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Pink Hope
Australia
Registrace 9. 06. 2010
Pink Hope is a patient-focused organisation committed to supporting people to understand and reduce their risk of hereditary cancer.
We provide evidence-based information to help break the cycle of cancer in Australian families and encourage conversations that save lives.
Our vision is that every Australian is informed and supported to manage their risk of hereditary cancer.
www.pinkhope.org.au
We provide evidence-based information to help break the cycle of cancer in Australian families and encourage conversations that save lives.
Our vision is that every Australian is informed and supported to manage their risk of hereditary cancer.
www.pinkhope.org.au
‘I might just be another patient, but to my 6 kids I'm everything.’ | Pink Hope TNBC Project
‘I feel like I’ve got a lot of fight left in me.’
Susan, a mother of six, was diagnosed with metastatic triple-negative breast cancer. Even though her doctor determined she was too sick at this stage to try any clinical trials, Susan refused to give up the fight.
'What I get from my appointment is I'm probably too far gone; it's probably not going to do anything for me. But why can't we try?’
'My life might not mean much to the hospital; I might just be another patient; my life might not mean much to the government, but to my kids, to my six little kids, I'm everything. I'm the world to them...’
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‘Beyond the Diagnosis: Confronting Triple-Negative Breast Cancer’ unfolds as a 3-part documentary series by Pink Hope, sharing the compelling stories of Keely, Rhiannon, and Susan, all navigating the challenges of triple-negative breast cancer.
Triple-negative breast cancer (TNBC) accounts for approximately 15% of all breast cancer diagnoses in Australia each year. This aggressive form of cancer predominantly affects younger women, resulting in poorer clinical outcomes, including higher relapse rates and lower survival rates.
By giving a voice to these patients and sharing their lived experiences, this documentary series serves as a call to action, advocating for early detection, better support, further research, and medical advancements for triple-negative breast cancer with Australian political decision-makers.
Susan’s loved ones have created a GoFundMe in her name to help her family financially during this difficult time, you can make a donation here: www.gofundme.com/f/vsb53-susans-story
Director & Producer: Arielle Thomas
Executive Producer: Lisa Caterina
Production Co-ordinator: Molly Smith
Cinematographer: Matthew Jenkins
Editor: Lyreca Corloncito
Assistant Editor: Isabella Watson
Colourist: Daniel Witt
Sound Mixer: Mark D’Angelo
A special thank you to the Mackenzie family.
Follow us:
Instagram: pinkhopeaus
Facebook: pinkhopehereditarycancerhub
LinkedIn: www.linkedin.com/company/pink-hope-charity/
Susan, a mother of six, was diagnosed with metastatic triple-negative breast cancer. Even though her doctor determined she was too sick at this stage to try any clinical trials, Susan refused to give up the fight.
'What I get from my appointment is I'm probably too far gone; it's probably not going to do anything for me. But why can't we try?’
'My life might not mean much to the hospital; I might just be another patient; my life might not mean much to the government, but to my kids, to my six little kids, I'm everything. I'm the world to them...’
----------
‘Beyond the Diagnosis: Confronting Triple-Negative Breast Cancer’ unfolds as a 3-part documentary series by Pink Hope, sharing the compelling stories of Keely, Rhiannon, and Susan, all navigating the challenges of triple-negative breast cancer.
Triple-negative breast cancer (TNBC) accounts for approximately 15% of all breast cancer diagnoses in Australia each year. This aggressive form of cancer predominantly affects younger women, resulting in poorer clinical outcomes, including higher relapse rates and lower survival rates.
By giving a voice to these patients and sharing their lived experiences, this documentary series serves as a call to action, advocating for early detection, better support, further research, and medical advancements for triple-negative breast cancer with Australian political decision-makers.
Susan’s loved ones have created a GoFundMe in her name to help her family financially during this difficult time, you can make a donation here: www.gofundme.com/f/vsb53-susans-story
Director & Producer: Arielle Thomas
Executive Producer: Lisa Caterina
Production Co-ordinator: Molly Smith
Cinematographer: Matthew Jenkins
Editor: Lyreca Corloncito
Assistant Editor: Isabella Watson
Colourist: Daniel Witt
Sound Mixer: Mark D’Angelo
A special thank you to the Mackenzie family.
Follow us:
Instagram: pinkhopeaus
Facebook: pinkhopehereditarycancerhub
LinkedIn: www.linkedin.com/company/pink-hope-charity/
zhlédnutí: 4 502
Video
'Triple-neg breast cancer is aggressive, and we need to be aggressive back’ | Pink Hope TNBC Project
zhlédnutí 14KPřed 4 měsíci
'My oncologist said triple-negative breast cancer is the most aggressive, and it's going to be really tough.’ When the mother of three discovered that her stage 2 triple-negative breast cancer had spread to her lymph nodes, Rhiannon's immediate reaction was to fight back. ‘It's being aggressive, and we need to be aggressive back. My motto while growing up was to be prepared for anything. Even i...
'Triple-negative breast cancer hit me like a freight train.’ | Pink Hope TNBC Project
zhlédnutí 54KPřed 4 měsíci
Being diagnosed with triple-negative breast cancer shortly after giving birth to her second daughter, Keely was not only juggling the challenges of chemotherapy, being postpartum, and taking care of her newborn and a 4-year-old but also facing confusing test results. ‘The PET scans after finishing rounds of chemo were very confusing. All these things were showing up throughout my bones, and the...
A message from Sarah, Pink Hope's CEO
zhlédnutí 88Před 6 měsíci
Looking back on 2023, we are so proud of what we have achieved and thankful for how wonderful our community is. Sarah, our CEO, has a personal message for you…
Beyond the Diagnosis: Confronting Triple-negative Breast Cancer Trailer
zhlédnutí 318Před 8 měsíci
This trailer is a sneak peek at three individual stories and the personal toll of Triple Negative Breast Cancer (TNBC), featuring Susan, Keely, and Rhiannon, with the full-length documentaries to be released soon. For an evidence-based resource to help empower you with knowledge and confidence to navigate the complexities of breast cancer, head to: www.pinkhope.org.au/understanding-breast-cancer
Sam's Story - "I didn't have a regular self-check routine. I thought I was invincible"
zhlédnutí 163Před 8 měsíci
At the end of 2022, after moving from Sydney to Melbourne, 33-year-old Sam noticed an unusual discomfort in her breast - her nipple appeared to be sticking to her bra. Sam's discomfort persisted, and she dismissed it initially as friction from her sports bra during workouts, escalating into a raw and sore sensation. By February 2023, she discovered an unfamiliar lump on the right side of her br...
Andrea's Story: My De Novo Metastatic Breast Cancer Diagnosis
zhlédnutí 507Před 9 měsíci
Andrea Smith, 55, was 49 when she was diagnosed with advanced metastatic breast cancer, also known as stage 4. Her advice to advanced breast cancer patients is that things can and do change. “There is often a sense of panic and despair when first diagnosed, but our treatments now mean we can be alive and well for long periods. You have to pause and realise that your life has been changed foreve...
Pink Hope's guide on how to perform a self-breast exam
zhlédnutí 871Před 9 měsíci
Know Your Normal - A Pink Hope self-breast check initiative. Pink Hope's new Self-Breast Check instructional video will guide you through various self-breast check methods. Performing regular self-breast check checks helps you become familiar with your normal; it is the first step in early detection and vital in proactive health management. Be breast-aware. KNOW THEM. TOUCH THEM. SAVE THEM Head...
Understanding Breast Cancer
zhlédnutí 139Před 10 měsíci
Doctors and other specialists use lots of different words to describe a cancer. These words help them understand the types of cancer diagnosed, what medicines or therapies might be the best option for each person, and their unique situation. Being told you have cancer is a difficult and emotional time. People often start looking on the Internet, where there are many stories and different viewpo...
Third Panel: Treatment, Trials, Research, and Support to Manage and Cancer Diagnosis
zhlédnutí 468Před 11 měsíci
Join us to gain valuable insights from these experienced medical professionals as they discuss the challenges faced by cancer patients during the ongoing COVID-19. The panel discussion will focus on the impact of COVID-19 on cancer diagnosis, screening, and treatment. The experts will address the following questions: 1. What impact has COVID-19 had on cancer diagnosis, screening, and treatment?...
Second Panel: Management Options for High-risk Individuals; Surveillance and Risk Reducing Options
zhlédnutí 52Před 11 měsíci
Join our experts: Dr. John Miller-Gynaecological oncologist, Adelaide Oncology & Haematology Dr. Janne Bingham-Breast and Endocrine surgeon, RAH and Queen Elizabeth Hospital Dr. Tonia Mezzini, Sexual Health Physician, GP, and menopause specialist, Advanced Gynaecological Surgery Centre They delve into various topics including the screening program for breast cancer, ways to reduce the risk of b...
Panel One: Genetics Update, Decision-making, and Family Considerations
zhlédnutí 37Před 11 měsíci
Join us for an insightful panel discussion that promises to enlighten and educate about the pivotal role of genetics in decision-making and the important considerations that arise within families. Dr. Nicola Poplawski - Clinical Geneticist, Adult Genetics Unit RAH and Dr. Charlotte Tottman - Clinical Psychologist will share valuable insights about ovarian cancer, family history, and the BRCA2 g...
Pink Hope ~ Who We Are
zhlédnutí 627Před rokem
Hear 'Who we are' from our John from our Board, Sarah our CEO, Robyn, Lisa and Allison from our Team and Teresa, Greg, Mark, Brione and Sarah from our community. Our vision is that every Australian is informed and supported to manage their hereditary cancer risk. www.pinkhope.org.au Watch this video to learn more about our patient-focused organisation today.
Pink Hope Information and Support Day Impact ~ An event where we educate, support and empower
zhlédnutí 64Před rokem
Hear from an array of medical experts and members of the community about the importance and value of our signature education events. At our Information and Support says participants learn about many aspects of being high-risk, while also having an opportunity to network among likeminded individuals.
Understanding what an MDT (Multi-Disciplinary Team) is with Dr Kylie Snook
zhlédnutí 458Před rokem
Learn more about - What is an MDT (Multi-Disciplinary Team) - Who is part of an MDT (Multi-Disciplinary Team) - What is discussed at an MDT (Multi-Disciplinary Team) meeting This content is brought to you in partnership with Eli Lilly Australia and developed independently by the team at Pink Hope Learn more about a MDT: www.pinkhope.org.au/blog/multidisciplinary-team-whos-involved-and-what-are-...
Pink Hope ~ QLD Information and Support Day 2022 ~ Panel 3
zhlédnutí 2,1KPřed rokem
Pink Hope ~ QLD Information and Support Day 2022 ~ Panel 3
Pink Hope ~ QLD Information and Support Day 2022 ~ Panel 2
zhlédnutí 315Před rokem
Pink Hope ~ QLD Information and Support Day 2022 ~ Panel 2
Pink Hope ~ QLD Information and Support Day 2022~ Panel 1
zhlédnutí 280Před rokem
Pink Hope ~ QLD Information and Support Day 2022~ Panel 1
Pink Hope ~ NSW Information and Support Day 2022 ~ Panel 2
zhlédnutí 352Před rokem
Pink Hope ~ NSW Information and Support Day 2022 ~ Panel 2
Pink Hope ~ NSW Information and Support Day 2022 ~ Panel 3
zhlédnutí 237Před rokem
Pink Hope ~ NSW Information and Support Day 2022 ~ Panel 3
Pink Hope ~ NSW Information and Support Day 2022~ Panel 1
zhlédnutí 437Před rokem
Pink Hope ~ NSW Information and Support Day 2022~ Panel 1
Pink Hope ~ Hereditary Cancer for people of Ashkenazi Jewish Ancestry
zhlédnutí 300Před rokem
Pink Hope ~ Hereditary Cancer for people of Ashkenazi Jewish Ancestry
Know Your Normal ~ A Pink Hope Self Breast Check initiative
zhlédnutí 2KPřed rokem
Know Your Normal ~ A Pink Hope Self Breast Check initiative
Pink Hope, conversations with Jo Marx from Its About Us
zhlédnutí 53Před 3 lety
Pink Hope, conversations with Jo Marx from Its About Us
EduEvening ~ Being your own health advocate
zhlédnutí 99Před 3 lety
EduEvening ~ Being your own health advocate
EduEvening ~ Breast Cancer Awareness: Know your breasts, risk factors and how to spot changes
zhlédnutí 135Před 3 lety
EduEvening ~ Breast Cancer Awareness: Know your breasts, risk factors and how to spot changes
Message to the Women of Australia from Pink Hope Founder, Krystal Barter
zhlédnutí 449Před 3 lety
Message to the Women of Australia from Pink Hope Founder, Krystal Barter
Sending love and prayers to you and your family! ❤️🙏✝️
What an inspiration you are, and thank you for sharing your story. You have an amazing, supportive family. Your dad is so sweet and loving. My dad, was very emotional as well❤️❤️❤️! I am praying for you and your family, you are in good loving hands. ❤️🙏✝️ God bless you!
my waiting period of 2 weeks feels insane, they diagnosed malignant lung cancer, but pretty sure its in my brain and more and they set up a pet scan,,,,,,,,,2 weeks aftere the biopsy, why???????? why so slow to try and help me, they gave me a few pain pills, said try not to take them, my cancer hurts,,,,,,,,all in me,,,,,,why do they not care to help me,,,,,,26th i see the cancer care doc ,,,,,,,sheesh, to see his plan or any help....i need morphine and some help,
I fought this disease on my own and had minimal support. I wish I had had a supportive husband. It was the hardest year of my entire life but I got through.
Did anyone do Keytruda?
Good question! Was going to ask too. Did anyone reach out to you to say they had used it?
I did and I got PCR.
so let me get this straight. They MISDXD you. POISONED you. STOPPED you from NURSING & you had no cancer.... gotcha
She did have triple negative breast cancer and, sadly, she died from it. May she RIP.
Gloryyyyyyyyyy hallelujah 🙌 love and blessings to you & your beautiful family!
God bless 🙏🏻🙏🏻🙏🏻💕
My condolences to family R.I.P keely
I have seen a lot of videos from doctors here on CZcams explaining how to starve Cancer.I wish you all the best God bless you
I'm currently in the second phase of chemo for TNBC (TC followed by AC) and it's not easy. I will take your "slay day" mentality into my next infusion session on Friday. I'll keep you in my prayers, Rhiannon. Hang in there!
RIP Keely <3
The City of Hope is adding Ivermectin to TNBC treatment, University at Glasgow is adding Mebendazole to Docetaxel for PC, Dr. Marc-Eric Halatsch is using Itraconazole in a 9 repurposed drug protocol for Glioma and Glioblastoma. Dr Tom Rogers YT video on Artemisisin and Fenbendazole has some comments you may be interested in. Moreover, berberine was found to inhibit the colon cancer cell viability by regulating β-catenin signaling in a concentration- and time-dependent manner … Apr 29, 2023
They say pregnancy hormones are terrible triggers for cancer, my cervical cancer flares up after two babies, I then had radical hysterectomy. Bless you Keely, and your gorgeous family xx
She is so adorable 🥰
Cute baby 🍼
I gotta touch myself everyday to make sure no cancer ♋
Never remove your breasts
How heartbreaking 😮😨😧😦😮😯😲🤯
Lump size of marble
Thank you for this dear heart.... ❤️
Would have been nice to spotlight a 48 year old. No kids. BRAC negative but like everything they want young ppl to draw awareness to it. DO BETTER. I fought TNBC with no one with no loving husband. Not everyone is as lucky as her. Yet again single women are viewed as worthless!
Unfortunately she passed away.
My wife is currently fighting TNBC after lumpectomy chemo and radiation 6 months of no evidence of disease it came back and spread to her lungs and and brain. Currently doing SRS to the brain and chemo. Thanks for sharing
I wish your wife health and a long life! Keep fighting and believing. God will take care of everything.
Which chemo she's getting as my mother's condition is also same she's also fighting with tnbc stage 4 plz help
So so sorry for this loss! 💕
Bless your heart. 🙏
You r a super great fighter Susan. You arecgreat words too. My daughter and at least 1 granddaughter have have BRcA 1 gene. Youngest just turned 6 yrs this wk. MAR 25, 2024. MOM IS 38.
If it aint broke dont fix it motto
Selenium is good for fighting cancer. Also Ivermectin and quercetin
I agree!!! Fenbendazole 222mg, curcumin 1000-1500mg and high grade CBD 25mg….all these daily!! Don’t tell your Oncologist though…they won’t work with you. It works though!
@@leannedohmann5069 would you recommend taking them with ‘standard of care’ treatments or on their own?
Hang in there, folks! Good luck and God blessed ❤
What strucks me in patient stories is that people never expect cancer diagnosis. But why? Cancer happens. It can happen to ANYONE.
From the go found me page... 23. Februar 2024 von Joshua Burns , Spendenbegünstigte Ein sehr trauriges Update, unser lieber Keely ist letzten Sonntagmorgen friedlich verstorben. Ich möchte Ihnen allen für diese großzügigen Beiträge zu Keelys Behandlungsziel danken. Wir planen nun, dieses Geld in eine Stiftung für unsere kleinen Töchter ❤️ Josh, Polly und Tottie zu stecken.
Thankyou for sharing your story. Such a nasty disease but you are fighting it with such determination. I’m glad that you have such a loving supportive family to give you strength ❤
You are such a wonderful lady and l am so sorry that you got this terrible disease. Your children are so lucky to have you, such a wise intelligent person and lm sure you will help many others facing this battle ❤
Turn to Jesus He loves you, He is the healer of the body And savior of the soul, There is True Hope in Jesus, God protects Psalms 91, He is the God of miracles Acts 2:21 And everyone who calls on the name of the Lord will be saved Jesus alone saves Trust Him with your salvation John 3:16 1 Corinthians 15 1-4 Moreover Brethren, i declare unto you the gospel which i preached unto you, which also ye have received, and with wherein ye stand By which also ye are saved, if you keep in memory what i preached unto you, unless ye have believed in vain, For i delivered unto you first of all that which i also received, how that Christ died for our sins according to the scriptures And that He was buried, and that He rose again the third day according to the scriptures, Take care
Why couldn't they put you under for the bone biopsy
I 100% agree with you, but they don't.
I'm so very happy for you. I hope the rest of your journey continues to be as healthy and happy as you look right now.❤❤
God loves you, we live in a broken world but He hears your crys and your life is In Jesus hands.
My daughter had metastatic breast cancer. She passed away three years after diagnosis. I am so happy for you. Any survivor of this disease is a blessing. God bless you and your family.
I’m so sorry for your loss
She passed away sadly
WONDERFUL, WONDERFUL NEWS. I’m so happy for you all. 🥳🥳🥳🥳❤️❤️❤️❤️
Why she had another baby after had a breast cancer .. always is a high risk to get a cancer back
This women did zero research on her own cancer type. She should have read articles about it. I think being a pregnant mom was more important to her than being a 'Living' mom.
🩷🙏
I had triple neg breastcancer, when I was 36 and my child 3. My lympgnodes at my mammaria interna were full of cancer. It has been 20 years this february... It was hard, but I am cancerfree and happy to be alive!❤
I’m praying for healing for you.
YOU NEED TO CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE RIGHT AWAY, FENBENDAZOLE REDUCES AND KILLS CANCER CELLS WITH OUT ANY SIDE EFFECTS.,AND CAN BE USED AS A PROPHYLACTIC AGAINST CANCER. AND JESUS LOVES YOU ❤
You are beautiful Keely. I am an eleven year survivor of same cancer. Live your best life girl.💖💗💖
Sadly she passed away
❤❤❤❤❤❤
God doesnt exist. If God does exist, he purposely gave her incurable cancer and is useless AF because he either doesnt want to cure it or cant!
Cancer is easy to Self-treat easy to mitigate. Only Left-kingship forces old cells to die forcefully naturally - it's Natural Chemo docs.google.com/document/d/e/2PACX-1vQ0Mxc5Q126Wu_URtGGwRbadTUcFFg_IFm2jLtMht7QJLFN1_WLY6eZsorOh4XCprUqafi-i16DZTFI/pub Read - watpad - Book Title - What doctors Don't know about cancer
Beautiful brave family- I wish you all a wonderful, long happy geakthy life ❤❤❤
Healing n prayers God bless u n ur family
I’m
Major mistake, listening to your doctor and not insisting on mammogram that day . If you knew you had Braca-1, why???? I’m retired from a. Breast cancer center. Things like this make us crazy, especially in young woman. I lift you up and pray you can surmount this challenge 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Keep strong ❤