American Liver Foundation
American Liver Foundation
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Life with Biliary Atresia and Beyond: Progressive Familial Intrahepatic Cholestasis
Join ALF as we cover the definition, cause, new approaches to diagnosis and novel therapies of Progressive Familial Intrahepatic Cholestasis. We were joined by William F. Balistreri, MD of Cincinnati Children's.
Timestamps:
0:01 - Welcome by Ivory Allison, National Director, Community Impact
1:21 - Introduction of Dr. Balistreri
4:07 - Progressive Familial Intrahepatic Cholestasis presented by Dr. Balistreri
49:29 - Questions and Comments to Dr. Balistreri
56:10 - Closing remarks
With questions about your liver health, please call 1-800-GO-LIVER. For more information about the American Liver Foundation, please visit liverfoundation.org/.
More information about pediatric liver diseases, including PFIC can be found online on the American Liver Foundation website at liver.fyi/PFIC.
Join our Life with Biliary Atresia & Beyond: American Liver Foundation Support Group here: liver.news/fbgba
zhlédnutí: 171

Video

Jessie Boyd's Story
zhlédnutí 704Před 21 dnem
Jessie thought she had food poisoning. When tests revealed a rare liver disease, Budd-Chiari Syndrome, her entire world was flipped upside down. Jessie was our 2024 FLAVORS, a national culinary event, LIVEr Champion. Learn how you can support patients like Jessie at liverfoundation.org. Learn more about joining us at FLAVORS here: alf.social/FLAVORS. To join our mail list visit liver.news/llwma...
Updates on Hepatitis B and C for Patients
zhlédnutí 434Před měsícem
American Liver Foundation hosted an educational webinar focused on screening, linkage to care, and disparities in the cascade of care and new HBV screening and vaccination guidelines and Hep C Treatment. The speakers for this webinar were: Robert J. Wong, MD, MS, Staff Physician, Gastroenterology Section, VA Palo Alto Healthcare System, Clinical Associate Professor, Division of Gastroenterology...
Obesity: The Leading Cause of NAFLD and the Most Urgent Threat to Public Health Today
zhlédnutí 450Před měsícem
On May 15, 2024, American Liver Foundation held a Congressional briefing on obesity and nonalcoholic fatty liver disease (NAFLD). Speakers discussed current dynamics around obesity and liver disease as the prevalence of liver disease is increasing nationwide in parallel with the obesity epidemic. This briefing addressed the potential for dual benefit from obesity-reduction efforts in confrontin...
2024 Rebirthday Celebration
zhlédnutí 103Před měsícem
On April 13, 2024, we hosted a virtual Rebirthday Celebration, occurring every April, Donate Life Month, for over 20 years to celebrate liver transplant recipients. We would like to thank host and liver patient Gina Pollichino, as well as guest speaker, Nabil Dagher, MD, Vice President & Director of Northwell Health Transplant Center at North Shore University Hospital, New York. Timestamps: 0:0...
Liver Live Walk 15
zhlédnutí 99Před 2 měsíci
Liver Life Walk raises funds and awareness for liver disease and helps create life-long connections and networks of support between patients, families and all those affected by liver disease. Together, we are moving closer to a world without liver disease. If you have questions about your liver health, please call our free confidential helpline at 1-800-GO-LIVER. For more information about the ...
Liver Life Walk 30
zhlédnutí 89Před 2 měsíci
Liver Life Walk raises funds and awareness for liver disease and helps create life-long connections and networks of support between patients, families and all those affected by liver disease. Together, we are moving closer to a world without liver disease. If you have questions about your liver health, please call our free confidential helpline at 1-800-GO-LIVER. For more information about the ...
Liver Life Walk 60
zhlédnutí 216Před 2 měsíci
Liver Life Walk raises funds and awareness for liver disease and helps create life-long connections and networks of support between patients, families and all those affected by liver disease. Together, we are moving closer to a world without liver disease. If you have questions about your liver health, please call our free confidential helpline at 1-800-GO-LIVER. For more information about the ...
What is Symptom-Based Management & Palliative Care in Decompensated Cirrhosis?, Nivetha Saravanan MD
zhlédnutí 172Před 2 měsíci
For our 2024 Poster Competition, Nivetha Saravanan, MD of Northwestern McGaw Medical Center presents "What is Symptom-Based Management & Palliative Care in Decompensated Cirrhosis?" Dr. Saravanan was mentored by Amanda C. Cheung, MD. Learn more about the American Liver Foundation Poster Competition and vote for Dr. Saravanan's poster here: alfevents.org/poster-competition/support-2024/#nivethas...
Understanding Your Liver Health, Vinay Jahagardar, MD, Kaanthi Rama, MD
zhlédnutí 165Před 3 měsíci
For our 2024 Poster Competition, Vinay Jahagardar, MD, Kaanthi Rama, MD of University of Missouri Kansas City present "Understanding Your Liver Health: MASLD* & MASH* Explained." This team was mentored by Anupama U. Nookala, MD. Learn more about the American Liver Foundation Poster Competition and vote for this poster here: alfevents.org/poster-competition/support-2024/#vinayjahagardar For more...
What is Symptom-Based Management & Palliative Care in Decompensated Cirrhosis?, Nivetha Saravanan MD
zhlédnutí 47Před 3 měsíci
For our 2024 Poster Competition, Nivetha Saravanan, MD of Northwestern McGaw Medical Center presents "What is Symptom-Based Management & Palliative Care in Decompensated Cirrhosis?" Dr. Saravanan was mentored by Amanda C. Cheung, MD. Learn more about the American Liver Foundation Poster Competition here: alfevents.org/poster-competit... For more information about the American Liver Foundation, ...
What Factors Cause Hispanic Men and Women to Have Chronic Liver Disease Rates... Eduardo A Canto
zhlédnutí 194Před 3 měsíci
For our 2024 Poster Competition, Eduardo A Canto of Creighton University School of Medicine presents "What Factors Cause Hispanic Men and Women to Have Chronic Liver Disease Rates That are Twice that of the Non-Hispanic White Population?" Eduardo was mentored by Rajani Rangray, MD. Learn more about the American Liver Foundation Poster Competition and vote for Eduardo's poster here: alfevents.or...
Progressive Familial Intrahepatic Cholestasis, Veronica Lee, DO, MS, Sarah Bedoyan, MD, MA
zhlédnutí 227Před 3 měsíci
For our 2024 Poster Competition, Veronica Lee, DO, MS, and Sarah Bedoyan, MD, of Children's Hospital of Pittsburgh present "Progressive Familial Intrahepatic Cholestasis." Drs. Lee and Bedoyan were mentored by James Squires, MD, MS. Learn more about the American Liver Foundation Poster Competition and vote for Drs. Lee and Bedoyan's poster here: alfevents.org/poster-competition/support-2024/#ve...
What is the Relationship Between Obesity, Diabetes and Fatty Liver? Zubia Afzal, MD
zhlédnutí 157Před 3 měsíci
For our 2024 Poster Competition, Zubia Afzal, MD of King Edward Medical University presents "What is the Relationship Between Obesity, Diabetes and Fatty Liver*?" Dr. Afzal was mentored by Kamran Qureshi, MD. Learn more about the American Liver Foundation Poster Competition and vote for Dr. Afzal's poster here: alfevents.org/poster-competition/support-2024/#zubiaafzal For more information about...
Understanding Cholangiocarcinoma: Background, Diagnosis, & Treatment, Terry Li, MD
zhlédnutí 65Před 3 měsíci
Understanding Cholangiocarcinoma: Background, Diagnosis, & Treatment, Terry Li, MD
Can Ozempic or Wegovy Help Your Liver Lose Weight, Too? Mohammed Abourahma, MD
zhlédnutí 238Před 3 měsíci
Can Ozempic or Wegovy Help Your Liver Lose Weight, Too? Mohammed Abourahma, MD
Pediatric Fatty Liver Disease*, Dinkar Ahujar, MD
zhlédnutí 69Před 3 měsíci
Pediatric Fatty Liver Disease*, Dinkar Ahujar, MD
What is Crigler-Najjar Syndrome? - Symptoms, Treatment, and Prognosis, Danielle Zamalin, MD
zhlédnutí 313Před 3 měsíci
What is Crigler-Najjar Syndrome? - Symptoms, Treatment, and Prognosis, Danielle Zamalin, MD
What are the determinants of health after liver transplantation? Jeffrey A Lowell, MD, PhD
zhlédnutí 85Před 3 měsíci
What are the determinants of health after liver transplantation? Jeffrey A Lowell, MD, PhD
Feeding Fatty Liver*: Exploring the Link between Food Insecurity & Liver Disease, Asahi Hoque MD MPH
zhlédnutí 141Před 3 měsíci
Feeding Fatty Liver*: Exploring the Link between Food Insecurity & Liver Disease, Asahi Hoque MD MPH
Donor Evaluation Process for Living Donor Liver Transplant (LDLT), Shawn Wen, MD
zhlédnutí 71Před 3 měsíci
Donor Evaluation Process for Living Donor Liver Transplant (LDLT), Shawn Wen, MD
Kasai Procedure, Tess Coker, MD
zhlédnutí 248Před 3 měsíci
Kasai Procedure, Tess Coker, MD
What are risk factors for liver cancer and how can you prevent it?, Sneha Ajit, MD
zhlédnutí 104Před 3 měsíci
What are risk factors for liver cancer and how can you prevent it?, Sneha Ajit, MD
I Have Fatty Liver Disease, What's Next?, Ramya Radhakrishnan, MD
zhlédnutí 190Před 3 měsíci
I Have Fatty Liver Disease, What's Next?, Ramya Radhakrishnan, MD
Gender Disparities in Chronic Liver Disease, Michelle Jones-Pauley, DO
zhlédnutí 51Před 3 měsíci
Gender Disparities in Chronic Liver Disease, Michelle Jones-Pauley, DO
Intrahepatic Cholestasis of Pregnancy, Lauren Walters, MD
zhlédnutí 220Před 3 měsíci
Intrahepatic Cholestasis of Pregnancy, Lauren Walters, MD
Complications of Primary Sclerosing Cholangitis (PSC), Anita Kottapalli, MD
zhlédnutí 117Před 3 měsíci
Complications of Primary Sclerosing Cholangitis (PSC), Anita Kottapalli, MD
What Factors Determine the Need for a Transplant in Patients with NAFLD*?, Christine Son, MD
zhlédnutí 54Před 3 měsíci
What Factors Determine the Need for a Transplant in Patients with NAFLD*?, Christine Son, MD
Liver Transplantation in Cholangiocarcinoma: Where are We Today?, Alexander O'Hara, MD
zhlédnutí 61Před 3 měsíci
Liver Transplantation in Cholangiocarcinoma: Where are We Today?, Alexander O'Hara, MD
How Can Nutrition Aid Your Liver Health?, Muyi Li, MD
zhlédnutí 89Před 3 měsíci
How Can Nutrition Aid Your Liver Health?, Muyi Li, MD

Komentáře

  • @annabellswint5718
    @annabellswint5718 Před 3 dny

    Very informative. My sister is battling cirrhosis. I have NASH along with diabetes.

  • @izelyrileytv335
    @izelyrileytv335 Před 3 dny

    I was able to Reverse Fatty Liver Disease. With weight loss and exercises. I have some meal inspiration ideas Inspo For those Days on Amazon.

  • @k.bungong9665
    @k.bungong9665 Před 6 dny

    Can hypertitis c turn into hypertitis b?

  • @melieaperakis1
    @melieaperakis1 Před 6 dny

    My mother just passed with stomach and liver cancer. We only had 3 weeks with her before she passed. She had all her Covid vaccines plus more.

  • @ojotijesunimi5828
    @ojotijesunimi5828 Před 8 dny

    Thank you so much. SHORT AND STRAIGHT TO THE POINT.

  • @thetransferaccount4586

    not helpful at all though

  • @videoworks7731
    @videoworks7731 Před 9 dny

    Went to an Ayurvedic Dr after having this problem for nearly 3 years.Followed Ayurvedic diet protocols and slowly I was in recovery. I might use a diuretic once or twice a month just to keep the retention clear. So far progress has been good

    • @engeneeringvehicle507
      @engeneeringvehicle507 Před 7 dny

      I went to Ayurvedic too now just 20days any fell little bit better but the fluid still full

  • @k2ashley
    @k2ashley Před 9 dny

    Wow ! I bet a few died off this poor advice .

  • @Nisha-kl8rl
    @Nisha-kl8rl Před 10 dny

    When dealing with liver disease, Planet Ayurveda’s treatment is the best. The use of herbs and holistic care brought me back to health.

  • @Haile-Gebriel
    @Haile-Gebriel Před 10 dny

    A great explanation. Thanks Doctor!

  • @sebastianortiz81
    @sebastianortiz81 Před 12 dny

    I dealt with ascites for over 3 years! Towards the end I was getting drained 10 liters every week. I received a heart and liver transplant and I no longer suffer from this horrible disease! I am forever grateful to the donor and their family to give me a second chance to live! I want to let others know there is hope! I pray everyone going through this that they may be cured! Much love to all!

  • @jasonskelly1502
    @jasonskelly1502 Před 13 dny

    What an inspiring story! I myself, have cirrhosis and was diagnosed with the genetic defect of hemachromatosis. It is good to hear such good news in regards to the conditions we suffer due to this disease.

  • @ellenmoreno6564
    @ellenmoreno6564 Před 13 dny

    Do we have any news on treatment ? What about vanco trial from Mayo Clinic ?

  • @supriyapriyadarshini8751

    czcams.com/users/shorts28tfRmyswwQ

  • @VeneraBerens
    @VeneraBerens Před 18 dny

    😂😢😂TELL THAT TO MILLIONS OF ANOREXIC PATIENTS WHO SUFFER FROM FATTY LIVER DISEASE AMONG OTHER THINGS WHO COINCIDENTALLY ARE ALSO AS ANOREXICS DENIED ANY MEDICAL HELP OTHER THEN END OF LIFE CARE WHEN ITS TIME 😢😂😢

  • @xzookeeper
    @xzookeeper Před 19 dny

    That is my life now but mine is due to peritoneal carcinomatosis. Every three weeks I go and have 5.6 to 6.9 liters removed. I have done this 5 times so far. Two more weeks it will be time again.

  • @ZH-Rocks
    @ZH-Rocks Před 21 dnem

    Just want to know what did you do to get rid of this???

  • @ZH-Rocks
    @ZH-Rocks Před 21 dnem

    Thank you for sharing your video.my husband is going through same problem and is draining around 2 liters daily😢

  • @subasthapa4839
    @subasthapa4839 Před 22 dny

    ❣️

  • @westfield90
    @westfield90 Před 22 dny

    So nafld is non progressive but then the slide shows it can progress to Nash

  • @JstJacko
    @JstJacko Před 23 dny

    Teaspoons is nice and all, but food labels list sugars and added sugars in grams.

  • @merrywhiterose
    @merrywhiterose Před 23 dny

    For me, I had a regular checkup with blood work done. My liver values were over 1,000. An ultrasound was done & a large mass was found in my KIDNEY. My kidney was removed & the doctor assumed I'd be fine. Two weeks after that I kept getting sudden fever, chills & extreme fatigue every two weeks. My doctor had no idea what was going on, but sent me to a GI dr. due to my high liver values previously. After a CT scan & MRI, my GI dr. couldn't figure it out. The 2nd GI right away knew what I had.

  • @lisetta5052
    @lisetta5052 Před 23 dny

    I just had a fibroscan Monday and was told my result is 17.2 that puts me in the cirrhosis category. The fat content number also puts me S3 in NASH. NO ONE, has been available to talk to about this and I’ve been calling everyday. There is so much conflicting information out there as to how I should eat, whether to cut carbs completely or if healthy carbs should still be included. The doctor says my referral was put in over 6 months ago, and I’m still waiting to see a consultant. I need help, why is the dietary info so different, even amongst doctors?

  • @jennafishy97
    @jennafishy97 Před 23 dny

    Not me watching this because I was just diagnosed

  • @thetransferaccount4586

    the questions part was helpful.. thank you

  • @Graceii800
    @Graceii800 Před 26 dny

    Being recommended to Dr Abiola on CZcams was a blessing after years of suffering . I have finally been cured from HEPATITIS virus thanks Dr Abiola you are indeed a Blessing to this generation #DRABIOLA ❤☮️

  • @Graceii800
    @Graceii800 Před 26 dny

    Being recommended to Dr Abiola on CZcams was a blessing after years of suffering . I have finally been cured from HEPATITIS virus thanks Dr Abiola you are indeed a Blessing to this generation #DRABIOLA ❤☮️

  • @Graceii800
    @Graceii800 Před 26 dny

    Being recommended to Dr Abiola on CZcams was a blessing after years of suffering . I have finally been cured from HEPATITIS virus thanks Dr Abiola you are indeed a Blessing to this generation #DRABIOLA ❤☮️

  • @willpepsin981
    @willpepsin981 Před 27 dny

    if everyone took this "doctors" advice then we would all be in serious trouble.

  • @melk.175
    @melk.175 Před měsícem

    What is the name of her surgeon? I didnt see him listed at Cleveland clinic... thanks for anyone that can here this

  • @user-fo2cc7xx4y
    @user-fo2cc7xx4y Před měsícem

    Histotripsy

  • @Maranatha..
    @Maranatha.. Před měsícem

    Does this also happen with metastasis in the liver?

  • @rhodieeisenhart9060
    @rhodieeisenhart9060 Před měsícem

    💞 *Promosm*

  • @dr.anjali421
    @dr.anjali421 Před měsícem

    I an thin,tall..I have diagnosed stage 4 liver fibrosis / cirrhosis . I don't have hepatitis.. I do exercise..started eating healthy now..can i lead a normal life?

  • @mandiraadak6757
    @mandiraadak6757 Před měsícem

    I am 23 year old now ,and l suffering non alcoholic fatty liver disease,my weights 40 ,i am so upset

  • @user-qz5qm2zi3b
    @user-qz5qm2zi3b Před měsícem

    i was referred to a hepatologist for cysts and hematoma of liver on ctscan; for chronic stomach discomfort for five years and increased fatigue and now dry cough. I also have lung nodules, I'm 70 years old. I'm confused why i need to go to liver specialist as from what i understand the cysts and hematoma are all benign? "left hepatic lobe hemangioma, currently measures 2.8 cm, with adjacent geographic area of arterial hyperenhancement without definite washout, favored perfusional.Redemonstrated hypoattenuating hepatic cysts within the right lobe. There is mild interval enlargement of segment 6 hepatic cyst, currently measures 2.6 cm". I don't understand the the without definite washout part. Do you think I need to see specialist? Thank you and hope to hear back. Deborah (alastraart@gmail.com)

  • @pianoworldastghiklevonyang2574

    Why she is that happy while giving the speech I don’t get it

    • @lydiaahubbell8545
      @lydiaahubbell8545 Před 18 dny

      my first impression, to. I guess she is excited about getting the word out,

  • @user-iu9uf5kq4k
    @user-iu9uf5kq4k Před měsícem

    I've been Diagnosed at age 57 in 2006,Ive been on Urrso 500 2x day,and ocaliva since 2019, I have Hypothyroidism and borderline Osteoporosis I'm on Statin drugs,I weigh 120 lbs 5 ft 1, No liver fibrosis,but have a fatty liver..My recent blood work shows my Alkaline Phosphatase is 125

  • @Amritpalsingh-mc4kx
    @Amritpalsingh-mc4kx Před měsícem

    Highly recommend the Liver Care Pack from Planet Ayurveda. My overall health has seen a noticeable improvement. Natural and effective!"

  • @ccalexander1924
    @ccalexander1924 Před měsícem

    I have a couple cyst on my liver. Two radiologist read my mri and told me the same thing. I asked if I need to monitor it and have it scanned again in a year but I was told no. It’s a cyst and they see a lot of those on mri scans.

  • @mrs.p6130
    @mrs.p6130 Před měsícem

    My worst symptom having covid eas excruciating right shoulder pain.

  • @ben-jam-in6941
    @ben-jam-in6941 Před měsícem

    My father was just (about 2 hours ago) told he had maybe 2 weeks to live. He had just had blood work done that came back looking normal less than 2 months ago. He had just the 1st jab because my mom had been bombarded with scare tactics and then we all got our heads in order and didn’t get anymore jabs. It seems that one jab was enough to ruin my family.

  • @ben-jam-in6941
    @ben-jam-in6941 Před měsícem

    My father had one jab and then after my mother kinda lost some of that initial fear of the bat disease they wished they had never gotten jabbed even the once. Unfortunately and devastatingly my father was just informed (about 2 hours ago) he had two weeks to live. He had blood tests only a couple months ago and his liver enzymes and everything else looked normal. I feel like I’ve just been hit in the guts with a sledgehammer and much much more than that. The speed is crazy. My Mom said 2 weeks and I assumed I misunderstood over the phone but nope. I hate them for what they’re doing to our family, and the human population. Of course we still got freakin sick with bat disease and it wasn’t a walk in the park like they said it would be for jabbed fools like us. God please take this hate out of my heart and please punish the people who have caused all this suffering and loss. Lord give all of us going through this strength and wisdom and be with our suffering loved ones both the sick and those family members and friends who suffer with them. In Jesus Christ name Amen.

  • @sheelawolford937
    @sheelawolford937 Před měsícem

    If my MELD is 10 and while I have cirrhosis, can I sustain this and avoid liver transplantation, especially if I might not qualify. Beat breast cancer twice.

  • @1320lennman
    @1320lennman Před měsícem

    Wow...what an amazing story. So glad you're doing well.

  • @A-Wreck
    @A-Wreck Před měsícem

    Truly heartwarming! Go Jessie! Those kids are so fortunate you’re here to lead them into the future ❤️👏🏼

  • @dlg7551
    @dlg7551 Před měsícem

    Jessie is an inspiration to all. She keeps hope alive. 💜

  • @MrGeorgewf
    @MrGeorgewf Před měsícem

    Stool was pale? How long? Was it all the time or periodically.

  • @maryneal154
    @maryneal154 Před měsícem

    How much do the medcine

  • @bikerglammom
    @bikerglammom Před měsícem

    Always feel better after watching this! Very informative and a reminder of what I can do to stem the tide of PBC!