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HCC NW Sickle Cell and North Thalassaemia & RIA
United Kingdom
Registrace 17. 11. 2022
Educational videos provided by the HCC for Sickle Cell in the NW of England and Thalassaemia & RIA in the North of England.
Background Info:
NHS England commissioned a haemoglobinopathy service for sickle cell and thalassaemia & RIA known as Haemoglobinopathy Coordinating Centres (HCC). Each region has an HCC, which is the lead haemoglobinopathy centre, with hospitals below it in the organisational structure helping to provide a comprehensive haemoglobinopathy service. One of the key functions of HCCs is to provide education, which can be found in these videos.
Background Info:
NHS England commissioned a haemoglobinopathy service for sickle cell and thalassaemia & RIA known as Haemoglobinopathy Coordinating Centres (HCC). Each region has an HCC, which is the lead haemoglobinopathy centre, with hospitals below it in the organisational structure helping to provide a comprehensive haemoglobinopathy service. One of the key functions of HCCs is to provide education, which can be found in these videos.
Thalassaemia Major - Having a blood transfusion at RMCH
Join Yaseen as he shows you what it is like to have a blood transfusion at Royal Manchester Children's Hospital.
Most people with thalassaemia major or other severe types will need to have regular blood transfusions to treat anaemia. For more information about thalassaemia please follow this link: www.nhs.uk/conditions/thalassaemia/treatment/
Also, if you want to learn more about blood disorders why not try the HCC website:
mft.nhs.uk/hcc/patient-parent-carer-zone/education/teenage-young-adult-education/
Thank you to all who participated in this video especially Yaseen who is a natural in front of the camera!
Most people with thalassaemia major or other severe types will need to have regular blood transfusions to treat anaemia. For more information about thalassaemia please follow this link: www.nhs.uk/conditions/thalassaemia/treatment/
Also, if you want to learn more about blood disorders why not try the HCC website:
mft.nhs.uk/hcc/patient-parent-carer-zone/education/teenage-young-adult-education/
Thank you to all who participated in this video especially Yaseen who is a natural in front of the camera!
zhlédnutí: 42 860
Video
Sickle Cell Unit in Manchester - a UK first!
zhlédnutí 192Před 6 měsíci
The first dedicated unit for patients with sickle cell in the UK has opened at the Manchester Royal Infirmary (as of March 2024). This video shows the BBC North West Tonight team taking a tour with staff and patients around the Sickle Cell Unit (SCU).
Acute Pain Management in Sickle Cell Disease, Dr Lugthart (HCC Education Session 06/11/23)
zhlédnutí 109Před 9 měsíci
HCC Education Sessions NW Sickle Cell and North of England Thalassaemia & RIA HCC present 'Acute Pain Management in Sickle Cell Disease: Update National Pain Group & Example of Pain Service' Presentation by: Dr Sanne Lugthart, MD, PhD, Consultant Haematologist, University Hospitals of Bristol NHS Foundation Trust. Date: 06/11/23 Location: MS Teams 00:00 - Introduction 00:08 - Presentation 54:10...
Acute Chest Syndrome in Children, Dr Grainger (HCC Education Session 12/09/23)
zhlédnutí 161Před 9 měsíci
HCC Education Sessions (HCC: NW Sickle and N. England Thalassaemia & RIA) NW Sickle Cell and North of England Thalassaemia & RIA HCC present 'Acute Chest Syndrome in Children'. Presentation by: Dr John Grainger, Consultant Paediatric Haematologist, Royal Manchester Children's Hospital (RMCH). HCC Sickle Cell Clinical Lead for the North West of England. Date: 12/09/23 Location: MS Teams Please n...
Stroke & Aneurysm in Sickle Cell, Mr Tolias (N England Haemoglobinopathy Clinical Event 30/06/23)
zhlédnutí 71Před rokem
* WARNING - CONTAINS SOME SURGICAL FOOTAGE * North England Haemoglobinopathy Clinical Event, 30th June 2023 Hybrid Session: Manchester City Centre (Etc. Venue) & Online (MS Teams) NW Sickle Cell and North of England Thalassaemia and RIA HCC & North East & Yorkshire HCC present: Mr Christos Tolias, Consultant Neurosurgeon (King's College Hospital NHS Foundation Trust) 00:23 - Introduction 01:23 ...
Haplo Stem Cell Transplants in Sickle Cell (N England Haemoglobinopathy Clinical Event 30/06/23)
zhlédnutí 69Před rokem
North England Haemoglobinopathy Clinical Event, 30th June 2023 Hybrid Session: Manchester City Centre (Etc. Venue) & Online (MS Teams) NW Sickle Cell and North of England Thalassaemia and RIA HCC & North East & Yorkshire HCC present: Dr Beki James, Paediatric Consultant Haematologist, Leeds Children's Hospital, 'Haplo Stem Cell Transplants in Sickle Cell' 00:14 - Introduction 0:50 - Presentatio...
Endocrinopathies & Bone Disease in Thalassaemia (N England Haemoglobinopathy Clinical Event 30/6/23)
zhlédnutí 109Před rokem
North England Haemoglobinopathy Clinical Event, 30th June 2023 Hybrid Session: Manchester City Centre (Etc. Venue) & Online (MS Teams) NW Sickle Cell and North of England Thalassaemia and RIA HCC & North East & Yorkshire HCC present: Dr Laxmi Balmuri, Consultant Endocrinologist, Manchester Royal Infirmary 00:24 - Introduction 01:23 - Presentation 33:10 - Q&A PLEASE NOTE THIS VIDEO IS AIMED AT H...
DBA & CDA, Dr Roy (N England Haemoglobinopathy Clinical Event 30/06/23)
zhlédnutí 76Před rokem
North England Haemoglobinopathy Clinical Event, 30th June 2023 Hybrid Session: Manchester City Centre (Etc. Venue) & Online (MS Teams) NW Sickle Cell and North of England Thalassaemia and RIA HCC & North East & Yorkshire HCC present: DBA & CDA, Dr Noémi Roy, Consultant Haematologist, Oxford University NHS Foundation Trust, 'DBA & CDA' 00:09 - Introduction 00:49 - Presentation 39:32 - Q&A PLEASE...
Iron Chelation/Iron Overload, Dr Sadasivam (N England Haemoglobinopathy Clinical Event 30/06/23)
zhlédnutí 126Před rokem
North England Haemoglobinopathy Clinical Event, 30th June 2023 Hybrid Session: Manchester City Centre (Etc. Venue) & Online (MS Teams) NW Sickle Cell and North of England Thalassaemia and RIA HCC & North East & Yorkshire HCC present: Dr Nandini Sadasivam, Consultant Haematologist, Manchester Royal Infirmary, MFT, 'Iron Chelation/Iron Overload' 00:12 - Introduction 01:45 - Presentation 40:15 - Q...
Moving to Adult Service - Information for Haemoglobinopathy Patients and families
zhlédnutí 52Před rokem
This short video explains the process of moving/transitioning from the children to the adult haemoglobinopathy service. Animation courtesy of the Wessex and Thames Valley HCC Network.
Endocrinopathies & Bone Disease in Thalassaemia (1-Hour Education Session 06/03/23)
zhlédnutí 102Před rokem
NW Sickle Cell and North of England Thalassaemia & RIA HCC present 'Endocrinopathies & Bone Disease in Thalassaemia'. 00:19 - Introduction 02:07 - Presentation 53:00 - Q&A Presentation by: Dr Laxmi Balmuri, Consultant Physician & Endocrinologist, Manchester Royal Infirmary (MRI). Hosted by Dr Nandini Sadasivam, Consultant Haematologist (MRI) and HCC Clinical Lead for North England Thalassaemia ...
Blood Transfusion, Antibodies & Hyperhaemolysis in Sickle Cell (1-Hour Education Session 15/02/23)
zhlédnutí 72Před rokem
NW Sickle Cell and North of England Thalassaemia & RIA HCC present ‘Blood Transfusion, Antibodies &y Hyperhaemolysis in Sickle Cell’ 00:12 - Introduction 01:31 - Presentation 50:02 - Q&A Presentation by: Andy Houghton, Lead Haemoglobinopathy Clinical Nurse Specialist, Liverpool University Hospitals NHS Foundation Trust Hosted by Eva Clarke, HCC Network Manager, Manchester University NHS Foundat...
Prenatal Diagnosis: Antenatal Screening in Thalassemia Patients (1-Hour Education Session 18/01/23)
zhlédnutí 121Před rokem
NW Sickle Cell and North of England Thalassaemia & RIA HCC present 'Prenatal Diagnosis: Antenatal Screening in Thalassemia Patients' 00:12 - Introduction 01:45 - Presentation 40:15 - Q&A Presentation by Della Carr, Specialist Midwife, Manchester Local Community Organisation. Hosted by Dr Sadasivam, Haemoglobinopathy Consultant and HCC Clinical Lead for North England Thalassaemia and RIA. Date: ...
The Kidney & Beyond - Sickle Cell Disease and Transplantation (1-Hour Education Session 12/12/22)
zhlédnutí 114Před rokem
NW Sickle Cell and North of England Thalassaemia & RIA HCC present 'The Kidney and Beyond - Sickle Cell Disease and Transplantation' 00:10 - Introduction to 1st speaker/presentation from Dr Sadasivam 01:01 - Presentation (Dr Thuraisingham) 30:19 - Q&A (Dr Thuraisingham) 37:40 - Introduction to 2nd speaker/presentation from Dr Sadasivam 38:18 - Presentation (Dr Samuelson) 49:59 - Q&A (Dr Samuels...
Nutrition in Sickle Cell', Claudine Matthews, Dietician (1-Hour Education Session 22/08/22)
zhlédnutí 138Před rokem
NW Sickle Cell and North of England Thalassaemia & RIA HCC present a 1-hour education session Presentation: Nutrition in Sickle Cell Presenter: Claudine Matthews, MSC, Registered Dietician Date: 22/08/22 Please note this video is aimed at health care professionals for training purposes rather than the general public.
Monitoring & Iron Chelation Therapy', Dr Sadasivam, MRI (1-Hour Education Session 24/01/22)
zhlédnutí 155Před rokem
Monitoring & Iron Chelation Therapy', Dr Sadasivam, MRI (1-Hour Education Session 24/01/22)
Transfusion in Inherited Anaemia', Dr Noémi Roy, OUH (1-Hour Education Session 04/05/22)
zhlédnutí 54Před rokem
Transfusion in Inherited Anaemia', Dr Noémi Roy, OUH (1-Hour Education Session 04/05/22)
Management of Paediatric Patients with Thalassaemia (1-Hour Education Session 11/03/23)
zhlédnutí 101Před rokem
Management of Paediatric Patients with Thalassaemia (1-Hour Education Session 11/03/23)
Transfusion in Sickle Cell Disease, Dr Joe Sharif (HCC National Education Session 19/10/22)
zhlédnutí 101Před rokem
Transfusion in Sickle Cell Disease, Dr Joe Sharif (HCC National Education Session 19/10/22)
DBA & CDA Diagnosis and Management for Adults and Children, Dr Roy, OUH (1-Hour Education Session)
zhlédnutí 81Před rokem
DBA & CDA Diagnosis and Management for Adults and Children, Dr Roy, OUH (1-Hour Education Session)
What do you need to know: Caring for patients with Thalassemia & RIA, Dr Potter & Dr Kausar (MFT)
zhlédnutí 65Před rokem
What do you need to know: Caring for patients with Thalassemia & RIA, Dr Potter & Dr Kausar (MFT)