![Jet](/img/default-banner.jpg)
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Jet
Registrace 31. 03. 2022
Thanks for checking out my CZcams, I have had a long break away from youtube due to ill health and tiktok has been an easier app to post on, with the editing being in house and at my finger tips but I want to try and post more youtube videos but it wont be weekly, it will be as and when.
I post about my palliative/terminal condition and my journey toward a transplant (or not) and the trials and tribulations of being a parent to a type one diabetic during all of this. I am not the bets at making youtube videos to bare with! But I feel it will be good to leave a little scrap book of videos behind when the worst happens, and keep Cystic Fibrosis awareness going for years to come!
If you want to check out my socials, links are below!
IG - lowenplas
Tiktok - tiktok.com/@lowenplas
Facebook - profile.php?id=61553185352357
I post about my palliative/terminal condition and my journey toward a transplant (or not) and the trials and tribulations of being a parent to a type one diabetic during all of this. I am not the bets at making youtube videos to bare with! But I feel it will be good to leave a little scrap book of videos behind when the worst happens, and keep Cystic Fibrosis awareness going for years to come!
If you want to check out my socials, links are below!
IG - lowenplas
Tiktok - tiktok.com/@lowenplas
Facebook - profile.php?id=61553185352357
Europe on a motorbike | Bucketlist adventure
This was an adventure I had sort of discounted from my Bucketlist, as it was something I wanted to do on my own motorbike, although I do have one, this sort of journey would not be possible for me, my strength wouldn’t get me this far and it would be too tiring, however… compromising and doing this on the back of a touring bike, which has a seat capable of supporting me, well.. I can go for that and still tick it off my list!
We did England, to France, to Belgium in one weekend and it was incredible! I am so proud of us both for what we achieved this weekend and how we put worries aside and just had a good time and lived life for a moment before I’m too sick again. Whilst little P is in Greece sunning it up, this was the perfect opportunity to do this and although very much unplanned and last minute, I feel that made it all that more exciting!
Any questions regarding this trip and round about costs, feel free to ask!
Enjoy the vlog!
We did England, to France, to Belgium in one weekend and it was incredible! I am so proud of us both for what we achieved this weekend and how we put worries aside and just had a good time and lived life for a moment before I’m too sick again. Whilst little P is in Greece sunning it up, this was the perfect opportunity to do this and although very much unplanned and last minute, I feel that made it all that more exciting!
Any questions regarding this trip and round about costs, feel free to ask!
Enjoy the vlog!
zhlédnutí: 1 894
Video
I just want to live! | Cystic Fibrosis Life
zhlédnutí 259Před 2 měsíci
So I’ve been pushing the boat out ever so slightly, definitely trying to make sure that my next hospital stay is worth while! Because I’d hate to go back in having done nothing I enjoy going, that’s when resentment creeps in. So keep an eye out for the next vlog early/mid next week for my spontaneous decision making results 🥲😂
Gardens, Beaches & bikes | Cystic Fibrosis Life
zhlédnutí 346Před 2 měsíci
It’s been all about cramming as much in as we can before my last hospital stay. It may seem excessive but my mental health during my last stay was not good, it really took a toll on me and I needed to have some sort of life when I returned home and that’s exactly what I’ve done. I had some bigger plans for the next couple of weeks but I’ve been marginally sensible and pulled those back to small...
F*ck it list (I was impulsive!) | Cystic Fibrosis life
zhlédnutí 322Před 2 měsíci
It’s been a weird couple of weeks but I feel I’m getting back to a better place mentally. It’s been a lot of soul searching and trying to focus on my mental health moving forward because I couldn’t keep talking about my situation as much as I have been due to how mentally draining it was to just keep discussing something I’m so afraid of happening. So taking a step back has put me in a much bet...
Answering common questions | Cystic Fibrosis life
zhlédnutí 573Před 3 měsíci
Answering commonly asked questions in a quick video, as easily to digest as possible. There are lengthy answers to these questions on other videos on my channel or on my TikTok in the playlist (questions answered) Thank you for watching and if you have any other questions or additions you feel I could’ve added, let me know in the comments!
Sports day drama & the struggles of the CF decline | Cystic Fibrosis Life
zhlédnutí 437Před 3 měsíci
Bit of a mashup again this week, my days are so unpredictable so these are probably how the vlogs are going to be, much like my life they lack structure and stability 😅 But I will try to adapt to that by making ways of showing the time passed/days passed etc, I’m working on it but if anyone has any words of advice with CZcams vlogging, let me know! I will be doing a full video on the mental hea...
Cramming in the memories & hairdye mishaps | Cystic Fibrosis life
zhlédnutí 383Před 3 měsíci
We’ve had a lovely few days of me being home and it’s now time to calm it down just slightly! Before I end up back in, but we are off on our travels in 4 weeks so we all need to stay well! No pressure. I’m feeling worse for wear this evening but I’m hoping it’ll be a quick rebound and we won’t have to get me back in anytime soon. We’ve definitely crammed a good few weeks of memories into a shor...
Escaped from hospital | Cystic Fibrosis life
zhlédnutí 569Před 3 měsíci
A 21 day stint was enough for me! I’m so glad to be back with my lads & having all the cuddles and love. I know this isn’t half as long as some people spend during a standard exacerbation but it’s the fact it’s so close Together with previous admissions, I’m barely getting time to have a life outside of hospital and have to fit so much into Life when I’m already feeling exhausted, even today ha...
Hospital vlog day 18-19 | Cystic Fibrosis life
zhlédnutí 417Před 3 měsíci
It’s the home stretch! One more sleep and I can go have a life for a few weeks. It’s mentally draining going in and out so frequently, I think I’d handle it a lot better if I didn’t Have so much resentment for not living whilst I’m home, so this next few weeks I’m going to be making An extra effort to go and do something cool. I deserve it and I’m not afraid to say that! I’ve worked hard mental...
Hospital vlog day 10-12 | Cystic Fibrosis life
zhlédnutí 647Před 3 měsíci
This admission has dragged so much! This vlog was very much thrown together but I wanted to make sure I didn’t give up with it just because of how I looked and felt as I’m trying to show things as honestly as I can. I’ve got 1 week left as of tomorrow and I am so ready to be at home and be able to have proper showers! Thanks to all my new subs and comments I appreciate you all!
My Cystic Fibrosis Story | Palliative but positive
zhlédnutí 1,9KPřed 3 měsíci
My Cystic Fibrosis Story | Palliative but positive
My Kaftrio Expirience | Cystic Fibrosis life
zhlédnutí 1,4KPřed 3 měsíci
My Kaftrio Expirience | Cystic Fibrosis life
Hospital vlog day 8-9 | Cystic Fibrosis life
zhlédnutí 483Před 3 měsíci
Hospital vlog day 8-9 | Cystic Fibrosis life
Hospital vlog day 4-7 | Cystic fibrosis life
zhlédnutí 559Před 3 měsíci
Hospital vlog day 4-7 | Cystic fibrosis life
Hospital vlog day 3-4 | Cystic Fibrosis life
zhlédnutí 561Před 3 měsíci
Hospital vlog day 3-4 | Cystic Fibrosis life
Hospital vlog day 1-2 | Cystic Fibrosis life
zhlédnutí 616Před 3 měsíci
Hospital vlog day 1-2 | Cystic Fibrosis life
Royal Brompton Second Opinion | Cystic Fibrosis life
zhlédnutí 529Před 4 měsíci
Royal Brompton Second Opinion | Cystic Fibrosis life
Hospital day 9 | NG Tube insertion | Cystic Fibrosis Life
zhlédnutí 528Před rokem
Hospital day 9 | NG Tube insertion | Cystic Fibrosis Life
Hospital Vlog | Starting Tuberculosis Antibiotics
zhlédnutí 506Před 2 lety
Hospital Vlog | Starting Tuberculosis Antibiotics
It's my first video! | A Cystic Fibrosis intro
zhlédnutí 919Před 2 lety
It's my first video! | A Cystic Fibrosis intro
I just stumbled across your channel, and I can already tell you're a wonderful person to be around. Regarding the questions, here are a few: What is your favorite book or author? What films or series do you enjoy watching? What is your favorite holiday and why? Wishing you all the best. Greetings from Romania!
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Hi Jet, I pray to God the Father in the name of Jesus Christ that you will be healed. Amen. I would like to share the following seven videos with you about salvation and two videos about evolution. Best regards Chris Evolution vs. God czcams.com/video/uc_W9VtzJ0A/video.html DESTROYING Evolution In Under 3 Minutes czcams.com/video/sWecPwrQv2c/video.html Watch the Holy Spirit Work in Her Heart (Very Moving) czcams.com/video/iBEoI2u6kII/video.html Fearing The Lord, God’s Discipline & Sharing The Gospel czcams.com/video/dES5WW66Mro/video.html A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven czcams.com/video/IXEeMWCxyrQ/video.html The Plan of Salvation czcams.com/video/PmkhRMPvt_0/video.html How to Get Saved czcams.com/video/ajWdkuvrT6s/video.html The Truth About Hell (Selected Scriptures) czcams.com/video/AVzbh_dLq3s/video.html What is The Gospel of Jesus Christ? (The Gospel Explained & Made Simple) czcams.com/video/xQkyuyE0vQk/video.html “For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.
I've had 5 as well. Waiting for a replacement as blocked. 15yrs longest I had. This one only 5 and a bit years. Thankyou for this it can be lonely. ❤
Hey. Hope you are well. been a month since the last upload, you stopped doing them ? X
Hey! Not stopped no but I’ve not been very well & stressing about treatment at the moment so I had to concentrate on that, however I will be back to usual day to day vlogs soon! Thanks for checking in 😊
Thank you for sharing that. I didn’t know any of that so it was a real learning experience for me. ♥️
I’m all for making happy memories but saying that’s more important than an education when it’s not Your child needs their education whether you like it or not
always enjoy watching your content, thanks for sharing.
How,if this appears to be EXCLUSIVELY a female disease spread genetically by females TO females does it even survive? I'm so god damn sick of you whiney assed teenage girls and your social media sob stories pining for the attention and approval of OTHER WHINEY teenage girls by perpetuating the FALSE STEREOTYPE that such illnesses ONLY happen to teenage girls on social media.
Hi Jet. Glad you are doing ”okay”& your bike 🏍️🏍️ rides look awesome…but where are your leathers to keep you safe should something untoward happen, heaven forbid of course. That would be the last thing you need. That is one thing I wish I had done before my head got so bad that it would be torture to ride a vibrating, noisy motorcycle rather than pleasure. I have just spent 2 weeks on IVs in my new CF hospital…Royal Devon and Exeter…I haven’t been in hospital in 3.5 years so it was somewhat of a shock when I found myself struggling for breath🫁. I did post a piece (or whatever its called) on my experience and how shit I had felt. I got home on Fri night and have yet to sleep so am shattered. Never had any more than about an hours sleep during the day…so I need sleep!!!💤💤💤 I was pleasantly surprised and delighted with my new CF team as well as the staff on the respiratory ward I was on..always had a smile for me and some really awesome discussions. One of the CF doctors was so funny and immediately put me at ease…for me that is ultra important. Also, the entire team that were seeing me on the ward completely understood how difficult, painful and irritating my head issues are…because they took the time to listen to me. Don’t you agree? And their food was great unlike the crap I got previously. Your brekkies looked awesome and those crabs…wow! I hope you managed to go away and create more memories. Take 1 day at a time, 1 step at a time…,pace yourself.💜💜💜 All the best fellow CF Warrior💜
Hey, pretty lady! I just want to say that your attitude is amazing! I was diagnosed at age 2 in Germany (US Army dad) and just turned 47. I have a 13 year old son, and the diabetes part was my biggest complication during pregnancy. I had several bad years before pregnancy, but after that I have been surprisingly pretty well. Sending you love, prayers, good juju, whatever you believe in to get yourself better!!!
Glad you had a great time, looked brilliant. I’m hoping to do the same at some point but in the van 😊😊xx
I'm so sorry people have judged you so harshly because of not being able to handle this medication! It's awfully sad to me that people are so clueless that they make sweeping assumptions about someone just because they don't know the whole situation, don't walk in your shoes, maybe don't even have CF, or aren't a medical professional who works with those who do. My heart goes out to you. I completely understand why you stopped taking it--both for the TB drug you needed and your own mental health. I just found your videos a bit ago--this is only my second. Thank you for sharing your situation. I'm praying for you, that something can be found to help find an alternative for Kaftrio.
Looked an amazing weekend, so happy for you both that you did it, I'm still Tryna book a holiday but friend is dragging there heels 😂 x
Respect to you both for doing this spontaneously. I'd poo myself doing that on a bike but so happy to see you both smiling and enjoying your journey. I'll keep everything crossed you stay well maid x x
God bless 🥰 praying for you
I am your new subscriber nice video
Thanks for subbing! I really appreciate it 🎉
Why not try 1 tablet, 2 days break then 1 tablet. Etc.
Pretty sure it's a once-a-week med, though I'm not certain. I don't know if it'd be possible to do what you suggest, but she said they tried titrating up and down and nothing worked.
I have a friend whose daughter has cf and she takes enzymes with every meal or snack to help with digestion and all. Are you not able to take them or what???
@@carolkelly1136 I do, I have cream with every meal. I have them in a pouch for food & I also take enzymes 4 hourly via my feeding tube.
Shame about this Adam guy cramping your style but otherwise great vid! 🤪
@@toploaded2078 I know right he’s always getting involved 😂 as if he’s not got his own channel!
That food looks amazing!!!!! Going to have to venture down at some point just to try that, maybe pop over to see you both aswell but mainly the food, Joke, enjoy both of you ❤❤ xx
I’m soooooooo late to this party, but I’m proud of you too. Just wanted you to know 🩵
Two of my favorite people 🥰
As are you and our Claire ❤
The birding feeding the her babies is so cute💚 Lovely seeing your smiley face Jet doing things you love xx Can’t wait for more content 💚
Bird not birding x
Same Here!!!!❤❤❤❤❤❤
When I was born my father was very sick. Let me tell you every memory I have of him is fun. Like the time we dressed up as mice to scare my mom who is afraid of mice. The time we spent the entire day at a BBQ on the beach. Little things ... 40 years later I look back and I am so greatful he made those memories with me with intention because I still hold them all close to my heart.
I Always get excited when you upload your videos, It puts a smile on my face!!!❤❤❤❤❤❤
I really like the longer vlog format :) but I’d say whatever is manageable and fun for you is best!
Really still can't decide which bike I love more XD, but happy to see you being you jet!! Would deffinitely say longer videos but then again being abit of a fanboy of yours and adz videos 😂😂, appreciate you all ❤ xx
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Have you heard about the gastric pacemaker? I wondered if it might be an option if your bowel motility declines more I have cerebral palsy and have had dismotility for years and had a resection due to blockage about 8 years ago . I wasn’t a candidate for the pacemaker and I am experiencing problems with the remaining bowel I have. I went to a school for children with medical needs. We had several kids with CF and one of my closest friends passed away when she was 13. I am so glad that life expectancy has improved and I was happy and sad about kaftro coming along as I wish that my friends had lived long enough to try it if you had lung transplants some lived a few years and one lived over a decade. I know transplant with CF is very challenging and the experiences I can talk about or from many years ago now. I am about to go and watch your video about Kaftrio as I’ve seen accounts of some people who cannot take it also and I think it was build a miracle for everybody and it must be very difficult in that case. I hope you manage to get the help you need.
Sleep and nutrition are so important for the body when it is fighting illness, and yet hospitals don't provide it. I also hate the whole 'they're worked off their feet, be patient'. We are prescribed treatments for a reason and when we don't get them on time we are the ones who suffer. I was in hospital for 4 weeks for uncontrolled seizures. For the first 3 weeks they watched me seize and counted how long each lasted. During the last week I actually had tests and started treatment. People say we are fortunate to have the NHS. To a degree perhaps, but negligence is not unheard of. I know with Cystic Fibrosis, unfortunately hospital is a second home for you. I wish that they could make the stay more pleasant and comfortable for you and others who have to spend a lot of time there. I hope you're okay. Is there any talk of a transplant at the moment? much love x
Hi I am new to your channel
The captions say terminally and the description says chronically which is it
Sending you big big hugs friend ❤️🩹💜
Hi Jet, Life can be so bloody unfair, some times feels like some people get all the breaks and the rest of us just are breaking. Anyway, I just wondered how you deal with all this philosophically and/or psychologically? Do you have a strong faith or any faith? I hope you do because I get a lot of comfort from my faith. ✝❤🙏🫂
Good for you!! Just found your vlog. Happy to hear your still living your best life!! You have been thru the mill as they say in USA. Means you have been thru hell!! You also have a great attitude!! I pray things will get better in the future!! My prayers and hugs go out to you!!❤ 🙏
Thanks so much! 😊
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Sorry I’m late to the party. So glad you were able to get time out with your fam. I love the braids ❤
Thank you so much 🤗
My Mental health has been horrible lately but,I know that God is looking down on us!! You've got this!!
I understand how you feel totally coz it's how I feel. So I am quite happy if you want to have good ole moan with me. Anytime girl. Sent you my phone number on Messenger. Xx
Hi. Keep up your chin. Sent you DM. 🖕to everyone staring. Don't be so hard on yourself. Hope we can chat sometime soon...please. xx
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Love the old skool tune 💯💯
Love the hair ❤
If in doubt stick a hat on for little P’s sports day haha, that corner piece of food looked lush! Gonna have to buy you some heelies to stop you walking so far 😅😂Xx
So glad your home, little P is such a Mini me! I love your vidoes for insight and to see your resilience and strength. But obviously hate what your going through. Please take it easy at times lol its so hard though when you want to live and make memories with little P. Thoughts and prayers. X
I agree, keep the hair, its amazing!!!
Keep the hair jetsicle it really does suit you, just wear your pink oodie to sports day with some shades 😂 women in pink blue green with a hint of blonde just without the blonde persona what is in them baguette sandwhiches they look amazing, seen them on your videis a few times and just yum , anyway ill stop ramblinig, you just take it easy, we are all at the other end of the phone if you all need anything xx