![Epilepsy Foundation Eastern Pennsylvania](/img/default-banner.jpg)
- 162
- 185 711
Epilepsy Foundation Eastern Pennsylvania
Registrace 3. 07. 2012
Our channel for sharing the latest updates for the Foundation and the epilepsy space.
The Epilepsy Foundation Eastern PA is a non-profit, 501(c)3 health agency dedicated to serving those diagnosed with and impacted by epilepsy. We choose to fulfill that mission through education, support and advocacy. Our services are free of charge throughout our 18 county service area.
Learn more at our website, www.efepa.org.
The Epilepsy Foundation Eastern PA is a non-profit, 501(c)3 health agency dedicated to serving those diagnosed with and impacted by epilepsy. We choose to fulfill that mission through education, support and advocacy. Our services are free of charge throughout our 18 county service area.
Learn more at our website, www.efepa.org.
Video
STARS Informational Webinar
zhlédnutí 26Před měsícem
UCB Biosciences Inc. is conducting a phase 3 clinical trial called STARS to investigate a drug for prolonged seizures (seizures typically lasting more than 3 minutes).The study is looking for patients 12 and older who have focal or generalized epilepsy, or a combination of the two. This study is to measure how well the body tolerates the investigational medication and whether it works in people...
Special Journey Solutions: Navigating Key Options for Families with Special Needs
zhlédnutí 26Před 2 měsíci
6/6/24: Filling the Buckets: $ources and Uses, $traight Talk on Money Upcoming sessions: September 5: Difficult Conversations and Decisions October 3: Transitions into Adult Life (And Your Retirement) November 7: Review and Topics of Particular Interest Register for remaining sessions: tinyurl.com/EFEPASpecialJourneySolutions
Special Journey Solutions: Navigating Key Options for Families with Special Needs
zhlédnutí 32Před 4 měsíci
5/3/24: Government Resources and Benefits Register for future sessions: tinyurl.com/EFEPASpecialJourneySolutions
2024 Virtual Pediatric Epilepsy Conference
zhlédnutí 165Před 4 měsíci
4/11/24 Topics Include: - Protecting the Rights of Students with Epilepsy to Learn by Maura McInerney, Esq. - Pediatric Epilepsy and Mental Health: Screening, Diagnosis and Treatment by Dr. Samuel Alperin
Special Journey Solutions Navigating Key Options for Families with Special Needs
zhlédnutí 28Před 5 měsíci
April 4, 2024: Taxes: Disabilities, Special Needs and the IRS: Deductions, Provisions, and Planning This series addresses legal documents, taxes, government benefits, difficult decisions and conversations, sources and uses of funding/money, planning for future financial health, and transitions into adulthood and retirement. Register for upcoming sessions at: tinyurl.com/EFEPASpecialJourneySolut...
2024 Adult Conference
zhlédnutí 146Před 5 měsíci
Topics: Driving & Epilepsy by Dr. Scott Mintzer Dr. Mintzer discusses driving laws for patients with epilepsy in different states, and how decisions are made regarding driving for patients with seizures. Sleep & Epilepsy by Dr. John Khoury Good sleep is vital to controlling epilepsy. Dr. Khoury discusses techniques to improving sleep and the latest advancements in sleep care.
Special Journey Solutions: Navigating Key Options for Families with Special Needs
zhlédnutí 30Před 5 měsíci
March 7, 2024: Importance of Legal Language, Hear from a Lawyer (Recommend Attending Foundation Essentials) This series addresses legal documents, taxes, government benefits, difficult decisions and conversations, sources and uses of funding/money, planning for future financial health, and transitions into adulthood and retirement. Register for upcoming sessions at: tinyurl.com/EFEPASpecialJour...
Seizure Recognition & First Aid Training: Girls on the Run
zhlédnutí 101Před 6 měsíci
Seizure Recognition & First Aid Training: Girls on the Run
Webinar: Optimizing Wellness: Dietary Strategies for Adults Living with Epilepsy
zhlédnutí 38Před 6 měsíci
Dietitian, Nicole Stawicki, explores a range of dietary interventions tailored to enhancing the quality of life for adults living with epilepsy.
Special Journey Solutions: Navigating Key Options for Families with Special Needs
zhlédnutí 33Před 6 měsíci
February 1, 2024: Foundation Essentials, Getting Your Legal House in Order This series addresses legal documents, taxes, government benefits, difficult decisions and conversations, sources and uses of funding/money, planning for future financial health, and transitions into adult and retirement. Register for upcoming sessions at: tinyurl.com/EFEPASpecialJourneySolutions
Special Journey Solutions Navigating Key Options for Families with Special Needs
zhlédnutí 54Před 7 měsíci
1/11/24: Learning to navigate special needs planning with financial planning experts Bruce Sham and Susan Walter and various guests. This series will address legal documents, taxes, government benefits, difficult decisions and conversations, sources and uses of funding/money, planning for future financial health, and transitions into adulthood and retirement. To register for the remaining sessi...
Camp Achieve
zhlédnutí 312Před 9 měsíci
Alex Productions - Fun" is under a Creative Commons license (CC BY 3.0)
Webinar: Empower Yourself! Don't Let Epilepsy Define You
zhlédnutí 103Před 9 měsíci
Webinar: Empower Yourself! Don't Let Epilepsy Define You
What Doctors Don’t Discuss with You and Why
zhlédnutí 148Před 11 měsíci
What Doctors Don’t Discuss with You and Why
Why was I Referred to a Neuropsychologist? A Guide for Individuals with Epilepsy
zhlédnutí 59Před 11 měsíci
Why was I Referred to a Neuropsychologist? A Guide for Individuals with Epilepsy
Diagnóstico de Epilepsia, Primera Consulta
zhlédnutí 75Před rokem
Diagnóstico de Epilepsia, Primera Consulta
Moving Beyond the Diagnosis: A Pediatric Approach to Medication and Testing
zhlédnutí 141Před rokem
Moving Beyond the Diagnosis: A Pediatric Approach to Medication and Testing
Advances in Epilepsy Genetic Testing: Exploring the Clinical Utility of Genomic Sequencing
zhlédnutí 202Před rokem
Advances in Epilepsy Genetic Testing: Exploring the Clinical Utility of Genomic Sequencing
Celebrating Diversity in Women's Health & Epilepsy: Hormonal Wellness & Empowerment
zhlédnutí 46Před rokem
Celebrating Diversity in Women's Health & Epilepsy: Hormonal Wellness & Empowerment
Advances in Surgical Options for Epilepsy
zhlédnutí 179Před rokem
Advances in Surgical Options for Epilepsy
Educational Rights in the School: What Parents Need to Know
zhlédnutí 119Před rokem
Educational Rights in the School: What Parents Need to Know
State & Federal Disability: Learning to Navigate for Eligible Benefits
zhlédnutí 113Před rokem
State & Federal Disability: Learning to Navigate for Eligible Benefits
Since i'm med resistant i have approximately 80 absence seizures a day... i am forgetting what everyday items are called
PRL denied me Disability accommodations because they caused personal mental injuriee and harms.
ABA is abusive, leaves most autistic people with PTSD. ~ Autistic and Epileptic senior adult.
Well done. Thank you.
Yes sleep is definitely different from every person with epilepsy
I went to sleep early after taking my last 2 dilantin pills this happened like after 11pm last night,I have questioned doctors concerning not getting enough sleep they said as long as I take the recommended amount of pills ill be good but I disagree bcuz I can't feel like I am lacking sleep all over
I have experienced most of them
I have ended up in hospital many times after having seizures in my sleep, whereas I have no Idea how I got there and being asked by medical personal if I know how I got there which i dont
More on this please! I have just started my ADHD journey and have had epilepsy since I was 14 and am now 37. It suddenly seems so obvious the massive EF difficulties, balance, concentration etc has a huge cross over!
What specialist works with woman with catamenial epilepsy? I would like to find out if I am positive with it since I was diagnosed by my neurologist that I had nothing wrong with brain. I started at the age of 17, it stopped for a couple of years then I got it next in 2002, I had my daughter in 2008 and my second kid in 20011. In 2012 I went through another episode and spent 5 months at the hospital. After being released with new meds I started having issues with bad side effects and I ended up stopping the medication. I have been dealing with seizures once a month since 2014. Thank you I appreciate your time
Thank you for this informative session. This video will help a lot of people to better understand the effects of seizure activity, and research new information about this puzzle of events. 👍
Memory, cognition, intellect, reading difficulty, anxiety, self-esteem, depression, social isolation :(
Oxcarbazepine, 1200mg daily in divided doses. 7.5mg Temazepam at bedtime. ZERO alcohol, ZERO illicit drugs, ZERO marijuana.
Had seizures bad ones psycomotor temporal and frontal lobe nothing worked long now use marijuna on drs sugestion works only thing that has
I have temporal lobe epilepsy. My memory is horrible and today i was diagnosed with amnesia. Here to learn more.
NOTHING HELPED ME AT ALL AS A YOUNG GIRL.
MY SHORT TERM MEMORY IS SINFULLY BAD.
With my first seizure, my first Nero put me on Keppra and zonagan . He asked me if I wanted to wait until my next one.
Thank you for sharing the information. I go in for phase 2 testing in August for my epilepsy.
Full hysterectomy and estrogen pills and seizures.
Really appreciate this talk. Thank you!
Sexual dysfunction v epilepsy - if AED's destroy your sex life - it's a hell of a cost to pay. An Amputation. Recommend that no AEDs are approved without clearance on this? I'm 72, and have paid the price. Valproate is part of my polytherapy now.
Seizure meds tend to stupify me... ☘️😥☘️
This made me cry. I've been struggling for decades and didn't know epilepsy could be a disability
The majority of my seizures occur at the moment I go into deep sleep. I had some seizures during the day, but most occur in my sleep. I am currently off prescriptionsn and have maybe three or four per year. Where I am today compared to where I was in my twenties is a big difference considering I was having four or more seizures per week to just a few per year. My biggest problem today is mood swings and anxiety.
😢🎉🎉🎉😢😢😢😢😢😢😢😢😢😢
Yes I totally agree the meds make me cry for nothing that's not good when you are a construction worker😢
Contacts
Please educate more people about epilepsy and sudeep syndrome
I had a right temporal lobectomy 10 yrs ago. He described things very accurately 👍🏾
I HAVE HAD SEIZURES ALSO.
I have seizure when i was sleeping
I had also few days ago it was scarring
@@panospap5867I hope you don’t have them anymore 😢
@@Vibbe_rant i start ketogenic diet trying to stop them physically
@@Vibbe_rant thanks
@@panospap5867 how often you get seizures in sleep?
What is Deja vu seizures? I’m a little baffled by this. I’ve been back to the seizure before ? Lol ? Don’t understand. I’ve had 4 spikes before. I’m 69. They scratch their heads. Seizures began after Covid vaccines. This is a nightmare. My life is destroyed. I can’t sleep. They won’t give me anything to sleep. Why ? Ugh. These seizures are just horrible. Medicine does not help. I’ve been on too many meds.
Epilepsy raining December 2001 January February 2002 December 2022
I have found reading newspapers is helping my memory I feel reading small bits of information eg. Small bits of info / paragraphs + little stories of about people or news.
Thankyou for your honest look at this.
Hojala y pudiera tener traductor en español
Epilepsy and alcohol
Thank you so very much for sharing this information.
I can still remember anything than others but only for a short time .. my short term memory is progressing good till now but I can't know why I can't store them in my long memory?? I'm having new onset seizure
Weed and gabapentin saved my life. Gabapentin has some side effects, but being able to take a few before sleep helps big time, I barely get 6 hours of sleep every day. Today was about 4. I wake up with fight or flight just about every day. Gabapentin levels out my anxiety , and nerves from shaking involunatry from brain fog misfires from not sleeping well. I had a few near death experiences waking up in ambalances from being in a gran mal seizure in my CAR! collapsing at walmart , and Home depot twice! THANK GOD I NEVER FELL ON MY HEAD, witnesses keep saying I fall bc I KNOW I am about to get one, so I just stop where I am and just go down. And then usualy 20 mins later I wake up with the same people in the amb. They know me by name. Last one I had was when I had covid. I had a bad fever for 24 hours, and couldnt eat, and couldnt hold up water. So I had back to back ones. My tounge was so swollen, and amnesia kicked in for 2 days. I was a totally different consciousness. So, i am a pot head I dont care.
I moved from Colorado to KY about 3 years ago, which is a illegal state. I have no hook ups close to me in KY and I drive for hours to get meds! I'm pretty up set because I'm afraid if someone mails it to me they will be in trouble. I already said, I don't care if I get in trouble, they better put me in jail....!! I just don't want the other person going to jail😢 The other options are taking zombie meds! No thanks, I did 30 years of that!!!
i can’t sleep which effects my memory etc 😔
HR is not your friend
When I first worked for a big company, they had a Personnel department. They were about what is good for the employee. They changed the name to human resources. Look up the definition of a resource. It's scary. Because resources are things that can be used up and replaced. Like if you own land with trees on it. You could cut the trees and sell them, and that depletes the value of the land because less resources. Even though in learning taxes we were told that land itself never depreciates.
What an excellent presentation on epilepsy surgical options. This doctor was highly knowledgeable, personable, easy to understand for us non physicians and very hopeful.
Thnk you
I have had epilepsy since the age of 17!in high school and at that time I was at the top of my class. I was NEVER invited to any party or have any friends. I had planned on becoming an electrical engineer. I went to one of the top engineering colleges in the country but depression took over. I received assistance from the ADA and once I dropped out depression played more of a role in my life than seizures had. My driver’s license was taken away from me but public transportation became more of a benefit than the former because it cost less. I then gained a full time job which I held for over 20 years. I learned to live on my own as a loner and sustain myself. The most difficult thing is the cost of healthcare. With physicians fees, tests, medications, surgical procedures ( VNS) . The deductibles are extremely expensive. My seizures may be pretty much under control however depressive lifestyle due to a lack of friendships and fear of dementia both play a major factor in life now that I am in my mid 50’s.
i feel you i cant drive or work it makes me sad because i want to get my liscense and work a full time job and be free from epilepsy its not easy for me or anybody
@@AlishaRivera If you’re in an urban area and have access to public transportation then that can be a plus to get a job. And if you have the Department of Rehabilitation Services ( DORS) you have an even better chance at getting a free education ( DORS helped me out somewhat but I did not take full advantage of it because of the state that I was in.). And the Epilepsy Foundation is a plus also for they will help you with both and getting a job. Take adavange of all what you can get. I didn’t and I spiraled downward both neurologically but mostly psychologically.
Thank you for this, lots of good information. I had epilepsy as a child (age6-13) and nothing for about 33 years, and now I've had 3 tonic-clonic seizures since 2019. I'm trying to learn more about this to try to avoid the triggers. It's nice talking to others that have experienced this before, it's easy to feel alone with this.
wow, this video explains exactly what I have... my neurologist is clueless and I will be seeing a new one soon! thank you!
Hi. I have it after car hit me. I have better an understanding, thank u for post. Regards
Thank you, excellent topic and excellent crystal clear explanation.
This is an excellent presentation of seizures, especially PNES. After 22 years, I still do not know what my son has. He seems to have seizures that fit into the PNES, but Dr's want to peg him with epilepsy after having normal EEG's for 22 years. The Washington DC area has very few sources of help. If we can come see you or anyone knows anyone please let me know. We are desperate for help.
Very good presentation. There is this false belief that if you can control your seizures through medication then every is okay. Listening to Dr. DeMarco the side effects of the anti-seizure medication over a lifetime does have negative consequences. Also if the seizure still occur, even in on an very infrequent basis, that is another psychological issue that the person to overcome. Surgery may be the best solution to get off the medication and to eliminate seizures.
my dad has epilepsy and he worked all his life. and smoked marijuana all his adult life and it kept his seizures down. he finally went for social security and they made him quit marijuana and his seizures spiked significantly. now he forgets what he's talking about in the middle of a sentence etc. he received his SSI now he's back on marijuana and he's doing better with his seizures.