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Craniocervical Instability Recovery
Registrace 12. 06. 2015
My journey to recovery from craniocervical instability
CCI
ME
Chronic Fatigue
Craniocervical Instability
Craniovertebral instability
EDS
Neck pain
Head pain
CSF leak
CCI
ME
Chronic Fatigue
Craniocervical Instability
Craniovertebral instability
EDS
Neck pain
Head pain
CSF leak
CCI and Dysautonomia, part 2
Second of two part series on dysautonomia, which is caused by the brain stem compression which is a nearly universal effect of CCI and a large part of why CCI is such a horrific condition.
zhlédnutí: 406
Video
Interview with CCI patients, Angela's journey - fusion and PICL
zhlédnutí 620Před 3 lety
This is the first interview in what I hope will be a series of discussions with others living with or recovering from CCI. Angela has multiple fusions with surgical hardware and has gotten tremendous help from stem cell and PRP injections into the ligaments and structures at and near the craniocervical junction
CCI and Dysautonomia, part 1
zhlédnutí 271Před 3 lety
Why am I lying down all the time??
zhlédnutí 172Před 3 lety
CCI Symptoms part 1
zhlédnutí 881Před 3 lety
CCI Symptoms part 2
zhlédnutí 364Před 3 lety
Causes of craniocervical instability (CCI)
zhlédnutí 195Před 3 lety
Craniocervical instability CCI Craniovertebral instability Neck pain Bobble head Whiplash EDS
What is craniocervical instability (CCI)?
zhlédnutí 233Před 3 lety
Introduction to me and the world of CCI
zhlédnutí 137Před 3 lety
Did u recovered?. I’m student from Korea. I’m Wondering that i have cci
I have been doing prolotherapy…changed everything
Majority of the patients with CCI are put under functional neurological condition, there is very little information and knowledge amongst neurologists unfortunately.
Have you gotten treatment? How are you doing?
Does anyone know how to get hold of Angela?
Im assuming you are on full disability? How long have you been dealing with this and what does your family dr have to say? What do you do like for grocery shopping and errands?
I guess we get our wills done and get our house in order. This is pretty grim. At least in canada we have maid for when the symptoms get worse. Lots to look forward to.
CCI also causes Vagus nerve issues!
I'm sorry...My neck is getting worse too. Even walking is getting difficult hate it. I hope I can get Prolotherapy sometime.
Hi dear hope you are doing well. Have you ever tried prolotherapy?
What was Angela's trigger. Does she have EDS?
To the moderator of this video ... how are you doing now? Have you tried picl yet yourself? I feel for you and I understand
czcams.com/video/wOjuVYGSFQ4/video.html Excellent video on CCI
Very informative xx
I've seen your comments on a few different videos Connor. How are you feeling?
@@anythinggoes5574 terrible thankyiu for asking, my head is like a damn bowling ball just hoping prp can help
@@connoredwards7199 Where are you getting it done? Do you have a lot of pain or...? I barely have any pain - it's mostly neurological symptoms for me.
you are right on exactly! Thank you!
we all have such varied stories. thank you for telling yours Diane and also to Angela for this great interview. i will take up your invite for an interview at some point, hope you understand i haven't contacted yet because chronically ill life is just like that. ❤
May I ask - where did Angela receive her care and get PICL? i'm interested to earn more
Thank you so much, Robin, and I completely know what this debilitating condition is like. You are very welcome and I will be grateful for an interview on your time x
@@robinelis yes you may ask but if you will PM me on Facebook messenger, that would be great. I am Diane McCracken on Facebook
facebook.com/diane.gibsonclavier
Thank you for posting this. I have this and it has devastated me. People just say You LOOK good. Like I care what I look like.
Exactly. I would happily look like a green ogre if I had a functional neck and CNS. Having a hidden disability is so hard. I have found myself envying people in wheelchairs because at least they can be upright. But we do have hope so we must find gratitude for what we have and keep plugging.
My fundraiser. If you can't donate, I am grateful for sharing! X gofund.me/7468ca24
Thank you for spreading awareness and sharing your journey. Take care!
Thank you for watching. I am hoping that some good can come out of this horrific experience x