Video

Thank you so much I got locked out my account the phone number you added helped alot I just rang em got it sorted took 1 minute

How can we open account with them???

Hi Nigel sorry to hear you've had very bad time hope you have a little improvement soon can I please ask how is Miranda I always follow her posts not seen her posting for a while sending love hugs to you both from fellow ME sufferer Patricia knights 🌹.❤

Lovely Miranda. So much work went in to it, I can see. Glad you had some times of being well enough to gradually accomplish it. 😊

What a lovely and inspiring bookmark Miranda!

Thanks a lot

💔 i pray often for all MEers. I hope you feel better soon.

In how many days did you complete. And whats the cost..

The ending it while you still can is something that has crossed my mind. Its horrifying to think about bit at the same time...😢😢😢

I've had hypoglycemia symptoms for the past two decades and counting and I've never been Dx with diabetes. Otoh, no one officially recognizes my hypoglycemia either. It won't matter if they do or not really. There's still nothing they can do about it.

Poem Do I dare to dream Do I dare to hope What if I won't get it What if My heart was crushed when Jeremy Corbyn lost the 2019 general election Iv become political in my old age 2024 is a new year , another general election 13 years of Tory hell Under labour things were better Although I dont like Kier Starmer the new Labour leader Every one thinks he will win the election this year He's nothing like Jeremy Corbyn But what if things did get better after 13 years of Tory hell Dare I dream Dare I hope Or am I being foolish So many things need put right The NHS , benefits and crime Let's see shall we..

Beautiful cosy comfy luxury blanket😊

Because of you I bought it for my chronic fatigue ill sister who loves it

Can you please show how did u attach them all together ?

~~❊💚❊~~

Same bestie

Hi Miranda, I've notice you have not posted in awhile, I pray you are okay and getting over a bad patch. Stay strong , miss seeing you!

I do it while laying down getting ready to sleep, as well. It’s like a twisted form of soothing for me. It’s so weird. And when I finally thought to type it into the CZcams search bar and found so many videos on it like yours, it really helped me feel less alone in this. I’ve known or seen TONS of people who bite their nails with varying degrees of severity. But I’ve NEVER known or seen anyone in real life with what I suffer from AKA this. It’s so embarrassing and because I’ve never seen anyone in real life, it made me feel so alone & most importantly SO GROSS. I hate using my hands to pass off cash with a cashier/customer or give or receive change… that’s one of the number one things that give me SO MUCH anxiety because I feel those sorts of actions with a person makes them automatically zone into your hands/fingers from both sides of the encounter. I hate typing in my debit card number or typing anything on a touch screen in front of people because of the exposed feeling I get when they’re watching me. My best friend told me that while yes, if people are around me in real life, they do tend to notice my damaged fingers, BUT they’re not focusing in on them half as bad as I imagine they are. I guess it’s just the shame that makes me believe everyone is just intensely STARING at my hands/fingers. Her words made me feel a bit better, but it definitely didn’t stop me from still having so much anxiety and at this point full on PANIC because of the belief people are silently judging me. It’s kept me in the house, more and more throughout the years. I’ve noticed I have became more and more withdrawn and seclusive due to a lot of worsening mental health symptoms but this is one that really sticks out. My irrational belief that everyone is judging my hands has held me back from so much.

This is what my fingers look like on a highly regular basis and it fills me with so much shame. Yet, I just cannot stop. It’s super satisfying and gratifying when I do it. Even when I bleed and cause myself so much pain that I can’t even bend my fingers. The skin can’t even stretch like normal when I bend them so it HURTS so badly. Yet…. I keep fucking doing it. I just wish I could stop.

Same i eat my finger 😭😭

Happy new year mirianda and Nigel wishing you both good health happiness and luck . Missing your videos I keep checking daily for new ones How is nigels dad how is your carer how are you How's life treating you both xx

Hello. Thank you for this review. Can you sleep with them? I'm a side sleeper, so my ears will need to be comfortable if they're going to stay in while sleeping.

I have Gilbert’s……..my bilirubin is high, how are you helping yourself now?

very interesting

I file my skin even and then I wash and apply cortisoid cream it helps

For me I seem to have several reasons why I do this. Either because I’m nervous, the dead skin bothers me because it feels like an imperfection and I feel like I need to peel it off, or I’m hungry/snacking but I either have nothing to eat or don’t need the extra calories. For awhile, I vaped as a substitute for the oral fixation part of it and it worked for awhile. Putting on pretty nails also kinda helped because I wanted my hands to look nice, so I tried to stop when I looked at them.

Used to do this really badly on my hands… but incredibly bad on my feet. I’d literally take razors and scissors to my heel, and slice away the skin. I stopped a while back… but noticed that I’ve been slipping back into that habit… ive got blood dripping from all my nails (fingers and toes).

~~❊💚❊~~

Just thought you should know... the increased concentration of unconjugated bilirubin can cross the blood-brain barrier (and deposit into the basal ganglia or cerebellum) and causes a encephalopathy. Aka - high unconjugated bilirubin CAN cause a migraine and fatigue.

wow! It has turned out beautiful !

Its great

Hey there, thank you for the video 🙏🏼 May I ask if when you first charged your phomemo m02 pro, the slow flashing white light continued throughout the whole charge period? I have purchased two units. and with both (using two separate leads), they flash for 5 minutes or so, and then the charging seems to stop 🥺 Would appreciate any reply of your experience, thank you so much 🙏🏼

Merry Christmas miranda and nigel all the very best for 2024🎉 xxxx

This is cool!

Clever idea. Just what you need this winter.

It is a type of an OCD called dermatophagia. I have that too and I can't stop myself from doing it

I read that as pornporn blanket ;-)

A great idea

What a stunning achievement, I am blown away. Well done Amanda, you should be totally proud of yourself. It just goes to show with grit and determination we can achieve things, even if it takes longer. Bless you xx

Such an achievement... and such dedication to craft. Well done. 😊

I would not recommend any book . I would not recommend any doctor , I would not recommend repeating mis information. There's seems to be a total lack of knowledge of the history of m.e .....When it was defined back in the 60s . ( About 10 years after it went wild in the UK . And a few years after it was released . At that time the who recognised it as a organic infection of the hyperthalamus which is why it has its name which is a medical definition. So that's the start of that. Now CFS which does not exist ....as no condition is explained by it's symptoms. You have to have a causation . That was invented in 87/88. For use in denying claims of illness for insurance purposes from where all the misinformation etc dominated from . The USA. The Who , whom are at best incompetent have changed it's explanation whilst avoiding explanation by wastes basketing this illness into ,metal health . Where it most certainly did not and dies not belong . Why every man and his dog including so called health professionals are totally ignorant of this .I put down to a general idiotic stupidity and ignorance. Both terms are now firmly placed in the psychologicsl whilst having no explanation of same and no explanation of why the who have buggered about with the definitions for 60years. That's because it's all incorrect. But has a culpable causation. Complicated by two countries being involved. How docs call em what you will have no training in either terms. CFS dies not exist so how could they . And their ignorance has lumped the two very different realities together. Placing all pins and blame on the sufferers. 95% of everything on the net is generic film flam . Mis information and just plane daft. Thus CFS you've been thrown into a mental health bucket because you are not well and no one has bothered to try to diagnose you in any effective manner. M.E is what it says on the tin that's why it defines itself. It is a serious man made auto immune illness. The most problematic illnesses on the planet are those man made for that's their purpose. Thus evade simple evaluation and everything else that follows. Cancer is an auto immune illness but by comparison to M.e fairly insignificant. Now there are cures for cancer by way of treatments in both the au natural and by chemical cack. Now let's say you have cancer . Thus you will be attended to as you would expect. A cure or death , not much in-between . Whereas m.e is an auto immune illness that has a barrage of difficult to decipher satellite issues. There is a very simple reason for that. And that because of the point of infection. Thus it shares all the base auto immune problems but then adds to that ......with a myriad of none shareable issues. Thus it has oxidative stress, it creates an immune response that goes on 24 7...it results in wrong exhaust gases in the blood (foggy thinking ). Oxidative stress then causes in turn the disruption to glucose production via the mitochondria. So you have a body without oxygen ....and without glucose. And the immune response causes inflammation which causes pain anywhere you have blood. Hyperthyroidism is a commonality as a result of these and so to pots. Now these are some of the shared issues , all sufferers will have . But because of the infection being in the hyperthalamus , you then have a dysfunctional hyperthalamus.....which controls the bodies homeostasis. (The way the body should balance and function correctly). Dependent on patient history ancpoknt of infection and time with the illness there will be lots of none shared issues. Now this is the main cause of confusion ....as subjective folk which seems to be just about everyone theses days , think they can compare their isdues with someone suffering from the exact same illness. Plus you have to remember they can't think straight anyway for they have nitrogen gases where they should have carbon dioxide as a waste product for the continual immune response. Because everyone out there spreads mis information disinformation and generic garbage even bright folk could get lost in the barrage of duff info. Thus the biggest problem is totally incorrect info confusing an illness for two illnesses. No information on how to cope with either one in a coherent way . Lots of so called inform folk throwing darts at a dartboard guessing what day it is. Anyone using the duality of terms is an idiot and further complicating what is already complicated by false information a plenty. M.e does not go away ...it has to be treated an that's not complicated either. No one is told the right information so folk get worse and stay that way for decades in no man's land.....and are surrounded by no help or bad help. They don't die quickly they just waste away. Oh yes sleep. Folk with m.e do not sleep. What they do is pass out from exhaustion .....that's why when they become conscious they are not recovered they are often worse than when they thought they fell asleep. Because the immune response does not sleep. That's possibly a very good sign that's what you have if that happens to you. CFS has to be the most ridiculous none medical term ever thought up.... Now I am not saying these folk are not ill.....I'm saying there is no such illness as CFS . For it has no reason .....you wouldn't have bruised leg syndrome if you broke your leg would you , you'd have a broken leg .....which is the cause. Thus you must have a cause and CFS is not a cause of any kind is it ...do it's generic shite isn't it. If you had a bad curry you wouldn't have shitty arse syndrome would you , know you'd have food poisoning or some other such causation.. . Think about these bits of mis information we are surrounded by more and more misinformation . Right I've got heavy eye syndrome ....so I'm off . Ive also got chronic I don't believe it syndrome, syndrome. And I got big feet syndrome...are you getting the idea now !!!!😂

Love this and it looks so good! Well done!

This is lovely. I must look for one.

Amazing, I am such a lover of water, especially the sea. This looks incredibly relaxing and beautiful. Would be good for me as I am always stressed and might help my chronic sleep problems and of course try and help my body relax for healing. I've had ME since 1989 aged 14, then got more conditions along the way. Life can be tough, but its often these small things which we appreciate most. xx

I wasn't toasty warm on that day ;-)

Love them so cute. I love the tiny square one. You must to cosy with your pom pom blanket too.

Have had both depression and ME - completely different conditions. Depression is in the brain, ME is definitely in the body, with an organic cause. Now, I have ME without being depressed. If ME were psychological in origin, I'd be overjoyed! Then I could get therapy or meds which would get rid of it! But alas... Seems when people can't explain something, they deny, misdiagnose, or just fob it off. It's pathetic ignorance really. The psychiatric community are part of the problem - wanting to stay relevant by producing faulty research. I don't deny CBT might have some benefit (at least with coping with symptoms), but labelling it psychological in origin is just plain wrong.

Hi Miranda, have followed you for a bit now, from Australia and I am 30 and have mild-moderate CFS, with odd episodes of severe when I get a virus (which is often - my immune system is screwed). I found you when I was bedridden and at my worst. I'm sorry to see you like this, and I hope you will improve one day - even going from bedbound to housebound would make a world of difference. I think you''re making the most of a tough situation, and you and Nigel are good for one another. It isn't easy, and we suffer and get misunderstood. Like you, I work/ed in education, and recently stopped full-time and went to relief teaching, as I just couldn't manage it in the end. You aren't alone and there are people around the world who get you and your struggle :) You have every right to complain! It's a sucky condition and robs us of a lot. But we find a way to exist. Hope you find joy in the small things, and don't give up hope. Keep going :)

What a great idea. We need everything to hand don't we. So energy saving. 😊

I understand the feeling I like it because there's no people I loved the pandemic and lockdowns and isolation because I could get away from people I miss that time..