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I’m 12 and got diagnosed with this a couple days ago… I was torn apart hearing I have to have surgery in four days but it has to be done, I have Chiari IV. I have to have a part of my spine taken out and more room for my brain to move. Let’s hope nothing bad happens when I wake up… ❤

Nooooo

When you have loving family or friends in your life to love you through these things and understand you're very blessed try having people that will actually make fun of you and do everything they can to rip you apart inside because they're nothing but filled with hatred, and it sucks I might have had concussions but that I can see that they're nothing different than cold-blooded murderers

Well Done ' George , you are such an inspiration to all , what with all you have gone through with many surgeries and then a lengthy recovery your strength and determination to never to give up is amazing , and with all you have acheived in your beloved sport too , it must win the hearts of many to see you doing so well now . l too have a congenital brain and spine condition that has meant many surgeries , hospital visits and a severe lack of understanding from the general public because my condition isn't obvious to the eye , but just like you l do all l can each day to keep on going and trying my best to look after my brain and body , being as positive as i can l certainly have beaten many milestones of which surgeons didn't think id reach . All the best to you and to your next gold medal .

Very interesting, thank you for arranging this ❤

Incredible achievement 👏 ❤🎉 Well done Emma ❤

Utter disgrace. My heart goes out to you my love. It’s an evil way to treat anyone yet alone patients. Get your MP on your case. Written complaint into Pals at the hospital. They have to deal with it. Good luck x

I'm a patient in the UK. I have had longstanding daily pressure headaches and migraines, light and noise sensitivity, upper neck pain on one side with tension and what feels like a ball in the base of my neck, nausea, vertigo, insomnia (in relation to this condition. I also have many others unfortunately, so have to try separate what causes which.) I spoke about this and very quickly the GP veered towards anxiety and depression. I was given propranolol and sumatriptan to treat the migraine. I then thought maybe my ill health is due to my thyroid - spent years working on that until levels normalised. But my headaches pursued. I continued at the doctor, they said they can't feel anything at my neck. I remember seeing a neurologist at some point but to no avail, perhaps I was prescribed some drugs. I later saw a chiropractor for my neck fortnightly and it was a big relief. Rest assured he felt the pressure ball at the base of the skull. My stomach, muscle and joints pains got worse over the years while dealing with the incessant headache - I was generously given a fibromyalgia diagnosis before being tested for much else, as they had already sprinkled me with anxiety and depression although I was only seeking for answers to fairly serious symptoms. All this shutting down achieved exactly just that - it shut me down. Then I spent some years suffering quite badly and working through it all. The headaches, the ibs, hormones and difficult menses, unstable joints and a heart that seemed to race no matter what I did. After working full time, studying part time online with so many illnesses while being invalidated and not supported in any way - and finding out the person I was building a life with had betrayed me and was lying to my face about it - my mind and body completely collapsed into a dark well for several years. Somewhere in that well, I was diagnosed with Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia, Autoimmune Thyroid condition, Endometriosis... I tested positive for Borreliosis. I believe based on my symptoms that I have MCAS and I am very sure that I have Chiari. I did have a ultrasound performed in 2012 on the back of my neck outside of the UK. The result of this ultrasound said they found a "Collection of uneven cells 2,2 x 1 cm. Fibroma." The point of me sharing this pointlessly long comment is - we know our bodies. We share our stories. We share our stories, as a collection of symptoms. We present to others as impressions. Who knows what I reminded the doctors of - some anxious classmate of theirs, or a depressed actress they had seen portrayed in a movie somewhere. The point is - from the beginning of me sharing my symptoms to the doctor, I could feel exactly what is going on. Even when they invalidate for a decade. If you are reading this and you are a parent, or you are a woman, or you are a migrant, a disabled person, or a young person - please know your truth and express it with dignity, grace and kindness. If you do not, you risk losing your livelihood.

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Where’s part 2?!

Almost 4 months ago my brother Had a heart attack and as a result have hypoxic brain injuury... initially he can only open his eyes with limited look around movement.. now He can move his lips tongue and eyebrows a little. And he also started to yawn.. and few times ..very few times..move his elbow,feet finger,shoulder and head ..but very little. Almost after a month he started breathing on his own... initially was put on a ventilator .. He was initially having food through NG tube now doctors have inserted through stomach what they say as "peg tube". He also have tracheostomy tube in the neck Also mri scans have shown global or severe hypoxic brain injuury He is only 33 . he also produce tears in both eyes.. he cannot even control his head ... ... Right now he is discharge from the hospital and we are caring for at home we are doing physiotherapy ourselves. To protect him from bed sores We are changing his position every hour on bed

Thank you CZcams for this video, what's the name of the channel.

Today an pool ball hit the left side of my head not very hard but I feel pain in my left ear I don’t know if it’s my anxiety or if it’s real CAN SOMEONE PLEASE HELP ME PLEASEREE😭😭😭🙏🙏🙏🙏🙏🙏🙏🙏

Can this give subtitles, I am very sensitive to noise levels? This is due to brain damage from a severe bleed and your video was suggested for Stroke sufferers so should be ideal for me. Does it matter if disability stops me from sitting with crossed legs?

I was told by a neurologist there was nothing he would do . Yes , he refused to treat me . At least he let me know I had this condition . Minor lifestyle changes manage it for the most part , no more weight lifting or heavy lifting of any kind . Feels like someone hit me in the back of the neck with a baseball bat when it acts up . Not to mention when it gets throbbing ..... thats a different matter all together . After two previous neck operations to fuse vertebra 3-6 I doubt I can find a surgeon to treat it when it becomes too much for me to handle myself .

I was diagnosed a few years ago.

*Promo SM*

Brilliant Brain and Spine Foundation marathon captain and team.

Wow, only 41 comments on this after 3 years. You would think it would be more frequently spoken of due to the pain felt.

What an amazing story, what an amazing man

Good job 👏🏻

Very helpful. Thank you.

Excellent Demonstration 👍❤

I am a zipper head and had the decompression surgery 4 years ago. I consider it a success. I still have minor issues but most of them are much better. 💜

In my case, the base of my skull really hurts when I laugh hard.

I was thinking about something… what if we put artificial tissue all around the brain that’s big and foam and can fit comfortably around the Brain? If you have that and a helmet ur basically a human ram lmao

I've fallen off my bed and had hit my head on the back of my head and it was hurting me

humans are perfectly adapted to take hits to the head

I thought my body would never be the same again, but you fixed it. My heartiest gratitude to you Dr Igudia for helping me cure my Hepatitis B Virus successfully.

Can you get headaches with mild Chiari Malformation? Because the neurologist said that you don't have headaches and vision issues with this mild chiari Malformation that was spotted on my MRI!!!... 😢 😕

Goodmorning

Coming across Dr Igudia on his CZcams channel was the beginning of a new life for me after using his herbs medication to cure my genital herpes virus permanently

Mine is 11mm but can’t find a Dr to help me an I think this caused all my nerve damage

Ohhh so that's why I can't really concentrate that well recently, I bashed my head into the wall for way too many times I see.

That’s my uncle

Even after having that decompression surgery 9 years ago, I am still struggling with the symptoms...

Great video! Thank you for sharing!

I’ve known for about a year or 2 about my chiari, along with having pots disease, which can coincide with chiari, it makes so much sense about why I’m having all these symptoms. Personally I have the headaches, neck pain, fatigue and muscle weakness, nausea, and insomnia roughly.

Car accident head injury vision loss

Hi my mummy hit me in my head today😭😭😭😭😭😭😭

Here here! When I'm confident enough I will also become a big fund raiser for brain and spine foundation too

Please pray for my friend he's in 8th grade and had an head injury

Thank you for this!

i lost my consciousness and bumped my head on the floor. at first, only the lower part of my head hurts, but now it scatters.

I had an Arnold Chiari malformation decompression in 1993. I was symptom free after the operation. During August 2021 I was in a motor vehicle accident and had a very bad whiplash. A started experiencing symptoms of Arnold Chiari after the accident. Wonder if anubody else was for years symptom free and then started with the symptoms years later.

Hello namste very good video me indian Gujarat

Have doctors not known about this until recently.

Nobody mentions psychosis as a symptom

Head injury from falling from being under the influence of marijuana and k2. Any prescription drugs or anasthesia surgeries prior to this could cause disorientation

Hi I had a head injury 5 days ago. As per this video can say it's moderate. I went to hospital and had MRI scan and the doctor said its normal. But till now I'm having pain on my neck, back shoulder both side and more pain on left and also having ear pain from 3rd day. On 3rd day I consult with another doctor and he said I'm having ear infection and have antibiotics with Ear Drops. But till now I'm having pain. Is this normal and will take few days to recover or I need to go for further treatment.