my new neurologist confirmed this diagnosis. What a lonely journey ai. As soon as you mention you have FND people look at you funny, like ohhhh she is a nutter making stuff up for attention ai. But, that is not the case though is it? 3 years with it now and I no longer work. It such joy going from being marathon runner to almost non existent runs. So, high five to everyone coping and living as well as you can.
Just diagnosed after so many years being a mystery... Hope you have been managing ok
I have FND3.5 yrs since onset. Mine started with a weird twitch in the shoulder . My wife was like wtf was that . At that time i thought it was nerves because i had an injury to that shoulder. It quickly progressed. Today i have myoclonic jerks like every 20 to 30 seconds . I have verbal tics and scream aloud as if I'm getting got, quite embarrassing in public. My gait is compromised .I walk all drunk looking. I have no triggers meaning anything that makes it go away but stress and anger makes it worse. Cold also bothers me. I have brain fog badly . i get lost in blank stares , brain fog concentration, emotions out of control . I do keep moving i have chickens ,ducks ,turkey ,geese lots of property 5 dogs but dam is it hard so hard thanks for sharing! we are warriors!
That sounds familiar .Except it started in left hand .1 cat 😊 Hope you feel better .
I was just diagnosed with this today. I feel like I need to learn more. I also feel like with the other videos I’ve watched it seems so much more severe than mine is. Is it something that gets worse over time? Currently I am pregnant with my 3rd and so my symptoms lessen drastically. I can still walk though and only sometimes my leg will not cooperate but I never thought anything of it before.
It depends on how you manage it, with my FND, it started while riding home from work, I had a seizure while at the traffic lights, which shocked me, within a few weeks I was bedridden unable to walk without collapsing. it was only after 6 months of this that I had a physio come to visit and slowly she got me moving again. but I certainly plateaued and my condition is greatly affected by the cold making it a lot worse. But I have heard of people who are polar opposite and have a worse time in the heat.
I’ve just been diagnosed with FND and I can’t stop twitching all the time and I’m struggling to walk xx
Hope things gave improved somewhat for you Emma
I got diagnosed in February 2022, I am struggling so much with trying to understand fnd. I spent 4 1/2 months in hospital, and I am continuing to get physio and psychology, as well as care everyday. Some days are not to bad, and I think at that time it's gone. Then the next day I am all over the place. I feel like people are thinking it's all a fantasy. I understand them thinking that way, because I don't get it still. I would love to speak to someone who is, or has fnd. Please help.
Totally understand & many people don't get it. Stay strong and take each day as it comes (I know that's easier said than done)
@johnmcbride1773 i am here if you wanna speak
I got diagnosed and would like to hear from others who have it
@@correttathomas3204 me :)
@@stellaancimer8505 thank you for your sensitive response. We become very isolated I think. The psychological aspect of fnd is so frustrating and I get really annoyed and down with getting family and friends to understand what our condition is like. Its not anyone's fault, but no symptoms are regimental and consistent. They are very supportive and caring, but it changes every single day. So it's an important thing for us all to try and work things out as best as we can, because this is the only reference point to work from. Thanks
I was diagnosed last week after 8 months since having Serotonin Syndrome. I'm still very much in early stages where I have tons of leg tremors, all day, headaches, drop attacks, bladder problems, vision issues, lots of involuntary spasms and GI issues from it. It's so so difficult to know what's about to happen.
Tony, this is very true you don’t know what’s going to happen next, but over time and some determination, you learn your triggers, and how to cope, I still have a lot of what you mentioned, but you will begin to cope and move forward. You’ll be ok, just don’t give in and stay in bed. Keep moving!
I have fnd and every day is different -
Hi Rupert, who did you get help from? I’m desperate.
Pretty, I had a company called physio comes to you. They were brilliant, Hannah is the one gave me the drive and inspiration to keep moving. She told me, even if only make it to the kitchen she gave me heaps of exercises, which have helped. 9 years on I still have issues, but I am more mobile, but not to the point I could keep my job. Just to set expectations. I hope that helps.
Are you able to work. I’m waiting on a diagnosis. I’m having some improvements but I am not working and don’t know when I will be able to if at all. Any kind of stress makes my symptoms so much worse.
Hi Kim, I can work but on a limited basis. I’ve since setup a business and trying to get that started but, I do have to manage things accordingly. Yes stress really effects me too. My symptoms do get worse, also when I push myself, that can be cause a flare up.
I have FND, stress is makes it worst
I was not told just found out, from discharge letter from neurologist community care. As they were refusing to have me! Said they have to deal with my back spine first then they will. Consider me 😢
Thank you for sharing! I also have FND. My symptoms vary from day to day. Definitely getting more used to it, acceptance wise. Had it around 3 years. Sorry you have FND! I hope you keep learning to work with FND or accept it in a positive frame of mind even when it gets tough. Looking forward to hearing more of your FND story. I shared some of my FND experience on my CZcams too
Thanku for sharing give people like me hope x
I’m pleased what I said has. Please feel free to ask me any questions.
I was diagnosed 2019 with FND living in Australia not a lot of information like you guys get in the UK . The one good thing I have great doctor that helps me so much getting information on FND . With FND no days are the same which is very hard to get used too. Your rightI I have noticed my pain worse in winter time . It gets down to 15°/20° in Sydney. Warmer weather helps my pain a lot . You take care keep safe
Last year I felt lost with it now I’m trying to manage day by day
You are not alone, it took me ages, it was 8 years before I was diagnosed with FND. Just know you are not alone.
@@ruperthitchcox4657 I learnt more from media world than NHS very little support iv seen more about it on here
Absolutely
It’s very unpredictable from hour to hour I found it challenging definitely try to walk once a day thank you for sharing your personal journey kindness suzy
Mine is very unpredictable too, but over time you notice triggers, mine is getting cold, especially going from hot to cold, like at the moment, going outside, and so forth, over time you find ways to cope, but getting in a wheelchair is the worst thing you can do, as I talk about, you have to just keep moving, power to you!
I got diagnosed with FND last year
I found being given a diagnosis really helped as now I know what I was dealing with and could research it accordingly.
@@ruperthitchcox4657 how do I reply to u
Just learning you tube world
@@mrssuzybuck2070 should be able to just hit the reply as Im doing.
Does lifting weights help or just plain walking, what is your exercise regime. I have fnd 3 years now
Hi Sunny, sorry for the late reply. I just walk as much as I can. I do some gym work when I can but it always wipes me out and I'm only talking 10 minutes on the bike will trigger seizures if I am not careful.
@@ruperthitchcox4657 aah thats so interesting to know! I personally manage my FND with the gym - i do fast past walking on the treadmill, incline walking and light jogging and I also go on the bikes. but i had to work up to that point.. everybody's brain is different. I feel like when I tell people I'm in the gym constantly to manage FND it just baffles them.. sometimes I start to even play tricks on myself in my own mind and wonder if im just "making it all up", even after 4 years of severe symptoms like 3 hour long seizures and paralysis (thanks, stigma!). i found your video very very validating for the way I manage my FND. from the bottom of my heart, thank you for making this. I've tried to make a video like this before but just found it way too challenging. so thank you for sharing. i understand how hard it was to probably make this. FND is genuinely traumatic, in the beginning. but I feel like people are resilient and we find our ways to cope, survive and then thrive xx
@@KittyGotClaws Hi Kitty, Im really pleased it has helped you. Ive got a heap more planned. I know what you mean about the seizures, I had a 7 hour one 10 days ago which landed me in hospital. I have heaps of videos planned on pain and my wiggly toes, they go round in circles! I just for some reason, keep hitting barriers that have stopped me over the past few months. But knowing the video’s help, means a huge amount to me and a reason to continue. Thank you xx
@@ruperthitchcox4657 omg that sounds horrific, longest I had was 6 hours. Hope you are recovered now from that episode and able to keep moving forwards!!
@@KittyGotClaws fine thanks now, my worst was 36 hours I was totally exhausted, the only way they could stop me seizing was giving me sedatives! But yes pushing forward is the only way. On a side note.The Foo Fighters song Walk, that initially made me have that determination to get moving after being bed ridden for nearly a year in 2013. Been my anthem since. My F.N.D developed after having my neck broken in an assault, so that song holds a lot of resonance.
Thank you so much for sharing your journey!
You are so welcome! Im going to be posting more video's I have more planned.
I also have FND. I have a separate channel about my experiences and explaining FND: m.czcams.com/video/OVJmcg4HL0g/video.html
Thank you. I've been told to research FND by my rheumatologist. I'm undiagnosed but so much resonates with me. This really helped and I will do my best at "keep moving"
I’m pleased this has helped there is a heap of information at www.fndhope.org
@@ruperthitchcox4657 Thank you
Get well soon. I hope you are okay now.
Thank you Clifton, yes much better now thanks.
Hope you are doing ok 👌🏻
Im recovering thank you, certainly alot better than I was.
Rupert! It was terrible watching you struggling for breath but I stayed with you to the end to honour your effort. I wish you a speedy recovery!
Hi Lynn Thank you I'm about to upload a new video I am recovering.
Oh My dear friend Rupert. I hope you recover my love. 😢🙏❤️💋
Thank you Deborah, Im recovering slowly but surely. Hope your keeping well.
Rupert get well soon mate!
Thanks Lilli Im recovering slowly but surely, I hope your keeping well.