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Concussion Legacy Foundation
United States
Registrace 23. 08. 2007
The Concussion Legacy Foundation is a 501(c)(3) registered non-profit organization dedicated to the study, treatment, and prevention of the effects of brain trauma in athletes and other at-risk groups.
Headquartered in Boston, CLF and its partner organization, the Boston University Chronic Traumatic Encephalopathy (CTE) Center are the leaders in the field of sports-related head trauma. A team of researchers, led by Dr. Robert Cantu, Dr. Ann McKee, and Dr. Robert Stern, have profoundly advanced the study of CTE, a degenerative brain condition caused by repeated head trauma.
CLF supports this research through its active fundraising efforts. In addition, CLF engages in education and advocacy for the effects of concussions. So far, CLF's support has led to the passing of anti-concussion legislation in several states and municipalities, as well as acknowledgement of the long-term dangers of concussions by the NFL and NHL.
Learn more at concussionfoundation.org
Headquartered in Boston, CLF and its partner organization, the Boston University Chronic Traumatic Encephalopathy (CTE) Center are the leaders in the field of sports-related head trauma. A team of researchers, led by Dr. Robert Cantu, Dr. Ann McKee, and Dr. Robert Stern, have profoundly advanced the study of CTE, a degenerative brain condition caused by repeated head trauma.
CLF supports this research through its active fundraising efforts. In addition, CLF engages in education and advocacy for the effects of concussions. So far, CLF's support has led to the passing of anti-concussion legislation in several states and municipalities, as well as acknowledgement of the long-term dangers of concussions by the NFL and NHL.
Learn more at concussionfoundation.org
Dr. Chris Nowinski I CLF Founder Story
CLF CEO and co-founder Dr. Chris Nowinski tells the story of CLF. How did we begin? Why are we fighting so hard for a world without CTE and concussion safety without compromise.
Sign up for our emails here: concussionfoundation.org/
Make a donation today: www.classy.org/give/312896/#!/donation/checkout
Sign up for our emails here: concussionfoundation.org/
Make a donation today: www.classy.org/give/312896/#!/donation/checkout
zhlédnutí: 38
Video
CLF Peer Support Volunteer Training - CLF Helpline
zhlédnutí 24Před měsícem
This July 2024 training focuses on the purpose of the CLF Helpline and how it can be beneficial during a 1:1 Connection. concussionfoundation.org/helpline
J.A. Adande on the impact of the CLF Media Project
zhlédnutí 79Před 2 měsíci
Hall of Fame sportswriter and Northwestern University Director of Sports Journalism J.A. Adande shares his thoughts on the Media Project’s progress through six years in his classroom and the duty of journalists to be informed when reporting on concussions.
CME Webinar - The Intersection of Domestic Violence and Brain Injuries
zhlédnutí 74Před 2 měsíci
This is an ACCME-approved continuing medical education webinar led by Psychologist Dr. Dorothy Kozlowski, PhD, and Social Worker Dr. Sonya Crabtree-Nelson, PhD discusses the intersection of intimate partner violence/domestic violence and brain injuries. Visit the Concussion Legacy Foundation's Continuing Medical Education hub to find more content and upcoming opportunities to receive free conti...
CME Webinar - IPV & Brain Injury: Training for Social Workers, Medical Providers, and the Community
zhlédnutí 65Před 2 měsíci
This is an ACCME-approved continuing medical education webinar led by Psychologist Dr. Dorothy Kozlowski, PhD, and Social Worker Dr. Sonya Crabtree-Nelson, PhD serves as a practical training for social workers, medical providers, and community members on how to support intimate partner violence survivors, specifically with suspected brain injuries. Visit the Concussion Legacy Foundation's Conti...
CLF Peer Support Volunteer Training - Suspected CTE Caregiver Guidebook
zhlédnutí 47Před 2 měsíci
This May 2024 training focuses on the Suspected CTE Caregiver Guidebook and how it can be a useful tool of information in your connection. Suspected CTE Caregivers Guidebook: concussionfoundation.org/sites/default/files/2023-11/Suspected CTE Caregiver Guidebook 111723.pdf
CLF Peer Support Volunteer Training - PCS Caregiver Guidebook
zhlédnutí 33Před 2 měsíci
This May 2024 training focuses on the PCS Caregiver Guidebook and how it can be a useful tool of information in your connection. PCS Caregiver Guidebook: concussionfoundation.org/sites/default/files/2023-11/Post Concussion Caregiver Guidebook 111723.pdf
Detecting CTE in the Blood: New BU Research Study
zhlédnutí 819Před 2 měsíci
Warning - this video contains reference to and imagery of brain dissection for the purposes of research. A full brain, in addition to brain sections, are depicted from 25:15 to 28:55. If you prefer not to view this content, we recommend pausing the webinar at 25:00 and skipping ahead to 29:00. CLF and our research partners at the Boston University CTE Center are proud to introduce BANK CTE, a g...
Moms & Concussions: Patient and Caregiver Support Webinar
zhlédnutí 89Před 3 měsíci
CLF is spotlighting the experience that mothers face both as concussion patients and as caregivers for children with concussions. Both can be challenging roles to navigate, but you don't have to do it alone. Hear from Allison Moir-Smith, the founder of our Concussed Moms support group and learn about the peer support connections available to help you through! Allison is joined by Marie Cløigaar...
CLF HelpLine for Law Enforcement & First Responders
zhlédnutí 70Před 3 měsíci
Kevin Donaldson is a retired police officer and a mental health advocate. Because of the high rate of TBI among emergency responders, plus the link between brain injuries and mental health conditions, Kevin wants to increase awareness about the resources available to those suffering from TBI. The CLF HelpLine for Law Enforcement & First Responders is a free, personalized service for current and...
CLF Peer Support Volunteer Training - Breaking the Ice and Building Momentum
zhlédnutí 47Před 3 měsíci
This April 2024 training focuses on your first interaction with a Partner and how to build up the momentum of your connection. We also discuss how to maintain your connection momentum with information from the PSV Guidebook linked below. CLF Peer Support Volunteer Training Guidebook: concussionfoundation.org/sites/default/files/2024-01/CLF Peer Support Volunteer Training 011924.pdf
Max's March to End CTE - honoring the legacy of Max Tuerk
zhlédnutí 239Před 3 měsíci
Greg and Val Tuerk invite you to join Max's March on Saturday, May 4 to support the Concussion Legacy Foundation through the Race to End CTE. Max's March fundraising page: www.classy.org/fundraiser/5345002 Max Tuerk was an All-Pac-12 offensive lineman at USC who played two NFL seasons with the Chargers and Cardinals. He passed away unexpectedly in 2020 at age 26, and his parents donated his bra...
CME Webinar - Evaluating Affective and Other Mental Health Complications After Brain Trauma
zhlédnutí 150Před 3 měsíci
This is an ACCME-approved continuing medical education webinar with psychiatrist Dr. David Reiss discussing nuances in behavioral health symptoms commonly associated with concussion, PPCS, suspected CTE, PTSD, ADHD, and OCD. Key focus areas include evaluating and distinguishing symptom presentation, practical guidance for assessments, and evidence-based strategies for symptom management. Learn ...
CLF Peer Support Volunteer Training - How and Why We Use Boundaries in Peer Support
zhlédnutí 70Před 4 měsíci
This March 2024 training focuses on how and why we use boundaries in Peer Support. We discussed why boundaries are healthy, appropriate and necessary in a Peer Support relationship, as well as how to help your Partner communicate their own boundaries. Boundaries Handout: drive.google.com/file/d/1Ga92T_ZYfCI1FPOd6ToM6fs20rBC8RVT/view?usp=sharing
CTE Research: What's New & What's Next
zhlédnutí 496Před 6 měsíci
CTE Research: What's New & What's Next
CLF Peer Support Volunteer Training - How and When to Reach Out to a Partner
zhlédnutí 69Před 6 měsíci
CLF Peer Support Volunteer Training - How and When to Reach Out to a Partner
Madeleine Brink's Concussion Hope message
zhlédnutí 191Před 7 měsíci
Madeleine Brink's Concussion Hope message
CLF Peer Support Volunteer Training - How Peer Support Differs from Professional Mental Health Care
zhlédnutí 169Před 8 měsíci
CLF Peer Support Volunteer Training - How Peer Support Differs from Professional Mental Health Care
Luke Ivens: The impacts of Brain Injury in Sport - A South Australian Story
zhlédnutí 128Před 9 měsíci
Luke Ivens: The impacts of Brain Injury in Sport - A South Australian Story
CLF Peer Support Volunteer Training - Typical Mental Health Care for Concussion & CTE Patients
zhlédnutí 71Před 9 měsíci
CLF Peer Support Volunteer Training - Typical Mental Health Care for Concussion & CTE Patients
CME Webinar - Clinical Approach to Patients at Risk for Chronic Traumatic Encephalopathy
zhlédnutí 254Před 9 měsíci
CME Webinar - Clinical Approach to Patients at Risk for Chronic Traumatic Encephalopathy
CNE Webinar - Concussion, Post-Concussion Syndrome, and Chronic Traumatic Encephalopathy
zhlédnutí 364Před 9 měsíci
CNE Webinar - Concussion, Post-Concussion Syndrome, and Chronic Traumatic Encephalopathy
CME Webinar - Concussion and Persistent Post Concussion Symptoms Guidelines of Care
zhlédnutí 462Před 9 měsíci
CME Webinar - Concussion and Persistent Post Concussion Symptoms Guidelines of Care
CME Webinar - Chronic Traumatic Encephalopathy Guidelines of Care
zhlédnutí 366Před 9 měsíci
CME Webinar - Chronic Traumatic Encephalopathy Guidelines of Care
CLF Peer Support Volunteer Training - Helping Partners Communicate Their Needs
zhlédnutí 20Před 10 měsíci
CLF Peer Support Volunteer Training - Helping Partners Communicate Their Needs
CLF Peer Support Volunteer Training - Helping Partners Cultivating Hope
zhlédnutí 22Před 10 měsíci
CLF Peer Support Volunteer Training - Helping Partners Cultivating Hope
CLF Peer Support Volunteer Training - PSV Self Care
zhlédnutí 49Před 10 měsíci
CLF Peer Support Volunteer Training - PSV Self Care
CTE car crash then violent marriage for 8 years. CTE started symptoms ten years after I left the abuser.. hitting on all sides ... I am 62 with failing short term memory and cognitive issues plus Parkinson's... Also ideations. 😊
Def can relate the being the one he loves the most AND the one he hates the most. I can’t imagine a more terrible brain condition than this.
I really really hope Brett isn't suffering from depression or anything, I love him!
Yeh I had to stop playing in the early 2010s because I was blacking out on the football field and started having seizures. Now I am wondering if I have it since I do become forgetful and slur words on a rare occasion.
We're so sorry to hear that. Please know there is help and hope available. There are treatments for many of the symptoms of suspected CTE. Our HelpLine team can provide doctor recommendations, educational resources, and connect you with peer support. If you're interested, please submit the form at CLFHelpLine.org
Thank you.
My son .age 5 to 25 motorcross
If you need support for you or your son, please reach out to our free HelpLine at CLFHelpLine.org. Our team can provide doctor recommendations, educational resources, and connect you with peer support.
Watching the recording from New Zealand
My wife put in for caregiver for me. I was hit by an IED. Suffered with a TBI and have 70 percent ptsd. We were denied the program. Seems like no 1 is approved for this program
Sorry to hear about the challenges you're facing. We'd like to support you however we can. Could you please email us with more information about the program so that we can better assist you? Please contact info@concussionfoundation.org
Dr Cantu is just a super guy who has dedicated his life to helping people recover as much as possible to continue with life
Agreed! We're thankful for all of Dr. Cantu's contributions to the concussion community.
I would love to tell my story.
Hello! We'd love to connect to hear more about your story. Send us a note at info@concussionfounation.org.
I work at a clinic that treats brain injury. I hope at some point you'll expand to multi-causal, i.e. contact sports, childhood abuse, car accidents, workplace injuries, assaults, IPV, hitting the head on cupboard doors (hard enough to create a goose egg), etc. My most severe patients have a combination.
I wonder if those who have CTE with non-reported RHI are victims of severe childhood abuse or IPV that wasn't reported to the clinic...
No people will come here twice.. Because they all have recoverd and you too will @cuncussion_pcs
Why does the video freeze with the audio cutting out?
Jesus .. this is depressing .. 3 weeks in and I’m hoping to god this doesn’t last …
We are so sorry to hear you are struggling. Our HelpLine team would love to assist you in finding support and resources. Please submit a request at CLFHelpLine.org!
I recovered in 2 monts
Glad to hear you're recovered now. Please let us know if we can support you down the road.
What do you do if after being diagnosed with PCS, and you still have those symptoms and they have worsened even with cognitive therapy and exercise (which did help me get my BA), but you then develop dementia symptoms 10 years later from the last concussion and you're almost 40? My concern is that it's from my lengthy history of concussions (sports and military) and it's CTE, which can only be diagnosed post mortem. I have read recently DTI along with a biomarker, similar to those used to diagnose Alzheimer's, it might be the how it's diagnosed in living patients. So what questions do I ask my doctors, what tests can be done that might help diagnose the dementia related to CTE if it can't be diagnosed? We have just received the Tesla-MRI for DTI imaging here in 2023 through my university, but access is limited typically to professional sports players.
Thanks for your question. We are sorry to hear your symptoms have worsened. Know that there are many possible causes for your symptoms and CTE is only one possibility. Additionally, there are many treatment options available for symptoms of suspected CTE. Don't lose hope! Our team can help you find medical providers in your area and provide other resources. Please fill out a request at CLFHelpLine.org so they can reach out.
Join Boston University CTE Center researchers and the Concussion Legacy Foundation to learn about BANK CTE, a ground-breaking research study that aims to identify plasma biomarkers unique to CTE.
It is very sad cte is far diversion .it is beyond contact sport and militry services also ....unfortunety can't be treated even dig osed a 100 years old dieses.it is black mark of science
Cte is not only sport or militry veteran my son is suffering from it .he was diagnosed 4-5 concussion during their training period he was once ishchemic stroke also .....he is only 26 now and dealing day to day task discomfortbilty ... So cte is a global issue to someone who sustain head trauma
When the brain matures to full size and ability, that is when the first signs of CTE show its' ugly face. Read somewhere, it is the first wave of symptoms and regarded as a psychiatric situation. My son began his journey at 25 y.o. with chemical abuse, 1st diagnosis of paranoid schizophrenia, and the list goes onward. Playing American full contact football since the age of 8 y.o. is probably the root cause? My thoughts and condolences are with you.
WA state, still riding/training Jumping horses for over 38yrs and 11yrs in gymnastics (which was the sport where I had my first concussion) from age 2-12.
It’s been 16 years since my last concussion, having had 9 as well before hitting 18. Been through the wringer of psychs, anti depressants, anti anxiety, migraine meds, etc. Now when I close my eyes the room starts spinning so I’m falling into the insomnia train now. I will never ever let anyone in my family play contact sports no matter how much they want it.
So sorry to hear about the symptoms you are experiencing. Please let us know if we can support you.
I not played any contact sport....i have 5 undigsones concussion .....im living with cte sympttoms ......cte is not only for contact sport it has far more diversion plese find the cure .....at lest halt the progression im very frustrating and dieing day by day ....i surely suffer from this debilitating dieses ...my memory gets worsed evewwryday.im only 26 and only one offspring of my parents
We are so sorry to hear about the challenges you are facing. If you would like to be connected with resources and peer support, please submit a request at CLFHelpLine.org!
Can I donate my brain? And how do I do it? I believe I have cte. I played football from 3rd grade up to my senior year in high school. I played running back and was the work horse of all my teams because we weren’t very good and it was pretty much just hand me the ball on every play. I was a physical runner and defensive player. I never was officially diagnosed with a concussion, but I know I’ve had some. There were times I literally saw double vision running back to the huddle. After high school around 19 or 20 I became very depressed, withdrawn, and hopeless. I also can have a short fuse which I fight to keep under control. I haven’t been able to hold a steady job do to those things and if my father wasn’t letting me live with him I might not be here right now. I also suffer from headaches a lot. I’ve heard they have found cte in some soccer players and I can promise you, I know I’ve taken more head shots than anyone playing soccer that’s what scares me. I’m 40 now and I haven’t felt like myself for the past 20 years. It seems to be getting worse. If I do have cte I’d like my family to know because I think that’s important. Thank you!
Get close to your faith my friend. It will be okay🙏
I live with CTE. I grew up in DV and lived in it as an adult until age 28/29. I had brqin surgery as a child who has neurofibromitosis and the surgery ended up as surgical TBI and I'm now 45 and and have medical professionals are also either uneducated or choose to rhink I have an addiction to medication that helps me stay calm and ia alao a neurotransmitter. I am in northern Florida and need help ASAP. I want to see my son graduate in a few years, I want to know my furure grandchildren before I eventually pass from a medical condition that is secondary or a form of dementia that is stealing my identity because I don't know who I am as a person any longer either due to CTE or something I cannot put into words. What specific type of neurologist treats CTE?
I'm not sure if they have treatment now. They're trying to learn treatments.
This was an exceptional Webinar, as are all that are offered by the Concussion Legacy Foundation (CLF). I cannot register fast enough when a Webinar is offered. I feel rather intimidated when speaking to my medical supports about suspected CTE. I appreciated Dr. Nowinski’s acknowledgement that we have to educate our physicians about the disease. That way, our medical supports better understand the root of the anxiety, depression, impulse control issues, executive disfunction, etc., that the prescribed medications are trying to control. Mick
Thank you for your feedback and kind words, Mick! We are always here for you if you need support.
I'm 40, former pro MMA fighter of 10 years. Former wrestler, football player, kickboxer, karate. Have been pledged to CLF and registered to donate since 2017. Don't have time to finish video right now, but will come back to it. Hearing things like this always gives me a brief glimpse of hope.
We are glad to hear this gives you hope, as it gives us hope as well! Thank you for being part of our donor registry.
Salute Bro I’ve been following you since WWE and Everything else, I talk about your story I played Football in high school and college, I am from Austin TX
Please let us know if you ever need support or resources!
WHEN ARE YOU GOING TO REALLY AID WOMAN WHO PUSH THROUGH CTE FROM MARITIAL ABUSE, WHO ARE ALONE & WITHOUT ANY SUPPORT NETWORK⁉️🤕😢
I'm 45 and had brain surgery at age 10 that caused TBI and now live with CTE. My neurologist has no idea how to treat me. I have neurofibromitosis type 2, which is the cause of the tumors. I also lived a long time from childhood into almost age 30 in abuse. Can you help me? University of Florida neurologist for patients with NF and CTE are zero help for adults.
We are sorry to hear about the challenges you are currently experiencing! Our HelpLine team can provide you with medical provider recommendations, educational resources, and peer support. Please submit a request at CLFHelpLine.org and our team will be in touch!
Very good intiative find. Cure as soon as possible .....please I'm suffering from this debilitating dieses
Please reach out at CLFHelpLine.org if you need support!
Please find the cure of the taupathy dieses....he is suffering cte symptoms ..... Please God halt the taupathy of dieses... Cler it it is not bearable My memory gets lost
We are sorry you are struggling. Please submit a request at CLFHelpLine.org so we can provide support and resources.
Thugs: yeah, no. 10yo can catch these hands too
G
You are so brave & strong Not just mothers but women in general. Doctors & Family DO NOT CARE! I HAVE NO SUPPORT SYSTEM! NOBODY TO HELP ME! I'M NOT DEPRESSED, I NEED PHYSICAL HELP IN MY HOME.
I'm living with it ....I'm Indian plese help me .
Hi there, so sorry to hear you are struggling. While we are unable to provide doctor recommendations in India, we can still provide you with educational resources to help support you. Please submit a request at CLFHelpLine.org and we will be in touch!
Plese develope the medicine to cure or at least halt the progression ........I read somewhere else that in University of South Australia developement of medicine that halt the dementia of athlete plese do clinical trial as per knowledge.... plese help untill I lost my every memory.
Plese god plese plese plesw find the cure of the dieses
I'm Indian and living with cte ...many Indian are suffering from this after road accident to multiple concussion.....this is not only contact sport matter it is matter of how much ur head was impacted .....I'm suffering from this
People only grab the fund and no one research on it thoroughly very unfortunate that there is no known cure of 100 years old dieses....think the people like me who is suffering from this dieses .........
Finally after how many years cte can be dignose after death and if it is regular the what is that diagnosis after someone passed away
What a fuck no one discover right now the treatment it is 1928 to 2024 almost 94 years ....very unfortunate .
It's because they didn't want too. Medical system is corrupt.
Plese find the cure of cte
मैं भारतीय हूं और सीटीई के साथ जी रहा हूं। यह मेरे लिए बहुत कमजोर करने वाली बात है, कोई भी मेरी परवाह नहीं करता। मेरी याददाश्त खराब हो जाती है....माफ करना, मैं इसके साथ नहीं रह सकता...हर कोई बस शोध, शोध, शोध कर रहा है ए
In reference to a human brain. Water hitting rock is a terrible analogy. If anything it should be the other way around.
His speech is so fucking clear and precise and charismatic for stage 4 CTE. I'm baffled, how is it possible?
Does the CLF have a way of sending this information to schools & sports associations so that they can fully inform parents about these devastating injuries caused by repetitive hits? Too many have no idea about how it not only affect the physical health of their young athletes but the “mental health” also.
14 is not a safe age for these young athletes to start playing tackle football. Their brains do not fully develop until the mid to late 20’s. Think about it…is a 14 year old in a car wreck less likely to suffer brain injury? These injuries are traumatic and devastating for their “mental” & physical health. Please be honest with parents.
I was struck by lightning and I was thrown back hard against cement/door frame that was blown open behind me
Theracurmin, a highly bioavailable form of Curcumin, has been shown (both in vitro and in healthy adult humans) to not only inhibit the aggregation of tau in the brain, but to also dismantle preformed tau filaments. At least theoretically, this could be a potential treatment modality. Given that curcumin itself has demonstrated neuroprotective and cognition enhancing properties, it's not a stretch at all to think that it might have the capacity to stave off the progression of CTE
Is there anyway I can get tested or join a study to help this?
Thanks for your question! CTE can only be diagnosed post-mortem but symptoms are treatable during life. If you are interested in participating in research, follow this link to learn more about signing up for our Research Registry: concussionfoundation.org/get-involved/participate-research
@@ConcussionLegacyFoundation thank you. I would like to help with this research. I understand enough about CTE to know it can’t be diagnosed until post-mortem. I have had multiple head injuries and definitely show the symptoms. Although I have never gone to a doctor about it. I have suffered multiple concussions from childhood on adulthood. I have been knocked unconscious at least twice from fighting and maybe 3 or 4 times from motorcycle accidents, it’s hard to say…. And my last head injury was a car accident. I was fully unconscious for over 3 mins.