Video

The Doctor at my pharmacy said "You need to go to the hospital, the generic anti epileptic drug you're taking is not safe" (there's a shortage of Sandoz Carbamazepine). I went to the hospital to say I've been falling down and feeling really messed up, eyes rolling around, no control at all. There's a shortage of the one I need, and the hospital nurses kicked me out after waiting over 10 hours, The only people that were on my side and truly understood what I was going through, were the security guards. The nurses threaten me to call the police because I was getting upset, they wanted me to sit in the pouring rain on the side walk waiting for my ride home. The security let me sit at the bench at the entrance of the hospital. They understood that I was not a threat to anyone other then myself. The security were the hero of my day. What is going on with our health care?

I would say that this video is somewhat disingenuous. It said that emergency assistance is NOT required. Well, like most seizures that’s true, but if it’s the first time it happens you should call an ambulance. If the staring spell lasts for 5 minutes or more you should call an ambulance. Finally, if the person has another seizure soon after the initial one you should call an ambulance.

I've had epilepsy since 1979 and if there was one thing I could change about myself, it would be to have a better memory. It would make life so much easier.

very helpful thanks

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Tired doesnt explain it. It's like you were hit by a truck and it backed up and ran you over again. Then all you can do is sleep

Hello

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I’m sending the link to this vid to my colleagues, had a seizure at work and no one knew what to do.

Tbh I have no idea how I got here and why I’m watching this but it could come in handy one day 🤷🏾‍♀️

Bites cookies 🍪🍪

Great job!

I have absence seizures. I was diagnosed at the age of 5 but have been seizure free since the age of thirteen and so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point an then it becomes a pill no pun intended. my triggers are flashing lights, specifically the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. The effects of my epileptic seizures is that i have Aspie like tendencies due to my epilepsy which i know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so i have all of the symptoms of Aspergers but lack any sort of understanding math which for most Aspergers people they are gifted with math abilities. After my father died, it seems I have had a relapse if that is possible. i still have my absence seizure but it is not enough to put me on meds . i have been getting driving lesson and have my usual 10 seizures in the drivers seat. i take omega 3 cod liver oil liquid form as i can not swallow pills. ( also helps decrease the too -small -to -medicate -seizures) i think i said that my seizures came back i wanted to clarify the EEG showed misfiring not seizure activity per say.

I stare in space for that long i stare and be normal again i started when i was 6

great video :) very helpful

Thank you this can save lifes. I'm showing this to my teacher

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Yes!! This is me at work! Infront of customers. Its the worst!!

I had no idea what purple day was until today.

Great presentation, very helpful.Many thanks.

Very well presented! Very informative!Many thanks for your work and research on epilepsy.

Very good summary for epilepsy Treatment.Thanks to all participating on epilepsy research to find a cure.

Hey thanks for all for all of this great information. I've had epilepsy for 30 years and memory issues are the worst side effect. Having to ask your friends and coworkers what you've been doing for the last few days is the worst feeling. Many thanks from Colorado.

I would really like to see and hear the very beginning of the webinar. I want to understand exactly what types I am having trouble with. This helps me to know which techniques to try to learn to cope. I appreciate your info. It is the most thorough I have found. Best. Thanks.

Lia your story is absolutely heartwarming and remarkable. We thank you for having such courage and strength to create this inspirational video! We will be sharing this to our Facebook page for our followers to have the opportunity to see!