Video

In this video, I filmed Benjamin's sweat test performed on April 5th, 2016, to show what a sweat test entails. Please see Video 6: Part 1 for explanation of what a sweat test is, as well as additional information on why they are performed and result interpretation based on CFF guidelines.

In this video, I talk about our experiences with sweat tests and why they were ordered on my kids.

In this video, I talk about Maddi's first hospitalization for a lung clean out.

In part 1 of this video, I talk about Maddi's first hospitalization for a partial bowel blockage. In part two, I talk about Maddi's first hospitalization for a lung clean out.

In this video, I talk about the routine we follow and how Maddi's treatments are done.

In this video, I talk about the Meds Maddi takes everyday, why she takes them, and how I give them to her. I do want to add that I forgot to mention how I give her Miralax to her. We have tried several ways, including juice, but since we cannot give it to her in a bottle (the milk proteins make it less effective), what works best was sticking to what we knew...apple sauce! Normally, adding a bu...

In this video, I talk a little about what happens during a CF clinic visit and the difference between her CF team and her pediatrician.

In this video, I talk about how we knew Maddi had CF and the process that took place to diagnose her. Sorry for the bad framing 😬

This channel is where we want to upload videos about Maddison's Cystic Fibrosis journey. This is the first video of our web series and it is a quick overview of what Cystic Fibrosis is. We hope this channel helps others gain useful information and spreads awareness for Cystic Fibrosis.