me vs me
me vs me
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Video

The problem with profit in medicine - Moving Forwards
zhlédnutí 5KPřed 8 lety
Chronic health problems are on the rise, this should not be the case in a progressive society Now is the time for change
Lyme Awareness Month
zhlédnutí 5KPřed 8 lety
This is a video for every lyme patient, every M.E. patient, every doctor, lyme specialist, scientist, and loved ones of people suffering Please watch to the end, this is really important to me. More needs to be done. It will only happen if we make it happen The current CDC and NHS stance is that lyme bacteria most likely cannot persist once treated with antibiotics, and that all the testing is ...
Living with M.E. - My life with CFS blog - july 2015
zhlédnutí 5KPřed 9 lety
Living with M.E. - My life with CFS blog - july 2015
Living with M.E. - My life with CFS blog - May 2015 video update
zhlédnutí 2,6KPřed 9 lety
Living with M.E. - My life with CFS blog - May 2015 video update
Living with M.E. - My life with CFS blog - feburary 2015 Help
zhlédnutí 31KPřed 9 lety
Living with M.E. - My life with CFS blog - feburary 2015 Help
Living with M.E. - My life with CFS blog- week 10
zhlédnutí 1,9KPřed 9 lety
Living with M.E. - My life with CFS blog- week 10
Living with M.E. - My life with CFS blog- Week 6
zhlédnutí 2,4KPřed 10 lety
Living with M.E. - My life with CFS blog- Week 6
Living with M.E. - My life with CFS blog - week 4
zhlédnutí 5KPřed 10 lety
If your interested in buying my music to help me with private medical tests and treatments for M.E. the page that you can do so is here - www.gofundme.com/13xkiw If you want to follow my blog on face book or catch up for a chat you can do so here - mevsmeblog
Living with M.E. - My life with CFS blog - Week 3
zhlédnutí 2,6KPřed 10 lety
If your interested in buying my music to help me with private medical tests and treatments for M.E. the page that you can do so is here - www.gofundme.com/13xkiw If you want to follow my blog on facebook or catch up for a chat you can do so here - mevsmeblog
Living with M.E. - My life with CFS blog - Day 6 & 7
zhlédnutí 2,3KPřed 10 lety
If your interested in buying my music to help me with private medical tests and treatments for M.E. the page that you can do so is here - www.gofundme.com/13xkiw If you want to follow my blog on facebook or catch up for a chat you can do so here - mevsmeblog
Living with M.E. - My life with CFS blog - Day 3 & 4
zhlédnutí 2,1KPřed 10 lety
If your interested in buying my music to help me with private medical tests and treatments for M.E. the page that you can do so is here - www.gofundme.com/13xkiw If you want to follow my blog on facebook or catch up for a chat you can do so here - mevsmeblog
Living with M.E. - My life with CFS blog - DAY 1 AND 2
zhlédnutí 3,8KPřed 10 lety
My 60 day mission to try and cure myself of ME, IBS and Bipolar Disorder through diet Days 1 and 2 mevsmeblog

Komentáře

  • @JustdriftingbyBeth
    @JustdriftingbyBeth Před 8 dny

    Sadly still spot on and imho worse today! Keep sharing your wise words .... too many of us doing DIY medicine looking for root causes as we decline these money making side effect causing prescriptions !

  • @AgnesPerditaX
    @AgnesPerditaX Před 23 dny

    It is quite excruciating to see that he actually talked about ruling out that bloody Lyme disease - just some 5 months before finally finding out that it was exactly what he had had all the time...

  • @Spiritual_pictures
    @Spiritual_pictures Před 24 dny

    You are so beautiful. ❤

  • @Spiritual_pictures
    @Spiritual_pictures Před 28 dny

  • @Spiritual_pictures
    @Spiritual_pictures Před 29 dny

  • @Spiritual_pictures
    @Spiritual_pictures Před 29 dny

  • @Spiritual_pictures
    @Spiritual_pictures Před 29 dny

  • @meganroyer2822
    @meganroyer2822 Před měsícem

    Okay it's 😔💔

  • @Spiritual_pictures
    @Spiritual_pictures Před měsícem

  • @Spiritual_pictures
    @Spiritual_pictures Před měsícem

  • @Spiritual_pictures
    @Spiritual_pictures Před měsícem

  • @lairx
    @lairx Před měsícem

    💯👍🙏

  • @iamlpinthe312
    @iamlpinthe312 Před 2 měsíci

    Did you ever think that you’d become such a beacon of hope for a community made up of 1M+ people, from all walks of life, all ages, from literally all around the world, and… BONE BROTH IS #trending lo.😂. You, even though going through literal hell, still manage to put a smile on other people’s faces. And at such a young age … turning into your mum with the soup vat and concurrently into a dad with the dad jokes. YOU ARE A PRICELESS GIFT TO SO MANY OF US. AND WE FUCKING LOVE YOU!

  • @bethellen1962
    @bethellen1962 Před 2 měsíci

    You are the mountain and the lion. I wish I had a Time Machine so I could go back and show this beautiful child (you look 12) what he has come to mean to so many. Thank you for letting the stars that shine in you shine on all of us. Your talent is MASSIVE, but your gorgeous soul is what knocks people on their ass, it shines through every smile and every tear you show us. Thank you for giving us all permission to be vulnerable. Thank you for shining a light on the things that need to change in our world, and thank you for not being just another self-serving ‘brand.’ And best of all thank for being a real human being. From an old human to a young one.🙏

  • @BirgittHGer
    @BirgittHGer Před 2 měsíci

    Already liked, subscribed - now a little comment for the algorithm! May 2024 month of awareness! 👏👍🤝🙋‍♀️

  • @lisadavenport2390
    @lisadavenport2390 Před 2 měsíci

    And here we are in 2024 and it’s the same story and I’m still in bed and still suffering for 30 yrs. Now I’m in this phase of getting multiple infections and can’t get out of bed tho I’ve been treated w every antibiotic Known I believe. I pray for you Ren . I pray for all who suffer including myself 🦠💚

  • @lisadavenport2390
    @lisadavenport2390 Před 2 měsíci

    Yes and yes 🙌 and yes 🙌 It is pure hell - ty ty ty @RenMakesMusic - This is my life and near death over and over - by the grace of God am I even here. 🦠💚🦠💚

  • @FreckledAngelz
    @FreckledAngelz Před 2 měsíci

    ❤ Nam Myoho Renge Kyo did have some comfort, didn’t it? As does Namaste, on to one more day

  • @Phoenix_flying
    @Phoenix_flying Před 2 měsíci

    This is heartbreaking witnessing this beautiful soul suffering so profoundly. He bares his self to us all. It makes my heart even happier in seeing Ren healthier and touching so many lives.

  • @SofM8920
    @SofM8920 Před 2 měsíci

    "truth is less important than the money that we designed?" "We could build utopia's if individuas were taught to use their brains"

  • @WAITINGFORTHEWORLDTOCATCHUP

    Listening to you describe how hopeful you get and determined you are to reach the top of the barrel only to get knocked back down…I was diagnosed with Fibromyalgia & I spent 15 years on meds & one day said no more. Idk if that is relevant to the fact that I also experience life in that regard. I have always been the happy, outgoing, strong person that people enjoyed, until I ended up losing faith in myself. I simply couldn’t understand how I was constantly getting shoved back into the barrel even tho I did everything I could to be a good person & do things right it never mattered, the result was always the same. Today the only thing that is different is the severity of losing hope after so many positive hopeful attempts. So many things I’ve wanted to be a voice for to help others only to wind up isolating myself and wishing I mattered to someone bc the feeling of being alone and never good enough is really crippling. Even tho I know how amazing I am and how beneficial of a person I could be to others, I can’t get up the courage to climb to the top again. So I stay at the bottom & hope for my days to pass quickly so that I don’t have to stay in the dark alone anymore. My voice has always been a whisper in the grand arena of screams. As I continued on for so long never being protected I realized that my idea of a God keeping me safe and loved was only a way to have control over individuals while those that tell us are fighting one another for all the riches we feeble watch them collect from the sidelines of fear.

    • @WAITINGFORTHEWORLDTOCATCHUP
      @WAITINGFORTHEWORLDTOCATCHUP Před 2 měsíci

      I use odd names on the social platforms bc in the off chance that my name is recognized, I don’t want to admit to the suffering bc I don’t feel that I have the right to complain. In addition to the fact that I don’t want people to know how defeated & depressed I can be. Maybe I’m not as real as I believe I am since I’m faking my happiness. Although when I’m really down-I’m never in public bc I can’t bring myself to get out of bed. So is it really fake, or just disguised. The amount of love I have for the human race is not a healthy trait when the human race is as poisonous as it is. I do know there are some that aren’t, but I’ve not been lucky enough in my lifetime to find them. So I keep my distance and find solace in a hidden identity behind the keyboard. What a waste of a beautiful person inside & out. Doesn’t seem right. 💁‍♀️

  • @Becsbeasties
    @Becsbeasties Před 3 měsíci

    Because its all down to Money, drug companies control our medical development!

  • @Becsbeasties
    @Becsbeasties Před 3 měsíci

    Its makes me sad 😢 watching this now, and what you put yourself through and knowing that you was just failed for soo long 😢

  • @Becsbeasties
    @Becsbeasties Před 3 měsíci

    Following your back story, and after years of living with CFS, plus other conditions. I know exactly how it feels,

  • @perceptionsofreality
    @perceptionsofreality Před 3 měsíci

    This was such an important message. I live in NY and I have a son with Down syndrome. When he was 4, he became extremely sensitive and anxious when around spinning fans, elevators, wipers and other things. It got to a point where he refused to eat in a room that had a ceiling fan. I brought him to a neurologist to look for answers. We waited for over a 1/2 hour in the waiting room and I was able to entertain him with books and toys they had in the room. Once we saw the doctor, she spent about a 1/2 hour asking me questions confirming answers that I had already filled out in the questionnaire. Because I wasn't paying attention to him and there were shiny dangling objects in the room, my son became restless and could no longer keep still. She examined him for about 5 minutes and pointed out features he had related to Down syndrome. She seemed overly focused on those features and dismissive when he answered some of her questions correctly (e.g. colors, animals, body parts, etc.). Next she stated that he was too young to be diagnosed with ADHD, but she recommended treating him for it. She told me to choose between clonidine or risperdal because "we have to slow him down". And to expect severe weight gain as a side effect. She never explained what caused the issues I originally went there for, so I pushed to see if there were any other options before putting him on medication. After pressing her for answers, she blurted "Don't you want to make your life easier?" No, that was not why I was there. I wanted to help my son get better, not turn him into a zombie to make my life easier. I'm not against treating ADHD with proper medication, but this did not seem right and I lost trust in this doctor's intention to actually help my son. Sadly, we all need to question more, because doctors aren't necessarily trying to help us get better. Some are just trying to just mask symptoms so that patients are easier to deal with. And, yes, there are profit motives for prescribing medications before exploring other options. My son is in his teens right now I'm glad he is not on any meds and is doing pretty well right now. Just goes to show you the suggested drugs would have caused more harm to him than good.

  • @sonjavanderwalt5417
    @sonjavanderwalt5417 Před 4 měsíci

    I appreciate this so much every single time .... Thank you, young Ren .... Older Ren is saying ... You got this! 🪽🤍🪽

  • @jillie4444
    @jillie4444 Před 5 měsíci

    Watching this, having just turned 23 and this age marking 10 years of struggling with chronic nausea everyday with the doctors not knowing what's wrong with me, i do feel hope. I just really feel what ren is saying in this video. Countless tests. Medications. Drs visits. I missed out on so many of my teenage years because of whatever is wrong with me. I just hope i start to get better soon. I would love to meet ren and just tell him how much his music means to me.

  • @Dragonartykay
    @Dragonartykay Před 5 měsíci

    I have twin 24year old both with complex needs and disabilities. I have so much empathy with REN both in the past and his present. Thankfully we know it gets better for you Ren and that by making this video it is the catalyst for change. 😘😘😘😘

  • @aimeemcguire2681
    @aimeemcguire2681 Před 6 měsíci

    I need this song on replay through hard times. Please release this song in a full version or if it has been please tell me where to download it load it.

    • @PeteFindsObscureStuff
      @PeteFindsObscureStuff Před 5 měsíci

      The song is called Patience and a full version is available on the soundtrack to the movie 'Unrest' by Ren Gill & Bear McCreary. It's on most streaming platforms!

  • @bas3374
    @bas3374 Před 6 měsíci

    Ich hoffe auch sehr für dich. Ich habe es auch, Gruß aus Deutschland. Es kann besser werden. ❤️👍

  • @leanagott8256
    @leanagott8256 Před 6 měsíci

    "explicit" 😂

  • @ramonacooper2283
    @ramonacooper2283 Před 6 měsíci

    Money Game 3 👏🏽👏🏽

  • @sunshinerainbows3759
    @sunshinerainbows3759 Před 7 měsíci

    This makes me think of the poor man’s delicacy here in Canada “wiener water soup”. Never had it myself, but I hear it’s the best in the world of disgusting.

  • @Min-mo3kh
    @Min-mo3kh Před 7 měsíci

    I don’t know of ME same as fibromyalgia but if you want to feel better take these three supplements 1. Palmotoylethanolamide (PEA) for body aches every 6-8 hours. 300mg 2. 5-htp two times a day morning and before bed 50mg-100mg this is antidepressants. 3. Melatonin 3mg before bed. And for energy D-Ribose , this will raise blood sugar. All start working after two weeks. Hope you feel better soon. 🇦🇪 🙏🏼

  • @MoreKellBellPlease
    @MoreKellBellPlease Před 8 měsíci

    I love that you made it through this rough spot. You got this, Ren!

  • @belgand5555
    @belgand5555 Před 8 měsíci

    Thank you Ren.. I’m so sorry you suffered so much to be here but it wasn’t in vain.. you are making lives better one at a time with your talent.. thank you!🎶♥️🎶x

  • @lukerowlands6120
    @lukerowlands6120 Před 8 měsíci

    There is no cure for ADHD, and until we've reached the stage where we are comfortable with genetic engineering of live human beings, there won't be a cure. ADHD is a neurodevelopmental condition, that is inherited and therefore genetic. ADHD is something that can be seen on CT scans of a person's brain; a genetically inherited deformation of the basal ganglia and caudate putamen. ADHDers make up 4% of the worldwide population. Interestingly, the UK is in an opposing situation when compared with the USA. 6% of the US population have been diagnosed and treated - arguably too many. Whereas, in the UK, 85% of the ADHD population remain undiagnosed and untreated. The risks to an ADHDer of not being diagnosed and treated are staggering and include increased rates of homelessness, incarceration, suicide, poverty and mortality. ADHDers have dodgy dopamine receptor sites - and therefore have a huge range of debilitating symptoms that come with not having enough dopamine available. For this reason, dopamine reuptake inhibitors aka stimulants, are the first line treatment for ADHD. They've been used for 70+ years and have a wealth of research backing their use. Some, but not all, of these stimulant medications are outside of exclusive patents and licensing and are therefore produced competitively and cheaply by many different pharmaceutical companies. The profit on them is therefore minimal, when compared with drugs that are in patent, and can be marked up as a monopoly. I love your art Ren. You have a bold, confident and refreshing take on society at large. The money game is a beautiful expression of the folly of capitalism. But, in this individual case, you're contributing to the stigma that ADHDers face on a day to day basis from society. ADHD is a broad spectrum, and not all ADHDers will require medication in order to find ways in which to function. But, respectfully, you are ignorant of the real situation backed up by tonnes of research and so many people's lived experiences. I speak both as a moderator over at the ADHDUK subreddit, as someone who's worked in healthcare and as someone who has ADHD themselves and was diagnosed way too late. Pharmaceutical companies have the capability of being utter cunts. Just look at the opioid crisis unfolding in the USA. I agree with what you're trying to say as a generalism. But please keep in mind, that not all drugs are evil profit machines and should be looked at with individual awareness. Perhaps, you might want to look at ADHD a little closer to see how, like for a deaf person, medication for an ADHDer can be akin to hearing aids. Having them fitted doesn't mean you aren't deaf and that you won't still have to put in the extra work on speech therapy. But those hearing aids can now enable you to start putting in the right systems in place in your life and generally begin to try and catch up. Medication can be like that for so many desperate ADHD souls. Have a browse of our community over on reddit, r/ADHDUK, and read some of peoples lived experiences and you'll see why I've written this post in the vague hope you might read this and consider championing those of us who need medication to function rather than furthering the stigma.

    • @LadyGX
      @LadyGX Před 7 měsíci

      Wow, you seem really defensive. Ren was not saying that medication isn't useful and sometimes needed for ADHD Nor was he saying that there was a cure, he was saying that the diagnostic process isn't thorough enough and doctors turn to drugs first and fast, before exploring other under lying causes and possible therapies leading to the over prescribing of children. I don't know if you knew this, but Ren has been diagnosed with pretty severe ADHD. He mentions it frequently and has said that he sometimes takes Adderall for it. He is not anti-drugs, but pro patient. I have a question for you, though. I have suspected that I have ADHD for years, but feel like the diagnostic procedure of filling out a questionnaire is too subjective and relies too heavily on self analysis. My question is, if ADHD can be seen on a CT scan, why isn't that the diagnostic standard? Why not rely on objective tests to determine whether one would benefit from medication? Seems like that would end the debate over diagnosis rates. I would definitely feel more comfortable with a more objective diagnosis.

  • @marymeister1554
    @marymeister1554 Před 9 měsíci

    That's the reason why my mentally disabled daughter doesn't get treatment in Germany: she's not system-relevant because she's not productive. Thanks for your video and thanks, Ren - you have the perspective. If only others saw it the same way. Saves this video before it is deleted.

  • @daniellewong5058
    @daniellewong5058 Před 9 měsíci

    I am happy you are still here. Your messages are powerful.❤

  • @jmar8507
    @jmar8507 Před 9 měsíci

    I've had ME for a long, long time. I understand. Thanks for not giving up. Praying for us all and for the researchers to find the answer soon.

  • @Jay-br9ee
    @Jay-br9ee Před 9 měsíci

    Wow!! So very powerful. My man Ren is a profit!

  • @lostcomicjunkie2724
    @lostcomicjunkie2724 Před 9 měsíci

    Wicked. Nailed it. I feel ya Brotha. Been in the healthcare game since I was a month old. If my parents were Spartans, I wouldn't be here. Then I decided to get into medicine after being a constant patient. All I want to do is help people. 17 years and the burnout is real. I'm going to retire at 50. But I'll still be a patient patiently waiting for help. Keep it real Brotha! Thank you. You changed me. For the better.

  • @lewisbarham
    @lewisbarham Před 9 měsíci

    Get a myctoxin test bud. You might be suffering mould toxicity like me.

  • @elizabethcox1553
    @elizabethcox1553 Před 9 měsíci

    Yes Ren , spot on x

  • @sputukgmail
    @sputukgmail Před 9 měsíci

    “Quick fix, snake oil” … “take another pill, here, take a couple more. Let’s see how you’re going in another week or so. You’ll be feeling worse once the side effects will show” I don’t know when Ren wrote those words, but he’s had a long time to learn the lesson of what the pursuit of profit does to front line health care services. Thankfully, it looks like the complete privatisation of the NHS might be avoided…just, if we get through to the next election before the party that has always hated the concept of the NHS manages to kill it - we’ll see…and we’ll see if the next government actually does something about undoing the nearly 50 years of undermining it that we’ve had (ever since Bupa was allowed in the U.K. - and New Labour went with the same policies of increased PFI etc, so we haven’t had any government working to bolster the NHS as what it should be since the 70s). Here’s hoping the next few years are spent getting started removing profit from front line health care services, getting every penny spent on the NHS actually delivering patient care instead of pouring into the pockets of private investors, and that 50 years from now, people will look back and see 2023 as the nadir from which the NHS rose like a phoenix to soar as it should.

    • @sputukgmail
      @sputukgmail Před 9 měsíci

      It’s fascinating listening to this and hearing the nascent concepts which Ren realised in his work later - Sick Boi, Money Game etc. The reason those songs are so powerful is because Ren has this fundamental life experience and philosophical belief that gives them an honesty.

  • @bethstratton3391
    @bethstratton3391 Před 9 měsíci

    Over medicalisation is a real pandemic. Big pharma is controlling the masses and governments are letting them, because the more medicated people are, the easier they are to control, the more money the generate for big business and the more dependent on the state they become. I agree that medicine shouldn’t be monetised, but I also think that it shouldn’t be solely in the hands of scientists and doctors either. This is because science is often monetarily driven and research is skewed towards profit. Unpopular findings that don’t suit the current agenda or make high profits are buried, and scientists who speak up when faults in the system or bias creep in, are swiftly silenced. Professor John Yudkin writer of the book “Pure White and Deadly” about the harms of the sugar industry in relation to health during the 1970s, and Dr. John Ioannidis who has spent his career challenging his peers by exposing their bad science are typical example of this. In addition, doctors can also be biased towards those more highly educated who assert themselves and their needs in the doctors surgeries or hospitals; and doctors can also be biased against ethnic minorities, immigrant, those who don’t fit into traditional gender (or even sometime religious) norms; or those who don’t perpetuate the doctor’s individual need for power/control. So although I feel many of your views are extremely relevant and correct. I think the issues are far more complex than perhaps we all realise.

    • @Hexenkind1
      @Hexenkind1 Před 9 měsíci

      I think you misunderstood some points ren made here. For one: He also said it shouldn't be profit driven. Which means it should be solely focused on really curing people and nothing else. This is what he meant to say in this video. So your point that scientists and doctors are "monetarily driven" is moot. They are because the system itself incentivises that behavior. So the system has to chance. And if that would chance there wouldn't be any doctors and scientists anymore that would be in it for profit above all else. There are also many people who are dissatisfied with the system but do not have the power to change it and begrudgingly adhere to it. The other biases you talk about could also be tackled with different job training and/or more diverse staff. So your views and ren's views are not as different as you might think. And yes, the issues are complex and the underlying reasons are too.

  • @jacqui114
    @jacqui114 Před 9 měsíci

    The big pharmaceutical companies rule the money game. It took 55yrs for me to see a Councillor NHS ! I believe we have cures through plants that grow in the rainforest etc . We'll said Ren , hope your treatment is going well ❤

  • @user-nh1jw6sb6e
    @user-nh1jw6sb6e Před 9 měsíci

    You're right. Come to Germany, we have great healthcare. I'm a nurse in Germany, yes it's still profit orientated, but you don't go into debt for the rest of your and your kids life.

  • @Silkytoaster
    @Silkytoaster Před 9 měsíci

    I wish I could go back in time and tell young Ren about the impact he would have on so many people .

  • @lynnpatenaude5548
    @lynnpatenaude5548 Před 10 měsíci

    It’s the same in Canada! For ADHD , fill out a questionnaire! I wonder why you came to Canada for your health issues????

    • @jacqui114
      @jacqui114 Před 9 měsíci

      🍁 Canada must be on the top bar for research and treatment for Lyme Disease

    • @lynnpatenaude5548
      @lynnpatenaude5548 Před 9 měsíci

      @@jacqui114Certainly not in Ottawa lol But I’m happy he got good care!!!

    • @SamSepiol-xh4om
      @SamSepiol-xh4om Před 9 měsíci

      I think if you pay for it as a private person from another country, its very different. I think you can get great healthcare in almost every country if you're paying for it by yourself. The reason people get bad treatment is because health insurances dont pay for a good one.

    • @lynnpatenaude5548
      @lynnpatenaude5548 Před 9 měsíci

      @@SamSepiol-xh4om We Canadian are lucky that we have free healthcare. But, it’s limited. I needed an MRI, which is free but the wait is 1 year so I when privately and paid 3000$.

    • @SamSepiol-xh4om
      @SamSepiol-xh4om Před 9 měsíci

      @@lynnpatenaude5548 I'm from germany and we've got a "free" health insurance too. It automatically gets payed by the taxes you have to pay and if you're unemployed, it's completely free. But additionally we have private insurances. They're pretty expensive but if you have one you get much better treatment and you dont have to wait for months to see a specialist. For example if i want to see a psychiatrist, I'll have to wait for aprox 6 months. If i had a private insurance, it would be only a few days. This is a terrible 2 class system and its completely profit orientated. A few decades ago, our healthcare system was considered one of the best in the world. These days are gone. At least its not like in the US, where you dont have any insurance at all if you dont pay for it or loose your job.