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Hyperacusis Central
Registrace 28. 03. 2022
Hyperacusis Central is a volunteer-led organization that uses a variety of digital platforms and creative approaches to:
- Raise awareness of hyperacusis and other conditions which are common alongside it
- Provide a voice for those left behind by limited treatment options
- Promote donations to organizations that support innovative hyperacusis medical research (e.g., Hyperacusis Research, Ltd.)
- Collaborate with researchers and clinicians to share the voice and experiences of patients
Thank you for visiting, and please give us a follow.
To learn about more what we go through, we highly suggest that you check out these avenues. They are historical and concrete sources for more information on Hyperacusis and Tinnitus
Hyperacusis Central website
hyperacusiscentral.org
Hyperacusis Research
Http://hyperacusisresearch.org
Hyperacusis Support Facebook group
groups/NHTSUPPORT/?ref=share
Hyperacusis Central
- Raise awareness of hyperacusis and other conditions which are common alongside it
- Provide a voice for those left behind by limited treatment options
- Promote donations to organizations that support innovative hyperacusis medical research (e.g., Hyperacusis Research, Ltd.)
- Collaborate with researchers and clinicians to share the voice and experiences of patients
Thank you for visiting, and please give us a follow.
To learn about more what we go through, we highly suggest that you check out these avenues. They are historical and concrete sources for more information on Hyperacusis and Tinnitus
Hyperacusis Central website
hyperacusiscentral.org
Hyperacusis Research
Http://hyperacusisresearch.org
Hyperacusis Support Facebook group
groups/NHTSUPPORT/?ref=share
Hyperacusis Central
Sound of Tinnitus
⚠️ Sound Warning ⚠️
If you have hyperacusis, we advise you to turn your volume down when watching this video.
Ever wonder what it sounds like to those who suffer from Tinnitus?
#TinnitusWeek #TinnitusAwarenessWeek #Tinnitus #ReactiveTinnitus #TinnitusAwareness #Hyperacusis #HyperacusisAwareness
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Website: hyperacusiscentral.org/
Instragram: hyperacusiscentral
Facebook: hyperacusiscentral/
Twitter: HyperacusisC
TikTok: www.tiktok.com/@hyperacusiscentral
Donate to Research: hyperacusisresearch.org/how-to-help/
If you have hyperacusis, we advise you to turn your volume down when watching this video.
Ever wonder what it sounds like to those who suffer from Tinnitus?
#TinnitusWeek #TinnitusAwarenessWeek #Tinnitus #ReactiveTinnitus #TinnitusAwareness #Hyperacusis #HyperacusisAwareness
__
Website: hyperacusiscentral.org/
Instragram: hyperacusiscentral
Facebook: hyperacusiscentral/
Twitter: HyperacusisC
TikTok: www.tiktok.com/@hyperacusiscentral
Donate to Research: hyperacusisresearch.org/how-to-help/
zhlédnutí: 182
Video
Hyperacusis Central | Channel Trailer
zhlédnutí 484Před 10 měsíci
This promotional video places delves into the intricacies and the profound impact of the rare and little-known medical condition known as Hyperacusis. It provides a brief exploration into thisb condition by shedding light on its various aspects and the profound challenges it presents to those who live with it. Eight indiviudals who have been effected by this hyperacusis, share their experiences...
Understanding Pain Hyperacusis: Causes, My Experience, and a Path Forward
zhlédnutí 1,8KPřed 10 měsíci
In Hyperacusis Central's latest video, Jon Wallace discusses pain hyperacusis, a condition so rare that it remains unknown to most. Yet, for those who endure its harsh and debilitating effects, it creates a dreadful reality by turning everyday sounds into sensations of stabbing, burning, or aching pain, which often forces sufferers to live reclusive lives. Despite the difficult nature of pain h...
Two Concerts Cost Him Everything- Harrison's Hyperacusis Story
zhlédnutí 2,8KPřed rokem
Harrison shares his compelling and sorrowful story of how his life was completely altered after experiencing acoustic shock from a concert that resulted in severe pain hyperacusis. This condition has had a profound impact on every aspect of his life. Despite seeking assistance from various professionals, such as audiologists, ENTs, neurologists, and even surgeons, Harrison's relentless pursuit ...
Living in a Noisy Country with Hyperacusis - Lina's Story
zhlédnutí 1,9KPřed rokem
Today, our new video takes us to Colombia, where another victim of hyperacusis resides - Lina. She developed this condition two years ago and describes what it’s truly like. Her journey - one of sacrifice and profound adjustment-speaks volumes about hyperacusis. The life-altering effects were far-reaching, forcing her to drop a beloved hobby, too: attending dance classes. To compensate for that...
The Sound of Tinnitus
zhlédnutí 617Před rokem
⚠️ Sound Warning ⚠️ If you have Hyperacusis, we advise you to turn your volume down when watching this video. Ever wonder what it sounds like to those who suffer from Tinnitus? Website: hyperacusiscentral.org/ Instragram: hyperacusiscentral Facebook: hyperacusiscentral/ Twitter: HyperacusisC TikTok: www.tiktok.com/@hyperacusiscentral Donate to Research: h...
Using Ear Protection For Hyperacusis
zhlédnutí 883Před rokem
Amy and Sebrod discuss their personal choices and explain how each form of protection works for them. Hopefully, this will give you some insight into some of the best choices for ear protection on the market today. Hearing Protection Shown and Mentioned in this video: (Some of these are affiliate links where a portion of the profits will go to Hyperacusis Research) 3M Peltor X5A Earmuffs www.am...
Detecting Tinnitus in the Brain: An Interview with Emilie Cardon, PhD
zhlédnutí 3,7KPřed rokem
Emilie Cardon is a postdoctoral researcher at the University of Antwerp, Belgium. For her PhD, she developed a way to detect Tinnitus in the brain. We asked her if she was interested in doing a written interview with us, and she agreed! In the interview, Emilie talks about her background as a musician, her research, how she came up with the idea to detect Tinnitus, how her research could impact...
Home-bound with Stabbing Pain -Sebrod's Hyperacusis Story
zhlédnutí 4,1KPřed rokem
Sebrod has had Hyperacusis for about two years. At first, he was able to live life fairly normally as long as he wore plugs. However, after a night of clubbing his ears felt like they were on fire. Since that day he has been suffering from ear fullness, burning and especially stabbing pain. “It’s horrendous pain that even when I’m not around any type of noise, it just lingers.” He talks about h...
Whiplash and Concussion from a Roller Coaster- Noelle Foley’s Hyperacusis Story
zhlédnutí 6KPřed rokem
Noelle Foley developed hyperacusis and craniocervical instability after getting a concussion and neck injury on a roller coaster in 2019. In her video, she talks about the profound negative effects this injury has had on every aspect of her life, the difficulties finding treatment options for these injuries, and her determination to regain a quality life again. Website: hyperacusiscentral.org/ ...
Brian's Experience with Sound Therapy for Hyperacusis
zhlédnutí 5KPřed 2 lety
Brian discusses his experience with Sound Therapy, also known as Tinnitus Retraining Therapy or TRT, which is often recommended as a treatment for people with Hyperacusis and Tinnitus. He discusses what it is, the theories behind how it works, his personal experiences with it, and when to know if it's causing damage. Effect of Tinnitus Retraining Therapy vs Standard of Care on Tinnitus-Related ...
A Former Musician's Warning: It Could Happen to Anyone- Jon's Hyperacusis Story
zhlédnutí 3,6KPřed 2 lety
Jon shares his experience with hyperacusis and tinnitus, how it has affected his life, and explains how this condition can affect anyone. Website: hyperacusiscentral.org/ Instragram: hyperacusiscentral Facebook: hyperacusiscentral/ Twitter: HyperacusisC TikTok: www.tiktok.com/@hyperacusiscentral Donate to Research: hyperacusisresearch.org/how-to-help/
Advice From A Lifelong Sufferer- Amy's Hyperacusis Story
zhlédnutí 2,5KPřed 2 lety
Advice From A Lifelong Sufferer- Amy's Hyperacusis Story
Sound Only Made Things Worse- Brian's Hyperacusis Story
zhlédnutí 3,9KPřed 2 lety
Sound Only Made Things Worse- Brian's Hyperacusis Story
I have pain and burnin Hyperacusis with Tinnitus 😢
This may not work for everyone, but this actually saved my life: Try BPC-157. It completely reversed my pain Hyperacusis. I was suicidal and almost gave up, then I found bpc 157. I havent dealt with it for almost a year now. No earplugs, no tinnitus, no sensitivity, NO PAIN. I have to wear ear plugs at concerts, but I would advise that people do that anyways. Try bpc 157. Do your research and make an informed decision. It could change your life.
Mine is in the treble range. I wear earplugs at work and when I take them out sounds distorted. My ear pain is like a knife.
My heart goes out to the people that suffer from this terrible condition. I suffered from this one Sunday afternoon but only for several minutes around eight years ago. It happened like this. My daughter came to visit and I was in my bedroom watching TV when she came into the bedroom. She sat very close to me almost touching my torso area and I told her you're hogging up all the space let me move so you can have more space on the bed. So we chatted for a little bit. My husband was relaxing in the living room. Now, in all this, I had to sort of twist my body in an uncomfortable way just so my daughter could have more space on the bed to sit. It was actually funny. We talked only for several minutes. Then I said, "I gotta get my body out of this weird position." It was either I move way out to the left side of the bed to give her real sitting position room on my bed, or just sit up myself, so I did that. I proceeded to just sit on my bed as we continued talking. I positioned my back to the wall. (I didn't had a headboard). Suddenly my left ear became...bionic! That's exactly what I could call it. The sound coming from the tv seemed extremely loud, my daughters talking was unbearable. I became so confused I felt my eyes open wide I could see the shock in my daughter's face she knew something was wrong. "please stop talking and turn off the tv." I whispered very slowly to her. I could barely stand the sound of my own voice. She gasped! "Mom, what's wrong?" I quickly put my index finger on my lips to motion to her. Be quiet! It's too loud! I pointed towards my left ear as I was also trying to cover them both and I whispered to her, ever so lightly, "I feel like I have a bionic ear." I pointed to my left ear. "Everything seems so loud, I can't take it. I don't know what's going on. I was crying at this point. My daughter had a terrified look on her face and quietly said, " I'm telling dad." She quickly got up. I stopped her. "No, he's going to be frightened. Let's pray." I began to pray with ALL the faith I had in God!!! Quickly, of course. I'm not kidding! This experience terrified me. A few minutes later it stopped. My hearing was back to normal. I believe with all my heart that what caused it was the weird body position I was in for those few minutes when I was trying to give my daughter a bit more space on the day. My cervical neck and spine area was affected (maybe) in some way and provoked the hyperacusis to appear. I have not had this experience ever since. Thank God! I really mean it, thank God.
I don’t know about you guys but have you checked out Dr Liam, his herbal treatment helped removed my tinnitus and vertigo , I also see a lot of other people whom his treatment has helped on CZcams , his channel is “Dr Liam Ogbebor herbal centre””””000😊””0
If its not improve being deaf is mach more easy. ..
Are you cured
Clomipramine has been very effective in treating my long-term case of pain hyperacusis. Maybe it can help some of you. I know I am not the only one this drug works for.
How many mg and for how long did you use it?
Clomipramine (anafranil) can help if are THE nerv pathways or Nerv! With Cochlear damage or haircell damage it‘s another story. BY THE WAY.. CLOMIPRAMINE HAS SIDE EFFECTS!
I have hiperacusis too but I have been paying attention to my diet and it has gone down …..you have to eat clean ! Pay attention to Liam stops tinnitus…..the same treatment for tinnitus works for hiperacusis
Bro,I am in tears... I have similar phase in my life..
I know how difficult it is. Unfortunately no cure for that because of lack of research on it. I hope the best for you and thank you for sharing your story brother
Thank You!!! For making this video at times I feel so misunderstood…
On God I can relate!!! 🤦🏾♂️ 🙏🏾🙏🏾🙏🏾
Energy drinks, Pre workout, Caffeine in pill form, CAUSE hyperacusis for me. COFFEE does not! Coffee actual helps normalize my hearing somehow!
has anyone tried bioresonance therapy?
Jon what is your job? Thanks for making this video. I wish I could still work but that’s not happening in a dental office.
Thank you so much for sharing Brian…we need more leading voices such as yours to move this condition up the agenda. Thank you for being bold enough to do so
17 year I. House bound cannot workice in total isolation. Moved to flat now I'm catastrophe lould. Dear x9 catehome. Elders it dosnt HP here ultra lould no staf getit feel death isblesi g it ruind mi life just seem this to reasure me
I have tensor tympani syndrome, this is rare too. Praying for tinnitus cures
Prayers for you. I have tinnitus , pulsatile Tinnitus, tensor tympani syndrome so I understand.
Dang man why does God do this to his children?
I just watched your story. I'm here with you bro, I totally understand what you're dealing with and going through. Any hard object touches another hard object and it hurts. Whether that's accidentally dropping something on the floor or sitting a cup on top of a table. I'm here with ya man. We will get through this life. Gods with us. Cry out to him.
Thank you for sharing, I am currently experiencing symptoms myself. How is your condition now?
The Susan Shore device that will be out sometime after approval has shown very promising results in trials for somatic tinnitus, which could potentially help hyperacusis 🤞
Maybe if you could find a way to contact Dolly Parton, she might be willing to help you financially, since it happened at her theme park?🤔 I really believe she would help you, if you could just find a way to contact her.
God bless you ❤
Hi, I’m 14 just found out that I have hyperacusis and I’m getting hearing aids for it
Dear Noelle, hyperacusis has different forms. It sounds like you have Pain Hyperacusis. It’s discovered by Bryan Pollard, the founder of the Hyperacusis Research foundation. Google it and you’ll find more info about it. Do not let anyone tell you, you can’t shield yourself from noise because the hyperacusis should get worse (they say). Do not let anyone tell you that you can train it by using pink noise, brown or white noise. Pain Hyperacusis patients cannot train their ears/ brain to get better. And sadly there is until now no cure. The Hyperacusis Research foundation is funding different research to try to find a cure. The best you can do is try to avoid setbacks by using ear protection. For pain hyperacusis patients it’s very important to avoid setbacks. I wish you all the best, because it’s very hard to live with. People who have pain hyperacusis mostly are not depressed, but because it’s so painful to live with it erases their laughter in life. Hopefully for every Pain Hyperacusis sufferer there will be a cure or medicine in the near future 🍀
The fact that he can even talk. I wonder if it is painful...because I can only talk without pain when I am medicated. I don't understand it. 4 years of Hyperacusis here.
I feel your pain and want to hug ypu.
Please, could someone tell me the brand and model of the anc shooter headphones?
The bigger question is What sounds can you tolerate for Sound Therapy? I couldnt use anything at first. Pink noise was painful. I opted for TRT with wearable sound gens which gave me good leverage within months to graduate onto more challenging sounds. Baby steps. Set backs will happen and discourage you. What can you do but keep trying.? Its tough. I wish the best for all suffering with this. I guess i was a lucky one to overcome it in 5 years.
I had LOUD AND PAINFUL Hyperacusis. Yes...Both
One misconception is that there is Permanent damage to the inner ear hair folicles. Not true. I believe these very hairs can get traumatized but over time can regain their normal function . How else can I recover from the same excruciating condition?
Because Hyperacusis is not a specific illness, but a syndrome. There can be multiple underlying cause and still the symptoms are very similar. For some, it is only a brain decoding error. In this case the cure is easier. For others, there _is_ a damage to the inner ear. These are differentiated as "central" and "peripheral" Hyperacusis. I suffered from both. I recovered from central Hyperacusis 15 years ago in 3 weeks. Now I am suffering from peripheral Hyperacusis, and it seems permanent. Still, I don't think that people with peripheral Hyperacusis should give up their hopes. Sometimes the body recovers or at least the symptoms become weaker. And there is more and more research in this topic which I hope will offer some kind of cure in the future. Hang in there!
I had a law enforcement job and had to shoot firearms to secure my job. I bought 40db muffs with built in speakers that would cut off sound at high dbs. I had no choice in getting disability or insurance to pay my cost because hyperacusis isnt recognized. I gave up my music...friends..church...etc. After 5 years....i beat this for good. Im healed❤.
How did you do it?
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🎉…
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🎉..
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🎉.
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again…
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again..
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again..
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again.
I'm only 16, and though I've yet to see a doctor about this, pain hyperacusis is the only condition I have come across that perfectly describes my ear toubles. I'm pretty sure I have a very mild case of this as I've never experienced severe pain from it, but that's only because I avoid really loud environments whenever I can. I have never been to a concert before, and likely will never go to one. I have to cover my ears during a fire alarm or during a pep ralley. I sometimes isolate myself at school because just sitting next to people while they laugh or talk can start hurting. I'm so lucky that it has never been dehibiliting to me, but I'm scared it will only get worse. When I did my own research on hyperacusis there were so many questions and theories that have yet to be researched. I hope I can watch, or somehow help, as these questions are answered.
I got news for you. I have hyperacusis for 30 years. No cure
Helpful..
Your going about it wrong. You have to have noise exposures at low levels otherwise you will get worse. I know 30 years later. I couldnt even talk at that time. I tried to talk and exposed myself around noise, had hundreds of setback. Today i can talk out loud, still have setbacks from loud sounds. Now my tinnitus is getting worse. Exercise seems to help. If pverprotect ears you will be stuck
I will never forget that day when i lost the feeling of silence.wish i could get that back
This video is very helpfull but could you make one about parents that have hyperaccusis and how you maybe could deal with that as a (young adult) child.
I feel your pain bro i just started feeling this about two weeks bro. I had a really bad sinus infection and this started out of no where. I hope you get better brother. I feel like no one understands.
I have had hyperacusis for 30 years. Now my tinnitus is worse. I also have muscular issues. I have become very !one!y. I nolonger want to live. Keep fighting. I am finished
You've explained it so perfectly 🙏