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Pain meds are notorious for nausea and constipation! Ask your doctor for PROMETHAZINE for nausea - not the ondansetron they try to push nowadays, which isn't even effective on me. Then, I would take an OTC STOOL SOFTENER (100mg DOCUSATE SODIUM) - I recommend 3 soft gels per day - and an OTC GAS RELIEVER (high-strength SIMETHICONE) - I recommend 2-3 soft gels per day. These OTC products WORK. Both are found near the laxatives. However, stool softeners are NOT laxatives, so they will not cause GI muscle contractions, and GI docs have told me stool softeners are safe to take for an extended period or long-term, unlike laxatives which often should only be taken for 3 days. I highly recommend taking the stool softeners proactively, perhaps even a week or two before surgery, to keep your stool soft (smooth snake) ahead of time. I take a medication that causes severe constipation, so I've been taking stool softeners daily for years without ill effects. I have not had my gallbladder removed yet, so I also take gas relievers daily due to my chronic indigestion-related bloat. And I have a prescription for promethazine to take as needed, and it is the ONLY thing that helps SERIOUS nausea - something that folks with gallbladder issues understand. I did have general surgery with deep tissue sutures for a pilonidal cyst excision (in the butt crack), so I know the importance of not straining after surgery, whether due to constipation or vomiting.

I really wish i could knee highs!! 😫 unfortunately the blood just pools in my thighs so I have to wear full on pantyhose! They’re a PAINNN to put on! Ty for the fun review!! My go to is Sigvaris & Juzo Soft

OMG!!! Most of what you talked about happens to me. But I can’t convince my dr to check for this or even consider that maybe I have it. I do have fibromyalgia and she just changed my medication for it starting that that’s all I needed, but my symptoms are still there. What else can I do. I work in the school system and I’m afraid I’m going to get lightheaded in front of the kids and scare them. I’m at a loss. Help!!

Putting a dish rack over the sink to eliminate reaching into the sink is key. Mystery solved reaching into it is the heart of all evil.

I love cheese and dairy. Currently on beef eggs butter diet. Been on aagain and off again coz beef is just boring. Sometimes I'd sneak in cheese and milk. But legs feel sore and swollen. So I'm trying to stick to the diet. Knee meniscus tear, chronic pain and swelling. All gone. And bonus lost 2 dress sizes

The problem is that the doctors place a HUGE stigma on the patient when it is emotionally based. Diagnoses like somatic or conversion disorder can abruptly stop doctors from continuing care. I was just in the hospital for a gastroparesis flare from hEDS, and discharged me early, even though i was still dehydrated and vomting just because they said it was all psychiatric. The newer diagnoses for emotioanally based illnesses is FUNCTIONAL NEUROLOGIGAL DISORDER. It is a cousin of conversion disorder, however it is so much more advanced in it's thinking and is also supposed to reduce the stigma. Unfortunately, not many drs have heard of FND and the stigma remains. Keep on advocating and educate these ignorant drs and fight to break the stigma.

New channel to me. Very helpful. You’re amazing. New subscriber.

Do you have a sleep help video. Insomnia is terrible. Thanks

Very similar story. Multiple cardiologists, every specialist under the sun. Finally went to an EP and went in and said "I'm not coming back if you don't confirm POTS/dysautonomia". He appreciated the confidence in that I guess, but still "doubted" it was that because I was a guy. TTT 2 weeks later - confirmed.

Canceling events has been something so expected by my family. I'm not in any family pictures for the last 30 yrs, and the worst part is missing all of my son's major life events. I even was busy laying in the hospital, intubated, during his wedding and now he and his wife are having a baby shower in 3 weeks. I am in a major flare right now, so weak...I know it's going to probably be another missed event. So frustrating!!!

This makes me feel so much better. Today I went to go get my son a few back-to-school clothes and was struggling with my POTS. It was very hard for me to keep my arms elevated to grab clothes that were up higher because I start to feel sick, and my arms get fatigued. I ended up leaving and not getting everything I needed. I was so upset. It does seem like when you're out everybody else seems fine and you are the only one struggling. Thank you so much for this, it came at the perfect time!

How common is brain fog in here? I write for a living and I have to read the previous paragraph constantly to keep track of the narrative. That's just a tad annoying.

Cards for everyone. Wow. That's a lot of love. Is the one on the other side of the world perhaps for South Africa?

I guess I'm lucky. I only started getting sick at 37. It's been 6 years. I never appreciated my health, and I'm contrite about that.

The way you've learned to advocate for yourself - that's so cool! I've only learned to do that in the past few years, and it's eventually brought me a huge improvement in life quality

I just don't tell them. Like they will say something like 'You're walking better today!' and all I'll do is nod and shrug because they see me first thing in the morning. Wait two hours and I won't be able to move my toes people.

I tell people that sometimes I am doing better and sometimes I am doing worse. That things are better for a while then worse for a while and I never know how I will feel.

I could never tell my parents, when i was sick, that i feel better. Cause a lot of the times i wasn't better i just FEEL better. For a bit. Then it'll get worse and they'll be like 'oh you attention seeker'

I just say I'm having a good day/week.

Were people seriously suggesting you put your toddlers on a diet? What on earth is wrong with them?

Anyone who tries the carnivore diet should do it like you did, Aimee -- with a doctor supervising them, and the proper blood tests.

On a dating app again and I just don’t want to tell them abt any of this.

Yesssss. 1000000%. I do everything I can to avoid talking about it at all these days. So many people just can’t seem to wrap their heads around the “chronic” part. Some days are better than others, but I’m ALWAYS in some degree of pain and it NEVER fully goes away.

I *love* the change to your videos. Your older videos felt overly chipper to me, like you were only allowing yourself to show up when you were feeling positive and hopeful. I felt a bit of a toxic positivity vibe there... which is why I love your more recent style so much more. You come off as very honest and real. You admit that things sometimes suck. Thank you for letting us in on your journey 🤗

As someone with multiple auto immune diseases as well as neurological I like to say noone can hurt me as much as I can 😂

I tend to say "I'm handling it okay today" for me the pain is kinda irrelevant. Some days I just have higher or lower tolerance or endurance for it.

You could always phrase it as "today is a better day." It could be that your "better day" gets to last for several days, weeks, months, or even years, but your normal is still very different from someone without chronic pain/illness, so if it is not a better day, you could phrase it as "today is a normal day" and if you are having a worse time of it than usual, it would be "today is, unfortunately, a worse day." You could also use good or bad in place of better or worse, respectively. Because from the people i know with chronic pain/illness (my bff's mom is in renal failure and has been for years as well as has fibromyalgia as the closest and most extreme example i have), what you are physically willing AND able to do can completely depend on whether you are having a normal, better/good, or worse/bad day... and how much you may have accidentally overworked yourself on your last better/good day😅🤦‍♀️(bffs mom always overworks herself on her better days because she feels sooo accomplished getting things done...then regrets it the next day due to soreness where she isn't usually sore😅)

Hey Aimee! Nice contetnet thank you for sharing. How do you feel years after after your gallbladder was removed? Any side effects from the surgery or complications? Any diet or food restrictions? Thank you

Yes, I usually just say today is a good day and redirect the conversation.

Yep! For exactly all of that! Also, people asking/ saying I hope you're feeling better now. I get that people are trying to say something nice, and probably relying a little bit on stock responses they go to when people are unwell............... But it does almost imply there's an end to being ill in sight. Again, the majority of the time, that's usually the case, but not with long-term/ lifelong illnesses. It can be difficult when you have a better, unspecified, amount of time or a slightly better day or you can walk a little better etc, especially with illnesses that fluctuate. Our progress looks a lot different

Oh yes this is most definitely the case for me too. I always feel a little bit apprehensive saying anything. I tend to answer short and then quickly redirect the conversation back to them 😂

Not related, but those nails look very pretty on you ❤

Hope? No. You need to demand your health back!

I know this is a weird question but how do yoy get pots

Yes, the thought you expressed is a thing - it should have its own Latin name. Cheers 😀

What an amazing way to show how much they care x ❤️

I never tell people I’m better. I might say I’m having a good moment.

Absolutely YES!

100 % Agree I say things like today is less painful.

Yes

Yes!!!!

I don't usually get a whole day...so

YES!!!!

Went to the kitchen to clean a cup, now I’m looking up videos trying to ease the fact I feel like I’m DYING

hi everyone. Stay strong. ur stories are amazing and you guys are strong. i dont have pots, im here because my friend have pots and i had never heard of it so i came to see what it was. Im so proud of yalls strenght

I’m 73 and have multiple chronic issues, and I stayed til the end. Just wanted to let you know! I’m blessed to have found you! Hugs! 🤗

Look up Dr Paul Salintino carnivore

It winds me up how so many people are like 'if a person has a lot of health issues/conditions they must be lying/faking, etc' with absolutely no understanding that it's actually probably more likely for someone to have multiple things going on with their body if they have a disability or chronic illness, than it is to just have one chronic health condition and otherwise be completely healthy. Even medical professionals tend to often be quite bad at bearing in mind that the fact the the patient doesn't perfectly fit a diagnosis could be due to them having more than one issue interacting with eachother rather than 'it must just be anxiety (or other mental health issues) or attention/drug seeking'! So many people have stories of being dismissed or refused a diagnosis, or even further testing, because their symptoms seem too vague, or contradictory, or almost fit a condition but not quite so the Dr assumes they must have just been looking things up on the internet rather than accurately presenting their symptoms or something similar. It's one example of how even services that exist specifically for health often still work on the assumption of a generally healthy person who is temporarily unwell with a fairly common and treatable condition, and often does not function in a way that serves or is easily accessible to those with more chronic or complex health situations or permanent conditions

Please be you and not focus on everyone’s comments and unhelpful advice. That is why it stinks to have a chronic illness. Everyone thinks they have the cure and know it all. We invest tons of money and nothing works. Your friends reach out to you with their current MLM product. 🙄 Things may work temporarily but then it doesn’t and you are told it is detox. I’m not convinced of that. I do feel that naturopaths blame everything on parasites and/or Lymes. 😫