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Doc, can you do Anakinra and Gold at the same time?

***my body would never be the same again, but you fixed it. My heartiest gratitude to you **#doctorAllenBen** for helping me cure my hsv virus successfully**** 💝💘💕💘💓

Thank you so much for summarizing EULAR

Azithromycin is a very dangerous drug. studying the two drugs together is not an accurate reflection of the side effects of hydroxychloroquine used alone. Also, the disorganized fashion of the study conclusion makes the study suspect at best.

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My wife is currently hospitalized. She has been in ICU for two weeks now. Her lupus has been attacking for the last two years. Last year alone she was intubated three times and almost passed away on us. She was hospitalized for 2 months. One year later here we are today and she head been diagnosed with Lupus Cerebritis. My wife was having trouble breathing and retaining water the first week of her admission. Literally one day to the next she was so different. She almost behaved like a drug addict extremely high on drugs or even a mentally unstable person. It truly shook me in the nine years we’ve been married this has never happened. MRI showed an abnormality but nothing indicating stroke, seizure or aneurism. They immediately started her on very high doses of steroids. Over the last three days she has shown small but consistent progress. She was non verbal at the begging of her attack and hallucinated. She finally started to speak today although her mouth still does not move completely normal yet. She is still however having hallucinations and confusion on and off through out the day. This has all been so overwhelming and soul crushing. We have two boys one very young boy and one teenage boy. The amount of worry stress and depression this has placed on me and the oldest is overwhelming. I constantly worry if she will ever stop having these hallucinations and state of confusion. How likely is it that my wife who had swelling like this in the brain due to lupus return to her normal self? Will these hallucinations and confusion episodes ever go away? The Doctors do not believe the lupus caused any permanent damage and they feel she should make a full recovery other than not remembering what happened during her attack and even a few days after she started to get better. I just keep worrying and overthinking this. Especially because our little one is still so young. Sometimes I get concerned for her safety and my kids if she were to hallucinate at home whenever she is to return.

@17:00 -- best comment (news) in this video. MTX, RTX, very high dose steroids are bad for getting vaccine response, but TNFα inhibitors, Abatacept, IL-6 inhibitors, look great in terms of vaccine response. Very good to know!

You talk to fast :( Im on my 11 th year with PMR. On 5 mg but very stiff, hard to walk and pain. Doctors in Sweden dont know much about PMR. They want me to sop taking pred but thats impossible.

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Does low signal bilaterally on all sequences of iliac side of si joints indicate SA? No sacroilitis but in low doses prednisone. Clinical picture suggests this otherwise

Paraphrasing Dr. HOUSE....It s finnaly lupus ( time :) ) . Thank you for all you doing ....great talks, lots of last moment medical information and pertinent discussions! A great help for us all in clinical practice !!

I'm now living my best life after getting rid of HERPES, Thank you Dr Abiola for being the best doctor for me. Thanks for providing a permanent cure for my infection #drabiola ......

Let’s get this happening for auto immune asap

When we will be able to cure autoimmune diseases completely

Thank you so much for this video!!!

Omg I wish I had a doc 😢like you. I have this nasty desece Cachexia & I loose extremely weight I'm only 101.1 now I'm do everything I'm told protein ensure everything I'm told I do it. I have nothing but bones my body hurts I'm trying & idk the most I getting was 113p so they told me it helps exercise I'm trying but so tired idk what else ❤😢

Thanks Doc for your commentary and analysis. This was very interesting.

My dr. Put me on high dose prednisone 37 yrs ago I was off it finally and they ended up putting me back on it for somethings else. The lowest I could get down to was 7 mg. They use it now for adrenal insufficiency as well as emphysema and copd. Im thinking ive been up and down on it for so long im struggling to taper down. If I cut back even just a half of a mg my joints and bidy aches like crazy. Everytime I ask one of my drs how to taper down i grt no answers all i hear is they want me down to 7 or 8mg I don't see that happening anytime soon. Any suggestions to help me? There's mo way i can cut back 2 1/2 mg at a time. Anybody out there can help please feel free. My joints are shot. I had my left knee replaced in 2011 due to osteonacrosis I have osteoporosis. I was told a month ago I now have osteonacrosis in my femor and my tibia and there's nothing they can do. My right leg crumbles up whenever it feels like it without any warning. The pain is just horrible and I will be in a wheelchair the rest of my life, im only 57 yrs old 😢

This made me almost cry. I have seen 8 rheumatologists. They all spend nearly the whole visit glued to their computer screen. They don't hear or understand the difficulties of life outside of their office. Healthcare is so sad now.

Is there any update to this video in 2024?

Where we are, a rheum takes at least 8 months to get an appointment, IF they accept the referral! I was refused 3 times, probably because my husband is a retired Internist.. I did see one who ruled out a couple of things, but refused to diagnose PMR because I'd been on steroids for 8 months. My family doc was left exposed and she refuses to prescribe low dose prednisone. So I use my husbands retired partner for my RX.

Very informative thankyou

Should've said 1 half years not 2 years

I started on 15mg worked really quick went down slowly been on Prednisone now for over 2 year .got down to 1mg but got sore so put up to 2 mg mostly fine odd days stiff and sore but my GP gone back to USA

RA FACTOR test number at 37. Is 37 super high?

The reason that adalimumab biosimilars have not made a dent on Humira sales is because for the vast majority of patients it doesn't decrease their out-of-pocket cost to get the biosimilar as compared to the brand-name drug. Co-pay assistance programs play a large role here.

Sounds promissing for people with APS and Lupus! 🙏🍀

It is alright for these doctors to say they are not worried. They wont be taking these horrific medications.

How can I get a prescription??

I need a specialist for my GPA so bad! I have almost to near death spells from time to time. Body's color turning purple looking.

As a Juvenile onset RA patient diagnosed forty years ago, I am curious about how rheumatologists choose the next biologic treatment, going from one to the next. I was treated with gold injections as a child and then methotrexate at age twelve. I remain on it to this day. It was amazing for the first six to seven years. They tried Remicade for a year when it first came out, then Kineret, which I did well on. For reasons I cannot give because I was not given them, a new doctor decided to change the Kineret to Enbrel. Then it was told to me that I hadn't gone into remission, but rather my disease had just died out because of a lack of inflammation. I was then taken off the Enbrel. I felt this was a mistake because I wasn't having any bad labs or side effects and the lack of inflammation seemed to be the goal. I changed doctors, but couldn't get put back on a biologic until a year ago and it made a huge difference in my upper body joints. However, my knees and hips are not responding very well and my attending would like to switch to a Jak inhibitor, but it's ultimately up to me because I have to live with the uncertainty of nothing working at all versus the little relief I'm getting from the Orencia. My treating physician has not been doing this for that long. While I'm grateful for him being more aggressive than my previous decades physicians he didn't know what resting splints were or what their benefits are when I said that I needed some new ones made. You look like you've been practicing long enough to know what I'm referring to. So, I'm just curious about how one makes a decision to choose the next biologic in rotation, if there are any predictors in narrowing down the choice, or is it all ,basically, an educated guess? Is it true that once you've used one and stop it probably isn't going to work if you try it again due to you building antibodies to the medicine? A similar statement was made to me and my parents when I was very young about methotrexate, that it only worked for a length of time then stopped working all together, by a Stanford rheumatologist at the time. That turned out to not be the case. Thanks for the informative video. I appreciated it.

Three times. Fast... lol

I have had achlasia for 35 years late 20s early 30s balloon dilation manageable recently diagnosed with scleroderma interstitial lung disease not great news but doctor stated it wont be the reason I check out that was a relief it simply has to be managed nobody is getting out of here alive enjoy life!

It' s a big difference for those who knows ...unlucky big mistakes are done...

I have had pmr for about 7 years and have been taking 5 mg predinone for years and recently developed headaches that just will not go away. I also felt really fatigued like I had the flue. I went to see a neurologist and he thinks I have GCA and he started me on 40 mg prednisone. I feel much better but still have an almost constant headache. I got a temporal artery biopsy but the results are not back yet. I feel like I need more prednisone. I read where you should take 1 mg per day per kg body weight. I weigh 141kg. It just seems like 40 mg is not enough.

If you are low in cortisol especially in the morning this can be a game changer.i only take 2.5mg a day of hc and it's improved energy and mood

If you suffer this, change everything you're eating and drinking / consuming!

Isuric acid level 9.1 is much higher

You take these drugs at your own risk. I wont be taking an Jak inhibitor.

Wont be taking that.

Spoken like a true clueless doctor who has never been on these medications! Yes they can work and help BUT they can cause awful side effects?! I have had skin cancers and fungus and horrible rashes from these biologics! And your premise that the longer your on them the less the side effects is totally false! I was on a biologic for 9 years when it not only caused a stash that took months to heal but not my immune system has been permanently altered were I can't take any meds for RA MAYBE thats why they cancelled your lecture?! These meds work yes... but there is so much unknown about the long term effects that patients like mutate just now learning O and PS prednisone has been the safest medication I have taken for this awful disease!!

But we loose such great pimp questions!

Congratulations. Very good presentation!

I was in the study done by Dr Dalakas at NIH in 1991 and 1992 . I received the real IVIG . My muscle strength and swallowing and speech improved to almost 75 per cent over when I went in to study I would guess . I still get it every four weeks . I want to try a new treatment without drugs . I want to know if there are new studies done. The traditional drugs used are toxic and do not work with many side effects . Ivig I feel should be given immediately instead of prednisone , methotrexate , imuran .. it would probably cure it if caught in time !

Im.south wales uk 😢😢

15mg for me is bs

You did not mention that a cause of CPPD is Hereditary Hemochromatosis.

Thanks. Good to see how things have advanced (albeit slowly) over the past 20+ years.

i have Bamboo Kyphosis Spine 49 yrs, 30 yrs chronic pain. nothing helps. Always so tired back and neck... Slowly Developed after Sports injuries @16 yrs. Feel stiff all the time. Live in The Netherlands.

CARNIVORE diet!!!!! (fire alarm). I’m pain free now. Had this 30+ years. THERE IS A CURE!!!!!!!!!!! Joints destroyed. But my nails are going back to normal. Looking forward to psoriasis remission. Heard it takes a year.