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Multiple Myeloma Research Foundation - MMRF
Registrace 23. 04. 2009
The Multiple Myeloma Research Foundation (MMRF) was established in 1998 as a 501(c)(3) non-profit organization by twin sisters Karen Andrews and Kathy Giusti, soon after Kathy's diagnosis with multiple myeloma, an incurable blood cancer.
The mission of the MMRF is to accelerate a cure for each and every myeloma patient. As the world's number-one private funder of multiple myeloma research, the MMRF has raised over $500 million since its inception and directs 90% of total budget to research and related programming. As a result, the MMRF has been awarded Charity Navigator's coveted four-star rating for 18 years, the highest designation for outstanding fiscal responsibility and exceptional efficiency.
For more information about the MMRF, please visit: www.themmrf.org
The mission of the MMRF is to accelerate a cure for each and every myeloma patient. As the world's number-one private funder of multiple myeloma research, the MMRF has raised over $500 million since its inception and directs 90% of total budget to research and related programming. As a result, the MMRF has been awarded Charity Navigator's coveted four-star rating for 18 years, the highest designation for outstanding fiscal responsibility and exceptional efficiency.
For more information about the MMRF, please visit: www.themmrf.org
Myeloma Matters Podcast | Immunotherapy Side Effects
In this episode, you’ll learn about the main side effects associated with CAR T-cell and bispecific antibody therapies, two newer multiple myeloma treatments. You’ll also hear from a patient and a nurse practitioner, who describe how these treatments are administered and share their accounts of what being on these immunotherapies is like.
• 1:16 Differences between CAR T cells and autologous stem cell transplantation
• 10:48 Available CAR T-cell therapies
• 14:27 Available bispecific antibody therapies
• 17:00 Main side effects of CAR T-cell and bispecific antibody therapies
To learn more about immunotherapy, watch our High Impact Topic (HIT) videos:
• Bispecific Antibodies: czcams.com/video/Bc_7E8SDUDY/video.html
• CAR T-Cell Therapy: czcams.com/video/kYYtDd1LwFs/video.html
To learn more about multiple myeloma, visit themmrf.org/.
If you want to learn more about our FREE resources for patients and caregivers, visit the MMRF Education Hub: themmrf.org/educational-resources/.
If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.
This episode is supported by AbbVie, CURE, Genentech, Pfizer, Regeneron, and Sanofi.
• 1:16 Differences between CAR T cells and autologous stem cell transplantation
• 10:48 Available CAR T-cell therapies
• 14:27 Available bispecific antibody therapies
• 17:00 Main side effects of CAR T-cell and bispecific antibody therapies
To learn more about immunotherapy, watch our High Impact Topic (HIT) videos:
• Bispecific Antibodies: czcams.com/video/Bc_7E8SDUDY/video.html
• CAR T-Cell Therapy: czcams.com/video/kYYtDd1LwFs/video.html
To learn more about multiple myeloma, visit themmrf.org/.
If you want to learn more about our FREE resources for patients and caregivers, visit the MMRF Education Hub: themmrf.org/educational-resources/.
If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.
This episode is supported by AbbVie, CURE, Genentech, Pfizer, Regeneron, and Sanofi.
zhlédnutí: 61
Video
Prevention and Management of Bispecific Antibody Associated Adverse Events in Multiple Myeloma
zhlédnutí 163Před 7 hodinami
This episode of Myeloma Matters features discussions of bispecific antibody therapy, a powerful form of targeted immunotherapy that has produced high response rates and helped patients-even those with multiply relapsed or refractory multiple myeloma (RRMM)-achieve deeper and more sustained responses. This podcast will also review strategies for preventing and managing the serious, potentially l...
Fatal to Fearless: How Kathy Giusti and the MMRF changed the entire disease-fighting system
zhlédnutí 398Před 3 měsíci
Kathy Giusti is a business leader and a healthcare disrupter. She is a two-time cancer survivor, having been diagnosed with multiple myeloma and breast cancer. Kathy co-founded the Multiple Myeloma Research Foundation (MMRF) where she served as CEO and President for nearly two decades. She also co-chaired the HBS Kraft Precision Medicine Accelerator, which she helped found as a Senior Fellow at...
MMRF Road to Victories (R2V) Columbia River Gorge 2023 Full Feature Documentary
zhlédnutí 503Před 4 měsíci
Our MMRF Road to Victories team took on an incredible cycling route through the crown jewel of the Pacific Northwest - the Columbia River Gorge. The six-day adventure wound through this nature-lover's paradise, brought cyclists past the wild White Salmon River and along the historic Columbia River Highway, a National Historical Landmark. Cyclists pedaled through Willamette Valley through farms ...
MMRF Moving Mountains for Multiple Myeloma (MM4MM) Alaska 2023 Full Feature Documentary
zhlédnutí 1,2KPřed 4 měsíci
Our team of MMRF hikers who have been specially selected to form the Moving Mountains for Multiple Myeloma Alaska team embarked on the trip of a lifetime. Join us on a journey into the vivid wonderland of the mountainous region that emerges just outside Anchorage - we didn't have to go far to unlock the beauty and mystique that Alaska is famous for. Our journey had us crossing high mountain pas...
High-Risk Disease | High Impact Topic (HIT)
zhlédnutí 1,2KPřed 4 měsíci
Learn about high-risk myeloma: what it is, how it progresses, how doctors treat it, and what’s being done to better understand it. The MMRF wishes to thank the following reviewers and contributors: Melissa Alsina, MD and Nicholas Lenoir
Myeloma Matters Podcast | Caregivers
zhlédnutí 285Před 4 měsíci
In this episode, we’ll be discussing caregivers-the spouses, partners, family members, and friends who play such an important role in helping myeloma patients manage everything from health care visits to the activities of everyday living. Topics of discussion: · 1:14 The importance of being a caregiver · 20:06 Steep learning curve · 26:45 Alleviating burdens This episode is supported by AbbVie,...
Optimizing Your Outcome With MMRF Founder Kathy Giusti and Chief Mission Officer Anne Quinn Young
zhlédnutí 2,5KPřed 5 měsíci
Navigating a cancer diagnosis can be overwhelming. Most patients and families simply don't know where to start. In this fireside chat with MMRF Founder Kathy Giusti, we discuss this and more, including tools and approaches to maximize care and optimize outcomes that apply to myeloma patients - and all cancer patients. To purchase Kathy's book: www.kathygiusti.com/book
Driving Impact in 2024
zhlédnutí 1,7KPřed 5 měsíci
With the new year well underway, the MMRF is poised to make its greatest impact yet on behalf of the myeloma community. There is currently no cure for myeloma. Yet, each day we work relentlessly to advance new therapies, drive faster discoveries, and empower myeloma patients to achieve the best possible outcomes. And our success and impact within each of these areas will undoubtedly bring us cl...
Myeloma Matters Podcast | Maintenance Therapy
zhlédnutí 554Před 8 měsíci
Myeloma Matters Podcast | Maintenance Therapy
Research Program Updates | Myeloma Accelerator Challenge (MAC) Grants
zhlédnutí 261Před 8 měsíci
Research Program Updates | Myeloma Accelerator Challenge (MAC) Grants
CAR T-Cell Therapies | High Impact Topic (HIT)
zhlédnutí 1,3KPřed 8 měsíci
CAR T-Cell Therapies | High Impact Topic (HIT)
Research Program Updates | MMRF Virtual Lab
zhlédnutí 298Před 8 měsíci
Research Program Updates | MMRF Virtual Lab
A Health Equity Conversation with Anne Quinn Young and Dr. Monique Hartley-Brown
zhlédnutí 176Před 8 měsíci
A Health Equity Conversation with Anne Quinn Young and Dr. Monique Hartley-Brown
Myeloma Matters Podcast | Relapsed/Refractory Multiple Myeloma
zhlédnutí 752Před 9 měsíci
Myeloma Matters Podcast | Relapsed/Refractory Multiple Myeloma
Research Program Updates | Immune Atlas
zhlédnutí 522Před 9 měsíci
Research Program Updates | Immune Atlas
Myeloma Matters Podcast | Newly Diagnosed Multiple Myeloma
zhlédnutí 1,2KPřed 11 měsíci
Myeloma Matters Podcast | Newly Diagnosed Multiple Myeloma
Maintenance Therapy | High Impact Topic (HIT)
zhlédnutí 1,1KPřed rokem
Maintenance Therapy | High Impact Topic (HIT)
Bispecific Antibodies | High Impact Topic (HIT)
zhlédnutí 2KPřed rokem
Bispecific Antibodies | High Impact Topic (HIT)
What are some labs that would be a red flag fot this
Thank you
Does anyone know how long first. Blood screen for myeloma rakes to come back ? Please I'm going bonkers waiting. Great video though very informative.
Maybe about a week but a bone marrow biopsy may take a bit more. Hopefully you've got them back by now. Wishing you well.❤
Everyone is so happy and smiley about a horrible disease
Can you tell me what to look for,I have positive CD marks cd3 cd5 cd20 cd79a cd23 and pax5 Bcl2 so what to look for ,I have no cule
Great video, very informative
I swear this man is related to my step dad, he looks almost exactly like my step dads, dad when he was younger!
MY BREAST CANCER JOURNEY I’ve always been a healthy, active person. I don’t take any medications, I eat the best I can, and I walk at least two miles every day. I also get my routine mammogram every year. In November 2019, I went in for my annual screening. Several days later, my doctor called to tell me they’d found a suspicious area, so I needed to go back for a follow-up mammogram and an ultrasound. After that, a biopsy confirmed that I had breast cancer. When I received my diagnosis, my husband and I decided to get a second opinion. I’d heard good things about Nature Care Health Clinic, which happens to be a well known and certified clinic known for treating various types of chronic diseases and illness such as cancer, diabetes,tuberculosis,lymphoma etc Before this time, i was suppose to undergo Lumpectomy as suggested by my oncologist but he suggested and referred us to Nature Care Health Clinic cause he has had lots of similar cases as regards my diagnosis and most of them came out with positive testimonies.Not withstanding, we contacted the Clinic as He suggested, and we started our treatment with them following their prescriptions accordingly. Few weeks later, I began noticing drastic improvement in my body generally, this natural formula was so effective,It helps in lowering blood pressure and lowering blood glucose levels. Therefore, it is really good for hyperglycemic, Cancer and diabetic people. It also reduces fatigue, etc promotes tissue regeneration and so many other functions. I guarantee you will stand 100% chance to beat your condition. This formula helps to boost your immune system and can eliminate cancer cells from blood cells, it shrinks cancer tumors gradually. Trust me, this is one of the best treatments for cancer and the side effects that come after its treatments. This formula practically beats my thought and perceptions about natural products,I use to be a strong critic of such especially when it comes to chronic illness such as cancer. I am indeed happy that I gave it a shot and I can confidently assure you that a trial will actually convince you. have also recommended their services to many individuals as well and most of them can also testify positively to their services (even if i haven't got feedback from some of them). however i will leave their contact below just in case any one wishes to contact them, I am sure this will absolutely help so many individuals with similar illness you can always reach out to them via email: @ Naturecarehealthclinic@outlook.com
Thank you. very informative
This video needs to be shown to every newly diagnosed multiple myeloma patient
Given the recent acknowledgement that the renal "correction" for African Americans is not based on science and led to under diagnosing renal disease, how would that change these results and estimation of MGUS/MM diagnosis in that population?
I’m currently scheduled to undergo Stem Cell Transplant and this video was very informative. I’ve found to this point that I have responded favorably to the 3 21 day chemo and I too am optimistic. Todd experience was enlightening and as I’m listening to this broadcast it has provided me with the understanding of the process and expectations.
Very well done. Particularly appreciate the personal considerations - each individual is unique.
But how does the protein produced by the plasma cell relate to the antibody with the light and heavy chains of protein? No one ever explains that. They talk about the m spike...the paraprotein...the light and heavy chains... and the kappa and lambda....how do all these things relate...they are all produced by one plasma cell? Are some of them synonymous? Everyone assumes the patient has a background of knowledge that we don't have.
I am a multiple myeloma pt here in Italy...does this apply to us here Thank you ...grazie di ❤
Dear, the love of my life is going to start batteling her first relapse. I am scared and discouraged. I realise that we won’t grow old together. It’s killing me as well. Thank you for your work and your dedication to this field. Your intelligence is used to help others and that is beautiful.
What a great contribution to humanity ,patients like us❤ God
Very clear and succinct.
Ms. Guisti is such an inspiration and force in the fight against multiple myeloma, what a blessing! I am just curious, exactly what type of myeloma does she have, i.e. IgG, IgA, IgM, IgE, or kappa or lambda light chain, or non-secretory, etc...and what treatment has she had? There are so many people that are still told (and many still believe) the 3-5 years prognosis, but 30 years is outstanding! It would be amazing if we could hear more of her personal story of how she's endured and thrived all these years! 🕊️🙏❤️🕯️
Thank you so much for your kind words, curiosity, and questions! Our Founder recently participated in a Livestream event with our Chief Mission Officer, Anne Quinn Young, where she discussed her myeloma journey more in-depth. Here is the link to that discussion: event.webcasts.com/starthere.jsp?ei=1658344&tp_key=82b1169819
@@TheMMRF Thank you so much for your reply, much appreciated! ❤️
Very good information and is presented in a manor that is easily understandable. Thank you for taking the time to explain our options. 👏🏾👍🏾🎗
Keep on riding! I'm rooting for all people with myeloma to keep living their best life. My husband fought it for 16 years before getting pneumonia during a stem cell transplant.
Please speak a little slower. It's a lot of info to take in even with rewinding.
You can slow the narration in settings, upper right on screen. 👍
Wonderful Video! It is fantastic to see (ex-)patients literally climbing mountains!!! And the good vibes 😎
This is amazing. Gives me more hope. Shows me I can do more with my life. Diagnosed in 2021at 58.
Good information
This gives me hope. I am a hiker who was diagnosed with non secretory MM in 2023. I had my SCT in December of that year. I long to be back on the trail. It would be an honor to one day join you. Thank you for this beautiful film.
Top shelf bak2bak vids! Wow! I'm so grateful to find all that critical information in one place. The slideshow was especially helpful and I don't feel as confused. Thank you for putting in so much effort. It has paid off in spades for me And many others I am sure!
Wonderful ....... Such great memories of my walk with you guys ...... Still walking with new hip !!! ...... Carry on the good work ..... Best regards Richard Bell
Excellent excellent excellent. Thank you sir!
I am just starting my treatment. Doctor wants to do stem cell eventually. I dont have any caregivers to help me out. I have no clue what I am going to do.
Thank you for taking your time to give this comprehensive and excellent presentation!
love this
Wonderful story, thank you. After my recent diagnosis, it is interesting that I am counting my blessings more now than ever.
Yes! It sharpens you focus, doesn't it?
Way to go girl! GOD'S BLESSINGS to you forever!❤😊
Tell em sister
Great video, i just had my bone marrow results. I am waiting to go through it all with my dr. One of the fish tests stated i have a LOW POSITIVE FOR PARTIAL 5'. My research says that puts me at stage 1. I am ready to fight this thing and get the cells down to zero. Can i get treatment at stage 1? Again, I appreciate this video. It really reinforced what I've been learning. I am working on putting together a great care team. Im really not trusting who i have right now.
Kathy Giusti and Anne Quinn Young have been leaders in finding a cure for multiple myeloma - Thank you!
I forgot to mention that I am a Multiple Myeloma patient; having gone through transplant and 24 month maintenance regimen. Now in remission maintaining with a cancer pill in a 28 day cycle to keep it in remission. Making healthy diet choices and keeping the exercises recommended to help stay healthy. Looking at you; I feel encouraged and hopeful that there is hope to live quality and many more healthy years. Emory Winship is the best💕thankful for inspiring stories like yours to bring hope. Thank you ❤
Very informative and encouraging. Thank you so much for giving such detailed and impressive information about living and dealing with Multiple Myeloma. You are a blessings. Let’s keep the faith ❤
So thankful for the info❤
Very informative, thank you for this video! I've been following y'all since my brother was diagnosed in 2001, and now I've been diagnosed with MGUS in 2022. The MMRF is a priceless organization that has been so extremely helpful to me and my family!
Speaking as a 10-year Myeloma survivor, this video is one of the best introductions to the Myeloma journey. The only thing missing is a referal to the International Myeloma Foundation as well.
Ian, this is wonderful. Where do you get your treatment?
THANK YOU for everything all of you are doing.
Thank you! This was very informative.
I was diagnosed 12 years ago at Stage 3 my medical history therefore indicates the myeloma has been active for twenty years. Currently I am not on treatment.
Grateful for the work you continue to do.
Excellent presentation and information. Thank you for helping me understand so much as a newly diagnosed MM patient. Will watch this again and again.
Good Explanation of MM! Appreciate it
This video was great!