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Encephalitis International
United Kingdom
Registrace 26. 03. 2009
Encephalitis is inflammation of the brain caused by infection (usually viral) or by autoimmune disease. Encephalitis is indiscriminate, striking adults and children alike, showing no respect for age, gender, ethnicity or culture. Mortality rates are high and many of those who survive are left with an acquired brain injury, the degree and severity of which will vary.
Encephalitis International is a registered non-profit organisation and the only resource of its kind in the world. We provide direct support and information to people affected by encephalitis around the world.
No matter where you live in the world, we are here to help. Get in touch by visiting our website at www.encephalitis.info
Encephalitis International is a registered non-profit organisation and the only resource of its kind in the world. We provide direct support and information to people affected by encephalitis around the world.
No matter where you live in the world, we are here to help. Get in touch by visiting our website at www.encephalitis.info
Shot in the Arm Highlights - Vaccine Preventable Encephalitis Campaign
Encephalitis International were thrilled to host the UK premiere of Shot in the Arm documentary (shotinthearmmovie.com). A powerful film showcasing vaccines and the misinformation about them that is causing harm. We are particularly passionate about vaccines as they can prevent death and disability from encephalitis.
zhlédnutí: 50
Video
World Encephalitis Day 2024 Highlights
zhlédnutí 255Před dnem
Watch our World Encephalitis Day Highlights film which showcases the amazing campaign that reached over 224 million people worldwide.
Enzephalitis und mentale Gesundheit - Encephalitis and mental health - German
zhlédnutí 38Před 28 dny
Wie kann sich eine Enzephalitis auf die psychische Gesundheit eines Menschen auswirken? Unsere Animation soll Ihnen eine Einführung in psychische Gesundheitsprobleme, die Auswirkungen von Enzephalitis und einige Tipps von anderen mit Erfahrungen mit Enzephalitis geben, was helfen kann. Weitere Informationen zu Enzephalitis und psychischer Gesundheit finden Sie auf unserer Website www.encephalit...
Wie wirkt sich die Enzephalitis auf Familien und Betreuer aus? How can families support? - German
zhlédnutí 28Před 28 dny
Wie wirkt sich eine Enzephalitis auf Familien und Betreuer aus? In diesem animierten Video betrachten wir die emotionalen, sozialen, körperlichen und finanziellen Auswirkungen, die die Pflege auf jemanden haben kann, der eine von Enzephalitis betroffene Person unterstützt. Bitte teilen Sie diesen Film und helfen Sie, das Bewusstsein für Enzephalitis und ihre Folgen zu schärfen. Sie können sich ...
Was können die Menschen zu Hause tun, um ihre Genesung von der Enzephalitis zu unterstützen?
zhlédnutí 23Před 28 dny
Was können Menschen zu Hause tun, um ihre Genesung von Enzephalitis zu unterstützen? In diesem animierten Video sehen wir uns einige Hinweise und Tipps zur Selbsthilfe an, die von unseren Mitgliedern und Experten vorgeschlagen wurden. Bitte teilen Sie diesen Film und helfen Sie, das Bewusstsein für Enzephalitis und ihre Folgen zu schärfen. Sie können sich die vollständige Serie ansehen, in der ...
Was geschieht während der Genesung und Rehabilitation nach einer Enzephalitis? Recovery - German
zhlédnutí 18Před 28 dny
Dies ist die sechste Animation in der Serie "Understanding Encephalitis" der Encephalitis Society, die die Frage "Was passiert während der Genesung und Rehabilitation von Enzephalitis?" in weniger als 80 Sekunden beantwortet. Bitte teilen Sie diesen Film und helfen Sie, das Bewusstsein für Enzephalitis und ihre Folgen zu schärfen. Sie können sich die vollständige Serie ansehen, in der Sie erklä...
Welche Auswirkungen hat die Enzephalitis? What are the effects of Encephalitis? - German
zhlédnutí 48Před 28 dny
Die fünfte Animation der Encephalitis Society beantwortet die Frage "Was sind die Auswirkungen von Enzephalitis?" in weniger als 95 Sekunden. Bitte teilen Sie diesen Film und helfen Sie, das Bewusstsein für Enzephalitis und ihre Folgen zu schärfen. Sie können sich die vollständige Serie ansehen, in der Sie erklären, was "Was ist Enzephalitis?" hier: czcams.com/play/PL6h03a0LQ8NGP-SfE8IERxL3UbGM...
Wie wird die Enzephalitis behandelt? How is encephalitis treated? - German
zhlédnutí 30Před 28 dny
Die vierte Animation der Encephalitis Society beantwortet die Frage "Wie wird Enzephalitis behandelt?" in weniger als 85 Sekunden. Bitte teilen Sie diesen Film und helfen Sie, das Bewusstsein für Enzephalitis und ihre Folgen zu schärfen. Sie können sich die vollständige Serie ansehen, in der Sie erklären, was "Was ist Enzephalitis?" hier: czcams.com/play/PL6h03a0LQ8NGP-SfE8IERxL3UbGMR6NEN.html ...
Wie wird eine Enzephalitis diagnostiziert? How is Encephalitis diagnosed? - German
zhlédnutí 48Před 28 dny
Eine dritte Animation der Encephalitis Society beantwortet die Frage "Wie wird eine Enzephalitis diagnostiziert?" in weniger als 70 Sekunden. Bitte teilen Sie diesen Film und helfen Sie, das Bewusstsein für Enzephalitis und ihre Folgen zu schärfen. Wenn Sie von einer Enzephalitis betroffen sind und Unterstützung benötigen, besuchen Sie bitte www.encephalitis.info/support Folgen Sie der Encephal...
Was sind die Symptome einer Enzephalitis? What are the symptoms of Encephalitis? - German
zhlédnutí 56Před 28 dny
Eine zweite Animation der Encephalitis Society, die die Frage "Was sind die Symptome einer Enzephalitis?" in 80 Sekunden beantwortet. Bitte teilen Sie diesen Film und helfen Sie, das Bewusstsein für Enzephalitis und ihre Folgen zu schärfen. Wenn Sie von einer Enzephalitis betroffen sind und Unterstützung benötigen, besuchen Sie bitte www.encephalitis.info/support Folgen Sie der Encephalitis Soc...
Was ist eine Enzephalitis? What is Encephalitis - German
zhlédnutí 29Před 28 dny
Eine Animation der Encephalitis Society, die die Frage "Was ist Enzephalitis?" in 60 Sekunden beantwortet. Bitte teilen Sie diesen Film und helfen Sie, das Bewusstsein für Enzephalitis und ihre Folgen zu schärfen. Wenn Sie von einer Enzephalitis betroffen sind und Unterstützung benötigen, besuchen Sie bitte www.encephalitis.info/support Wenn Sie von einer Enzephalitis betroffen sind und Mitglie...
Vaccine-preventable Tick-Borne Encephalitis - Joe's story
zhlédnutí 125Před měsícem
Joe talks about his experience of encephalitis. If you have been affected by encephalitis and are in need of some support, please visit www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visit...
Vaccine Preventable Encephalitis - VZV - Tim's Story
zhlédnutí 211Před 2 měsíci
Tim share's his story of VZV encephalitis. If you have been affected by encephalitis and are in need of some support, please visit www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: ...
Vaccine-preventable encephalitis campaign, Influenza (flu) encephalitis- Erin's story
zhlédnutí 224Před 2 měsíci
Erin and her mum (Australia) are sharing Erin's story of influenza (flu) encephalitis as part of the Encephalitis International Vaccine-preventable encephalitis awareness campaign 2024. To find out more about this type of encephalitis, please visit our website www.encephalitis.info If you have been affected by encephalitis and are in need of some support, please visit www.encephalitis.info/supp...
Vaccine-preventable encephalitis - Japanese encephalitis, Kelly' story
zhlédnutí 242Před 2 měsíci
Kelly from Canada shares her story of Japanese encephalitis acquired while travelling as part of the Encephalitis International Vaccine-preventable encephalitis awareness campaign 2024. To find out more about this type of encephalitis, please visit www.encephalitis.info If you have been affected by encephalitis and are in need of some support, please visit www.encephalitis.info/support If you w...
Vaccine Preventable Encephalitis - Measles - Gemma's Story
zhlédnutí 142Před 2 měsíci
Vaccine Preventable Encephalitis - Measles - Gemma's Story
Vaccine-preventable encephalitis animation
zhlédnutí 144Před 2 měsíci
Vaccine-preventable encephalitis animation
What was school like after encephalitis?
zhlédnutí 430Před 4 měsíci
What was school like after encephalitis?
Advice for young people entering the workplace after encephalitis
zhlédnutí 220Před 4 měsíci
Advice for young people entering the workplace after encephalitis
World Encephalitis Day 2024 at Umhlanga Hospital, Durban, South Africa
zhlédnutí 453Před 4 měsíci
World Encephalitis Day 2024 at Umhlanga Hospital, Durban, South Africa
Henry's encephalitis story - World Encephalitis Day 2024
zhlédnutí 1,2KPřed 4 měsíci
Henry's encephalitis story - World Encephalitis Day 2024
Don't Delay. Give Today. A message from our Chief Executive
zhlédnutí 167Před 5 měsíci
Don't Delay. Give Today. A message from our Chief Executive
Encephalitis Conference 2023 - the highlights
zhlédnutí 339Před 5 měsíci
Encephalitis Conference 2023 - the highlights
What are the symptoms of encephalitis?
zhlédnutí 854Před 5 měsíci
What are the symptoms of encephalitis?
Comment l'encéphalite affecte-t-elle les familles et les aidants ? - Families & carers - French
zhlédnutí 125Před 5 měsíci
Comment l'encéphalite affecte-t-elle les familles et les aidants ? - Families & carers - French
Don't Delay. Give Today. Our World Encephalitis Day 2024 appeal
zhlédnutí 1KPřed 5 měsíci
Don't Delay. Give Today. Our World Encephalitis Day 2024 appeal
Lucy: Herpes Simplex Encephalitis Lived Experience
zhlédnutí 1,1KPřed 6 měsíci
Lucy: Herpes Simplex Encephalitis Lived Experience
Encephalitis International - 2023, Our year of impact
zhlédnutí 156Před 6 měsíci
Encephalitis International - 2023, Our year of impact
Kevin: Meningoencephalitis Lived Experience
zhlédnutí 1,5KPřed 6 měsíci
Kevin: Meningoencephalitis Lived Experience
I am incredibly grateful I have been under your care, Dr Odija on CZcams. Your dedication to your patients' well-being and the impact you have on their lives are immeasurable. Thank you for using your expertise to unravel the complexities of herpes and provide me with the finest medical care possible ***
I got my encephalitis a year into covid, couldn't do anything for so long, and all the covid stuff about vaccinations was infuriating
Your generosity towards my infection called Herpes virus is incomparable. You assured me of getting healed and surprisingly after 14days of taking the medication I was tested for herpes Negative. Thanks Dr Odija I will keep letting the world know about your CZcams channel 💟
God bless you now and always Dr Odija on youtube, Just wanted to say a big THANK YOU for helping me cure my Genital Herpes I was facing, i am now HSV negative after my test result came out, I will be happy to recommend you to other people around the word🔹🔹
My wife was diagnosed viral encephalitis in 2009 and fully recovered she died in 2023 . It was a long hard journey…..very hard…..I only mention this because as the lady in the video mentioned a new normal……I wish the best to all of you
Very nice doctor
Chk out citizens in Less Develop Countries!
Our website has information on how we are currently trying to reach out to other countries and how you may be able to help. www.encephalitis.info/changemakers
Please help bring the Enterovirus 71 vaccine to the US. The virus is here! My husband (36) was in a long coma from this and will never be the same. We are in IN and have connected with multiple families via social media across the Midwest impacted by HFM in this way. Daycare providers have no idea that Hand Foot Mouth can be fatal! We need the vaccine and education. I’m begging for help on this, as a 36 year old near widow, now care taker and mother of 2 babies/toddlers.
Hi, thank you for sharing and I am so sorry to hear about your experience. Please do get in touch with our support team if you would like to talk though anything.
I had encephalitis 2 months ago. And so much of what you described is exactly what I'm going through now. No I'm not the same person anymore I'm sort of detached and lost. But watching this has given me hope and comfort to move forward knowing I'm not alone. All the very best to you Mathew thank you for posting.
Please do get in touch if you would like any support though your recent experience of encephalitis.
Lucy you are such a great person that I’d love to meet ,
How do you join this group ,
Hi, please get in touch with us on our website and we can help. www.encephalitis.info/online-support-meetings
Poor Girl ❤
My husband was recently diagnosed with this after 6 months of misdiagnosis. The neurological community should be more aware of the signs and be trained to test for this early on when someone presents with seizures and memory loss/confusion after being perfectly normal. This illness is life changing and it’s amazing how hard it is to find a neurologist who is trained in treating it.
Please do get in touch if you need any support.
Please raise awareness with Brain on Fire film true story on this condition! :(
We have the book on our website also :)
I am Gabriella. I saw Dr Nick Davies this week on 120 harley Street in London. He is a lovely man and very attentive. Since he saw me I am feeling worst. I can barely walk… I asked Mr Davies Please watch the Brain on Fire film what is about Autoimmune Encephalitis based on a true story with Susan Cahallan. Sometimes no MRI no Blood test shows it. Over 7 weeks now having worsening symptoms in this 3 days it persisted symptoms. I can barely function and the ongoing pressure on my head and the way it is harder to walk every day. Please someone help.
Please do contact Encephalitis International for support if you feel it will help.
I went thru this recently and I was so scared of this
Hi, please do get in touch if you would like any support. We have lots of information and resources on our website plus a support line and virtual gatherings.
Thank for ur precious detailed info !
This really resonates. Thanks for this
Inspiring! God bless you!
Prayer sure helps
I think I have this now. But noone believes me. Sad!
Hi, please do visit our website for any information on how we can support you.
I was just discharged with Autoimmune Encephalitis, I'm English and married in the United States, I have no health insurance, and no green card yet, in England, they put me in multiple psyche wards through a misdiagnosis of schizophrenia, after spending 12 months institutionalised my wife helped me move here through a marriage green card, and finally got me out of England; two years into our marriage, I began to have a seizure, which triggered the autoimmune encephalitis, I was just discharged last week after two weeks in hospital, a spinal tap, and 14 days on a Saline IV, I'm so thankful to be alive, and had never heard of this condition beforehand, I didn't know my own name, but I knew who my wife was, its horrible to think that if this happened in England, they would have resectioned me into a psyche ward through misdiagnosis, and I would be dead; I feel very lucky.
Thank you for sharing your experience. Our website has lots of information on how we may be able to support you, if required.
Hey do you think that there is correlation between benzos an encepyhltis ? Because when people come off benzos they experience all the exact same symptoms as encephylitis. I mean down to a t. An bensos can cause a weakened immune system also can cause nervous system damage. All correlated to encephylotis. If this was the case then people thar are On benzos for long period of time anthen come off may have drug induced encephyltis. All the symptoms are exactly the same. Also benzos can treat brain inflammation. Well then due to there addictive nature it would make sense that benzos can actually cause brain inflammation when taken off. An I beleive that many people are suffering , not from benzo withdrawal, but from benzo induced encephyltis.
Hi, we have lots ongoing research into encephalitis. This is not something we have come across. Please do visit our website for information on our research.
@@encephalitisinternational you should do research on this. More research needs to be done on what long term benzodiazepine use actually does. They know that it can cause bind , benzo induced nuerological disorder, wich is potentially linked to nueroinflamattion. Wich can also be types of encephalitis. Or encephalopathy. I'll look into your site more tho thanks for the response.
@@encephalitisinternational I'll check out your site. But more research needs done on long term benzodiazepine use. An it's potential relation between nueroinflamattion an encephalitis.
Thank you for sharing your story
I’d love to get a vaccine for Enterovirus 71 in the USA. It is available in other countries, but not here. Please! This virus caused both Encephalitis, Meningitis, Myocarditis, Rhabdo, Pneumonia, Lung Hemorrhage, and 6 Pulmonary Emboli! A long coma and recovery at just 36. The virus was from my daughter’s preschool and we know of many children who also suffered.
Hi, please do visit our website for ways we may be able to support.
Thank you
I have this. How do I get help?
Hi, please visit our website for ways we can support you.
Is there a support group in Germany? I could not find one. Patients in Germany reading this please comment. (:
Hi, we have online support groups which you may be interested in. Please visit our website for more information.
Sir i am dr.vinayak patil. My 5 year old daughter has autoimmune encephalitis and is in the hospital since 15 days. Ivig inj, inj methylprednisolone, inj levipil(Levetiracetam), inj Fosphenytoin (neofost), inj Gardenal (Phenobarbitone), inj Dexmedetomidine all started on drip. still did not get much result, seizures came 3/4 times a day then in drs given Midazolam drip and put on the ventilator. And it helped in reducing the spikes in the brain . Then some seizures went away. After applying midazolam drip after 2 days midazolam inj were stopped. And removed the ventilator. But now after reducing midazolam, seizures are still occurring in less quantity. Now there are 3 anti seizures drugs along with inj Lacosamide and tab Tapomac. There is still some abnormality in the eeg Feedback
Hi, please do get in touch with us to see if we can support you in anyway. We have a phone line or email support which can be seen on our website.
I had a seizure and posteriorly dislocated both shoulders. And it scorched my corneas so I was blind for almost a year. Prosthetic corneas do the trick.
Hi please do get in touch if you would like to see how we can offer you some support.
😢😢😢😢😢 i feel your pain my sister
You're a great mother, and a great person for telling your story.
I was a professor and a PhD holder before I got autoimmune disease and autoimmune encephalitis, I cannot do anything anymore now, I need assistance from the encephalitis society...
Dear Astrid, I am so sorry to hear about your encephalitis illness. Please do contact our support service on support@encephalitis.info and we will do our best to support you.
Wow i got mengitis and then mine also turned into encephalitis.and wow he is going threw same as me im struggling with liking the new me i desperatly want to get back to the old me im just a shadow of the old former me 😮💨
Hi, please check our website for ways we may be able to support you.
I was diagnosed with Autoimmune Encephalitis last year, in August. My life has not been the same since. I was having two seizures per day, behaving as I was completely out of my mind. I wasn't me, and I do not have many memories. I was lucky to have been diagnosed quickly, within a month. I started the treatment with steroids, immunosuppressors, anti seizure medication, and a bunch of other stuff to mitigate side effects... Thanks for posting this.
Thank you for sharing your experience. Our website has lots of information on how we may be able to support you, if required.
How is /was it vaccine preventable? I had my childhood vaccines yet still got encephalitis
HI, we have a telephone support line or email support if you have any questions and would like some help.
My mom is suffering from HSV encephalitis, she is in ICU from last 18 days. Please pray
Hi, if you would like any support with this please do get in touch via our website.
Hi My Wife is same case , pls help me get resources how she can recovery fully
Hi, please have a look at ways we can support you on our website. We have virtual support groups, a telephone support line or email support.
I’m 33 scotsman had encephalitis when I was 2years old live a normal life I’m a chef I have kids wife Your daughter will grow up and never look back 👌🙏
All of these individuals are so intelligent. I wish there was more education about Encephalitis and how it can change a person. It was hard for me.
Hi, please do get in touch with us if you would like support.
Hi I just read this and we think i have Auto immune Encephelitis, got Bad EEG readings, migraines, fatique, memory issues im 62 and it took 55 years to think outside the migraine Box we ma could have found it earlier.what is the treatment? Thanks in advance.
Hi, please check our website for ways we may be able to support you. Diagnosis is very tricky. We have email and telephone support if you have any questions.
This LGI1 encephalitis is relatively rare (according to my neurologist). There are probably fewer than 10 people known to have it in Switzerland. And I feel very lonely because of it. That makes your publication all the more valuable. I immediately recognize myself in some of your problems (emotionality, memory, tremors, etc.). I was never tearful and I hated myself for crying in the middle of the family, seemingly over nothing. I start to realize... Thank you so much for this video!
Hi, if we can support you in any way please do get in touch via our website.
Sir doctor suspect JE virus for 3and half year boy he is completely loss memory and not recognised any one .any solution for this disease please help me
Hi, please get in touch via our website. We may be able to support you.
Excellent What is the difference between HiV encephalopathy and HIV encephalitis?
Hi, we have lots of information on our website which you may find useful. We have ongoing research into the different types of encephalitis. Our email and telephone support line may be able to answer any questions you have.
Is it possible to get encephalitis from 'tick bites" from our toy poodle?
Hi. The best option is to make sure the dog is treated against ticks. If your dog has a tick, please make sure you remove it correctly. If you need any other information please contact support@encephalitis.info
====== 2021 ====== I had it exactly three years ago at the age of 34 and my doctors in germany recognized it and saved me. I had a fever for about a week (38-39.5°C), eye pain with eye movements and I couldn't name objects properly. I mean I would have had neck pain with neck movements as well. I did not have a cold or cough on this. For example, I wanted to drink Coke, but I couldn't name it anymore. I used some other word that didn't make sense. The emergency physician then suggested that I might have herpes on the brain. Without his assessment, I very likely would have died a few days later. I could barely speak, write, or even use a cell phone during my time in the hospital. I couldn't remember what year it was. Thanks to rehab and subsequent medical care, I was able to learn almost everything again. Even using a computer was new to me again. The first few weeks in the hospital and rehab felt to me like I was going through the time from birth to now all over again. My non-medical guess is that my brain rebooted like a computer. Now, I am back at work (I recognize everything but can't always name it). I have difficulty remembering personal names, but I can remember technical terms with practice. Thank you to all the doctors who are working to improve health. ====== My second birthday after HSE & my new learning path (2023) ====== I have found a way for me to better remember new and very abstract words as well as information again. In the following example I want to remember the word Herpes Simplex Encephalitis (not easy at all for me, although I had read it very often after the illness). 1. Using Anki (a free and open source flashcard software), I create a flashcard with the following tools and commands, which I then look at and practice every day repeatedly on my cell phone or computer. 2. Using a speech-based artificial intelligence like ChatGPT (not completely free), I create a mnemonic with the following command to somehow visualize the first letters of Herpes Simplex Encephalitis, i.e. HSE: Command to ChatGPT: "Can you come up with a pictorially imaginable mnemonic sentence with very simple words for the following letters, assigning exactly one word to each letter so that the number of words equals the number of letters: HSE " One of several possible answers on the part of ChatGPT: Hamsters Spin Endlessly 3. With another artificial intelligence for image creation like Midjourney (not completely free) I create a picture of a Hamster in a wheel. (Sorry, I can't copy pictures here) 4. As a question I put in Anki: "Which disease did I have?" 5. As answer I put in Anki: "Herpes Simplex Encephalitis | mnemonic: Hamsters Spin Endlessly | mnemonic image: "The picture of the Hamster in a wheel". 6. In my case, I can now remember this word better because some part of my brain is linking this information together. The advantage of artificial intelligence for me is that I can create many flashcards that are relevant to me quickly and easily. It's not an easy way back, but we'll find one or more ways.