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Young Dementia Network
United Kingdom
Registrace 16. 05. 2014
The Young Dementia Network, hosted by Dementia UK, is a community of people affected by young onset dementia and professionals. We collaborate with our members to improve the lives of people with young onset dementia and their families now and bring about significant changes that will have a lasting benefit for people living with the condition in the future.
Catherine Kiely talks to Chris Maddocks
Catherine and Chris discuss young onset dementia and the issue of misdiagnosis.
zhlédnutí: 260
Video
Young onset dementia in Leeds: a collaboration between neurology and psychiatry - June 2024
zhlédnutí 758Před 2 měsíci
Our June 2034 webinar was led by Dr Rumana Chowdhury, Neurology Consultant at Leeds Cognitive Neurology Service, and Dr Zumer Jawaid, Consultant Psychiatrist in the Younger People with Dementia Team at St Mary’s Hospital, Leeds. Younger people often wait a long time and see a number of different specialists before a diagnosis is made. Their cases may be complex and require multiple tests and gr...
Catherine Kiely interviews Lorraine Mulligan
zhlédnutí 163Před 2 měsíci
Catherine Kiely, Young Dementia Network Coordinator, interviews Lorraine Mulligan about her experience of the joint neurology and psychiatry clinic for people affected by young onset dementia at St Mary's Hospital. Leeds.
Tailored memory clinic care: using the diagnosis process as a starting point for support. March 2024
zhlédnutí 779Před 5 měsíci
The Young Dementia Network and the Young Onset Dementia Knowledge Center, Netherlands worked together on this webinar in order to learn, share and connect to international audiences with an interest in young onset dementia. The webinar on Tuesday 12th March 2024 was led by Dr Jackie Poos. She addressed support for people with young onset dementia and their family members during the diagnostic p...
Mind the gap: navigating young onset dementia from pre-diagnosis onwards - webinar February 2024
zhlédnutí 426Před 6 měsíci
Dementia Forward has delivered a young onset dementia support service across North Yorkshire for over 10 years. Initially focusing on outward-bound respite days, the service has grown to provide age-specific support, advice and information and the team is now working to improve the availability of respite and care. Our webinar on Wednesday 21st February 2024 was led by Jill Quinn MBE, Dementia ...
Wendy's story
zhlédnutí 607Před 6 měsíci
Wendy's husband Mark was diagnosed with dementia aged 54. They have both received support from North Yorkshire-based charity, Dementia Forward. This interview with Wendy was shared at the Young Dementia Network webinar in February 2024. A recording of the webinar can be viewed here:
Genetic testing: memory clinics and the NHS England Genomic Medicine Service webinar - November 2023
zhlédnutí 213Před 9 měsíci
Our webinar on Wednesday 15th November 2023 was led by Dr Nick Bass, Honorary Consultant Psychiatrist, UCL Division of Psychiatry, Tower Hamlets Memory Clinic, East London NHS Foundation Trust. England’s NHS Genomic Medicine Service (GMS) is working with different medical specialties to integrate genomic testing into routine care. We considered how this applies to the investigation of young ons...
Catherine Kiely and Jessica Harrison interview - November 2023
zhlédnutí 287Před 9 měsíci
Catherine Kiely and Jessica Harrison interview - November 2023
Increase opportunities for genetic testing - service improvement project webinar - October 2023
zhlédnutí 332Před 10 měsíci
Our webinar in October 2023 was led by Dr Jacqui Hussey, Consultant Old Age Psychiatrist and Lead Consultant for the Memory Clinic in Wokingham, Berkshire Healthcare Trust. Dr Hussey presented details of their service improvement project to increase awareness and opportunity for genetic testing in young onset dementia. The diagnostic process for younger people with dementia should include acces...
What is the Young Dementia Network
zhlédnutí 4,4KPřed 11 měsíci
A short animation explaining what the Young Dementia Network is, what it does and how to join. Visit our website here: www.youngdementianetwork.org/
Different service models: Young onset dementia nurse-led service webinar June 2023
zhlédnutí 170Před rokem
Our webinar in June 2023 was presented by Jenny Kerti, Community Psychiatric Nurse Manager, with Community Psychiatric Nurses Emma Green and Nina Picton, and Occupational Therapist Frances Hooper, from the Younger Persons with Dementia Team in Northamptonshire. They shared how this unique model offers the continuity of support needed and valued by people going through the diagnosis experience f...
Younger People With Dementia Service Northampton
zhlédnutí 313Před rokem
A series of short interviews with people living with young onset dementia and family members who are supported by the Younger People With Dementia Service in Northamptonshire. This video was shared as part of the June 2023 Young Dementia Network webinar.
Different service models - Young Onset Dementia Service Doncaster webinar May 2023
zhlédnutí 200Před rokem
Our webinar in May 2023 was presented by Dr John Bottomley, Associate Medical Director and Consultant Psychiatrist at Rotherham Doncaster and South Humber NHS Foundation Trust. It focused on the long-established Young Onset Dementia Service in Doncaster, which offers a single point of access and a pragmatic approach and process to achieving a timely diagnosis. The webinar included an interview ...
Catherine Kiely interviews Michael Booth
zhlédnutí 68Před rokem
Catherine Kiely interviews Michael Booth
Improving the diagnosis process for people with atypical symptoms webinar March 2023
zhlédnutí 781Před rokem
Our webinar in March 2023 was led by Nikki Zimmermann, Direct Support Lead, Rare Dementia Support alongside Dr Natalie Ryan, Consultant Neurologist. The webinar focused on why specialist interventions and assessments are needed when young people present with non-memory led dementias. We discussed the importance of expert knowledge and access to further investigations within a clinical setting. ...
Nikki Zimmermann talks to Julie, who is living with posterior cortical atrophy
zhlédnutí 713Před rokem
Nikki Zimmermann talks to Julie, who is living with posterior cortical atrophy
Changing perceptions of diagnosis - webinar February 2023
zhlédnutí 291Před rokem
Changing perceptions of diagnosis - webinar February 2023
Identifying symptoms before diagnosis - webinar November 2022
zhlédnutí 817Před rokem
Identifying symptoms before diagnosis - webinar November 2022
Diana Smith Harris talks to Catherine Kiely about young onset dementia diagnosis
zhlédnutí 71Před rokem
Diana Smith Harris talks to Catherine Kiely about young onset dementia diagnosis
Why numbers matter - webinar October 2022
zhlédnutí 322Před rokem
Why numbers matter - webinar October 2022
Wendy Mitchell talks to Catherine Kiely, Young Dementia Network coordinator, October 2022
zhlédnutí 330Před rokem
Wendy Mitchell talks to Catherine Kiely, Young Dementia Network coordinator, October 2022
The Angela Project - family members support needs film
zhlédnutí 177Před 2 lety
The Angela Project - family members support needs film
The Angela Project - people with young onset dementia support needs film
zhlédnutí 274Před 2 lety
The Angela Project - people with young onset dementia support needs film
The Angela Project - shared needs film
zhlédnutí 211Před 2 lety
The Angela Project - shared needs film
Communit tea, Young Dementia Network webinar June 2022
zhlédnutí 116Před 2 lety
Communit tea, Young Dementia Network webinar June 2022
Connectivi tea, Young Dementia Network webinar, May 2022
zhlédnutí 198Před 2 lety
Connectivi tea, Young Dementia Network webinar, May 2022
Employabili-tea, Young Dementia Network webinar, April 2022
zhlédnutí 353Před 2 lety
Employabili-tea, Young Dementia Network webinar, April 2022
Dementia, Disabili tea and Hope, Young Dementia Network webinar, March 2022
zhlédnutí 220Před 2 lety
Dementia, Disabili tea and Hope, Young Dementia Network webinar, March 2022
Authori-tea with Wendy Mitchell - Young Dementia Network webinar, February 2022
zhlédnutí 418Před 2 lety
Authori-tea with Wendy Mitchell - Young Dementia Network webinar, February 2022
Vitali-tea, Young Dementia Network webinar, January 2022
zhlédnutí 76Před 2 lety
Vitali-tea, Young Dementia Network webinar, January 2022
Thank you
I am interested in learning about the medication Julie is taking that she said helped her. I am also interested in learning about where I can find information on the pca group she is a part of. We are in the United States yet information is still helpful. Thank you in advance.
A super video. Thnaks to everyone involved. Let's share the heck out of this!
Well done Michael in describing the issues you and most people have with getting and dealing with their dementia diagnoses.
How very fortunate these people are to (rightly) have had the input & support of professionals working specifically with young onset dementia. This is so badly needed to be the norm. My own experience, and that of my sister, has been absolutely horrendous. She started displaying early signs & symptoms of dementia aged 55, whilst fit & energetic, full of life & vigour, working & raising grandchildren. Her long- controlling & abusive husband covered up same so as to exploit her financially & psychologically, closely followed by her son who saw his inheritance being placed at risk! It was only because I was a senior nurse and my husband a medical dr that we were able to recognise the possibility of a dementia diagnosis. Even involving police, GP, social workers and safeguarding teams we had to fight to protect her from harm & to seek help as we weren’t taken seriously. It has traumatised all three of us immensely (me, husband & sister). For the past 3yrs we’ve received no age-related support or understanding whatsoever, my dear sister suffering more than any of us. I believe that if a young onset dementia team had been involved, the situation would have been managed very differently. I hope & pray that young onset dementia services will be available to all families living with this tragic diagnosis. This group of people have specific age related needs which are most definitely not being met in most places.
I met this doctor on CZcams called Dr Alaho Olu , i got in contact with him and ordered for his (ALS) disease herbal medicine. I used it for 21days. All of a sudden I just got my test result and it's negative. I went to another hospital to get retested to be sure and it is still negative. I am so excited today that I am cured..
Iron deficiency and iron overload can *both* lead to dementia, although iron overload is more common in fair-skinned people. Excerpt from a Cleveland Clinic article: *The inherited form of hemochromatosis is more common in white people with ancestors from Northern Europe. It’s less common in people of African-American, Hispanic, Asian or American Indian descent.* Most of us pop these supplements daily and they are possibly wreaking havoc in our bodies. Anyone who is truly iron-deficient would crave foods such as liver, spinach, etc., especially if they have access to a wide variety of iron-rich foods. Even if the tests show a low level of vitamin D or whatever it doesn't necessarily mean that there is a true deficiency; it possibly just means that *the body isn't storing what it doesn't need.* If supplements are making you feel worse it could be that your body is overloaded on what it doesn't need! We should tread with caution before popping vitamin/mineral supplements with abandon.
Today I send you lots of prayers For what’s about to be I really want to help you So I’m sending this from me I’m sending what is needed There is no need to apply But most of all I send my love To all that passes by 🙏🏽🙏🙏🏼🙏🏿🙏🏾🙏🏻
One of my aunts has it.
My heart filled with joy and appreciation to Dr Abumere on youtube for curing my HSV with his natural roots and herbs. Am now perfectly okay. God bless you for me. czcams.com/video/KgIh8shZY2Y/video.html ..
That's scary. We r making major breakthroughs, with changes in the brain. My sister had Lewy Body Dementia, for 7 years. Her mind and body went. At the end, she couldn't walk or talk. She passed away peacefully, at the assisted living facility, The Residence, in Darien, CT, on Jan 28, 2021. I salute, the medical staff, including caregivers and Hospice, for taking such great care of my sister. Blessings and prayers to all of u.
I never believed in herbal medicine until I met a friend of mine who was also cured from herpes with herbal medicine, I decided to give it try by contacting Dr Osemen On CZcams.....
such impressive, calm, thoughtfulness - we see here a kindred soul to Marcus Aurelius- see his " the art of acquiescence":
Thanks, Susan. Very encouraging.
Amazing video! Well done to everybody involved in putting all of this together! Saw a few familiar faces there too!
No one in this film is under the age of 57. PLEASE talk about & research dementia in children and young people. I know a child who was under 10 with dementia from Batten's disease; my son was only 16 with severe dementia from his brain tumour. There is no public awareness of this. Thank you.
What an articulate and lovely bunch of people, thank you for taking the time to share your experiences.