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Know Narcolepsy
United States
Registrace 23. 03. 2018
Welcome to Know Narcolepsy®
Know Narcolepsy is a community for people impacted by narcolepsy, looking to find support, education, real-life stories and tips for living with narcolepsy. We hope by visiting Know Narcolepsy, you find important information and resources to help you understand symptoms and their impact, communicate with healthcare providers, and better manage day-to-day life with narcolepsy.
This page is intended for U.S. audiences ages 18 years and over. While we hope to foster dialogue and a sense of community, please do not interpret any conversations that take place here as medical advice. For medical advice, please talk to your healthcare provider, who is the best source of information about your health.
This page is hosted by Harmony Biosciences and posts are published and monitored by our community management team. View our Community Guidelines here: bit.ly/2G76F6y
US-NAR-2400010/Feb 2024
Know Narcolepsy is a community for people impacted by narcolepsy, looking to find support, education, real-life stories and tips for living with narcolepsy. We hope by visiting Know Narcolepsy, you find important information and resources to help you understand symptoms and their impact, communicate with healthcare providers, and better manage day-to-day life with narcolepsy.
This page is intended for U.S. audiences ages 18 years and over. While we hope to foster dialogue and a sense of community, please do not interpret any conversations that take place here as medical advice. For medical advice, please talk to your healthcare provider, who is the best source of information about your health.
This page is hosted by Harmony Biosciences and posts are published and monitored by our community management team. View our Community Guidelines here: bit.ly/2G76F6y
US-NAR-2400010/Feb 2024
Understanding Narcolepsy Symptoms
In people living with narcolepsy, symptoms occur because the separate states of wakefulness and sleep do not work properly.
Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com
Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, education, real-life stories and tips from people living with narcolepsy. Learn more about us and our community guidelines here: knownarcolepsy.com/community-guidelines
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Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com
Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, education, real-life stories and tips from people living with narcolepsy. Learn more about us and our community guidelines here: knownarcolepsy.com/community-guidelines
SUBSCRIBE to get the latest from Know Narcolepsy: czcams.com/channels/jXn3CXXPh8nyhK0LOset7A.html
View more videos in this playlist: czcams.com/video/QGtt3y4zaFk/video.html
View our other playlists: czcams.com/channels/jXn3CXXPh8nyhK0LOset7A.htmlplaylists
Like Know Narcolepsy on FACEBOOK: KnowNarcolepsy
Follow Know Narcolepsy on INSTAGRAM: knownarcolepsy
zhlédnutí: 5 099
Video
Narcolepsy with Cataplexy - Scott’s Story
zhlédnutí 5KPřed 2 lety
Hear from Scott, a 48-year-old stay at home dad, as he shares his experience living with narcolepsy with cataplexy. Watch his video to learn about his cataplexy triggers, and hear how he talks about complete loss of muscle control and partial cataplexy that he describes as feeling like “a little short circuit.” Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownar...
Putting My Health First - Tim’s Narcolepsy Diagnosis Story
zhlédnutí 1,7KPřed 2 lety
It took years for Tim to receive a narcolepsy diagnosis. He shares the challenges he faced along his journey and how he learned the importance of putting his health needs first. Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, education, real-life st...
Managing Relationships and Social Life With Narcolepsy
zhlédnutí 1,1KPřed 2 lety
Hear Gina talk about her experiences and share advice about setting boundaries with the important people in her life. Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, education, real-life stories and tips for living with narcolepsy. Learn more about ...
Talking to Your Friends and Family About Narcolepsy
zhlédnutí 923Před 2 lety
A narcolepsy diagnosis can impact the whole family. Hear Andre describe how he sat down with the people in his life and began a journey of education and understanding. Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, education, real-life stories and ...
Sleep Wake State Instability Throughout the Day
zhlédnutí 1,6KPřed 3 lety
People living with narcolepsy can experience multiple intrusions of non-REM sleep and REM sleep throughout the day. Understand the impact of ongoing sleep-wake state instability in narcolepsy. KnowNarcolepsyHCP.com is an online resource that seeks to help healthcare professionals improve the lives of their patients with narcolepsy. Hear from real people living with narcolepsy to gain insight in...
The Importance of Histamine in Stabilizing Wakefulness
zhlédnutí 1,2KPřed 3 lety
Histamine neurons may play an important role in sustaining wakefulness for long periods during the day. Review research that suggests increased activation of histamine neurons may help stabilize wakefulness in narcolepsy. KnowNarcolepsyHCP.com is an online resource that seeks to help healthcare professionals improve the lives of their patients with narcolepsy. Hear from real people living with ...
The Pathophysiology of Cataplexy
zhlédnutí 3,6KPřed 3 lety
Cataplexy occurs when the muscle atonia associated with REM sleep intrudes into wakefulness during the day. Learn about the neuronal processes that allow strong emotions to trigger a loss of muscle tone in people living with narcolepsy. KnowNarcolepsyHCP.com is an online resource that seeks to help healthcare professionals improve the lives of their patients with narcolepsy by offering insight ...
The Neurobiology of Normal Sleep and Wakefulness
zhlédnutí 6KPřed 3 lety
A normal sleep-wake cycle requires the coordinated activity of several neuronal systems that regulate the timing and stability of three distinct states: wakefulness, non-REM sleep, and REM sleep. Review how the brain regulates these states to ensure that elements of one state do not intrude into another. KnowNarcolepsyHCP.com is an online resource that seeks to help healthcare professionals imp...
The Pathophysiology of Narcolepsy
zhlédnutí 2,8KPřed 3 lety
In most people living with narcolepsy, the disorder is caused by the loss of neurons that produce hypocretin (also known as orexin). Learn more about how this loss leads to sleep-wake state instability, and understand the link between pathophysiology and symptoms of narcolepsy. KnowNarcolepsyHCP.com is an online resource that seeks to help healthcare professionals improve the lives of their pat...
The Role of Histamine in Sleep and Wakefulness
zhlédnutí 2,3KPřed 3 lety
Histamine neurons in the brain play an important role in stabilizing wakefulness during the day. Learn how histamine has been shown to help promote and stabilize wakefulness. KnowNarcolepsyHCP.com is an online resource that seeks to help healthcare professionals improve the lives of their patients with narcolepsy. Hear from real people living with narcolepsy to gain insight into the impact of d...
Being an Active Participant in Your Narcolepsy Journey
zhlédnutí 1,2KPřed 3 lety
Andre shares how he took control of his journey with narcolepsy by becoming an active participant in his story. Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, education, real-life stories and tips for living with narcolepsy. Learn more about us and...
What Sleep Paralysis and Hypnagogic Hallucinations Can Feel Like
zhlédnutí 40KPřed 3 lety
As a person living with narcolepsy, Gina describes what it feels like when she experiences hypnagogic hallucinations and sleep paralysis. Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, education, real-life stories and tips from people living with n...
What does Excessive Daytime Sleepiness (EDS) with Narcolepsy Feel Like?
zhlédnutí 21KPřed 4 lety
Four Personal Stories: Four people living with narcolepsy share their experience of what excessive daytime sleepiness (EDS) feels like for them. Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, education, real-life stories and tips from people living...
My Narcolepsy Story: Living Above the Diagnosis
zhlédnutí 3,7KPřed 4 lety
My Narcolepsy Story: Living Above the Diagnosis
What It Feels Like to Live with Narcolepsy
zhlédnutí 11KPřed 4 lety
What It Feels Like to Live with Narcolepsy
A Parent’s Perspective: Being a Parent with Narcolepsy
zhlédnutí 1KPřed 4 lety
A Parent’s Perspective: Being a Parent with Narcolepsy
Everyone with Narcolepsy Has a Different Story to Tell
zhlédnutí 1,4KPřed 4 lety
Everyone with Narcolepsy Has a Different Story to Tell
Understanding Normal Wakefulness and Sleep
zhlédnutí 6KPřed 4 lety
Understanding Normal Wakefulness and Sleep
Narcolepsy: What’s Happening in the Brain?
zhlédnutí 33KPřed 4 lety
Narcolepsy: What’s Happening in the Brain?
Helping Others Understand How Excessive Daytime Sleepiness (EDS) Impacts Your Life Every Day
zhlédnutí 2,6KPřed 4 lety
Matt, Emily, Sharon, Ijeoma and Leah share their personal stories about living with narcolepsy to help others understand the impact excessive daytime sleepiness (EDS) has on their day-to-day lives. Visit the Know Narcolepsy website to learn more and sign up for updates. www.knownarcolepsy.com Welcome to #KnowNarcolepsy, a community for people impacted by narcolepsy, looking to find support, edu...
Narcolepsy Symptoms Can Include Sleep Paralysis, Hypnagogic Hallucinations
zhlédnutí 32KPřed 5 lety
Narcolepsy Symptoms Can Include Sleep Paralysis, Hypnagogic Hallucinations
Social Situations Triggered My Cataplexy
zhlédnutí 7KPřed 5 lety
Social Situations Triggered My Cataplexy
Personal Stories of Living with Narcolepsy
zhlédnutí 9KPřed 5 lety
Personal Stories of Living with Narcolepsy
How to Manage the Social Impact of Narcolepsy
zhlédnutí 4,1KPřed 5 lety
How to Manage the Social Impact of Narcolepsy
Avoiding Emotions to Control Cataplexy
zhlédnutí 4,8KPřed 5 lety
Avoiding Emotions to Control Cataplexy
Emotions That Can Trigger Cataplexy Attacks
zhlédnutí 18KPřed 5 lety
Emotions That Can Trigger Cataplexy Attacks
Recognizing Narcolepsy and Excessive Daytime Sleepiness
zhlédnutí 33KPřed 5 lety
Recognizing Narcolepsy and Excessive Daytime Sleepiness