Video

I've always had this "blank stare, etc. condition", but I'm just now learning about it after recently developing full tonic clonic seizures. What I have is Uncus Temporal Lobe Epilepsy. Now, I'm very much dependent on other people to take care of me. I live in a rural area where nothing can be done without a car. This video is so helpful for me 😢❤ Thank you very much!

I need take care of myself and son and husband also

Bills and medicine and doctor appointment bills and food and things need for family and rent for trailer who pay for very important

But don't give information out at all and don't give money 🤑 at all if don't be favor

Don't be afraid to ask questions about me and know them

Walking around husband together and son

I like eat and drink coffee ☕ and coke and juice and milk

I watch god 🙏 show and movies

I like talk people

I watch animal and television

I like read books about god 🙏

I like walking and exercise

Study god 🙏 words and go church and love 💕 shop and drive somewhere

Husband and son does take pills and do same thing to

My pills that take have take at mourning and night

I have friends and family members and transportation

Problem seeing and eyes 👀 get take care of and went doctor and can have upstairs and downstairs be careful with them because fall

Problem seeing and eyes 👀 get take care of

I had problem seizure about falling and husband and son help get me up

Take me time what said

We both take medicine and husband take medicine what he got

His seizure small not big but can't work at all and drive

Son has seizure to

I can't go work at all and drive

I have three more other seizure but doctor know them

Grandma seizure I have go hospital also

Elipsery seizure and mind shut down and can't wake up and go to hospital

I husband and son has disability also

I seizure since was baby 🍼

I have disability for long time ago and from Georgia

M and s

Still waiting on my EEG that I just got scheduled, but I relate so much to this. Everything she's describing is so familiar. I feel so seen.

She's trying to say she'll function like a C7 incomplete if she can move her arms...but she can't be a C7 if she isn't one...and if the abscess was at c4 and C5...she's not a C6 either. Get it right interviewer.

Thank you for sharing her story.

He can take all kinds of drugs to help him

He seems too hard to take care of

This is what happy to me

Good video. These focal seizures have been a little bit different for me gave me something called postictal psychosis as well and when I have one of these events I go a little bit crazy. Has gotten me in trouble with the law and DCF which are both getting dropped because of the medical condition but it has completely uplifted my life. It just randomly decided to happen to me in 2020

I know for a fact so many people pass away with brain tumors because the American medical system has failed them. I am only 25 and if something happens we know why!

Thank you so much for making this video. Sadly I know exactly what your talking about. Good on you for doing this to help others understand what their going through. I had my first seizure when I was 38 and it was roughly 4weeks after starting to suffer these symptoms

I'll have mild seizures My name is Lachelle Wade

i have a right hemisphere TBI and sometimes Tithe left side of my body feels like its unparalyzed and so i try to articulate but doing so starts horrific seizures; i can feel my left side trying to move, yet the very will power i use sort of rebounds and cause the shaking and trembling to get worsen so in response i try to relax and stop moving my left side, but again, that willpower rebounds and makes the seizure worse.. at this point I'm usually in an ambulance and i focus intently on how I'm moving my right side. i feel panicky; the seizures suffocate me sometimes and i feel like I'm dying yet focusing on my right side seems to help prevent another episode...

I hear music a lot. When this started in my early 30’s, I’m now 53, I thought someone in the house or next door was listening to music and I was hearing it, but I go look to see where it was coming from and I couldn’t. That’s when I realized I was hearing things…it scared me so much I couldn’t tell anyone for a while since I was afraid of hearing what they said it was.

I'm not alone in this :') (((hugs))) thank you sincerely so much for sharing this! The description of the slideshows I've always tried explaining to people & they never understood ... I have scar tissue as well frontal, temporal lobe... diagnosed with epilepsy after having a few full blown seizures as baby & child then later on diagnosed with focal motor seizure disorder. I've never heard anyone describe the exact same symptoms.. the lights also... People must assume I enjoy being in the dark all the time.... the 20-30 sec staring spells.. I've felt very alone and confused until I watched this video. I have spent 30 something years trying to understand why these things are happening and u've explained it all. Things people don't understand. Thank you sincerely. I admire your strength. ((Hugs))

that’s my sister!

mine didn't happen from a tumor.. mine was 2 traumatic brain injuries... I have pretty much have the same episodes as she goes through and have had to change or do things differently same as she has had to do in her life as well

This video is so helpful!

I've been having symptoms and the Dr. said take a Tylenol.

Thanks for posting this vid. It was very useful. The interviewer has a stunning presence and warmth.

I can so relate to Janice. I had a stroke in 2014. I have no memory of at all of anything of 2014 & have no memory of half of 2015. Then in late 2015 strange things started to happen. When Janice spoke about having times when she knows when someone would be speaking and not Abel to process it. I was at the grocery store one time and I knew what I wanted but could reach and pick it up. I didn’t tall anyone not even my family because they might be losing my mind. I actually crashed my car and I don’t where I had been before the accident. Thankfully no was inured. Thankfully and was when I was Abel to drive. My husband said to me that I get a glaze over my face and I’m not there. I appeared to be somewhere else and I would only sAnd over over. I have a lot of hallucinations. It is hard because you appear normal. Well I could go on and on. I was diagnosed with partial epilepsy in 2017. I really liked this video because sometimes I will tell my family that they can’t understand how it’s for me to deal with it. I suppose I feel lonely. So thank you so much for this video.