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Omg this is me right now 😢

Kinda sad , you going to be alriht , maybe things go upside down, but remember we are fearless!! You are beautiful and have bright eyes

Imagine dealing with PTSD,Bipolar 1 disorder, Type 2 diabetes, Lupus and going through Menapause and u are surrounded by Stress no matter how much u try to aviod it..Doctors say ..No stress ,no over doing it ,and get plenty of rest...😂😂😂😂 i just laughed and laughed..i said Doc. U do know where and all who i live with ..4 screaming children..none of which are mine ,my son and his very ununderstaning and disrespectful girlfriend who wants to fight or leave all her kids on me repeatedly with out even asking ... well i spoke up for myself and told them my feelings and thoughts on the way i was being treated and now i am without a place to live ,and i am moving again for the 78th time since i was 6 years of age...that is alot of trama on my 4"10 120lb body ,my only child ,a son of 30 years of age has shown no concern or understanding to my illnesses that are taking over ...i think this has become a losing battle ,I've been fighting so long that i just don't see me ever winning...not this time ,i feel to weak 😢

I am anxious, depressed ,weakness through out my whole body 😢i literally push myself to get out of bed,to just leave to go anywhere, i used to look forward to going to the Grocery store ,i hardly ever get out anymore ,i don't drive ,my muscles jump to much or involuntary muscle movements, when i do sleep it on lots of pillows for circulation, behind me,under my legs and on each side for my arms .all propped up along with soooo much muscle creams and lots of moisturizers and The Massage heated machines, Epsom salt is definitely a must with the hemp and for muscle soreness with moisturizers ,so many vitamins, protein vitamin ensure drinks ,it has all become very tiresome and irritating that your whole day is revolved around all the shit u have to do to try and feel human, normal ..none of this is ever normal 😢i miss who i used to be ..i feel like an Alien in a body i am just a passenger in someone else's body ,i look in the mirror and just see a person i don't recognize anymore.. the Misty i used to be has been gone or lost a long time ago, I miss feeling normal if there is such a thing 😢😢😢

I have type 2 Diabetes as well as severe neuropathy wide spread Fibermayalgia and Carpal tunnel in both hands on top of my Lupus ..both hereditary. My mother's side is Lupus and Cancer & Diabetes. My father's side is type 1 Diabetes and Bipolar 1 disorder. I am the middle child ,I feel like a magnet that has drawn all of these disabilities except the Major Cancer genes ..knock on wood ...I am in sooo much pain ,I lost 100 lbs ,and so much of my muscle tone,severe muscle deterioration ,weakness in my upper and lower limbs ,they are giving me injections steroids and anti-inflammatories in my spine and both wrist & palms just for mobility, it has become a task just to walk, simple things like cooking or anything that involves heavy lifting, it hurts just to carry a gallon of milk ,my hair is always falling out ,my skin doesn't even pick up any pigmentation anymore ,I've become forgetful, my short term memory has gotten unnerving, and my long term has become very vast and long..PTSD from all the trauma my body and mental state has gotten to much to handle at times, I am always organizing and cleaning so I always know where every thing is ,my music and aromatherapy & a sense of humor and my Faith in God are my only things that keep me grounded 😢

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Assalam Alaykum Khadija. Jazak Allah Khayern for this information. Lupus warrior here 💜

Having a flare tests your resolve and will for sure.

Lupus Warrior 💜 Can’t stop won’t stop

What kidneys treatments are you receiving? My wife is currently battling lupus any information would be helpful

I have SLE and I would not ever wish this horrible disease upon anyone. No one understands each moment of a day with Lupus unless you are dealing with it. Chronic illness has cost me a forty years marriage. Ex. was not wanting no part of my illness even though I was always there for him and my children and grandchildren. My life has been turned upside down. God helps me to keep trying to make sense and friends with this debilitating illness. My heart 💜 breaks whenever I hear of a woman with lupus. 🙏🙏🙏💜💜💜

My sister had lupus and it effected her lungs she was in the hospital for about a week and she got released the day of Christmas she couldn't walk on her right leg so they went to the hospital in a ambulance that day she found out she had a blood clot the size of her hand in her leg she cried she didn't want to go back she had to she was in the hospital again for 3 days and was putvon blood thinners for the rest of her life and she now takes pills instead of shots...She is a warrior and she is only 14 and went thru that she didn't deserve it i want to just take it away from her and give it to me...

Same symptoms blad spots, bumps on my face, rashes. Doctors said it was Lupus, but I had a Parasites infection that they wouldn't treat me for. I found a doctor to help after 8 months & being treated right now. Lupus symptoms are reversing.

Movement disorders completely ignored. Brain health vitamins completely ignored.

Im over myself !

Doc, estoy un poco confundida, en otro canal que se especializa en Lupus escuché que el aceite de soya es muy malo 🙅‍♀️

I’m hearing so many similar things here😔 Can you tell me if you have ever associated GA skin/rash with lupus?

If I go groceryshopping, on a bad day I might have to sit down every couple of minutes. I can no longer walk uphill at all. I used to go on long hikes when I was still healthier and just thinking about it makes me cry.

Anyone here who's had sunken skin with lupus? I have it on one arm and forehead, looks horrible.

Gudday ma'am..it's been ,3years my only daughter had lupus..shed been in bedridden situation. .she become very thin and cannot walk...we spend so much for her medication...for now we can't afford for now for her maintenans medicine and laboratories...please help us ma'am because some of her medicine came from other countries...please help us madaam any means even just the medicine...I'm begging for your help for my only daughter..I'm willing to send all her medical records if it is required....please ma'am help us..I can't avail help here in our country....please ma'am for the life of my only daughter...thanks and godbless..

Spoken just like someone who DOES NOT HAVE THE dusease. Wasted words

I just met a girl who I really like a lot who has lupus and I'm trying to learn all I can about it so I can help her the best I can because I want to be there for her no matter what

One key to dealing with it is to NOT STRESS over anything. I used to stress so much before the diagnosis, and now ive been more in control of my emotions than ive ever been because i know i cant afford to get sick

So the best way that you suggest that I can treat lupus is to go ask my care team... Is that why I clicked on this video?

Please I’ve a question, what’s the best way for lupus female patient to lose weight? Thanks

I'm currently saving up my strength for the next 2 days to go to my granddaughters bday sat.....yep that's my life. My full time job is simply getting myself up n dressed for the day. Family don't understand y it takes me 4 hrs to get ready.

Women or men with Lupus is not a joking matter, hope she gets it, will be one hell of a wake up call. I've had it for 12 yrs, my back now my face it's horrible!!

Nice video. I'm a male and I was recently diagnosed with Lupus. I'm involving myself with a few support groups and working with my medical team. Before my diagnosis I knew very little about the disease.

When she described driving my van, I felt that 😂

This is new my daughter have blood between her teeth

Don't forget we're all in this fight together 💪

Praying for you sisssy 🙏 💜 ♥️

💜 WE ARE SLE WARRIORS 💜

Thanks for sharing! Isn't just me being lazy as others might think or even say. Each day is a struggle!

Thank you!

❤ So many things to relate.. from one SLE to other .. loved your humour

Oh my gosh I can so relate ❤

Recently, and also unfortunately, a short round of antibiotics sent my Lupus into a rage. I never expected this, and it's miserable. 😞

I, too have lupus (almost 16yrs) as well as other complications ( nephritis, hypothyroidism, anemia, alopecia just to name some) and have been on dialysis. I just want to say to the ones who suspect they have it to take charge and talk to a doctor right away. The sooner they figure out what's going on, the better. Also DO NOT be afraid to speak up and be persistent if the doctor doesn't believe you. If you must find another doctor, this disease is too devastating to be taken lightly by a doctor who won't listen. For my newly diagnosed lupies, I know this is a lot, but remember you are not alone. One of my biggest advice is to please be compliant with your medications and doctors' appointments. I know it's easier said than done with everything we have going on but trust me it's not worth more meds, more hospital stays/visits or missing out with loved ones. Take it from me, taking your medications and going to your doctors' appointments will save you from so many problems. Not to mention your life.. Phew! I didn't mean to go on like this but if I can spare someone from all the unnecessary heartache then it's worth it. Remember we have Lupus, Lupus doesn't have us! Peace and Love everyone.

Well this hasn’t aged well. 5 years later still no cure or relief for lupus.

Praying that you find a cure for this, god bless you

I spent over five years in bed before and then after being diagnosed. My sister said she thought i was on meth. I'm 5'9, and got down to 110lbs. I've been really sick, but instead of seeing what lupus is, (nobody in my family history has had autoimmune issues, so the multiple ones I've been dx'd with aren't understood by my family) she just assumed I'm a meth addict. It breaks my heart, but what do you do.

Lupus and Me

Mines is more PHYSICAL stress. Working too many hours. Learning to listen to my body and what triggers. I get chills off and on, face rashes and joint pain.

invisable

stress does not help at all low vitamin d levels took 40 years find out i can not absorb vitamin d no pth ended up lupus

Why are you not streaming the afternoon panels? Very disappointed.

I learned a lot. Thank you.