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Glaucoma UK
United Kingdom
Registrace 26. 03. 2015
The International Glaucoma Association channel has been developed to bring a range of videos to explain the causes of glaucoma, the tests to detect the condition and how to live well with glaucoma. There are a range of useful videos demonstrating how to use eye drops, including using the various different dispensing aids that are available, to help with the correct instillation of drops, including for those the dexterity issues. We hope you enjoy watching our films and keep checking back for more!
Higgy's Challenge: Red Arrows Flyover!
The Red Arrows made a fly over on Higgy's route across the country! The former pilot is running the length of Britain to raise funds for glaucoma research.
You can support Higgy by donating via his JustGiving page: www.justgiving.com/page/go-higgy-go
You can support Higgy by donating via his JustGiving page: www.justgiving.com/page/go-higgy-go
zhlédnutí: 34
Video
Higgy's vlog episode 4: Support the Pitts Crick Fellowship!
zhlédnutí 28Před 2 měsíci
Join me on one of my training runs for the RunBritannia event. In support of Glaucoma UK, I am embarking on an extraordinary journey, running from Lands End to John O’Groats over 35 days as part of Run Britannia®. Covering just over 1,000 miles, I promise you that I will earn every penny of your kind donations. It will take 18 months of training to get to the start line in June 2024 so there wi...
Higgy's vlog episode 2: Warm 15-mile training run
zhlédnutí 52Před 2 měsíci
Join me on one of my training runs for the RunBritannia event. In support of Glaucoma UK, I am embarking on an extraordinary journey, running from Lands End to John O’Groats over 35 days as part of Run Britannia®. Covering just over 1,000 miles, I promise you that I will earn every penny of your kind donations. It will take 18 months of training to get to the start line in June 2024 so there wi...
Glaucoma support group: Open Q&A all about glaucoma
zhlédnutí 197Před 2 měsíci
Our digital glaucoma support groups allow you to attend and have your questions answered from the comfort of your own home. This session featured a panel of experts who answered some common questions about glaucoma. You can view and register for our upcoming digital glaucoma support groups here: glaucoma.uk/supportgroups
Higgy's vlog episode 1: Training run in Wiltshire
zhlédnutí 104Před 3 měsíci
Join me on one of my training runs for the RunBritannia event. In support of Glaucoma UK, I am embarking on an extraordinary journey, running from Lands End to John O’Groats over 35 days as part of Run Britannia®. Covering just over 1,000 miles, I promise you that I will earn every penny of your kind donations. It will take 18 months of training to get to the start line in June 2024 so there wi...
Glaucoma support group: Glaucoma jargon busting
zhlédnutí 118Před 5 měsíci
Our digital glaucoma support groups allow you to attend and have your questions answered from the comfort of your own home. This session ran through many of the common jargon and abbreviations that are used in letters sent from consultants and GPs. You can view and register for our upcoming digital glaucoma support groups here: glaucoma.uk/supportgroups
Glaucoma support group: Glaucoma and cataracts
zhlédnutí 499Před 6 měsíci
Our digital glaucoma support groups allow you to attend and have your questions answered from the comfort of your own home. Mr Mark Westcott, Consultant Ophthalmic Surgeon at Moorfields Eye Hospital, joined us for the session to discuss glaucoma and cataracts. You can view and register for our upcoming digital glaucoma support groups here: glaucoma.uk/supportgroups
Glaucoma voices animation: A spotlight on glaucoma experiences
zhlédnutí 144Před 6 měsíci
We spoke to real people about their experiences of living with glaucoma. Through their voices, we learn more about what it feels like to receive a glaucoma diagnosis and the many ways it can impact people’s lives.
Glaucoma support group: Surgery - Preserflo and trabeculectomy procedures for glaucoma
zhlédnutí 2,2KPřed 7 měsíci
Glaucoma support group: Surgery - Preserflo and trabeculectomy procedures for glaucoma
Glaucoma support group: Research - Vitamin B3
zhlédnutí 10KPřed 8 měsíci
Glaucoma support group: Research - Vitamin B3
Glaucoma support group: Lived experience - our experience of eye drops
zhlédnutí 411Před 9 měsíci
Glaucoma support group: Lived experience - our experience of eye drops
Glaucoma support group: What do you want to know about glaucoma?
zhlédnutí 417Před 10 měsíci
Glaucoma support group: What do you want to know about glaucoma?
Glaucoma information to help protect your sight
zhlédnutí 373Před 11 měsíci
Glaucoma information to help protect your sight
Glaucoma Support Group: Congenital glaucoma - How to talk to your child about their glaucoma
zhlédnutí 116Před rokem
Glaucoma Support Group: Congenital glaucoma - How to talk to your child about their glaucoma
Glaucoma voices: A spotlight on glaucoma experiences | The Glaucoma UK Podcast
zhlédnutí 610Před rokem
Glaucoma voices: A spotlight on glaucoma experiences | The Glaucoma UK Podcast
Glaucoma support group: Q&A - surgery and laser
zhlédnutí 271Před rokem
Glaucoma support group: Q&A - surgery and laser
Glaucoma Support Group: Living with glaucoma - focus on mental health
zhlédnutí 215Před rokem
Glaucoma Support Group: Living with glaucoma - focus on mental health
Glaucoma Support Group: Primary angle closure glaucoma
zhlédnutí 527Před rokem
Glaucoma Support Group: Primary angle closure glaucoma
Glaucoma Support Group: Primary open angle glaucoma
zhlédnutí 305Před rokem
Glaucoma Support Group: Primary open angle glaucoma
Glaucoma Support Group: Glaucoma and driving - FAQs
zhlédnutí 358Před rokem
Glaucoma Support Group: Glaucoma and driving - FAQs
Glaucoma Support Group: Living with glaucoma - Tips and tricks from a person with glaucoma
zhlédnutí 441Před rokem
Glaucoma Support Group: Living with glaucoma - Tips and tricks from a person with glaucoma
Glaucoma Support Group: Living with glaucoma - Charles Bonnet Syndrome
zhlédnutí 170Před rokem
Glaucoma Support Group: Living with glaucoma - Charles Bonnet Syndrome
Glaucoma Support Group: Types of glaucoma - pigment dispersion
zhlédnutí 1,4KPřed rokem
Glaucoma Support Group: Types of glaucoma - pigment dispersion
Glaucoma Support Group: Research - The future of glaucoma treatments
zhlédnutí 367Před rokem
Glaucoma Support Group: Research - The future of glaucoma treatments
Glaucoma Support Group: What is glaucoma?
zhlédnutí 158Před rokem
Glaucoma Support Group: What is glaucoma?
Glaucoma Support Group: Minimally invasive glaucoma surgeries
zhlédnutí 413Před 2 lety
Glaucoma Support Group: Minimally invasive glaucoma surgeries
Glaucoma Support Group: Glaucoma hot topics - Frequently asked questions
zhlédnutí 228Před 2 lety
Glaucoma Support Group: Glaucoma hot topics - Frequently asked questions
Glaucoma Support Group: Living with congenital or early onset glaucoma as an adult
zhlédnutí 383Před 2 lety
Glaucoma Support Group: Living with congenital or early onset glaucoma as an adult
Sugar and carbs.
She has a nice smile definitely
Anyone have any updates or links to the study results?
If it were not for #DrMadida on CZcams my sister 👯♀️wouldn’t have been cured of herpes 🦠 🦠 virus..
This is amazing well done Cai
I have read that increased B3 is associated with an increased risk in heart disease.
Was this a study that you found or just rumor?
Very informative
Thank you
Subhash ji,I am having some problem with this dispenser.When I keep the flat part of the dispenser on my brow,sometimes the drop doesn't fall inside the eyes.
Niacinamide 3000 mg and 2 multimedia B vitamin take the pressure down in 6 week's
Thank you.
Subhas Suthar ji,I was not putting the dispenser on the eyebrows.Result,from past many days,I had acute difficulty in putting eyedrop but following your advice worked wonder.
Thank you very much.
Does dry cause excess blurriness?
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Hi
Woow i am a nurse
My diagnosis: glaucoma suspect with Pigment dispersion ; My ophthalmologist does not want to consider SLT, the reason being, she believes that IOP increases after SLT in those with PDS. Has anyone else run across this?
Utterly useless info. Nothing definite and a lot of make-up-your-own-mind waffle.
42:22 you're assuming it's the pressure that is the reason it is beneficial but seems there is a different function, lower pressure being a side effect.
The cupping theory was mistakenly introduced into the ophthalmology field in the 1850s. The lamina cribrosa appears to be sinking resulting in the peripheral-to-central axotomy of nerve fibers at the scleral edge.
I have low pressure glaucoma and underactive thyroid which means my mitochondria dont work. Thyroxine (T4) doesnt sort it out properly but try telling a doctor that! I was best when I could get natural dessicated thyroid… but cant get this now
Hmm a bad liver or going blind…? Which to choose ?
So I take 600mg a day which is 2 tablets…so I need to double this at least..?
Is B3 Niacin or Nicotinamide ??
nicotinamide
Thank you for sharing your glaucoma journey..I'm 62 years old ..I'm from the Philippines also having glaucoma..
can someone please advise a brand that is good and affordable- thank you
I got some from BetterVits a UK company
Health leads uk not better vits !
what is the recommended dosage ?
How to join you? Please help me.
It doesn't do that! With severe glaucoma there are patches of blind spots, or poor vision spots, in your field of vision that seem sort-of normal, but your brain is filling in the missing bits with what it thinks is there, but may not be. That's when it's dangerous. You can see the missing bits if you close one eye, and look ahead as you move your hand around your field of vision.
I can't hear YOU😮😢😢😢
🙏🙏🙏
Important info: I had taken nicotinamide 500mg most days since feb 2022. In august 2023 I upped the dosage to 3000mg. After 2 weeks, i needed emergency medical attention as I went into urine retention and needed a catheter fitted- doctors couldn’t find evidence as nicotinamide as the cause. Bloods/scans were fine. I started taking nicotinamide (same dosage, more precise times) in October. Again after 2 weeks, I struggled to pass urine. This continued for 7-9 weeks. This month I took niacin 250mg, 1g a day, for 4 days- I’m now struggling badly to pass urine, and my bladder is near mullered!
That's terrible, and I'm totally sympathetic. And thank you very much for sharing your experience with us. I'm thinking that, like some participants in the study who had adverse reactions when the dose got up to 3g a day, could it possibly have been better for you to increase your doses in really small increments? Maybe you would have experienced less severe side effects and been able to stop, or at least reduce your dosages without such awful bladder problems? Just a thought. At any rate, thanks again for sharing with us. I, for one, will be keeping my doses at 600mg (300 twice a day) for several more months until I slowly experiment with slightly higher doses.
@@moondriver232 thank you. Just to add, when I started taking it in February 2022, I was taking one 500mg most days, I can’t put a date on it, somewhere between autumn 22-late spring 23, I noticed I was struggling to fully empty my bladder at night- I really didn’t think anything of it. I see this now as a warning sign. Also each times I have had this reaction, I’ve developed a really metallic salty taste in my mouth which lasts for weeks. Not to mention the change in bowels! Please be careful, this vitamin needs many more trials, especially longer term. Urine retention- it was probably the scariest thing I been through. At the time hadn’t passed urine for 30hrs+.
@@robp2282maybe it caused by other drugs, sometimes i struggle with the same and I didn't take any b3
@@moondriver232 - I am using 500 mg nicotinamide B3 capsules. I had been taking one a day, but recently increased to two a day. I will be careful and now perhaps only take this twice a day intermittently. I am also taking citicoline daily and n-acetyl-cysteine or s-acetyl-glutathione about once every week or two. These are also supposed to help. There is some research on lithium orotate for glaucoma. It is apparently low in soil. Yet I will wait to add this until I can get my lithium level tested. Another form of lithium is apparently used for psychological disorders and I read that it is known to cause weight gain and thyroid damage. So it seems the right form and dosage would be very important for glaucoma. (The jury is out on this, so I will defer any use of this until I learn more.)
I'm on 3g nicotinamide for glaucoma and wake up 3 times a night to pee. lol
Come on is 2024 the placebo thing is stupid ( its been proven that exist but so what), you are losisng test subjets that way, instead you should be testing why in some patients a medicine or protocol works and why in some other people it does not
A at A was a a a q
Niacinamide 3000 mg a day .
A big thank you to both glaucoma uk & Mr Westcott for this very informative session - Mr Westcott's explanations are presented in easy to understand language whilst imparting knowledge for the lay person. 👍
It seems like there is still a lot of uncertaincy about this vitamin
one of the most informative talks I've seen so far, planning to start B3 myself
Apart from supplements, here is a suggestion when glaucoma affects partial vision loss for a solution to be hopefully reached. With the onset of A.I, perhaps glassware producers of spectacles could invent and extend or expand the remaining sight for improvement.and ability for users to see better. As it takes time to reach total blindness with the onset of glaucoma, a study could be initiated to produce specially made glasses that will expand any available remaining sight for the individual glaucoma victim. This may be an alternate method for preservation of partial sight loss since damage of the optic nerve is irreplaceable at this point of time in Yr2024.
What do you think about taking TRU Niagen supplement which is supposed to increase NAD+? Thanks
I use combigan and Travatan drop I get very very red sore eyes I think the problem is Travatan can anyone offer any helpful advice pls. Tony
Hi Tony. One of our helpline advisers has replied with the following: “Travatan (Travaprost) is preservative-free, so I wouldn’t have thought the red sore eye is due to using it. Combigan contains BAK so if anything is causing the sore eyes I would say there is more chance of this being the issue. You need to tell your consultant. They may consider changing the drops or even asking you to go on an eyedrop vacation from the Combigan to see if things improve. There is always the possibility that you may want to stop using them, but if you do it is important that you make your consultant aware as they will want to know.” We hope that helps but don’t hesitate to reach out to our helpline team if you need further advice: glaucoma.uk/care-support/helpline/
You described the disease so well but no hope of true and lasting healing is mentioned. What are the factors contributing to this? Could it be, unhealthy lfestyle, pollution, radiation, processed food and drinks, sugar, alcohol, smoking... what is is the cause? Medication and surgery has come a long way only to bring sideffects more than it ever cured...
Nicatinamide and Niacinamide are the same thing. And they come in capsules not tablets so they are easy to digest. Liver function test to check enzymes are a good idea. When patients are told GLAUCOMA is a PROGRESSIVE disease and they will become blind, DO YOU NOT THINK MANY PATIENTS MAY WISH TO TRY IT. IN MY CLINIC, THE LOSS OF SIGHT WITH LAZER SURGERY AND OTHERS, HAS BEEN ALARMING. SO, BY THE TIME IT MAY BE PROVEN, YOU MAY BE BLIND. What would you choose then if you had glaucoma? If blindness is a distinct possibility and eye drops or lazer will lower pressure, that is not sufficient to save your sight. It is not just about eye level pressure. This new study may show reversal of vision loss, it is already indicated, so the use of niacinamide or nicotinamide is going to happen unless they prove otherwise.
thanks for sharing it with us
Hi thank you it was very informative. question...the retinal glangion cell that are berely surviving will they recover? thank you
Thanks for the very informative video!! You answered many questions I was wondering about the trials. Was the listener who mentioned cholesterol lowering confusing niacinamide w niacin? Niacinamide is not supposed to affect cholesterol; niacin is.
Thanks Bhai...very informative...I am feeling may be I have this problem..abhi mein check kerwaon ga..shukria rabta rahey ga..Khush rahein.
Amazing, So inspirational