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Since i'm med resistant i have approximately 80 absence seizures a day... i am forgetting what everyday items are called

PRL denied me Disability accommodations because they caused personal mental injuriee and harms.

ABA is abusive, leaves most autistic people with PTSD. ~ Autistic and Epileptic senior adult.

Well done. Thank you.

Yes sleep is definitely different from every person with epilepsy

I went to sleep early after taking my last 2 dilantin pills this happened like after 11pm last night,I have questioned doctors concerning not getting enough sleep they said as long as I take the recommended amount of pills ill be good but I disagree bcuz I can't feel like I am lacking sleep all over

I have experienced most of them

I have ended up in hospital many times after having seizures in my sleep, whereas I have no Idea how I got there and being asked by medical personal if I know how I got there which i dont

More on this please! I have just started my ADHD journey and have had epilepsy since I was 14 and am now 37. It suddenly seems so obvious the massive EF difficulties, balance, concentration etc has a huge cross over!

What specialist works with woman with catamenial epilepsy? I would like to find out if I am positive with it since I was diagnosed by my neurologist that I had nothing wrong with brain. I started at the age of 17, it stopped for a couple of years then I got it next in 2002, I had my daughter in 2008 and my second kid in 20011. In 2012 I went through another episode and spent 5 months at the hospital. After being released with new meds I started having issues with bad side effects and I ended up stopping the medication. I have been dealing with seizures once a month since 2014. Thank you I appreciate your time

Thank you for this informative session. This video will help a lot of people to better understand the effects of seizure activity, and research new information about this puzzle of events. 👍

Memory, cognition, intellect, reading difficulty, anxiety, self-esteem, depression, social isolation :(

Oxcarbazepine, 1200mg daily in divided doses. 7.5mg Temazepam at bedtime. ZERO alcohol, ZERO illicit drugs, ZERO marijuana.

Had seizures bad ones psycomotor temporal and frontal lobe nothing worked long now use marijuna on drs sugestion works only thing that has

I have temporal lobe epilepsy. My memory is horrible and today i was diagnosed with amnesia. Here to learn more.

NOTHING HELPED ME AT ALL AS A YOUNG GIRL.

MY SHORT TERM MEMORY IS SINFULLY BAD.

With my first seizure, my first Nero put me on Keppra and zonagan . He asked me if I wanted to wait until my next one.

Thank you for sharing the information. I go in for phase 2 testing in August for my epilepsy.

Full hysterectomy and estrogen pills and seizures.

Really appreciate this talk. Thank you!

Sexual dysfunction v epilepsy - if AED's destroy your sex life - it's a hell of a cost to pay. An Amputation. Recommend that no AEDs are approved without clearance on this? I'm 72, and have paid the price. Valproate is part of my polytherapy now.

Seizure meds tend to stupify me... ☘️😥☘️

This made me cry. I've been struggling for decades and didn't know epilepsy could be a disability

The majority of my seizures occur at the moment I go into deep sleep. I had some seizures during the day, but most occur in my sleep. I am currently off prescriptionsn and have maybe three or four per year. Where I am today compared to where I was in my twenties is a big difference considering I was having four or more seizures per week to just a few per year. My biggest problem today is mood swings and anxiety.

Contacts

I had a right temporal lobectomy 10 yrs ago. He described things very accurately 👍🏾

I HAVE HAD SEIZURES ALSO.

I have seizure when i was sleeping

What is Deja vu seizures? I’m a little baffled by this. I’ve been back to the seizure before ? Lol ? Don’t understand. I’ve had 4 spikes before. I’m 69. They scratch their heads. Seizures began after Covid vaccines. This is a nightmare. My life is destroyed. I can’t sleep. They won’t give me anything to sleep. Why ? Ugh. These seizures are just horrible. Medicine does not help. I’ve been on too many meds.

Epilepsy raining December 2001 January February 2002 December 2022

I have found reading newspapers is helping my memory I feel reading small bits of information eg. Small bits of info / paragraphs + little stories of about people or news.

Thankyou for your honest look at this.

Hojala y pudiera tener traductor en español

Epilepsy and alcohol

Thank you so very much for sharing this information.

I can still remember anything than others but only for a short time .. my short term memory is progressing good till now but I can't know why I can't store them in my long memory?? I'm having new onset seizure

Weed and gabapentin saved my life. Gabapentin has some side effects, but being able to take a few before sleep helps big time, I barely get 6 hours of sleep every day. Today was about 4. I wake up with fight or flight just about every day. Gabapentin levels out my anxiety , and nerves from shaking involunatry from brain fog misfires from not sleeping well. I had a few near death experiences waking up in ambalances from being in a gran mal seizure in my CAR! collapsing at walmart , and Home depot twice! THANK GOD I NEVER FELL ON MY HEAD, witnesses keep saying I fall bc I KNOW I am about to get one, so I just stop where I am and just go down. And then usualy 20 mins later I wake up with the same people in the amb. They know me by name. Last one I had was when I had covid. I had a bad fever for 24 hours, and couldnt eat, and couldnt hold up water. So I had back to back ones. My tounge was so swollen, and amnesia kicked in for 2 days. I was a totally different consciousness. So, i am a pot head I dont care.

i can’t sleep which effects my memory etc 😔

HR is not your friend

What an excellent presentation on epilepsy surgical options. This doctor was highly knowledgeable, personable, easy to understand for us non physicians and very hopeful.

Thnk you

I have had epilepsy since the age of 17!in high school and at that time I was at the top of my class. I was NEVER invited to any party or have any friends. I had planned on becoming an electrical engineer. I went to one of the top engineering colleges in the country but depression took over. I received assistance from the ADA and once I dropped out depression played more of a role in my life than seizures had. My driver’s license was taken away from me but public transportation became more of a benefit than the former because it cost less. I then gained a full time job which I held for over 20 years. I learned to live on my own as a loner and sustain myself. The most difficult thing is the cost of healthcare. With physicians fees, tests, medications, surgical procedures ( VNS) . The deductibles are extremely expensive. My seizures may be pretty much under control however depressive lifestyle due to a lack of friendships and fear of dementia both play a major factor in life now that I am in my mid 50’s.

Thank you for this, lots of good information. I had epilepsy as a child (age6-13) and nothing for about 33 years, and now I've had 3 tonic-clonic seizures since 2019. I'm trying to learn more about this to try to avoid the triggers. It's nice talking to others that have experienced this before, it's easy to feel alone with this.

wow, this video explains exactly what I have... my neurologist is clueless and I will be seeing a new one soon! thank you!

Hi. I have it after car hit me. I have better an understanding, thank u for post. Regards

Thank you, excellent topic and excellent crystal clear explanation.

This is an excellent presentation of seizures, especially PNES. After 22 years, I still do not know what my son has. He seems to have seizures that fit into the PNES, but Dr's want to peg him with epilepsy after having normal EEG's for 22 years. The Washington DC area has very few sources of help. If we can come see you or anyone knows anyone please let me know. We are desperate for help.

Very good presentation. There is this false belief that if you can control your seizures through medication then every is okay. Listening to Dr. DeMarco the side effects of the anti-seizure medication over a lifetime does have negative consequences. Also if the seizure still occur, even in on an very infrequent basis, that is another psychological issue that the person to overcome. Surgery may be the best solution to get off the medication and to eliminate seizures.

my dad has epilepsy and he worked all his life. and smoked marijuana all his adult life and it kept his seizures down. he finally went for social security and they made him quit marijuana and his seizures spiked significantly. now he forgets what he's talking about in the middle of a sentence etc. he received his SSI now he's back on marijuana and he's doing better with his seizures.