Video

Thank you so much! :)

I found out I have endo at 16 I've had two emergency surgerys and several laparoscopy's and one ovary removed. At 40 I'm still trying for a baby, four rounds of ivf and 11 years of trying with no pregnancys. I wish someone told me way back then told me to freeze my eggs 😥

So impressed by the compassion of this young man. It is very moving and inspiring. Thank you for this video and for your human decency.

Absolutely brilliant video. This should be compulsory viewing for every woman, even if she's on the fence about having kids.

My GP suspects I might have endometriosis. I currently don’t have health insurance. What health insurance/subscription is the best to cover all the surgeries?

If you`re an infertile couple, kindly give a shot on the , Sofia Goρazna (Go ogle it) I highly got distressed with the results which I was getting from the West prescriptions. After a some few months of undergoing planned acupuncture treatment options as well as sticking to a healthy diet plan, I became conceiving. I am just happy looking at my 1 year old daughter walk around the house.

#walkaway

The people are coming for you Miriama Kamo pusher of hatred and division in New Zealand . your support of Marxist ideology that is going to tear us apart , see the reality czcams.com/video/KVeDKuHPDK8/video.html

Dr Fiona did my surgery. Straight after I woke up I I felt like my organs that had felt like they had been tied together pulling and in pain since I was 12 years old had been freed from being tied up. I didn't realise that the pain I had in my bladder and bowel every time I went to the bathroom was from endometresosis until after surgery I realised it was possible to go to the bathroom without pain. Dr Fiona and her colleague that did my surgery have totally changed my life. I'm frustrated that it took 15 years of pain and going in and out of the emergency department in agony being told it was normal or all in my head or I was a drug seeker or too sensitive and all that but I am sooooooooo 100x over grateful to dr Fiona and her team and the surgeon who pushed for me to get a laparoscopic surgery to see what was going on even though he didn't really think there was anything wrong with my appendix which they used as an excuse to open me up. Bless that doctor and these surgeons and the staff at the north shore elective surgery center who helped me and gave me back my life. Ps north shore Emergency department was crap they never investigated it was only when I was staying with a friend in the city and went to auckland hospital instead that they took me seriously and investigated and preformed investigative surgery to check my appendix (which was covered in endometresosis) and diagnosed me with stage four endo. I don't think this is a fluke as the same thing happened with Northshore emergency department not taking me seriously for over a year when I had extreme pain not related to endo I took myself off to auckland hospital lied about my address to be there instead of north shore emergency department and they took me into emergency surgery to remove my gallbladder which was full of stones (which I had been passing when I went to emergency department all those times in agony) they also sent my gall bladder away for testing and discovered I had chollesistitis (my gall bladder was totally munted) which is why I got the stones. So twice I suffered in agony for years because Northshore emergency department didn't take my pain seriously and twice I needed surgery which auckland hospital emergency department picked up within hours of my arrival there and referred me for. I'm so grateful for both my surgeries but I believe this shows a problem with north shore hospital emergency department and if you are having trouble getting help from that emergency department and you think you might have endometresosis it's worth trying a different emergency department. It's easy to assume that north shore hospital specialisation in gynaecology means they will pick it up but I have not found this to be the case. Don't suffer going in and out of ED in pain getting no answers try a different emergency department next time and push for your GP to refer you to a specialist to get diagnostic procedures done. There's no way to diagnose endometresosis without exploratory surgery so push for it it's scary but it's so worth it I have my life back thanks to surgery two years on I can manage my periods with ibuprofen and panadol and no longer faint and vomit and can't walk and lye in bed in agony for a quarter of the year! Keep pushing for help don't give up your period should not be more painful that panadol and ibuprofen can fix Sex and going to the bathroom and ovulation should not be painful so if you suffer or know someone who does please please please push to find the answer and get help you won't regret it.

Which birth control are you recommend....?

I wish so much of the conversation about endo wasn't focused on fertility.

Aaah my muslim sister.i have this endo from years

I have had painful periods since I was 12 years old. I was put on BC when I was 16 due to pain and it did help. I was never told about this disease until my late early 20's. I went off BC at 25 and started having horrible symptoms and tried to get help for a long time. I had multiple exams, ultra sounds and blood work. NOTHING was found until I had one doctor do a TransVag Ultra sound that showed 4 endometrioma cysts. Had surgery and was diagnosed with stage 3 endo! :( Horrible news and I was so afraid that my tubes were blocked since I failed the HCG test during surgery. I got pregnant a month later. There is hope ladies!! We need more awareness so that future generations wont have such a battle getting help for this horrible disease. Its both physically painful and emotionally painful.

I'd imagine that after 20 yrs, there is both a bowel and gynae surgeon in the theatre when operating? Is this normal practice now?

Do any gynae specialists up skill by going overseas and learning new operation techniques? It seems that many just stick with the usual laparoscopy. Dr Bautrant in France is one suggestion, to learn new skills.

All this research is all very exciting for medical academics, however my question is what support and advocate systems are being put in place for women dealing with ongoing, horrific pain due to endometriosis? We need to be able to reach out to others. I suggested to the pain teams, that they offer my phone number to others who have pain due to endometriosis, so we can meet for coffee once a month. Unfortunately the pain team, which was one, narrow minded, unhelpful, person, hasn't listened to me, the 3 times I asked for this, and disregarded my need for emotional support.Please can you push this by contacting the pain teams in regional cities (napier included) as many of us are very isolated by our predicament.

a disease like any other disease? What a retarded thing to say. It's not. And it can be naturally reversed and prevented.

I am an endo sister

This was awesome. To hear other women say what I have struggled to explain to others makes me feel like Im not crazy nor along.

Im too.... and try to concieved for the last one and half year....and still fighting and struggling... the truth is its hurt real bad inside when seeing my friends and cousins pregnant

I hv been diagnosed with endo im praying for God to do a miracle in me

My painful period started since I was 16. One day I passed out at school because NOBODY take it seriously, before I passed out, I cried for help but my friends and teacher don't gave a shit about it. I passed out on my chair, fell down to the floor. My mom came into school and brought me home, that's it, she just said "you're just tired, get rest"... It happened all over again, I had to cried out loud and almost passing out again, right then teacher sent me home.. I can barely stand on my feet.. Even laying down on a bed still feel awful... 500mg paracetamol is worked to made me sleep... but once I open my eyes, there go again the pain... :( Once I graduated from college and get a job, it really ruined and limited my job.. I couldn't work in field (being a reporter, hosting a show, being master ceremony, modelling, etc) because once in a month, I have to bed-ridden for 1-2 days.. It can't be accept in work.. It's very exhausting dealing with the unbearable pain that NOBODY believe it.. Now I'm married, 4 years TTC, still no baby.. If one day I over do an activity, the next day I'd feel so drained and weary... so I need to rest all day long... this is exhausting and tiring.. I hope there will be a cure someday!

I have endo stage 4 :( it ruined my entire life ..

I am an endo sister too xxx

I am belong :(

I am Endo sister.

My thoughts and prayers are with you. Yuo have had such a hard time but never think you are alone you have over 170 million Endo Sisters who are going through it with you. Your Endo Sister Kimmie

Thank you so much for this share and helping get the word out on Endometriosis Your Endo Sister Kimmie

I have just discovered that I possibly have endometriosis. I am going to try Endovan which has got so much good feed back. You should look it up.... :)

This is very nice seeing other people going through what I have for years.. I totally agree with the lady that said she told her boss that she had her period. It is so difficult to educate others about our endometriosis and how debilitating it is. I have always scheduled events around my menstrual cycle. I know that there are events I will have to miss because I would have been in bed. I now am on the endometriosis diet and I have had incredible changes.

I'm 25, I recently was diagnosed with Endometriosis. It hasn't veey easy for me this couple of months. By looking at this video, it gives me hope for my future! :)

Got diagnosed at 13 & I'm 14 now . I've already had 2 surgerys hopefully not anymore .

Started suffering when I was 10 before starting my period, diagnosed at 14, and going in for my second surgery in September, Kia Kaha girls, don't let this disease get the best of you!

Brilliant Video!!

I was 11 when I first started suffering, bed ridden and everything, and I had my first lap in 2011, a month after my 15th birthday

I've suffered with endometriosis for 17 years. Im 31 now. Im still suffering with it. What hope I can give others is this: I've had 3 healthy girls. I have an extreme case of endow which has required me to have 9 laproscopies. I noticed about 6 months-1 year after my surgeries I conceived. There is hope for you. Don't give up. Hopefully one day there is a cure. I refuse to get a hysterectomy. Don't give up ladies!!!

I love this video!!!

ok so great! thank you!

If you need a support group I am a co-admin on a wonderful facebook group :) Facebook search - EndometriosisAngelGateway

Beautiful, made me cry. You are not alone ladies <3

And what are the best ways to deal with it? If any one has suggestions that would be greatly appreciated!!

Since I was 12 years old and every time I get involved in athletics it's seems to worsen. Does anyone know if it's a good idea for me to keep playing sports:)

I've had endometriosis

Thank you for this video. Wish there was an organization like this in California.

Beautiful group of women. What a great video. I have stage 4 endometriosis and pelvic adhesive disease. I've had a total of three surgeries so far including total hysterectomy. After my last surgery my health declined and was also diagnosed with fibromyalgia. Sadly the last few weeks I'm starting to have a lot of endo pain again. I'm just lucky I was able to have 2 sons when I was younger. I feel so bad for the women who get endo when they are young and struggle to have children :(

exactly. this video made me cry, because I really thought I was the only one. Great to know I'm not alone but I wish there was a cure.

Ive been suffering for 6 years, and I am in pain right now, I have a really really sore lower back and sides :( I haven't been diagnosed but I believe this is what I have. Going to try and get in for a doc appointment tomorrow.

This was nice i love knowing im not alone .... its been so impossible to live these past few months although ive had it since 12 its had me on bed rest its gotten so bad but this gives me hope

0:29 anyone else reminded of Katherine Heigl? :) (and that's a compliment..!) Awesome video! I love that it goes to that personal view of it and tells us its a big deal, sometimes it's hard to describe the way this effects womens lives and it's so convenient to just link to this video :D Thank you so much!

love the video