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I didn’t realize you had bison in Alaska

Thank you for sharing your story I have IBM and Im 52 was diagnosed 4 years ago

I've been diagnosed with myositis 2 months ago at the age of 33 which is rare as I heard from the doctors (both the disease and the age) anyway the road to recovery is longer than I've anticipated but thank you for sharing

Here in Europe we can meet sheeps crossing the road sometimes! 🐏😂

Med causes anxiety

Beautiful. ❤ Got yourself a Sub.

I was told I had ibm in 2020 it will get you down if you let it keep your head up one day at a time is how I roll

maybe get your dog away from the bear?? he sounds scared. but overall I love this cool habitat for the bear also sometimes bears get angry when they are being looked at so I would try providing a little shady home inside of the enclosure for him <3

Thank you for opening up and sharing the difficult parts. I have found for me that suffering in silence only favors the darkness and feelings of isolation. Praying for you. I would take Vitamin D supplements and take the emotional energy to keep making plans to spend time with others, even when they may not all come to pass. I enjoy listening to Southern Gospel music sometimes or hymns or worship music to remind me that God is always with me.

Thank you for sharing your experience with IBM. I to have IBM and recently spoke to another person with a different rare disease called Kennedy disease, it mimics ALS as does IBM. The call was coordinated by my Lymphedema therapist who thought it would help both of us to share our experiences since we both had similar symptoms. I found this helped me by helping someone else plus it helped him understand he was not alone in his struggles. We both found it beneficial.

Hello James and Marcie. I’m feel so privileged to have met y’all over CZcams. You both seem so kind, patient and pleasant towards each other. And, yes, as Marcie said it’s all about the quality of life you receive that makes living with a disability more tolerable. So, Congratulations on the successful blessed purchase of your Alaskan Mobility Van!! I used to have to go to all my appointments and outings on a public disability bus which composed lots of challenges especially during the winter months. But, my sister/caregiver was blessed to be able to purchase a used disability van from a family that no longer needed theirs and it was such a game changer for us as well. I enjoyed this entire video and gave it a 👍🏽.

What brand is this new wheelchair you’re trying out? It looks like you’re enjoying the functionality of it. I have this video a 👍🏽. I hope everything turns out well for you.

Since moving to Florida from Maine my Seasonal Affective Disorder has lessoned a great deal. When I start feeling a low place coming on because of my Inclusion Body Myositis...the best remedy for me is to play my piano a bit. Play the old church standard hymns I use to play in church when I was the music director. I get lost in a good book or watch a happy movie. Especially the old classics. I also turn ON all the lights in my house. And of course there is always a prayer on my lips.

How long have you been battling IBM?

James you are a beautiful soul! I am caregiver for my husband and I love what you said today, I will share with husband. God Bless you and Merci and your family

God bless you and best of luck on your journey!

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Prayers too you my friend 🙏🙏

Sending prayers for you my friend🙏we met a couple years ago at the wellness center pool. In Berne indiana!

What part?

“What horsepower is your motor?” “50 bison power”

Ride a cowboy

What a beautiful sight ❤ this is what life is all about or at least used to be when I was a kid over 90 years ago 😢 thanks for sharing 👍 Alaska is the only state I have not visited yet….. hopefully I will before my time end …. I am 91 😅

Nice place

Gorgeous.

I love the music as well. Soothing… not the obnoxious stuff others play. Thanks for sharing!😊

Awesome

I love that they are still wild!!

What a wonderful commute. I don't see that on the 101 in SoCal. We have a different kinda traffic jam.

Used to be millions, we just had to starve to Indians. Ain't that a pile of shit?

That's so beautiful! There's something about these bisons... so much power! Absolutely beautiful! I would love to live in Alaska! I would go tomorrow if I could....

Absolutely beautiful ❤

Beautiful.Lucky you.

Beautiful 😍 Thanks so much for sharing!!!❤

That beats rush hour on the beltway any day

genuine question, if he’s in a wheelchair and his legs don’t work how is he pressing the pedals

❤🙏❤

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Keep going bro! You can do it🙏🏿

I was diagnosed with Inclusion Body Myositis at the end of 2019. It’s been very difficult coming to terms with what this disease will eventually take away. The loss of independence is very scary for me. Thank you for sharing your experience and advice.

Thank you again for giving of yourself on this journey. I am yet to be 'properly' diagnosed, but my instincts and your history, pretty much sums up where I'm heading. I agree wholeheartedly about taking time to process, quietly, where we are and what we are grateful for. Virtual hug from Australia

❤❤❤🔥🔥🔥 New subscriber here. I truly appreciate you having the courage to share this video of your life struggles. May you and your family have many years together in love, unity, joy, peace and happiness. I gave this video a thumbs up. ❤❤❤❤❤

Thank you for the story. I was diasnosed with IBM at Age 72, now am 81. Its tough, but the community can be great. Join Myositis Support and Understanding on FB.

Working now on a diagnosis. Positive anti SRP. Negative MRI. And an EMG Wednesday. Scared. This has been a rough week. Thank you for sharing your story. This community is small and the voices matter.

Hello, Thank you for sharing your story. I wanted to ask if your condition has progressed quickly? I was diagnosed with IBM and I seem to be progressing very quickly. I started showing symptoms at 43 and recently diagnosed. I hope you are doing as well as you can.

Can you please share which type of therapy you take, and how much time it takes to cure, especially food,please share I am also suffering from Myositis

Thanks sharing your experience I am from India recently I diagnose Myositis, but unfortunately this is rare disease, in India doctors not sures about this,

Thank you 🙏 for sharing your story. This is a rare disease so it’s so valuable to hear your experience.

What do you use for your bed? I know that I have issues turning, sitting up and standing and need assistance when I can’t do it myself.