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Survivors Teaching Students Shows SUNY Downstate Medical Students the Human Side of Ovarian Cancer
(From News 12 Brooklyn) Ovarian Cancer Research Alliance partnered with Downstate Medical School to teach health care students things they won't learn in a textbook.
Watch OCRA's volunteers in action at Downstate Health Sciences University and hear how their stories can help improve care in this news segment from Marissa Joy Santorelli at News 12 Brooklyn.
zhlédnutí: 97

Video

Turning Passion into Purpose with OCRA Fundraising
zhlédnutí 43Před 2 měsíci
Turning Passion into Purpose with OCRA Fundraising
Frieda Weeks, Ovarian Cancer Activist, Wins NewsChannel 9 WSYR's Remarkable Women of CNY Contest
zhlédnutí 88Před 4 měsíci
Frieda Weeks, steadfast supporter of ovarian cancer awareness and research and an exceptional member of the OCRA community, is 2024's winner of @newschannel9 Remarkable Women of Central New York contest. Frieda is a founding member of OCRA's Community Partner Hope for Heather, an organization that to date has donated more than $700,000 to Ovarian Cancer Research Alliance, and is also an OCRA Ad...
Mrs. Idaho Pageant Contestant & OCRA Advocate Leader Raises Ovarian Cancer Awareness
zhlédnutí 82Před 4 měsíci
Tiffany Mecham, an OCRA Advocate Leader, is using her platform as a contestant in the upcoming Mrs. Idaho pageant to raise awareness of ovarian cancer. Tiffany and her fellow advocates work alongside OCRA to push for increased federal research funding to fight this disease. Video: @sophiadoumanitv7498 from @idahonewsondemand3032
OCRA Spring Advocacy Day 2024: Our Priorities
zhlédnutí 102Před 4 měsíci
Chad Ramsey, OCRA's Vice President of Policy, explains the four main requests on the agenda for OCRA's Spring Advocacy Day 2024, and why these actions are important to advance research and care for ovarian and related gynecologic cancers.
OCRA's Prevent Ovarian Cancer Message: In the News
zhlédnutí 333Před 4 měsíci
OCRA's Prevent Ovarian Cancer Message: In the News
OCRA Researchers Using AI Technology to Develop Blood Test to Detect Ovarian Cancer (WNBC TV Feb14)
zhlédnutí 846Před 5 měsíci
A blood test to detect ovarian cancer is being developed with AI by a research team funded by OCRA, in partnership with @Microsoft AI for Health. OCRA grantee Dr. Daniel Heller of @mskcc discusses with Erica Byfield of @NBCNewYork. Learn more about Dr. Daniel Heller, OCRA Grantee: ocrahope.org/bio/daniel-heller/ Learn more about The Daniel Heller Lab at Memorial Sloan Kettering Cancer Center: w...
Welcome to Ovarian Cancer Research Alliance
zhlédnutí 1,2KPřed 6 měsíci
Welcome to Ovarian Cancer Research Alliance’s community. Please listen to this message from Audra Moran, our President and CEO, describing our mission, our wide-ranging resources, including our more than $122 million of research funding, patient support programs, Capitol Hill advocacy efforts, and more. OCRA’s mission is to end ovarian cancer and related gynecologic cancers. We are equally comm...
Clinical Trials 101 (2023)
zhlédnutí 173Před 6 měsíci
Clinical trials are a critical way to advance science, and for cancer patients to access the most cutting-edge care. At the same time, patients and family members have a lot of questions about clinical trials-how they work, when to consider trials, and pros and cons. In this video from our National Conference, Dr. Shannon Westin of MD Anderson Cancer Center answers common questions about clinic...
Navigating Cancer from the Spousal and Caregiver Perspective (2023)
zhlédnutí 79Před 6 měsíci
This video offers a glimpse into two families’ lives as they navigate their loved one's ovarian cancer diagnosis, treatment, and beyond. Take in an intimate discussion around the caregiving role and supporting your loved ones while finding strategies for self-care. Brad Gougeon and Ken Hooker courageously talk with OCRA’s Oncology Social Worker Sarah Handsman, LCSW about their experiences as hu...
What's New in Ovarian Cancer Research: 2023 Updates
zhlédnutí 2,5KPřed 6 měsíci
A must-watch update on research and treatment for ovarian cancer and related gynecology cancers, presented by Dr. Angeles Alvarez Secord, President of the @SGynecologicOncology.
Importance of Genetics and Biomarkers (2023)
zhlédnutí 100Před 6 měsíci
Genetics and biomarkers play a critical role in the prevention, diagnosis and treatment of ovarian cancer. Learn everything you need to know about this often confusing but critically important topic with Dr. Anna Jo Smith from @penn.
Talking With Your Children About Cancer (2023)
zhlédnutí 40Před 6 měsíci
A ]cancer diagnosis can be overwhelming and confusing to explain to loved ones. It can especially be challenging to find the words to clearly explain what is happening to your children, whether they are school aged or adults. This video, originally presented at our National Conference, offers help for navigating these crucial conversations.
What's New in Cervical Cancer: 2023 Updates
zhlédnutí 630Před 6 měsíci
Don't miss this update on what's new in the research and treatment of cervical cancer, presented by gynecologic oncologist Dr. Nita Lee of @UChicagoMedicine at our 2023 National Conference.
What's New in Endometrial Cancer: 2023 Updates
zhlédnutí 6KPřed 6 měsíci
Endometrial cancer expert Dr. Emily Ko from @penn discusses what’s happening in the research and treatment of endometrial and uterine cancers, in this special National Conference session.
What's New in Rare Gynecologic Cancers: 2023 Updates
zhlédnutí 197Před 6 měsíci
What's New in Rare Gynecologic Cancers: 2023 Updates
Spirituality Before and After Cancer (2023)
zhlédnutí 23Před 6 měsíci
Spirituality Before and After Cancer (2023)
Ask the Experts: Part 2 (2023 Updates)
zhlédnutí 69Před 6 měsíci
Ask the Experts: Part 2 (2023 Updates)
A Conversation with Suleika Jaouad (2023)
zhlédnutí 4,1KPřed 6 měsíci
A Conversation with Suleika Jaouad (2023)
The Embodiment of Sexual Pleasure After Trauma (2023)
zhlédnutí 85Před 6 měsíci
The Embodiment of Sexual Pleasure After Trauma (2023)
PARP Inhibitors: 2023 Updates
zhlédnutí 420Před 6 měsíci
PARP Inhibitors: 2023 Updates
Legislative Efforts to Improve Access to Testing and Diagnostics (2023)
zhlédnutí 17Před 6 měsíci
Legislative Efforts to Improve Access to Testing and Diagnostics (2023)
Why Health Equity and Access to Care is Important for All (2023)
zhlédnutí 27Před 6 měsíci
Why Health Equity and Access to Care is Important for All (2023)
Managing Fear (2023)
zhlédnutí 26Před 6 měsíci
Managing Fear (2023)
Navigating Insurance Coverage and Appeals (2023)
zhlédnutí 5Před 6 měsíci
Navigating Insurance Coverage and Appeals (2023)
OCRA's Fall Advocacy Day 2024: WCAU TV Philadelphia at 5:56AM ET
zhlédnutí 6Před 6 měsíci
OCRA's Fall Advocacy Day 2024: WCAU TV Philadelphia at 5:56AM ET
OCRA's Fall Advocacy Day 2024: WCAU TV Philadelphia at 4:56AM ET
zhlédnutí 27Před 6 měsíci
OCRA's Fall Advocacy Day 2024: WCAU TV Philadelphia at 4:56AM ET
Recurrent Ovarian Cancer (2023)
zhlédnutí 1KPřed 6 měsíci
Recurrent Ovarian Cancer (2023)
An Update on the Chemotherapy Shortage (2023)
zhlédnutí 19Před 6 měsíci
An Update on the Chemotherapy Shortage (2023)
Thriving with Cancer (2023)
zhlédnutí 26Před 6 měsíci
Thriving with Cancer (2023)

Komentáře

  • @Maria-tl1lm
    @Maria-tl1lm Před 3 dny

    Ecellent video. Really useful. Thanks a lot.

  • @MikeRuby8g
    @MikeRuby8g Před 14 dny

    This was incredibly helpful Dr Obulor for using your herbal remedies to cure Cervical Cancer totally in a short period of time. I’m still amazed for the healing I got doctor you’re great💟….

  • @MikeRuby8g
    @MikeRuby8g Před 14 dny

    This was incredibly helpful Dr Obulor for using your herbal remedies to cure Cervical Cancer totally in a short period of time. I’m still amazed for the healing I got doctor you’re great💟….

  • @sandragoitom4325
    @sandragoitom4325 Před 18 dny

    Yes, endometrial biopsy with no anesthesia is very painful and large fibroid made it difficult to obtain the correct tissue. Hysteroscopy under general anesthesia much easier and gave definitive results.

  • @invincible6411
    @invincible6411 Před 26 dny

    Very informative. My mom’s extra ovarian cancer reoccured for the 3rd time after the second episode last chemo gap of 7th months. The first episode to 2nd episode gap was 11 Beautiful years Now one of the two chemo drug is changed. Beva maintenance drug clearly did not work

  • @slmerts9955
    @slmerts9955 Před měsícem

    thank u

  • @user-sl9uz8ut6z
    @user-sl9uz8ut6z Před měsícem

    IF YOU HAVE CANCER CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE, FENBENDAZOLE REDUCES AND KILLS CANCER CELLS WITH OUT ANY SIDE EFFECTS, AND CAN BE USED AS A PROPHYLACTIC AGAINST CANCER AND CAN BE USED NOW. JESUS LOVES YOU ❤❤❤

  • @markiahartley4567
    @markiahartley4567 Před 2 měsíci

    Having had an endometrial biopsy - I have to say it was extremely painful. It was awful. Don't mislead a patient by saying "you will feel a little pressure." This is a lie.

    • @johnanddenisemarsh7708
      @johnanddenisemarsh7708 Před 23 dny

      I had one but it didn't hurt too bad. Definitely uncomfortable though

    • @Lisa_5591
      @Lisa_5591 Před 23 dny

      I had a couple that weren't too bad so when others told how horrific theirs was, I was surprised. Fast forward to this week, after having tons of issues and going back for another ultrasound, my fibroids have grown and 1 is over 8 cm. I'm 11 years postmenopausal and have been on an anti estrogen medicine due to recurring breast cancer. So the doctor tried to do an endometrial biopsy but due to the large fibroid she had a hard time getting the tossue she needed. It was horrific pain and I got super dizzy. I've been through a lot of stuff and can normally deal with it, but this was over the top. So pathology couldn't even test for cancer as it was just endocervical gland pieces. I'm so frustrated. I can't get into other gyn for hysterectomy consult until late next month.

    • @Maria-tl1lm
      @Maria-tl1lm Před 3 dny

      @@Lisa_5591 thanks for sharing this. How is it going?

  • @jerm184
    @jerm184 Před 2 měsíci

    How about acrivon Therapeutics? Is their clinical drug and diagnosis promosing?

  • @HaleemaYasmin
    @HaleemaYasmin Před 2 měsíci

    very well covered thanks i have subscribed to channel

  • @Mary-ym9cn
    @Mary-ym9cn Před 2 měsíci

    Love her and how she's showing us how to do this thing called life with our new diagnosis. A true intrepid spirit among women. In another time she might have been in a covered wagon, dog at her side, forging across the plains to a new, uncharted territory. Thank you, Suleika.

  • @barbarameehan113
    @barbarameehan113 Před 2 měsíci

    I have to be honest that I had a biopsy in the office and I had no pain. I did bleed a lot and for most of the day. I do have st.3c endometrial cancer, just finished 6 rds of chemo, will be having radiation and immunotherapy.

  • @champ362
    @champ362 Před 2 měsíci

    I vehemently disagree and stopped watching this otherwise informative video !! You lost me at not painful because every single woman that's had it done in my orbit has stated "it's excruciating " and NyC obgyn just said uneducated blind biopsy is no longer the first line of disgnosed...BIOPSY IS EXTREMELY PAINFUL AND THE GASLIGHTING AS WELL, WHY CANT YOU BE HONEST? TESTICULAR BIOPSIES ARE MECICATED....IM DECLINING THE BIOPSY, PERIOD

  • @user-of8kt9no9s
    @user-of8kt9no9s Před 3 měsíci

    i want the dataset you used for it

  • @anglophils645
    @anglophils645 Před 3 měsíci

    Thank you, Doctor, for providing this good information.

  • @kathyfullarton8126
    @kathyfullarton8126 Před 4 měsíci

    There are MANY women who would vehemently disagree with this doctor when she states an endometrial biopsy does not require analgesia, since it not a painful procedure. I am sure she is very smart doctor, but on this point she is clueless.

    • @strawberrygirl8572
      @strawberrygirl8572 Před 3 měsíci

      Absolutely. I'm going in for one soon and every woman I've talked to (many) who's had a biopsy has said it was extremely painful and not to have one unless my doctor uses lidocaine.

    • @champ362
      @champ362 Před 2 měsíci

      I'm never getting a blind biopsy...esp in office with only ibuprofen and gaslighting to help me!! These ppl are insane and I want to fly to Bali or something to escape westernized medicine

    • @mariajones8304
      @mariajones8304 Před 2 měsíci

      @@strawberrygirl8572most don’t do lidocaine because it does not help much with pain.

    • @nicolastewart5751
      @nicolastewart5751 Před 2 měsíci

      What if you have endometrial hyperplasia, very unusual bleeding but are not menopausal but approaching - along with fibroids getting very dismissed & I have history of uterine/ovarian cancers in family

    • @strawberrygirl8572
      @strawberrygirl8572 Před 2 měsíci

      @@nicolastewart5751 you can definitely have unusual thickening even before meno, so make sure and see your gyn about that. You might need a vaginal ultrasound and possibly just help with hormone balancing.

  • @carolyndaniels386
    @carolyndaniels386 Před 4 měsíci

    Super smart and knowledgeable Doctor.👏🏾👏🏾👏🏾🌸

  • @maevemcmahon4217
    @maevemcmahon4217 Před 4 měsíci

    Wonderful. Many thanks, Suleika.

  • @jbayne7761
    @jbayne7761 Před 4 měsíci

    Are the strict criteria due to cost? For the newer treatments that have excellent results

  • @jbayne7761
    @jbayne7761 Před 4 měsíci

    So no CAR T cell therapy available?

  • @adventureswithschmicklesth9337

    In addition to Suleika's wisdom, earned not borrowed, that she brilliantly shares with us, she has the most beautiful eyes! And I've never seen a woman look bald and beautiful during chemo like Suleika. Just saying. We need her art, cello, voice and writings more than ever during these dark times as so many Americans are feeling depressed for various reasons. And Suleika has a way of lifting all boats so to speak. ❤ Thank you for this interview 🙏

    • @adventureswithschmicklesth9337
      @adventureswithschmicklesth9337 Před 4 měsíci

      My only question of curiosity is why use these windows to submarines to see your faces? LOL

    • @maevemcmahon4217
      @maevemcmahon4217 Před 4 měsíci

      Thank you ,Suleika, for sharing so much wisdom with us. I have learned so much from you. May you be continuously blessed. ❤

  • @jeanhansel5805
    @jeanhansel5805 Před 4 měsíci

    Great presentation and easy to understand for someone without a medical background.

  • @jacquelinebrewer3643
    @jacquelinebrewer3643 Před 4 měsíci

    I love Suleika & Jon! A couple only GOD could have joined together!

  • @ellengarbsch3174
    @ellengarbsch3174 Před 4 měsíci

    An amazing woman. A beautiful couple with Jon. I pray for her to be well.

  • @happynessadict
    @happynessadict Před 5 měsíci

    what about the Estrogen in Dairy products and the fact that its meant to fuel rapid growth ?

  • @LibertyWines
    @LibertyWines Před 5 měsíci

    Link to the technology, science underlying & papers??? An MSK link would be helpful too.

  • @hanssolos3699
    @hanssolos3699 Před 5 měsíci

    الله أكبر

  • @user-xg6es9ks3l
    @user-xg6es9ks3l Před 6 měsíci

    Listening to Suleika was a lifechanging experience. Thank you so much.

  • @ronaldkemp3952
    @ronaldkemp3952 Před 6 měsíci

    I'm also thriving with cancer even though I have not went through chemo or radiation treatments. I was diagnosed with non Hodgkin's lymphoma large b cell in 2017. By 2018 It had progressed to stage 4. Then I started to take a natural over the counter food supplement and in less than 2 months the cancer was in complete remission. All the tumors that were growing all over my body slowly disappeared and now there's nothing left of them except for indentations in my skin where they used to be.

  • @CG-ih5jh
    @CG-ih5jh Před 6 měsíci

    Enlightened. Thanks

  • @anilyn0721
    @anilyn0721 Před 6 měsíci

    Thank you mam.

  • @Cancer-bm7zo
    @Cancer-bm7zo Před 6 měsíci

    Thank you, Dr Spoozak, for your enlightening input. I also loved your style and genuine passion.

  • @NurseQuipy
    @NurseQuipy Před 6 měsíci

    Is the anticipated response to immunotherapy for clear cell subtype only for the very small percentage of clear cells that are MSH? With LOH greater than 16%? Or is the hope that many women with clear cell who are MSS with lower LOH scores also likely to respond? Is A TMB score of 4 ok?

  • @raysareyes7745
    @raysareyes7745 Před 7 měsíci

    Thanks you so much for your advice about of Ovarian Cancer and healthy foods, blessings 👂🌌🌍♥️👍📖🔥🙌🙌🙌

  • @sddrunner
    @sddrunner Před 8 měsíci

    Thank you Today had a great results for my Pet Scan I had this morning 🙂 Two year’s remission and thankful Debulking and Chemo 🙌🏻

  • @_onefightatatime_
    @_onefightatatime_ Před 8 měsíci

    THANK YOU FOR ALL THAT YOU DO FOR US & and I am grateful to be a part of advocacy this year. I will keep coming back until my last breath.

  • @karenlemus5915
    @karenlemus5915 Před 8 měsíci

    This is great!!! Thanks for the support advocates. We need funding for more research.

  • @lauriethomasmd3760
    @lauriethomasmd3760 Před 8 měsíci

    In the slide showing comparison between early and delayed recurrent treatment (no significant difference up to 60 months), the graph implies about 25% surviving at 60 months, but the raw numbers look much lower. Am I misunderstanding this?

  • @DinaRX-hj5zk
    @DinaRX-hj5zk Před 8 měsíci

    Interesting, feeling how the bloating and pain receded within approximately two months made all the difference, I simply go’ogled the latest by Tilly Strankten and her Ovarian Cyst Guide and although it really took about 10 weeks for it to totally shrink and vanish I’ve never felt so light and relaxed.

  • @calliopivogiatzis2235
    @calliopivogiatzis2235 Před 10 měsíci

    You make vegetables fun to eat! Thanks for the great recipe ideas!👍

  • @viorelscrob6391
    @viorelscrob6391 Před rokem

    For my mom it was the treatment with Carboplatin only, without Paclitaxel, i don't understand why. ....

  • @viorelscrob6391
    @viorelscrob6391 Před rokem

    Can i ask for my mom ..? .in which caseses Carboplatin is administered without Paclitaxel. ..

  • @viorelscrob6391
    @viorelscrob6391 Před rokem

    My mom has ovarian cancer. ..and her sister , it is a risk for me if i am a man. .?

  • @viorelscrob6391
    @viorelscrob6391 Před rokem

    Can i ask about treatment for ovarian cancer for my mom. .?

  • @NWKLady
    @NWKLady Před rokem

    Hi Athena! It's Jessica from PA. We used to Skype video chat and call each other all the time. Hit me up