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I'm going thru the same. But doctor says it's not MS and I KNOW it is. Even have legions on my brain. And so much more symptoms 😭

i had a leak with mine but they didnt tell me it was a bad thing but i wasnt allowed to do anything but lie down. i had a bad experience as the newbies in emergency had trouble and had to do it more than once . my brother in laws brother who was a doctor said that in emergency they have doctors learning to be a doctor and he said i shouldnt have had it . twas a horrible experience as they commented on my body and blamed that for them not to do it right. i felt like an experiment

Funny guy.. you funny guy!!!

Can u pass me more information about injector? Where i can buy. I need only injector nothing else . Thank you!

I felt this

I hate MS. My mom has it. I wish you well with your disease. Hopefully yours is the kind that goes into remission for decades like my moms did. Stress brought her out of it. So take care of yourself the best you can. ❣️

Empecé a sentir eso hace 2 meses, y baje mucho peso. Sera eso? Yo pienso qué es otra cosa pero no le encuentro sentido. Pero siento como si me estrujaran las tripas, a veces se me ven las venas de el torso y sobre mi abdomen todo todo . Sera que es ms abrazo? Tengo ms

My Neurologist likes me to bring a loved one with me to meetings. That way they can tell on me. It is easy to forget what is going on with ourselves.

Being encased in cement and walking thru wet sand

You are a beautiful human being .Inside and out.Never give up and keep doing what you are doing .God Bless.🙏🏾🙏🏾🙏🏾❤️🌹

Diagnosed at 31. Im 34 now. Thishit mehard before they caught what was going on for me. Im on ocrevis. I don't have any rrlapses, so i think it is working. Walking, standing, all bad. Optical nueropathy on left eye, so blind there. PT is only helping so much. Very shaky. I just want to walk again. Doing my best every day. Going to continue to do my best in the future. Thanks for this.

I am just here to vent about an LP. Yes and LP alone was ruff the healing process after was Hell… the worst headache I have ever had in my life…. If you get one just don’t move for 2 weeks after or else.

I have all the symptoms of MS (double vision too, but not optic neuritis). I’m struggling to walk, have severe muscle pain, mainly in my legs, weird numbness/loss of sensation that has been spreading for years now, nausea, dizzyness, gastrointestinal problems, problems with sexual dysfunction, problems with bladder and bowels, electric shock when I turn my head (not every time), unbearable itching whenever I get out of water or brush/bang against something… You name the MS symptom, I probably have it. My brother has MS, and he believes I do too. I do have lesions on my brain consistent with MS, but ALL my tests have been normal. We even did a lumbar puncture. Normal. So I have no diagnosis, and my doctors feel there isn’t anything else to do. But I was an athlete. I was a graceful dancer and martial artist. And suddenly, I lost it all. I can’t walk very far without cramping up, and if I push it, my legs will buckle and give out. I struggle even to push an empty grocery cart. It’s like my body doesn’t remember how to work. I’m really scared it will just keep getting worse. Meanwhile, no one believes me but my brother, and there is no treatment for me. I would do better with keg braces, but I can’t get my doctors to take me seriously. One said, “Let’s try Lyrica for merve pain, and maybe if you have less pain, you won’t have to walk so slowly.” I don’t walk slowly because it hurts! I walk slowly because my legs don’t work! I don’t know how else to say it! I’m scared and alone and feel like I’m watching life from the outside now.

Excellent interview

The thing is about Oritsè is, he gives everyone 100%, whether that's being a kind and caring person or musically giving, there's always everything that he puts into something. I'm so proud of him and his achievements, he makes me incredibly amazed at everything he's ever done. If only people could be like him more, only as the world is already a scary place at times, we need more compassion. Never stop being you, Oritsè!!! We love you and your beautiful mum, she's so lucky to have a son in you❤️

The 5th time I got it done, it Def hit a nerve because my entire hip and leg went numb

I had this done 5x and each time. Each time, I was in major pain each time..

Most doctors act bothered or think the patient is a hypochondriac. I'm almost 50 and have brought up so many symptoms that I eventually stopped telling them. Recently my eye doctor told me I had something that she could see a my optic nerve that is linked to MS. That was only last week. I was there w a cane and an injury that I had no idea how it happened. So I'm glad she said something. I'm off of work w this mystery thing right now. I kind of dismissed my eye doctor at the time, but now reading up on it, a lot makes sense. If I get this as a diagnosis I won't be surprised, I might even be relieved. I've been tired for years. Wrote off my clumsiness as an ADHD symptom. I've had tingles and LOTS of twitching to the point of thinking I may later get Parkinson's. I'm adopted so I do not have family history. The doctor speaking- it looks like all of you have autoimmune issues, that's the link. Thank you for sharing your story and thank you all for the great information on this channel❤

Nothing helps i have ab air mattress abd heat pads nothing... scissoring is very painful

My MS affects my thinking skills and my speech in the past 6 months. First diagnosed in 2019 when I had an MRI for hitting my head at work. My original onset was 2017 with a mini stroke. I used to work on cars and be very hands on and ever since the last flare about 4 months ago it’s so much worse. If only they didn’t make the medicine to control so hard to get

Intermittent fasting, vit D, B complex, no gluten, no processed food, no dairy, stretch, and move your body can help symptoms.

Suddenly colors , especially red , appeared too Vivid , in a bad way . Red was too red . Examination of the eye didnt show anything , after two weeks colors went back to normal. Doctor said lets fix your classes first as they are off , and then lest wait to see if the eyes are going to be better . I am sure that this is a form of optic neuritis .

Newly diagnosed and found your video! Thank you for posting this and showing the process. I needed a real life example of what actually happens. I haven’t started infusions yet but had my first phone call today discussing the details with my care team. SOOOOO much information was provided and after the call, I went on their website. They had a few videos, and I only could stomach two of them. They were exactly like all the generic pharmaceutical commercials that we see so much here in the States. I couldn't stomach the frolicking and exaggerated excitement to this MS infusion medication. (Honestly hate how much this is done with our medications in the states. It feels so icky). I appreciate you walking through the actual steps and showing what happens to you on infusion day. I am quite scared and anxious to start and this helped so much. Best wishes on your journey from your sister in MS from across the pond. Y

I hated this vep test, I hardly could take it. It was very discomfort able watching these changing patterns

It's my day today

ON MAY 19th between 5pm and 6 pm. 2 MRI woman age mid twentys. They Are the mist abusive to patients that screamed and cried . They could e they careless that spine injuries or arthritis spine problems. They dont think to the damage. THESE PEOPLE THAT SAY OUR CARE PERSON CANT HELP IS A LIE. THEY SHUT OUT THAT PERSON SHUT DOOR SO AT THAT POINT THEN NO ONE SEES HOW BAD THEY CAUSE HARM . SOMEONE FIRE NASTY PEOPLE THAT, DONT BELONG AROUND ENDURED PEOPLE.

Wonderful information.

Thanks Laura, great instructions

This year walking has been more difficult for me. I don't have the stamina and i constantly have to pause. The bottom of my feet are numb however there is no pain. I have had 3 back surgeries, my entire body is in pain. I don't know if it is due to my spine or something else.

Comedy genius

Can anyone relate to these symptoms? The recent ones don't seem common ? First symptoms:I had a cluster of symptoms over 5 weeks (2 years ago) these symptoms only happened during those weeks: First was a sensation of suction around my eyeball. (I had my eyes checked and both were very heathy and 20/20 vision), Deep pain in leg muscles (like a fist), lost bladder control, forgot words, numbness on right side face and 1/2 tongue very numb and sometimes electricity in arms or legs. Following that I developed low grade fever that has persisted for 2 years. Randomly I'll have very numb patches that last for a day or a few days. Then 3 months after that initial "attack" my right eye developed a Scotoma (grey circle in lower vision), this persisted for another 6months with sometimes pain. Eye tests showed retina is good and don't see inflammation of optic verve. 3 weeks ago that Scotoma changed into a central vision blur, kind of greyish smudge. At the same day my left eye developed grey smudges and I had a sparkling headache on the left side of my face. The last random symptom are canker sores only on my tonsils. They reappear every 2-2.5 weeks, one on each tonsil. (Tested for other factors like STDs and those are all negative.) Blood work is "fine" Iron is within limits but working to raise it. Thanks for reading this story!

How we consult to u?

My brother in law work in airforce,he is also suffering from MS, after plasma therapy he suffers UTI often.. pls help me out

I got these altered sensations too found out later alot of its due from MS I was so scared I thought I was dying

You can continue a normal life, you have to accept MS yourself before expecting anyone else too. From experience people who don't know anyone close to them with MS will not understand and possibly never will. All I would say is be strong and get used to needles, you will get used to MRI Scans, blood tests and infusions and it's nothing to worry about. My first signs were loss of feeling in my right side and urgency to pee. I have my Ocrevus infusion next week and bloods taken this week. I take Gabapentin every night among other medications. MS affects my bladder which means I catheterize every day otherwise I wet the bed at night. I have a wife and family who understand but don't give me an easy ride and why should they as it keeps me on my feet. A lumbar puncture is the method of detecting MS so I can only advise people who have been for a number of MRI's with no result, get referred for a lumbar puncture, not a pleasant experience although I had a junior doctor practice on myself and actually had 3 lumbar punctures in one sitting. Everyone has their own MS story. Stay strong MS Warriors!!!!!!

Grains are extremely inflammatory. Carnivore is the best anti-inflammatory diet you can be on.

Thank you guys for the advice I was just diagnosed in March of this year and it's definitely been an uphill battle

Mən sağlam adam özüm yeriyə yeriyə girdim amma indi heç yeriyə bilmirəm + əllərimdə tutmur. Yəni hər həkimin dediyini etməyin bu həkim kimi

If it makes my life better, then everyone else can suck it!

MS Hug

For acouple of years now i have this problem when i sit up or flex my rib muscles in any way it immediately goes into a painful spasm that i have to arch my torso back wards and squeeze really hard to get it to dissipate. The muscles contraction can be visible on either side of my solar plex. It only happens when i flex. Is this a description of the MS hug? Ive recently developed horrible virtigo, ill have it for a week or so and then it goes away only to come back a month or so later. I have pain that comes and goes too but ive not had an MS diagnosis.

Look forward to seeing this . Thank you

I have MS and I’m disappointed by the lack of humorous videos about it online. When I look up multiple sclerosis on CZcams the videos are mostly so seriousss, it’s a drag. Maybe I should make some funny videos and contribute! Loved his jokes.

Thanks for sharing my first infusion is Monday and I'm so scared

Thank you nigel for sharing your story of ocrevus im so scared

This is a great video with very useful information thank you!!

I have MS 9 years I'm glad this is talking about reality for us

I am also Swedish and work in both the USA and the UK. I find myself switching languages ​​in the middle of a conversation. Only occasional words and phrases, but enough to make it embarrassing. It was added after Covid19 (which I survived).

Thank you for sharing

In talking with my MS nurse instead of taking a stimulant laxative after 7 to 10 days without a bm and all the gut cramping and stool like goat pellets or pebbles from the size of raw garbanzo to the size of an egg. With lots of cramping and 30 to 45 minutes to clear the bowl. To taking a hydro-scobic laxative daily and with each glass of miti-lax to drink an additional glass of water. I also keep a daily bm journal as to any medication change may affect my regularly. I recently had a flare that involved a high dose steroids for 2 weeks. This is known to cause Constipation and after 5 days wo movement I need to double my daily mira-lax and water consumption. Avoiding PoP and any added sugar. Only natural hole food and no salt or prosse flour. Having a more regular bm with daily mira-lax is so refreshing. No hours of cramping and pushing any more.