Chronically Hopeful
Chronically Hopeful
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What is a Pheochromocytoma?
What is a Pheochromocytoma?
zhlédnutí: 9

Video

Healing the Heart
zhlédnutí 19Před měsícem
Hey there, beautiful friend. It’s a joy to have you here. Welcome to the healing my heart collection. This is all about mental health. I am excited to be sharing some educational content around mental health. I also look forward to talking about the overlap between mental and physical health. Additionally, I will be sharing Aunt on the following topics: self love boundaries, mindfulness makeup/...
Spoonie Hall of Fame
zhlédnutí 9Před měsícem
A warm and loving welcome sweet soul to the Spoonie Hall of Fame. This collection is all about celebrating the life and legacy of those in the chronic illness community who have gained their angel wings.
Monday Empowerment
zhlédnutí 39Před měsícem
Happy Monday Beautiful Soul. It’s a delight to welcome this new week with you. I hope this little Monday pep talk will help you to enjoy and embrace this new week with excitement.
Grief and Chronic Illness
zhlédnutí 14Před měsícem
A warm and loving welcome to this collection grief and chronic illness. Though we aren’t always aware of it, grief is a huge part of chronic illness. I hope to provide educational content. Additionally, I hope This collection allows you to feel safe and supported as you navigate grief with chronic illness. Holding you in my heart as you embark on this life-giving healing journey.
Introduction to the Endocrinology Collection
zhlédnutí 16Před 2 měsíci
Welcome sweet soul to the Pheochromocytoma, Neuroendocrine tumor/cancer, Addison's disease, & other endocrine things. Personally, I believe it’s essential to have a baseline understanding of any diagnosis someone may have. One can argue it is even more critical to understand endocrine diagnoses. For the most part endocrinologists aren’t as knowledgeable as they should be. There are a number of ...
Monday Motivation
zhlédnutí 24Před 2 měsíci
Monday Motivation
Womb Twin/Multiple survivor 
zhlédnutí 19Před 2 měsíci
Womb Twin/Multiple survivor 
Introduction to the collection Victorias World on TIKTOK
zhlédnutí 33Před 2 měsíci
Introduction to the collection Victorias World on TIKTOK
Happy Mothers Day to those who have chronically ill children
zhlédnutí 24Před 2 měsíci
Happy Mothers Day to those who have chronically ill children
Happy mother day to those who have experienced vanishing twin syndrome
zhlédnutí 5Před 2 měsíci
Happy mother day to those who have experienced vanishing twin syndrome
Holding those who can’t have their own children especially because of chronic illness
zhlédnutí 6Před 2 měsíci
Holding those who can’t have their own children especially because of chronic illness
Embracing a New Era
zhlédnutí 52Před 3 měsíci
Embracing a New Era
Wear Pink April 1st to Honor those gone too soon
zhlédnutí 49Před 4 měsíci
Wear Pink April 1st to Honor those gone too soon
July Update
zhlédnutí 93Před rokem
July Update
may 18?
zhlédnutí 123Před 2 lety
may 18?
gastro
zhlédnutí 109Před 2 lety
gastro
may 15
zhlédnutí 26Před 2 lety
may 15
may again
zhlédnutí 37Před 2 lety
may again
Progressing Quickly
zhlédnutí 84Před 2 lety
Progressing Quickly
May 15th
zhlédnutí 36Před 2 lety
May 15th
Spilling The Tea While Having A Cup Of Tea With You
zhlédnutí 48Před 2 lety
Spilling The Tea While Having A Cup Of Tea With You
Trying Out Something New With Chronically Hopeful
zhlédnutí 30Před 2 lety
Trying Out Something New With Chronically Hopeful
Hospital Accident
zhlédnutí 65Před 2 lety
Hospital Accident
Happy Easter
zhlédnutí 39Před 2 lety
Happy Easter
hospital 2022
zhlédnutí 121Před 2 lety
hospital 2022
COVID Update February 17th
zhlédnutí 33Před 2 lety
COVID Update February 17th
Chatting About Possibilities Of Another Book And Other Things About Chronically Hopeful
zhlédnutí 28Před 2 lety
Chatting About Possibilities Of Another Book And Other Things About Chronically Hopeful

Komentáře

  • @turkishpostman525
    @turkishpostman525 Před 6 dny

    I would also look into Cushings Disease or Syndrome, good luck take care

  • @mandyholmberg5106
    @mandyholmberg5106 Před 11 dny

    RIP Jaupie 😢💔

  • @mandyholmberg5106
    @mandyholmberg5106 Před 12 dny

    I have a childhood friend Courtney she has autism and gastroparesis and also only 18% of her stomach works and she also has an autoimmune disease as well

  • @mandyholmberg5106
    @mandyholmberg5106 Před 12 dny

    I have learned a lot more about autism and gastroparesis for watching her CZcams videos and also my childhood friend has both of these conditions after watching her videos after the whole lot more about both of them before I started watching her videos I only knew a little bit more about both of these conditions but after watching these videos I have learned a whole lot more about both of these conditions

  • @mandyholmberg5106
    @mandyholmberg5106 Před 12 dny

    I am sending out my thoughts and prayers and love to her family and friends and her dog Harlow I am really! So very sorry for your loss 😢💔 even though it was a long time ago forever young she is gone way to soon she is gone but she will never be forgotten

  • @hmaurer1565
    @hmaurer1565 Před 22 dny

    It’s such a sickening feeling. You lose who you were and who you could’ve been, and it hurts so bad. Stay strong girl, we can do this. You aren’t alone.

  • @jillfrank6691
    @jillfrank6691 Před měsícem

    It’s a PHEO pronounced “FEE-O” not THEO.

  • @davidswiger3324
    @davidswiger3324 Před měsícem

    You may find reading the articles on Mad in America (a webzine) cathartic. They also allow readers to interact with the website, even submit their own stories. They are not a Christian group. God bless you, Victoria. One day you will be with Jesus and he will give you a new body along with everlasting life. Keep the faith! :)

  • @worldbiggestgeek9366
    @worldbiggestgeek9366 Před měsícem

    Amazing 😻 ❤

  • @exCBmami
    @exCBmami Před měsícem

    OH HelloW PELLOW!! I are the Czech Republic, and I'm. MY are AGE? is eighdeen!, I are carry a smith and wesson smile and I'm. I are kno every day will bee an opportunity to, to. I are here to share imforgettable momants with you. But mowst exciting is, I are in I'm, won day going to anihiem. Thurst for fun and advendure: ill now put that in a blenter lololllol!

  • @adamguymon7096
    @adamguymon7096 Před 2 měsíci

    I hope you are doing well?

  • @liamodonovan6610
    @liamodonovan6610 Před 2 měsíci

    Love your videos victoria you are awesome

  • @meerachakkera9968
    @meerachakkera9968 Před 2 měsíci

    Hi Victoria 😗😗😗😗😅

  • @liamodonovan6610
    @liamodonovan6610 Před 2 měsíci

    You are beautiful and your twin would have been equally beautiful. You are a beautiful survivor

    • @chronicallyhopeful5407
      @chronicallyhopeful5407 Před 2 měsíci

      This means so much more to me than you’ll ever know. Thank you with all my heart

  • @liamodonovan6610
    @liamodonovan6610 Před 2 měsíci

    You are a unique beautiful intelligent person victoria you are always interesting

  • @sharrison8155
    @sharrison8155 Před 2 měsíci

    Thank you. I really needed to hear this :)

    • @chronicallyhopeful5407
      @chronicallyhopeful5407 Před 2 měsíci

      My pleasure! Sending positive vibes & love. I hope it’s an amazing week 🥰🥰

  • @worldbiggestgeek9366
    @worldbiggestgeek9366 Před 2 měsíci

    👍👍👍👍

  • @FlaGrown1955
    @FlaGrown1955 Před 3 měsíci

    Go online to Request-a-test and buy your own test. Plasma metanephrines is the true test. That is all you need.

  • @liamodonovan6610
    @liamodonovan6610 Před 3 měsíci

    Wishing the the best victoria you are beautiful strong person proud of you sweetheart

  • @EddyB-nq3mq
    @EddyB-nq3mq Před 3 měsíci

    Thanks for the info, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!

  • @AnthonyE-rf6qu
    @AnthonyE-rf6qu Před 3 měsíci

    Well done, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!

  • @ShayVidz
    @ShayVidz Před 6 měsíci

    I love your personality

  • @Blessedepilepticzebra
    @Blessedepilepticzebra Před 7 měsíci

    I still miss her today. Her loss and most recently, Cheyanne, Seemed to hit me the hardest and I really interacted with them, especially Jaquie on her Patreon. Do you still find yourself missing her extra or thinking of her a lot on some days, More than others? Even so long ago frm when she passed?💔🩷🥺

  • @janetredus8510
    @janetredus8510 Před 7 měsíci

    How long have you been on Xolair and how long did it take you to see a change? What were your sypmtons before Xolair was offered to you?

  • @valm2092
    @valm2092 Před 8 měsíci

    Hello Victoria, I am totally new to your channel, after also having a Pheo, and watching your intitial video. How are you doing now? I am so sorry you have SO MUCH to contend with. I am thinking of you. ❤❤❤

  • @eileengabellini6935
    @eileengabellini6935 Před 9 měsíci

    Hello from Chicago. Chronic urticaria non stop for over 3 months. First injection went well. Next one is scheduled. Felt sone relief in eyes and breathing. Hoping for more Relief after the next injection. Thanks for this informative video.

  • @shannongreenwell1278
    @shannongreenwell1278 Před 10 měsíci

    I was wondering what happened to you. When my dad was alive he had a PEG tube to get his Tube Feeds.

  • @worldbiggestgeek9366

    Hope everything is going well

  • @drawingclosertochrist

    Praying for you on your journey.

  • @liamodonovan6610
    @liamodonovan6610 Před rokem

    Sweetheart victoria haven't seen you in a while you are beautiful person so good to see you hope your mental health improves

  • @stephaniecastro1835

    Thank you for sharing, I have a lot of the same symptoms. I’m getting a CT scan in a couple days to see if I have pheochromocytoma. Your video has really helped

  • @aussieamy6367
    @aussieamy6367 Před rokem

    I like the name of your channel :)

  • @instasupermamka
    @instasupermamka Před rokem

    How are you feeling now? Did you have surgery?

  • @codiannsmith
    @codiannsmith Před rokem

    What about pvcs? Heart feels like it's skipping beats?

  • @aly5117
    @aly5117 Před 2 lety

    Can you explain your leg pain? I’m still in a journey of diagnosis, but so much of what you describe with anxiety and sweating has taken over my life the past year. But what stood out to me was the leg pain you mentioned - I’ve had leg pain that has drastically impacted my ability to keep up with the physical activity I love so much and no one can get to the source of it. I just wonder if yours is a similar feeling to mine?

    • @chronicallyhopeful5407
      @chronicallyhopeful5407 Před 2 lety

      Hey, I hope you are as well as possible. Please make sure to get tested if you have any suspicion. I would best describe it as cramping at times, sometimes it can be sharp, and very heavy. I’ve had an extreme amount of weakness. For symptom like that I feel like multiple illnesses probably play into it. I hope that helps a little. Please let me know if you have any other questions. Always feel free to reach out to me privately on Instagram if you need anything as well. I hope you have a lovely day

    • @aly5117
      @aly5117 Před 2 lety

      @@chronicallyhopeful5407 thank you so much for your response, I know it takes a lot when you’re going through so much. I had a 24hr urine test with some higher levels but nothing wildly out of range. As grateful as I am for a good test, I sure wish I could get to the bottom of all of this!

    • @chronicallyhopeful5407
      @chronicallyhopeful5407 Před 2 lety

      @@aly5117 you need to do urine and blood. I hope with all my heart you get compassionate care. It can be Difficult to get a diagnosis for rare in general.

  • @heatherprivatecraftandchat3345

    Thank you 🙂

  • @emilysadventures9165
    @emilysadventures9165 Před 2 lety

    You look really pretty!!!! I love your make-up, your hair, your earrings, your top....you look gorgeous!

  • @UnicornDreamsPastelSkies

    Always love listening to you Victoria no matter the distressment you are in, you are such a sweetheart. ❤️

  • @shannongreenwell1278
    @shannongreenwell1278 Před 2 lety

    Unfortunately we have to keep paying for these quacks with our taxpayers money! They only see us as a money sign, half of the doctors couldn’t give a rip about the patients! I thought I could trust my Neurologist but I don’t know if I can have full trust in them now, I feel like I’m a burden to them! I would rather trust my dog’s veterinarian more than I do my human doctors! They’re useless!

  • @mosaicgirl4002
    @mosaicgirl4002 Před 2 lety

    Hello Victoria! I haven’t chatted for a while- I so agree about creative projects! Enjoy Sweetheart!🌺❤️👋

  • @liamodonovan6610
    @liamodonovan6610 Před 2 lety

    You are beautiful complete woman you deserve doctor's who will listen to you to you and look after you love you victoria you are a sweet person

  • @liamodonovan6610
    @liamodonovan6610 Před 2 lety

    You are an amazing person love you so much victoria

  • @shannongreenwell1278
    @shannongreenwell1278 Před 2 lety

    Prayers going up for you! Hope you feel better soon, even though we are going to have these illnesses for the rest of our lives! But we can look for the pot of gold on the other side of the rainbow 🌈

  • @spinstercatlady
    @spinstercatlady Před 2 lety

    May I ask what meds you take for your AI issues (Rhupus patient here - RA and lupus)?

  • @UnicornDreamsPastelSkies

    So delighted to hear from you, just as I delight in your presence to begin with. 🥰 And your cat! What determination you have!

  • @shannongreenwell1278
    @shannongreenwell1278 Před 2 lety

    People are just plain ignorant and rude, you can’t fix stupid not even with a baseball bat! Ignore them. Tell them to leave their drama with their llama 🦙! I pray that you get to feeling better soon! Even though we are dealing with a chronic illness, we can hope for a little ray of sunshine ☀️!!!

  • @liamodonovan6610
    @liamodonovan6610 Před 2 lety

    You are awesome victoria your cat wants to be a CZcams superstar you are such a strong person glad you are able to achieve so much love you victoria proud of everytthing you have accomplished

  • @shannongreenwell1278
    @shannongreenwell1278 Před 2 lety

    Thank you Victoria for sharing your story with me. You’ve been put through the ringer but you are still keeping on trucking! We have to, I have Epilepsy and EDS& other illnesses but I don’t want to let them keep me down!

  • @kristenhelmsdoerfer8390

    I am a medical student; thank you so much for sharing your story. You are a beautiful person. All the best to you.

    • @chronicallyhopeful5407
      @chronicallyhopeful5407 Před 2 lety

      Thank you from the bottom of my heart for taking the time to watch! Rare disease is an important element of health care. I am an extremely unique presentation medically. I've been told by most that they haven't encountered anybody quite like me. In addition to my rare diseases, we're looking into if I am a chimera. So it's all quite interesting at least in my opinion. It means so much that you took the time to learn about this. I really think education empowers all of us. Thank you from the bottom of my heart for your compassionate comment. Thank you for your diligence, hard work, and all you do. May I ask what you are studying/planning on doing?

  • @liamodonovan6610
    @liamodonovan6610 Před 2 lety

    You are beautiful victoria cute cat love you so much victoria you are such a strong beautiful woman hope you feel better soon sweetheart a