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It is nice to hear your story. I am going thru tests for CTEPH. I am on oxygen 20 hours of the day. You give me hope.

Been trying , for 12 years to cope with chronic health conditions on my own having no loved ones... To depart is preferable because I am allergic to all allopathic medicines.... Only God can truly understand and FEEL my 24/7 pain and discomfort... Please HEAR me , Lord God Almighty....love.❤❤❤ show me LOVE , Lord...

she misunderstands the role of VQ scan vs CTA chest. VQ is NEVER going to identify "really small vessel embody that maybe a cat scan won't pick up"

Beautifully presents sir

This is the best source of information I have found so far, well worth watching.

I was diagnosed 10 years ago. Honestly I'm so sick of it. Just give me my meds and forget the rest of it.

Good Afternoon I have a question if a person who has pulmonary arterial hypertension and have an surgery call ph, it’s still takes adempas and opsumit ?

Good Evening can I ask a question? My question is the person who has a surgery for Cteph can be cure or not?

Pah patient

I have pulmonary hypertension but I can't purchase tablet what I can do

Good mam

Had my PTE with Dr Pretorius at UCSD in November 2022. Thanks to the entire CTEPH/PTE team for everything you did for me. UCSD is not only the #1 PTE hospital, but their level of compassion and care I experienced there has set the highest bar for me for all hospitals. UCSD is the best!

Hope some lung docs will watch this

Greetings from southern Ontario Canada I have cteph chronic thromboembolic pulmonary hypertension disorder

Pulmonary Hypertension - Group 5 - Treatment is directed toward optimizing the underlying disease process. There was a comment in PH RN that the next issue will feature content about Group 5 PH in the future. Where is this updated information?

Elvis is awesome 💯!!

EL INMORTAL Medrano is truly amazing!!

That’s the very best explanation of group 2 that I have seen!! Thanks so much for taking the time to make this video 😊

A public relations video clip for PHA---too short to be truly helpful for anyone with pulmonary hypertension.

Too short and oversimplified -- very disappointing

Very informative lecture 🎉

Mpap>25 mmHg

Promo>SM

Very well explained.Thanks

I have been diagnosed with Svt and they treat that but don't really put the two together. I feel like I'm drowning in my own fluid sometimes,and I can't walk hardly without having to stop and and catch my breath. My Son has it, and I'm sure my Daughter does too with all her polyps. My Son was born with bronchial cleft cysts as well,with huge polyps in his nose.

Wow! This is truly hitting all my Boxes!!! Thank you What's sad is I don't have insurance or even doctors near me who know about Hht.

Congenital diaphramatic hernia also connects to PH, organs up into lung cavity from diaphragm nor closing correctly

Well I was just diagnosed, and I live in maine and getting an appointment with pulmonologist up here is a joke, it's like no urgency in getting this treated b4 I get worse. I guess it's finding the right doctors.

lol this guy is extremely sick,, dont get diet recommendations from him xD hes eating wayyyyy too many animals and fats

I am a male and I have PAH as well as heightened estrogen levels. So much so I'm developing enlargement of my breasts.. quite sore actually.. curious if you found all patients for your study? If not I'm interested in all help I can get..

This conference has a lot about the challenges we face with an autoimmune disease. I was dx w/ SSc 5 yrs ago and my 1st sx was SOB. These autoimmunes are not only challenging for us but for our providers.

I have no respect for Dr.'s at all anymore. You are pathetic.

I have it and no Dr.'s care a dam about anything.

I have been on max Uptravi dosage since early 2019. Over a year ago, I asked my specialist about reducing my dose because of persistent painful and debilitating side effects. All too often Acetaminophen barely makes a dent. In response, they scheduled some different tests but have yet to discuss outcomes or change my dosage.

I've been diagnosed with severe pulmonary hypertension and no one wants to help me, that includes;primary, cardiologist and copd Dr. Loma Linda in SoCal. won't accept new patients. I had cancer surgery last August and still recovering. My faith in the medical profession is not good right now. So much for your oath.

Prolotherapy or PRP can usually help if a patient has persistent back, neck, shoulder, knee, and other ligament pain that cannot be seen on an x-ray or MRI. Unfortunately both Prolotherapy & PRP are sadly are usually not covered under most insurance plans. Ehlers Danlos syndrome patients can greatly benefit.

Very informative and encouraging.

Awesome presentation!!!

Excellent!!

Thank you for sharing this in a condensed version. I wish that I would have seen it months ago.

What's the prognosis for group 2 PH?

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💜💜💜💜

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What type of connective tissue disease can land up causing a fatal stroke 🙏💙

Excellent review of pulmonary hypertension. Thank you

So at 80 percent denial at the initial level, you telling me with Hiv, Diabetic neuropathy, Covid long haul, and age 64 I'm not going to be approved at this level? Well dayum.

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