Video

After 2 minute just fast forward to the end, what load of b---ks🤦‍♀️

I had my pouch surgery in 1991/92 after having UC beginning at 25 years old for 12 years. Anyway, I wish there was information like this out. When I had my surgery. Surgery. Was provided very little information. I want to congratulate you because so much of what you said is right on even simple things like not eating for 3, 4, or 5 hours before going to bed so that you can empty out and get a good night's sleep. Seem simple. Anyway, thank you for the video. Excellent!!

Sir. I have end illiostomy. Have a possible reverse . I need u contract number

I am so excited to have finally found any information on diets for a J Pouch. I have subscribed to this channel and will be back with more comments.

WOW!!!!! Prof Nicholls u look so well .❤🫶🏼

I were misdiagnosed for about 4 years (by a local GP who ignored my complaints, I were 19 years old then) before I was told (by specialists), that "the only cure for ulcerated-colitis was surgery otherwise I would bleed-out and die!" After two years of getting my body ready for the surgery (year 1994) via karate training made me super-fit (I would not let them touch me till then). After surgery it was when I learnt they removed my large bowel and rectum as they said it was all bleeding rore without a mucus-lining. Its all-about pain management and physiotherapy/exercise, then for me being-stuck in hospital for nearly 3 months because of surgery complications of an abscess from the main surgery and the second one a air-bubble after closing the colonoscopy or where the poo-bag was. The first surgery complication meant I were with a ileostomy-bag for nearly 2-years, instead 3 or 4 months and organising the logistics of having enough poo-bags to last till the infection had completely gone was travel-time complicated! I have a frequent toilet use now still but not as bad as it were over ten years ago its now 2024, I couldn't even get my drivers license till 2015 and were ever I were on my travels I have knew where public toilets are. The surgery: They create a pouch from the small intestines area called the ileum that eventually stretches-out, but I still have constant diarrhoea hasn't stopped though its much better now because I have adapted on knowing what foods trigger a bowel-attack or even too much food of little amounts can cause issues. I also still exercise and recently last year got covid-19 that killed my fitness so I had start that over again. If you do have similar issues than I recommend you reduce your overal red-meat instake and sugar instake aswell (white meat is not too bad), raw veggies and fruits can even block the bowel at the pouch entrance of which causes me nearly 4 hours of massaging awhile going to the toilet to unblock it. One matter doctors in Aussie do not recognise is scar-tissue nerve-endings and the pain they cause, the only way to get rid of that is through painful massaging and exercise that effects that area! Now if I get inflamation of my bowel its called pouchritis that only I can get.(synopsis).

How to increase appetite after surgery?

I had one put in a yr. after my colon was removed, it lasted over 4 yrs. and I had pouchitis constantly, and so it was removed and I returned to the ostomy bag, doing better, still don't like this but j pouch was always causing issues , blockages, diarrhea, and dehydration, I had UC for 36 yrs. then colon cancer hit at 56, j pouches have a high failure rate if you are older, be careful

How could I get referred to St Mark's Hospital? Getting pouchitis about 4 times a year, taking 50,000u vitamin d weekly for 6 weeks and 35mg of folic acid weekly for 3 months, I'm quite active, 30 mins of cardio daily, 31" waist

I lived five years with a stoma. Life for me is so much better with a J pouch. It's not perfect, but it gave me my life back. Nothing was worse than having a bag leak while sleeping or constantly getting flagged by TSA when flying. Being said, recovering from the first surgery was brutal, but absolutely worth it. 😊

Fascinating!

I have a fistula in the annas - the pouch works ok until the fistula acts up.

I’m due to have this operation after my ileostomy this is good to know, thank you

Thank you Peter...you're very kind !

Ellie is always easy to listen to and a nice sense of humour as well.

Thank you for such clear and comprehensive information! Absolutely priceless.

Dr yoram inspector was my therapist, he was great but he disappeared without a goodbye. That’s not ok x

As far as I can tell from asking around surgeons and fello j-pouchers, surgeons in Australia who do j-pouches only do about four a year. I don’t know of any figures being published here like the ones you showed.

I have a rare complication called megapouch (in the US). Not sure whether the same term is used in the UK, or it is just called distended. Only 23 cases ever at the Cleveland Clinic, plus me over here in Australia. It is a late onset failure. It was quite a shock after 14 years of no major problems, especially as it happened overnight.

Good Evening. I had my ileo anal pouch operation in 1997.i have bene very lucky.. . Would having my gallbladder removed affect my pouch (J)......... digestione.... Thankyou.

Hi - thank you for this presentation. question - I had done colonoscopy in two countries and every time report said I got UC. I ended up having a jpouch surgery in 2019 and 3 years later I developed a complex fistula. Currently all the reports indicate (but not confirmed yet) that I got crohns. And you said in your video it changed over time or you always had crohns diseases. I find this very hard to believe that multiple different pathology doctors repots can be wrong with diagnosis over the years. Just bit shocking to me. Anyways, all I am trying to know is what is the best solution here? I am sure you probably seen many people with similar case like mine and I wonder what treatment works the best? Was it control the inflammation using biological and surgery for fistula or go for stoma for life? I really don't mind following medical treatment and go for fistula surgery but I wonder if end result down the road after 3-5-10 years be - going back to stoma forever. Mine as well just do it now and control crohns using biological. Just overall trying to understand how many patient with similar situation ended up having stoma? Hope this make sense. Also, if possible I would love to get in touch with you to discuss this further. Really appreciate your time.

I wish I waited for my second surgery now because I didn't know that if waited it might have been easier now because of the infection but might be over soon give me hope

Thank you for making this video. I agree on being mentally ready for surgery is very important, I got misdiagnosed 😞 . I had emergency surgery 5 days after being diagnosed with Ulcerative colitis. I didn't know at the time what was signing up for because I didn't want surgery 😕. Worst nightmare came to life having to put a sleep and being in more pain from surgery, no break for that. But I wanted to live and they gave me the option to save me and appreciate the surgeon that was wanted to save me, and stoma aren't that scary as they say, they are inconvenience at times but sometimes i think it was easier but mentally hard. I love my belly sleeps 💤

Even though I wouldn't be based in the North of Ireland / UK, I wish I could be seen by this Dr.

Thank you very much for the video. Excuse me. I have a question. My child, one year and two months old, had previously had an abdominal fasciotomy. The doctor told me that she suffers from paralysis of the entire colon. Can this operation be performed at any age? Because in my country they told me that I have to travel with it outside the country in order to tie the intestines to the anus. Please answer me.

Thank you very much for the video. Excuse me. I have a question. My child, one year and two months old, had previously had an abdominal fasciotomy. The doctor told me that she suffers from paralysis of the entire colon. Can this operation be performed at any age? Because in my country they told me that I have to travel with it outside the country in order to tie the intestines to the anus. Please answer me.

THANK YOU👍👍

Sir my father underwent a surgery yesterday where they joined the ileum to rectum head to head. Earlier they were discussing of doing j pouch. My question is shall we still expect the same results?? Like 5-6 bowel movements per day or it will be more. Also suggest how much poop will be holded there as the rectum inside diameter must have been equal to that of ileum in order to join head to head. His rectum was all good. Also we could have opted a j pouch and sewd that to rectum in order to hold more poop and better quality of life??

Sue Clark Has done my surgery and form my j pouch , she repair or redone my pouch in 2011 , And last few years it is a failure now , I have tried Medena catheter, But its no now , But now using aquaflush, but just buy time now then will be stoma ,

I have had a pouch for almost 35 years, way longer than I had a normal colon. I have had many problems but still going and still working as an airline pilot. Interestingly enough there is another pilot in the company that I have flown with that also has a pouch, but only for a few years. I suggested that this could be a media photo opportunity for the company as they sometimes do when two female pilots fly together. I’m sure our crew pairing was far more unique than two female pilots. On a serious note there is much new age mumbo jumbo about the importance of gut flora to well being including mental health, yet I have found little information on the gut flora present in those with a pouch and if there is any significant difference.

so should i get a jpouch or not, i think for me (m 21) who does lots of sports, football, cycling, boxing. Its like impossible to life with this bag, Im desperate.

I proudly appreciate Dr osaye for bringing his herbal medication for hemorrhoids, I didn’t believe in herbs,but for the fact that it cured my Hemorrhoids,I do believe in it now, and I also thought herpes couldn’t be cured,just get the right source for anything you need and you’ll get it..

Clear & honest, thank you Professor Clark.

I am 75 and my pouch was 20 years old last year! I had my first surgery in 1978 when I had all my colon removed but not the rectum. Having developed dysplasia in 2000, I had the rectum removed and a Jpouch formed. I had an ileostomy as described, while everything was healing, and then it was taken down. I have had a couple of episodes of obstruction caused by adhesions but apart from that, I have had absolutely no trouble whatsoever with my pouch. I can eat virtually anything. I never have night leaks and everything functions fantastically. I worked at the time of my op on disciplinary hearings and in criminal courts, as the official shorthand writer (record keeper), and thus wasn't free to just pop to the loo without asking. But I managed all right, never had to ask for a break and everything worked like clockwork. When I had UC, I didn't know what it was like to spend a day without severe pain and it was pure heaven not to have any more pain and to feel well. I had my operation performed by Mr Al Windsor at St Mark's Hospital, assisted by Mr Ed Westcott. The whole team were amazing. Of course keyhole surgery wasn't around then for these ops and it's incredible that they can do it now. So thumbs up for pouch surgery and I hope everyone who's contemplating it will get on as well as I have - and I still work in my capacity as a Fellow of the British Institute of Verbatim Reporters!

Truly recommend J-Pouch surgery! Do away with all the UC episodes, symptoms and medicine! I had my J-Pouch surgery in 2007 by Dr. Dennis Meyer. Excellent surgeon! My life completely turned around after the surgery. I may use the restroom a few more times than your normal person, but besides that, I am the same man before I was diagnosed with UC. Get the surgery. You will not regret it!

Hi Red Charity Group, can you please post the documents in this lecture like the Medena catheter instruction manual? Also, I am a Canadian who has had pouch failure caused by paradoxical contraction. Unfortunately pouch care is primitive and biofeedback or catheter is not available here. Can a non UK citizen come to St. Mark’s and do biofeedback etc. paying out of pocket?

A very valuable presentation. Really appreciate Sue’s honesty - but it’s really frightening to know I will probably head into old age with pouch problems. Knowing what I know now, the Fiesta beats the Ferrari!!

People Try the carnivore diet

I wish I had seen this early on when suffering from UC because it really sums up all the fears and potential problems as well as the benefits of surgery. My pouch surgery was done in Bristol in 2003 by Mr Tony Dixon who was brilliant. Two stages and the second was to close the ileostomy. It took about a year for me to recover from some pain and frequency and now I feel very well and very grateful.

the sound is not good I am quite disappointed

As the pouch gets older the small intestine gets better at absorbing water. This invariably means that the output is thicker and thus more difficult to empty. Irrigation should be seen as a go to and part of everyday pouch life when this happens. My personal experience is it will prevent pouchitis .

Hello Petya Marinova…..you was my stoma nurse at Northwick Park Hospital when I was their 18.8.2020 to 13.11.2020… thank you so much my angel for looking after me… I don’t know if it was you or your twin… I am doing well and have learnt so much more about my stoma… I can do everything now and Brocken my 150mph record on one of my motorbike, remember when I was in hospital I could could barely move but now I run, walk, go to work and even play a bit of rugby lol. Thank you so so much for looking after me their because I nearly did give up on life their🤷‍♀️. I think of you guys every day and say a prayer for you all…. Bless you Barry Leary ❤️

Hi, I’m nearly a 1 year stoma bag wearer and found today’s intake and functions around the matter very interesting, I was given a booklet in hospital about what foods to eat but found out on my own what to eat and not too as we are all different, thank you for this video, it all helps in my stoma life. Barry.

Good video

I've had the J-pouch surgery in one stage. That was back in 1997!

Thank you. Very informative. Got the pouch now the wait to take my stoma down, f&$x can’t wait. Yaaaaaay. Oh anybody reading this, at my stage, should watch out for dehydration. It’s a real problem without a colon. Drink isotonic liquids avoid caffeine. See you you on the flip side.

I'm watching as I'm having jpouch surgery I've had the total colectomy a few years back. I'm excited and scared. I've been researching and I have the book. 💜

I’m on a plant based diet , with a internal pouch as also have Chrohns disease, so have to avoid sugar, wheat, processed, caffeine & dairy, as they all aggravate me , and then I’m well , I do eat potato, rice ,Quinoa, beans & pulses,as well , but I just know I don’t get a great deal of minerals , as toilet frequently, any advise ??

Do anybody know about Erectodom Secrets? Does it really work? I hear lots of people achieve total control over their erectile dysfunction with this popular erectile dysfunction natural treatment.

What is Erectodom Secrets and how does it work? I hear lots of people achieve total control over their erectile dysfunction with this popular erectile dysfunction natural treatment.