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International Waldenstrom's Macroglobulinemia Foundation
United States
Registrace 14. 02. 2012
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is a patient-founded, patient-led, international non-profit that is dedicated to a simple but compelling vision: Support everyone affected by Waldenstrom’s macroglobulinemia (WM) while advancing the search for a cure. Since 1996, IWMF has funded over $10 million in WM research and provided an array of informative resources for patients, caregivers, and medical professionals. These resources include events, support groups, booklets, a quarterly newsletter, videos featuring top WM researchers, and more.
On our channel, you can find a variety of videos from Waldenstrom's Macroglobulinemia experts, patients, and caregivers from events like out annual Educational Forum. To learn more about IWMF, we encourage you to visit www.iwmf.com and become a member for the latest in WM news, advocacy, events, and more.
On our channel, you can find a variety of videos from Waldenstrom's Macroglobulinemia experts, patients, and caregivers from events like out annual Educational Forum. To learn more about IWMF, we encourage you to visit www.iwmf.com and become a member for the latest in WM news, advocacy, events, and more.
Sound Meditation for Stress Management
Recorded live July 5th, 2024
Relax to the sound of authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. Ann will also share healing chants throughout the session.
Research studies have shown that sound meditation with singing bowls reduced tension and increased feelings of spiritual well-being in its participants, and could be useful for those experiencing fatigue, chronic stress, depression or anxiety. "As compared with pre-meditation, following the sound meditation participants reported significantly less tension, anger, fatigue, and depressed mood."
Additional Info:
• Set up your space so you will be able to hear Ann's voice. Use headphones or a speaker if that will provide you with a higher quality of audio.
• You can do this practice lying down on a bed or on a couch.
• A blanket or light cover is optional, with supports under the head and knees if needed.
• If lying down is uncomfortable, you can do this seated.
Instructor:
Ann MacMullan is a certified yoga instructor and yoga therapist (E-RYT 500, C-IAYT) and the IWMF Wellness Program Coordinator. She enjoys uplifting the WM community through breath-connected movement, mindfulness, sound healing, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019. She has completed Level 1 Atma Buti® Sound Healing Method and integrates sound healing techniques into her practice when appropriate.
Ann can be reached directly at anngrace@iwmf.com
Research Cited:
Effects of Singing Bowl Sound Meditation on Mood, Tension, and Well-being: An Observational Study
www.ncbi.nlm.nih.gov/pmc/articles/PMC5871151/
More on the IWMF Wellness Program page: iwmf.com/iwmf-wellness-programs/
Relax to the sound of authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. Ann will also share healing chants throughout the session.
Research studies have shown that sound meditation with singing bowls reduced tension and increased feelings of spiritual well-being in its participants, and could be useful for those experiencing fatigue, chronic stress, depression or anxiety. "As compared with pre-meditation, following the sound meditation participants reported significantly less tension, anger, fatigue, and depressed mood."
Additional Info:
• Set up your space so you will be able to hear Ann's voice. Use headphones or a speaker if that will provide you with a higher quality of audio.
• You can do this practice lying down on a bed or on a couch.
• A blanket or light cover is optional, with supports under the head and knees if needed.
• If lying down is uncomfortable, you can do this seated.
Instructor:
Ann MacMullan is a certified yoga instructor and yoga therapist (E-RYT 500, C-IAYT) and the IWMF Wellness Program Coordinator. She enjoys uplifting the WM community through breath-connected movement, mindfulness, sound healing, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019. She has completed Level 1 Atma Buti® Sound Healing Method and integrates sound healing techniques into her practice when appropriate.
Ann can be reached directly at anngrace@iwmf.com
Research Cited:
Effects of Singing Bowl Sound Meditation on Mood, Tension, and Well-being: An Observational Study
www.ncbi.nlm.nih.gov/pmc/articles/PMC5871151/
More on the IWMF Wellness Program page: iwmf.com/iwmf-wellness-programs/
zhlédnutí: 72
Video
T'ai Chi and Qi Gong with Rami Rones - July 2024
zhlédnutí 90Před 16 hodinami
Join Rami Rones to safely explore the ancient mind-body therapies of T’ai Chi and Qi Gong. The meditative state achieved during practice can help reduce anxiety and stress while boosting your mood, immune system, and energy levels. Slow, low-impact movements can increase muscle mass and bone density, ease aches and pains, gently stretch muscles, and improve your balance. Recorded live July 2nd,...
Chair Yoga for Stiff Joints
zhlédnutí 181Před 19 hodinami
Take a 45 minute "self-care" break: manage your stress, improve your balance, energize your vitality, and stimulate the immune system by moving the breath and body. While we will remain seated for some of the class, we stand and use the chair for support for some poses, with modifications so all levels can practice. Recorded July 1st, 2024. Our 45 minute classes will incorporate some of the fol...
Cardio Flow for WM - Coping with Fatigue
zhlédnutí 172Před dnem
Challenge your coordination and balance while addressing symptoms like fatigue and peripheral neuropathy. Get your body moving with repetitive, simple movements within the safe space of our WM community. Improve blood flow, balance, and mobility! Recorded June 28th, 2024 * Get your flow on with simple repetitive movements that strengthen the core and legs, work the upper body, and pump the lymp...
Reiki for Cancer Care with Sharon Rivet
zhlédnutí 85Před dnem
Educate and Empower Monthly Wellness Webinar Series: June 2024 Want to find out how reiki can support your cancer journey? Join Usui Reiki Master Teacher Sharon Rivet to learn more about this holistic healing system. Reiki is currently being used as complementary care in cancer centers like Mayo Clinic, Cleveland Clinic and Johns Hopkins. Reiki can help manage pain and stress, strengthen immune...
Chair Yoga for WM - Cool it Down
zhlédnutí 72Před 14 dny
Take a 45 minute "self-care" break: manage your stress, improve your balance, energize your vitality, and stimulate the immune system by moving the breath and body. While we will remain seated for most of the class, we stand and use the chair for support for some poses, with modifications so all levels can practice. Recorded Jun 24th, 2024. Our 45 minute classes will incorporate some of the fol...
Yoga Nidra - June 2024
zhlédnutí 120Před 14 dny
This 30-minute guided session is done while lying down, with support and blankets to allow the body to fully relax. Yoga Nidra contains breathing cues and a systematic sequence of body awareness that can activate the parasympathetic nervous system and increase the amount of alpha-waves in the brain. Give yourself permission to relax and rest, while setting intentions for personal growth and exp...
Closed Caption Version - 2024 IWMF Ed Forum Welcome & Opening Remarks
zhlédnutí 18Před 21 dnem
Newton Guerin, IWMF President & CEO, with Peter DeNardis, IWMF Board Chair, official welcome attendees to the 2024 IWMF Educational Forum.
Closed Caption Version - 2024 IWMF Ed Forum Ben Rude Heritage Society and Accelerate the Cure
zhlédnutí 18Před 21 dnem
Closed Caption Version - Newton Guerin, IWMF President & CEO; Laurie Rude-Betts, Founder BRHS; and Carl Harrington share updates on the Ben Rude Heritage Society and the Accelerate the Cure Campaign.
Closed Caption Version - 2024 IWMF Ed Forum Closing Remarks
zhlédnutí 20Před 21 dnem
Closed Caption Version - Newton Guerin, IWMF President & CEO, provides closing remarks for the 2024 Educational Forum and a preview of the 30th IWMF Educational Forum in 2025.
Closed Caption Version - 2024 IWMF Ed Forum - WM Genomics Latest and Greatest
zhlédnutí 53Před 21 dnem
Closed Caption Version - We will cover some of the basic concepts about mutation and DNA regulation in cancer while putting these concepts in the context of recent breakthroughs in WM happening both at Dana-Farber and across the globe. Topics covered will include common gene mutations in WM, genomic based disease monitoring, evidence for subtypes of Waldenstrom's macroglobulinemia, personalized...
Closed Caption Version - 2024 IWMF Ed Forum - Novel Strategies to Block MYD88 Signaling in WM
zhlédnutí 87Před 21 dnem
Closed Caption Version - Dr. Treon will discuss efforts by his laboratory to develop next generation drugs targeting key molecules that mutated MYD88 uses to support the survival of WM cells.
Closed Caption Version - 2024 IWMF Ed Forum - Pick Your Poison Treatment Options
zhlédnutí 95Před 21 dnem
Closed Caption Version - Learn about current Waldenstrom macroglobulinemia therapies, strategies to reduce toxicities, how treatment is sequenced, emerging therapies, and ongoing clinical trials.
Chair Yoga for WM - Flow Yoga!
zhlédnutí 82Před 21 dnem
Take a 45 minute "self-care" break: manage your stress, improve your balance, energize your vitality, and stimulate the immune system by moving the breath and body. While we will remain seated for some of the class, we stand and use the chair for support for some poses, with modifications so all levels can practice. Recorded Jun 19th, 2024. Our 45 minute classes will incorporate some of the fol...
Closed Caption Version - 2024 Ed Forum - WM Clinical Trials Network
zhlédnutí 41Před 21 dnem
Closed Caption Version - Learn about the future of Waldenstrom's macroglobulinemia clinical trials, how to participate, and the impact of IWMF funding for research. Overview of DFCI’s collaborative project connecting all U.S. WM researchers and clinicians.
Closed Caption Version - 2024 IWMF Ed Forum - Ask the Doctors Live Q&A Panel
zhlédnutí 59Před 21 dnem
Closed Caption Version - 2024 IWMF Ed Forum - Ask the Doctors Live Q&A Panel
Closed Caption Version - WM Basics Diagnostics, Understanding Lab Tests, Symptoms
zhlédnutí 86Před 21 dnem
Closed Caption Version - WM Basics Diagnostics, Understanding Lab Tests, Symptoms
CC - A Story of Hope from Both Sides of the Stethoscope Patient & Doctor’s Journey Together
zhlédnutí 35Před 21 dnem
CC - A Story of Hope from Both Sides of the Stethoscope Patient & Doctor’s Journey Together
2024 IWMF Ed Forum - Second Opinion The Doctor Will See You Now - Closed Captioned Version
zhlédnutí 77Před 21 dnem
2024 IWMF Ed Forum - Second Opinion The Doctor Will See You Now - Closed Captioned Version
IWMF Research Programs, Robert Kyle Career Development, Glenn Cantor Early Career Research Fund (CC)
zhlédnutí 19Před 21 dnem
IWMF Research Programs, Robert Kyle Career Development, Glenn Cantor Early Career Research Fund (CC)
Chair Yoga for WM - Recharge Your Batteries
zhlédnutí 70Před 21 dnem
Chair Yoga for WM - Recharge Your Batteries
Gentle Mat Yoga for WM - Learning to Let Go
zhlédnutí 64Před 21 dnem
Gentle Mat Yoga for WM - Learning to Let Go
Chair Yoga for WM - Cultivating Mindfulness
zhlédnutí 72Před 28 dny
Chair Yoga for WM - Cultivating Mindfulness
Eating Well to Live Well with WM with Laura Pole
zhlédnutí 327Před měsícem
Eating Well to Live Well with WM with Laura Pole
Cardio Flow for WM - Little Bit of Movement in a Lot of Places!
zhlédnutí 146Před měsícem
Cardio Flow for WM - Little Bit of Movement in a Lot of Places!
Chair Yoga for WM - Breath Exercises For Well-Being
zhlédnutí 159Před měsícem
Chair Yoga for WM - Breath Exercises For Well-Being
2024 IWMF Ed Forum - Second Opinion The Doctor Will See You Now
zhlédnutí 317Před měsícem
2024 IWMF Ed Forum - Second Opinion The Doctor Will See You Now
2024 IWMF Ed Forum - Ask the Doctors Live Q&A Panel
zhlédnutí 378Před měsícem
2024 IWMF Ed Forum - Ask the Doctors Live Q&A Panel
Thank you very positive, and very encouraging
Lovely! You have a wonderful, calm voice. Thank you so much! ❤
Fantastic! So helpful to those of us with cancer!
Jennifer, we're so glad you find it helpful. Keep up the great job taking care of yourself!
My exams are all perfect...just igm at 900...but I feel bad...but there s no reason for treating..apparently! I'm very discouraged cause daily dizzyness !
Anyone hear of WM with elevated IGG, but normal IGM? After treatment for classic WM and six years in remission, mine came back mutated.
❤your Yoga!
Yay! So glad to hear it.
So relaxing and feel the vibrations!
That's excellent to hear! Thanks for letting us know.
As a WM patient, I found your video very informative. I am now going to review my diet, which is pretty good, thanks to my very supportive wife.
Thanks, Ken! I'm glad you have a supportive caregiver to help you with this important piece of the wellness equation.
Forse...unAngelo Salvatore...
I'm tough and this has been a nightmare. Obtaining healthcare is the worst part. Doctors do not and don't document your symptoms or put the wrong thing or recently totally fabricated a diagnostic which was provenly impossible. They get paid anyway.
❤...
Much appreciation for the informative, encouraging panel discussion.
I can't find much info on WM with normal IgM but elevated IgG. Any suggestions?
Is treatment any different for WM with elevated IGGs?
My husband just got diagnosed with WM.
Very few doctors know even about non-hodgkins lymphoma. I have to advocate for everything. I'm waiting months for iron infusion because I'm not absorbing it. It's too much to have to advocate while battling it ...the fatigue, bone pain. constant respiratory issues. Even when my daughter goes with me, questions about a plan of treatment and failure to document symptoms leaves you abandoned. I can not get through to the cancer place and end up having to go in person to refill doxycycline. Still can't find out about iron infusion status because no one answers the phone. It's no wonder you die of cancer in America.
Dr. Ansell recommends asking questions but he fails to realize that, after receiving the bombshell of the diagnosis, you have no idea what questions to ask or even who to ask. Four years later, I am still asking questions and have come to the conclusion that some hematologists don't have good answers.
I’ve read that sugar feeds cancer. Can diet and lifestyle changes starve the cancer cells and kill it?
Is bloating a symptom of WM?
Glad to see you Sharon, I was a bit worried when I saw no evidence of activity on your channel.
Thank you for posting this very helpful video, and thank you so much for your important work!
I needed to hear this today ❤ I'm 32 and just had a good long cry because I'm in the throws of getting diagnosed. Now I'm gonna gather myself together and get a battle plan in place.
Thank you to both doctors for taking the time to answer all the questions we didn't get to during the Ask The Doctor session. Excellent answers. It was incredibly kind of you to take your own time to these important questions. We are so lucky to have caring doctors like you to help WM patients everywhere!
This makes feel better. I really don't want to leave the peacefulness
I'm so glad you're feeling better. Keep up the good work taking great care of yourself!
Thank you so much Ann Grace. I really needed this today.
You are so welcome! Thanks for taking care of yourself.
None of the slides the doctors are speaking about are visible in this recording.
I can relate and could even add some more bizarre symptoms. Thank you, Dr. Ansell!
If you are going to use a Zoom background you should have a green screen behind you.
wow so empowering
Thank you! Im sending those videos to my grandmother and she loves it so much 😍
We're so glad you're sharing the classes with your loved ones!
So glad to be able to watch this on CZcams. Thank you for
We are so grateful to have volunteers like Sharon donating their time and expertise to the IWMF, and glad you're enjoying the video! We're hearing from other WM-ers that they're doing the video twice a week and feeling stronger as a result. Keep up the great work!
I have been living with this disease for 3 years going in 4. As well as lung cancer. Had my lower left lobe of my left lung removed three year's ago. And it came back just did a very low amount of radiation. And i find out this month if it's gone. I have lived a wonderful life. So no complaints there.
I had WM treated with chemo in 2016. It came back about seven years later in mutated form featuring elevated (5600) IGG but only slightly elevated IGM levels. FYI
With very little effort the audio disturbance could have been removed from the audio track.
We are so thankful our instructor was available to teach a class on Christmas Day, and apologize that the time required to re-edit the video was not feasible for her. In the future we look forward to upgrading the audio experience in our free videos.
Amazing
Wow, lots of background noise.
Yes, I'm really so sorry about that, Barry. There was nothing I could do about the lawn crew right outside my window, but rest assured - I am moving and my new home is in the woods and very very quiet. Thank you for your patience with Zoom life. :)
I found this "debate" most informative and I don't really mind the light-hearted presentation. Thank you, Dr. Mateus and also D. Ansell.
Thank you□□□
Is it unusual to be in remission with regular WM for 7 years, then have it come back with normal IgMs, but IgGs of 5600?
What an incredible conference! And such a valuable research for Waldenstrom's macroglobulinemia (WM) patients globally. Although WM is a rate disease, with the IWMF, no one is ever alone.