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need updated discord link for server

Thank you for sharing. I was diagnosed 13 years ago. I am the 3rd generation of MS in my family. I have a career, I can walk and drive. But most importantly I think God for each day. You are a brave young lady thanks for sharing. I am 53 and love my life.

what serve please?

Brave girl👏🏻❤you are a nice player in DayZ

I have been diagnosed with multiple sclerosis in 2008 when I was 32

Thank you for sharing 😮

The thing is that it is matter of luck. If you are lucky then everything goes well: minimal pain and successful first attempt and then you don't understand the negative stories. If you are less lucky then the needle will hit a nerve in your spine and believe me then you will experience some real pain and you will understand two things: those negative stories and why the nurse is standing there ready to intervene if you may jump or move or pass out. Another unlucky possibility is that the needle can find a vein and blood gets into the sample, in this case the sample has to be discarded and another puncture will be made. I experienced all of these so I can tell the difference. My suggestion is to hope for the lucky version but prepare yourself and concentrate so that you do not move if the pay may come. And remember all the time that it will be over soon in any case. The pain goes away quickly after the procedure and then you can start to pray to avoid the headache. :) Drink a lot of water and lie flat as long as the doctor suggests to, these will help a lot.

Had mine done this morning - absolutely fine. Aching a bit now and I had a bit of a headache for a while. A little bit of discomfort when the needle went in, but no pain as such. But, I have had various unpleasant things done to my body over the years, so maybe it just didn't spook me so much. The worst part was getting up at five to get to the hospital for seven! I got the piece of paper to sign (and explaining the procedure) in advance, so I knew about pre and post-op stuff. Some tips: Take water with you, and cola - I don't know why, but caffeine is recommended for afterwards. Have someone pick you up and take you home. This is tricky because you don't know for sure how you will react and how long you have to lie down for. But you cannot drive yourself and you should not try to get home alone, even on public transport or by taxi. If you are not very flexible and you have time ( a few days before the procedure) do some stretching/yoga to try and loosen up your body a bit. Many people spend too long sitting down and have an inflexible back. They really need to you bend over as far as possible to get that needle into you. Basically, relax and don't worry. Many people have had this done and the doctors know what they are doind.

Thank you for watching 🥰

_I am so happy for my Sister, she got cured of her Multiple Sclerosis just few weeks of using Dr Madida Sam herbal supplements🌿🌿🌱._

DR ALAHO OLU on CZcams Channel you’re indeed a great and trusted traditional and holistic herbalist, he cured me and my wife from Multiple Sclerosis, he also has cure for HPV, HSV, HIV, FIBROID, ALS, CANCER, LUNGS DISEASES……….

I was informed by my neurologist on my 50th birthday.

I was the same, it was very slow.

Just to let you know, that it hasn't gotten better,for me. Since 2013.

I heard from a doctor a diabetic medication metformin stops ms from progressing

This is almost exactly like my experiance with MS sligtly different symptoms before but my was also first found with double vision. Had burning in legs but thought it was diabetes coming, started eating better 4 weeks later it was gone fx.

I know this was posted 4 years ago, but your voice sounds pretty croaky. Is that also from the MS?

Have you heard about Coimbra Protocol? If not, than I think you should check it out. To this point of time it’s the only way to treat MS effectively.

Good luck in 2024. Many of us in similar situations appreciate and learn from listing to other stories. Thank you for sharing.

I just had one yesterday for ms, it wasn't that bad I do have a headache today though but it's a mild one and it goes away if I lay down

I started dropping things more than usual. My coworkers would tease me for my clumsiness. Still didn't click until I had double vision and needed to be hospitalized.

Amazing video upload, I appreciate you for sharing! Enjoy your day, my new friend Sophie👍❤

Hey lovely - long time so see! So sorry to hear you have had a rollercoaster of a year in 2023 :( Here's hoping that 2024 will be better!! Much love being sent your way <3 xx

Have you ever heard of paleomedicina and dr zsophia Clemens she runs a clinic in Hungary specialising in cancer and autoimmune diseases they use a metabolic approach to treat these diseases with good results it’s just a change of diet and they have a online service good luck

I didn't actually get to see the XMAS/10 Year show so thanks! I guess I was too busy dying.

Much love and light! 🙏🏼🙌🤙🏼

Prayer helped me. Looking at the lives of saints and the reasons for suffering helped me. Reading the Bible and developing a personal relationship with Jesus changed my heart. Forgiveness was the missing key for me. You can heal your soul… even if your body is falling apart. Prayers for you!!! It’s tough! I get it. 🙏🙏🙏

MS SUCKS!!!! I only have a yr. into my diagnosis hate it!!! PAIN is bad. Insomnia terrible

Happy new year to 🎉🎉

i hope 2024 be good to you. happy new year!

You are so beautiful

Was your mri a 1.5

Just lost my mum.to severe ms I've found out we both have heds and àspergers and these have the genes for ms fybromyalgia just had another MRI worth checking if have heds as they come together eds society lists ms as comorbid condition albeit have to do research ourselves fatigue from birth for me

We'll be right back after this break 😂

I'm happy I just found this channel!

Oh man not like this! Excited to see your first Gas run one day... and of course surviving it!

im stressed miss, why do you dont answer i first time have Plegridy this is worth to use o not? im 34 year i feel like i die tomorow

I've never seen someone so confidently walk into the gas zone hahaha

That was way too funny! I found myself yelling at the screen to disinfect your wounds with the iodine in your inventory and to get the heck out of the gas zone. I guess I forgot this wasn't live. Hope to catch you on twitch! Cheers!

Sophie where do you stream?

For me first symptom i cant properly speak and fatigue, and after vision(nystagmus) and coordination problem

Thanks. This video was really helpful and basically mirrors my experience so far. Still no diagnosis yet, but I think that is largely due to the fact that we no longer have a proper NHS.

Did you have any pulling sensations?

I've played alot of dayz, its pretty much all i play recently. Its so interesting watching a new person learn the game. Its best to have someone to play with that already knows what they're doing, and learn from them. Nice video loved the editing ❤

Just started playing myself. Great game but haven’t had any success in my first few nights of playing

proud of this journey you are on, glad i can be part of it with you

My first lumbar puncher went exactly the same as yours, it wasn't painful but just found it a bit uncomfortable. Unfortunately my second procedure was horrible and everything seemed to go wrong. The local didn't take effect and my spine kept shifting so the needle kept hitting everything it shouldn't of. It took four attempts and in the end I ended up with a CSF leak. Despite this I always say to people I was probably one of the rare unlucky ones. But always advise if they ever have to have one done either choose not to let the trainee do it like I did. Or demand that the fully trained doctor does it if it is to painful or the trainee fails on the second attempt.

*Latest Update 25/11/23* Hi Sophie, I’m now recovered 95% and have been on Kesimpta since July. The loading phase (first 4 shots side effects) were pretty rough in my case , but now my monthly injections are fine. I’m feeling super optimistic that my MS is back under control and I’m starting another degree with the OU in Feb and hoping to be back in work next year too. Soooo - After over 20 years dx with MS I had a 7 year remission off DMDS, which is classed as a True, or Natural Remission 😊 Then 1 sensory relapse which Ive mostly recovered from without steroids, and now I’m on a cutting-edge treatment which has amazing odds compared with the first drugs I was given like Copaxone/Avonex which only reduced relapses by 30% (same as a flippin placebo!😂) So everything is STILL looking good 30 years after diagnosis (next June), and 33 years after my first symptoms (March next year). Being diagnosed young feels grossly unfair and hideous at the time; the first 2 years are the worst like any bereavement / huge life loss. However, there are massive advantages if you MUST have MS as we do tend to do better over the year. All my love Xx

Hope you're doing okay now, this disease is random af

I had to get a lumbar puncture because I have congenital hydrocephalus so they need to check the pressure in my brain because of these massive headaches that I have. It's also causing memory loss & being imbalance . I had 2 neurologist doctor who both fail miserably neither one of them couldn't even get any fluid out of my spine it was so painful. They kept asking me is it to the right or to the left . That was crazy because they're the so call Dr. Now I have to go to a interventional radiology to do another spinal tap to where they will have an x-ray or an ultrasound to guy the needle into my spine. These two 🤡so-called doctors should have done this in the first place. So I'm going tomorrow and I hope everything turn out well hopefully I don't have to go through these miserable unbearable pain again 😔