![Genomics England](/img/default-banner.jpg)
- 181
- 379 981
Genomics England
United Kingdom
Registrace 31. 03. 2015
Welcome to the Genomics England CZcams Channel. Videos from Genomics England and the 100,00 Genomes Project.
Dr Rich Scott and Helen White: How can we work in partnership towards a new era of genomic medici...
Genomics has changed considerably over the past 10 years, and we are now exploring how to integrate it into routine healthcare. In this episode, our guests reflect on this evolution and discuss how the key learnings from the past 10 years can shape the genomics ecosystem of the future. They highlight the importance of partnership across teams, organisations and participants, emphasising the importance of keeping participant and patient benefit at the heart of research, whilst also addressing the ethical and safe storage of patient data.
In this episode, our host, Helen White, who is the Participant Panel Vice-Chair for cancer at Genomics England, speaks with Dr Rich Scott, CEO of Genomics England.
"Our goal is to ensure that everyone can benefit from the advancements in genomics, but this requires collaboration across disciplines and a commitment to ethical practices in managing and sharing genomic data."
You can read the transcript below or download it here: files.genomicsengland.co.uk/documents/Podcast-transcripts/How_can_we_work_in_partnership_towards_a_new_era_of_genomic_medicine_and_research.docx
Helen: Welcome to Behind the Genes.
Rich: There’s a whole new era I see coming in terms of the therapies that are directed at the causes of genomic conditions, both in rare conditions and in cancer, and thinking as we do that, about how we structure the system to generate evidence, and to respond to it, and have a conversation about what the right balance of evidence for patients to make a choice about their own care.
Helen: My name is Helen White and I am the Participant Panel Vice Chair for Cancer, at Genomics England. On today’s episode I’m joined by Dr Richard Scott, Chief Executive Officer for Genomics England. And today we’ll be discussing Richard’s recent appointment as CEO, lessons learnt from the last ten years in the evolution of genomics in healthcare, and how these learnings will be taken forward in the next ten years. And we’ll also visit the importance of keeping participant and patient benefit at the heart of research, as well as the ethical and safe storage of patient data. If you enjoy today’s episode we would love your support: please like, share and rate us on wherever you listen to your podcast.
Before we dive into the interview with Rich, I wanted to take a moment to share my story and tell you a little bit about myself. I have been a member of the Participant Panel at Genomics England since 2018. It was the year before that when I was diagnosed with endometrial, or womb cancer, and was offered the chance to join the 100,000 Genomes Project, which felt like something positive at what was otherwise quite a scary time. It turns out that I have something called Lynch syndrome, that’s a genetic condition that increases my chance of developing certain cancers, particularly womb and bowel cancer, which is actually a really useful thing to know as there are things I can do to reduce my chance of getting cancer; things like having regular colonoscopies and taking daily aspirin. I have now been on the participant panel for six years and one year ago I was appointed as Vice Chair for cancer. This is a new and developing role and I am excited to have so far helped recruit more people with lived experience of cancer to the panel and to be assisting Genomics England with connecting to organisations that advocate for people whose lives have been touched by cancer.
So that’s enough about me. I am delighted to be joined today by Richard Scott, and I am very much looking forward to our conversation. Welcome, Rich.
Thank you. So Rich, you’ve recently been appointed CEO of Genomics England. Can you tell me a bit about your background and what brought you to this role?
Rich: It’s a really good question and it’s one that doesn’t have a really very simple answer. I guess what it boils down to is I guess I’ve always had an interest, even as a child, for whatever reason, in genetics and genomics. I have also then always been drawn to things where I can have an impact and particularly the impact in healthcare and that’s what took me to being a medical student. And I guess it’s that combination of that particular interest in genetics and being able to see, even when I was at medical school I qualified in 2000 that this was an area of medicine that was going to be really important in the future. And then as I trained, as I did a PhD and as I saw the technology develop and change and then when I saw the UK government and the NHS investing in genomics in a really foresighted way, I found myself eight or nine years sitting at Great Ormond Street as a consultant in clinical genetics where I still practice, I still do one clinic a month there as a clinical genetics consultant seeing families with rare conditions.
But I could see when Genomics England was established that this was something, as I said, really foresightful where we could really collectively ...
In this episode, our host, Helen White, who is the Participant Panel Vice-Chair for cancer at Genomics England, speaks with Dr Rich Scott, CEO of Genomics England.
"Our goal is to ensure that everyone can benefit from the advancements in genomics, but this requires collaboration across disciplines and a commitment to ethical practices in managing and sharing genomic data."
You can read the transcript below or download it here: files.genomicsengland.co.uk/documents/Podcast-transcripts/How_can_we_work_in_partnership_towards_a_new_era_of_genomic_medicine_and_research.docx
Helen: Welcome to Behind the Genes.
Rich: There’s a whole new era I see coming in terms of the therapies that are directed at the causes of genomic conditions, both in rare conditions and in cancer, and thinking as we do that, about how we structure the system to generate evidence, and to respond to it, and have a conversation about what the right balance of evidence for patients to make a choice about their own care.
Helen: My name is Helen White and I am the Participant Panel Vice Chair for Cancer, at Genomics England. On today’s episode I’m joined by Dr Richard Scott, Chief Executive Officer for Genomics England. And today we’ll be discussing Richard’s recent appointment as CEO, lessons learnt from the last ten years in the evolution of genomics in healthcare, and how these learnings will be taken forward in the next ten years. And we’ll also visit the importance of keeping participant and patient benefit at the heart of research, as well as the ethical and safe storage of patient data. If you enjoy today’s episode we would love your support: please like, share and rate us on wherever you listen to your podcast.
Before we dive into the interview with Rich, I wanted to take a moment to share my story and tell you a little bit about myself. I have been a member of the Participant Panel at Genomics England since 2018. It was the year before that when I was diagnosed with endometrial, or womb cancer, and was offered the chance to join the 100,000 Genomes Project, which felt like something positive at what was otherwise quite a scary time. It turns out that I have something called Lynch syndrome, that’s a genetic condition that increases my chance of developing certain cancers, particularly womb and bowel cancer, which is actually a really useful thing to know as there are things I can do to reduce my chance of getting cancer; things like having regular colonoscopies and taking daily aspirin. I have now been on the participant panel for six years and one year ago I was appointed as Vice Chair for cancer. This is a new and developing role and I am excited to have so far helped recruit more people with lived experience of cancer to the panel and to be assisting Genomics England with connecting to organisations that advocate for people whose lives have been touched by cancer.
So that’s enough about me. I am delighted to be joined today by Richard Scott, and I am very much looking forward to our conversation. Welcome, Rich.
Thank you. So Rich, you’ve recently been appointed CEO of Genomics England. Can you tell me a bit about your background and what brought you to this role?
Rich: It’s a really good question and it’s one that doesn’t have a really very simple answer. I guess what it boils down to is I guess I’ve always had an interest, even as a child, for whatever reason, in genetics and genomics. I have also then always been drawn to things where I can have an impact and particularly the impact in healthcare and that’s what took me to being a medical student. And I guess it’s that combination of that particular interest in genetics and being able to see, even when I was at medical school I qualified in 2000 that this was an area of medicine that was going to be really important in the future. And then as I trained, as I did a PhD and as I saw the technology develop and change and then when I saw the UK government and the NHS investing in genomics in a really foresighted way, I found myself eight or nine years sitting at Great Ormond Street as a consultant in clinical genetics where I still practice, I still do one clinic a month there as a clinical genetics consultant seeing families with rare conditions.
But I could see when Genomics England was established that this was something, as I said, really foresightful where we could really collectively ...
zhlédnutí: 74
Video
Genomics England Research Seminar May 20224 - Yuyang Chen and Daniel Greene
zhlédnutí 254Před měsícem
Genomics England Research Seminar May 20224 - Yuyang Chen and Daniel Greene
Genomics England Research Seminar April 2024 - Emma McCargow, Rowan Howell and Amanda Pichini
zhlédnutí 143Před měsícem
Genomics England Research Seminar April 2024 - Emma McCargow, Rowan Howell and Amanda Pichini
James Duboff: Genomics 101 - How do pharmaceutical companies use genomic data for drug discovery?
zhlédnutí 115Před 2 měsíci
In this explainer episode, we’ve asked James Duboff, Strategic Partnerships Director at Genomics England, to explain how genomic data can be used in drug discovery. You can also find a series of short videos explaining some of the common terms you might encounter about genomics on our CZcams channel (czcams.com/play/PLlgtKKR0Cttlsxb0UqdB8povEe_fEB8hU.html) . If you’ve got any questions, or have...
Professor Sir Jonathan Montgomery, Dr Latha Chandramouli and Dr Natalie Banner: Why do we need to...
zhlédnutí 71Před 2 měsíci
Ethical considerations are essential in genomic medicine and clinical practice. In this episode, our guests dive into the details of ethical principles, highlighting how they can be brought into practice in the clinic, whilst considering the experiences and feelings of patients and participants. Our host, Dr Natalie Banner, Director of Ethics at Genomics England, speaks to Professor Sir Jonatha...
Tools and Data in the Genomics England Research Environment
zhlédnutí 174Před 2 měsíci
Tools and Data in the Genomics England Research Environment
Professor Matt Brown: Genomics 101 - What is personalised medicine?
zhlédnutí 63Před 2 měsíci
In this explainer episode, we’ve asked Professor Matt Brown, Chief Scientific Officer at Genomics England, to explain what personalised medicine is and how it could change the way we treat genetic conditions and cancer. You can also find a series of short videos explaining some of the common terms you might encounter about genomics on our CZcams channel (czcams.com/play/PLlgtKKR0Cttlsxb0UqdB8po...
Will Navaie: Genomics 101 - What is 'ethics'?
zhlédnutí 28Před 2 měsíci
In this explainer episode, we’ve asked Will Navaie, Head of Ethics Operations at Genomics England, to explain what ethics is and why it's important, in the context of genomics. You can also find a series of short videos explaining some of the common terms you might encounter about genomics on our CZcams channel (czcams.com/play/PLlgtKKR0Cttlsxb0UqdB8povEe_fEB8hU.html) . If you’ve got any questi...
Marie Nugent: Genomics 101 - Why is diversity important in genomics research?
zhlédnutí 83Před 3 měsíci
In this explainer episode, we’ve asked Marie Nugent, Community Manager for the Diverse Data Initiative at Genomics England, to explain what diversity is and why it's important, in the context of genomics. You can also find a series of short videos explaining some of the common terms you might encounter about genomics on our CZcams channel (czcams.com/play/PLlgtKKR0Cttlsxb0UqdB8povEe_fEB8hU.html...
Genomics England Research Seminar March 2024 - Sam Tallman and Zhongbo Chen
zhlédnutí 251Před 3 měsíci
Genomics England Research Seminar March 2024 - Sam Tallman and Zhongbo Chen
Ellen Thomas: Genomics 101 - What is genetic or genomic testing?
zhlédnutí 70Před 3 měsíci
Ellen Thomas: Genomics 101 - What is genetic or genomic testing?
Shaun Pye, Sarah Crawford, Sarah Wynn and Naimah Callachand: Shining a light on rare conditions
zhlédnutí 49Před 3 měsíci
Shaun Pye, Sarah Crawford, Sarah Wynn and Naimah Callachand: Shining a light on rare conditions
Clare Kennedy: Genomics 101 - What is the difference between DNA and RNA?
zhlédnutí 800Před 4 měsíci
Clare Kennedy: Genomics 101 - What is the difference between DNA and RNA?
Lisa Beaton, Dr Celine Lewis, Jana Gurasashvili and Louise Fish: Hope for those with "no primary ...
zhlédnutí 52Před 4 měsíci
Lisa Beaton, Dr Celine Lewis, Jana Gurasashvili and Louise Fish: Hope for those with "no primary ...
Helen Brittain: Genomics 101 - What is a variant of uncertain significance?
zhlédnutí 45Před 4 měsíci
Helen Brittain: Genomics 101 - What is a variant of uncertain significance?
Genomics England Research Seminar February 2024 - Claire Shovlin and Magdalini Bletsa
zhlédnutí 132Před 4 měsíci
Genomics England Research Seminar February 2024 - Claire Shovlin and Magdalini Bletsa
Genomics England Research Seminar January 2024 - Thuy Nguyen and Ifeolutembi Fashina
zhlédnutí 168Před 4 měsíci
Genomics England Research Seminar January 2024 - Thuy Nguyen and Ifeolutembi Fashina
Genomics England Research Seminar November 2023 - Jayne Barbour and Máté Manczinger
zhlédnutí 124Před 4 měsíci
Genomics England Research Seminar November 2023 - Jayne Barbour and Máté Manczinger
The Skin - A Window to Genetic Conditions
zhlédnutí 196Před 7 měsíci
The Skin - A Window to Genetic Conditions
Genomics England Research Seminar July 2023 - Early Career Researchers Cancer Showcase
zhlédnutí 391Před 11 měsíci
Genomics England Research Seminar July 2023 - Early Career Researchers Cancer Showcase
Genomics England Research Seminar June 2023 - Nirupa Murugaesu and Robert Bentham
zhlédnutí 220Před 11 měsíci
Genomics England Research Seminar June 2023 - Nirupa Murugaesu and Robert Bentham
Genomics England Research Seminar May 2023 - Early Career Researchers Rare Disease Showcase
zhlédnutí 176Před 11 měsíci
Genomics England Research Seminar May 2023 - Early Career Researchers Rare Disease Showcase
Genomics England Research Seminar April 2023 - Daniel Greene and Rebecca Tooze
zhlédnutí 191Před 11 měsíci
Genomics England Research Seminar April 2023 - Daniel Greene and Rebecca Tooze
Owen's story (revisited) | Life since getting a genetic diagnosis for a rare thyroid condition
zhlédnutí 596Před rokem
Owen's story (revisited) | Life since getting a genetic diagnosis for a rare thyroid condition
Genomics England Research Seminar March 2023 - Shadi Basyuni, Claude Chelala and Louise Jones
zhlédnutí 439Před rokem
Genomics England Research Seminar March 2023 - Shadi Basyuni, Claude Chelala and Louise Jones
Your Genome, Your Voice: Big jigsaw, little jigsaw; new genome technologies for sight loss
zhlédnutí 280Před rokem
Your Genome, Your Voice: Big jigsaw, little jigsaw; new genome technologies for sight loss
Genomics England Research Seminar February 2023 - Wei Wei and William Macken
zhlédnutí 367Před rokem
Genomics England Research Seminar February 2023 - Wei Wei and William Macken
Genomics England Research Seminar January 2023 - Ben Kinnersley and Gavin Arno
zhlédnutí 432Před rokem
Genomics England Research Seminar January 2023 - Ben Kinnersley and Gavin Arno
Genomics England Research Seminar November 2022 - Eleanor Seaby and Liz Ormondroyd
zhlédnutí 359Před rokem
Genomics England Research Seminar November 2022 - Eleanor Seaby and Liz Ormondroyd
Genomics England Research Seminar October 2022 - Tzehow Mok, Rachel Lennon and David Sherwood
zhlédnutí 183Před rokem
Genomics England Research Seminar October 2022 - Tzehow Mok, Rachel Lennon and David Sherwood
Thank you!
My Husband has one , he knee is to be operated on , on the 11th of September this year
"The prayer of faith will heal the sick." This was my medicininal verse given from above. JESUS CHRIST himself took our infirmities and bore all our sicknesses. He was wounded for our transgressions and bruised for our iniquities, the chastisement of our peace was upon him and with His stripes we are healed. He is the Lord God our healer. Do not fear only believe on the LORD JESUS CHRIST and you will be saved you and your family. You will be saved and be a mighty witness to show that Jesus Christ is the true living God. Praying for all the sick and suffering.
love gerg so much
Diagnosed with Leiomyosarcoma. 7 more radiation visits then surgery. First option was to amputate my foot an ankle. I just can't. Limb sparing surgery is what I'm trying. Pet scan shows no growths at present. No chemo for it doesn't help. Prayers please
Not the praying kind, but I wish you the best of luck on your journey. Be well! ❤
Will this all end well?
How about the environmental factors affecting health - epigenetics? A uni-factorial approach to health will end in a cul de sac & all those billions$ upon billions of investments !
Is the genome related to the haploid cells or diploid cells ?
I just had a plemorphic abdominal wall sarcoma removed.....it came about due to my radiation for my other Stage 4 cancer.....and I am grateful I am alive but terrified of the pathology. God bless you Chris.....
What the hell am I watching
well said! :D
F off melter get a life
do you eat cheddar? please be specific
"PromoSM"
My mom died last year due to a rarare eating disorder called Achalasia 😢. She was and will always be my favorite person and I hope and pray to meet her again insha Allah in a better place without all the pain we went through last year. If anyone here is a Muslim please put her in your duas. She is called Faridah Mbabali Muwanga ❤❤❤❤
In 2021, I began having issues with my left thigh. I exercised and got weaker. I was misdiagnosed with sciatica. It wasn't until my leg super swelled and I was brought to the ER that I was diagnosed with soft tissue sarcoma in December 2022. My quadriceps were destroyed and the sarcoma was 17.6 pounds and was removed in April 2023 after 25 rounds of radiation. I was diagnosed with metastatic soft tissue sarcoma in my neck in January of 2024 and just had 99% of it removed. The doctors want me to have radiation again and a year of immunotherapy with a port they will insert into my chest. I am doing all I can to stay alive and am praying there is a way to stop this. I am very sorry for the loss of your husband and appreciate your information.
How is pacbio vs its competitors?
Thank you for your valuable input, it made me clear
I have been diagnosed with myxsofibro sarcoma in beginning of last August. I had a tutor in my thigh. I have had 2 operation and 30 session of radiotherapy. It's so hard to imagine what has happened to me and my family. I am around 45. Everyday 3 months I should do chest x-ray or CT scan, because tumor might be back in my lungs. I left everything to God and pray for everyone.
Bless you your strong. You make me strong!
I have a leiomyosarcoma in my left ankle. So many CT scans then MRI another with contrast. Then biopsy. So many different Dr's. Talk about amputation of my left ankle,but I refused. If I have an amputation, I could omit radiation therapy to shrink the tumor. I just can't see loosing my foot, not at my age. I wish you well,I pray for all of us. Sarcoma are a totally different type of cancer.
I myself started with left foot sarcoma now in my lungs now I was told it may be in my liver also. It's scary 😟.
How are you doing? I do hope you are doing well. May I ask where in the thigh and what were your symptoms?
I know only too well this journey having gone through the process. I'm a lucky one (at least so far). The problem is too few of us to put the funding in place. If you get cancer pray you get a common one (although I obviously wouldn't wish that on anyone)
Super when will that data be released to the research community???????
Brilliant 👍🏻
Chemo does not work with sarcoma. As a 11 year survivor i only had surgery refused radiation. I had stage 3 undifferentiated pleomorphic sarcoma in my adductor muscle. I feel very lucky to have survived but i believe it was due to a good surgeon, diet, exercise and supplements.
How big was your tumor
Hope you're doing good? can you tell us about your diet my sister is also diagnosed for this
Yes what supplements did you take?
What was your diet like and which supplements did you take
my mother has this tumor on her thigh we thought it's js leg pain for two years but doctors said its cancer this week we'll be starting treatment this week would you suggest sun
I pray that my friend finds guidance, & strength as he navigates through this difficult period. His son is 17, diagnosed at 14. The good Lord shine wisdom upon him
There are Three Problem With Your video
Thank you - I’ve had a sarcoma ‘bump’ removed and live in fear.
Have a leiomyosarcoma in my left ankle. Orthopedic Surgeon sending for more CT scans today then total body scan on Friday. Thinking it's stemming from another part of my body. Abdominal and pelvic scan showed nothing,lower lungs were in scan and normal. Today I get full chest CT. She's talking about removing my foot above the ankle. Be better than trying to salvage the foot, and sure to get all the cancer. Tho these cancers spread aggressive. I just can't right now. Being my age of 70 do I really want to spend what time I have in hospitals and Dr offices?
Ich habe heute die Diagnose bekommen. 43 Jahre alt. Zuerst hieß es sei ein Polyp. CT wurde gemacht im Sommer dieses Jahr. Alles ok. Dann halbes Jahr später diese Diagnose.
I was diagnosed with dedifferentiation liposarcoma about a month ago, it was a 4.5*3.5*5.5cm tumor in my left leg. I'm 38 years old, live in Beijing China. My only son just 1 year old, I don't know how long time I could see him.😢
I hope your doing better
Oh my gosh! I am PRAYING you're okay. Dedefferentiated liposarcoma is wicked. How are you doing??
@@chayamiriamweisman3733 Thank you very much. I found the best cancer hospital in China, where the pathologists believed that I had pleomorphic liposarcoma. Since the first surgery was an unplanned resection, I had a second surgery, which expanded the removal of some skin, muscle, and fat, and I had 6 chemotherapy sessions, as the AI regimen. As of today, it has been half a year since the surgery, and more than a month since the chemotherapy ended. I am in good condition now. I want to take advantage of my current condition to live well and travel with my family.
Beautiful British accent and great English scientist
I got diagnosed with GIST August this year, I'm 51 and male. No prior history of cancer or any significant medical issues, fit a healthy. I'm currently on Imatinib waiting of confirmation of mutation type. I've gotten use to the chemo and the pain, but I'm always fatigued. I do hope I have another 20 years left in me, for the sake of my wife and kids. Take Care.
I'm awaiting genetic testing and was wondering what I should be asking for. They have no idea what they're looking for, but I had high risk melanoma and multiple BCCs and cSCC by 34, and they're trying to find out why. So would I be best asking for a full genome study, or ...? TIA ✌️
Brilliant
Fantastic video explaining this! Do you mind if I use a snippet for The Lapidus Clinic?
My wife had heiomyosarcoma on her uterus two years ago. After removing the uterus with the cancer it reappeared on her lung last year. It was removed by operation. Yesterday she had a scan and she was told that it reappeared on her both langs. We will see if this can be removed. Removing this tissue by surgery is the only option conventional medicine can offer you. My suggestion: keep looking for alternatives. Keep searching, Try Everything (except for chemotherapy of course) Praying is good but won't be enough. Do your part
Hi my mom also diagnosed the same and now spread to lungs, doctor has suggested for chemotherapy, you said to try everything other than chemotherapy y?
thanks chris see you soon sarcoma bro
Stand in one place and share. Your speaking is disturbing. It is not a right of sharing.
What about NHS Scotland? Wales, Ireland?
Great when will that data be released to the wider research community?
I was diagnosed with sarcoma last year and I had undergone surgery and now follow ups every three months. It’s really scary, every visit fills me with apprehensions. I pray it doesn’t come back.
May I ask what type of sarcoma?
Pleomorphic liposarcoma.
After surgery did uh follow chemotherapy?
Radio therapy
@@aab617 I'm pleomorphic liposarcoma too, I hope we are all safe.
I just got diagnosed last year at 28
I hope you're doing well, wish you the best.
I’m diagnosed with Gist as well. I am suffering so many skin problems now . I’m 32 years old and but i believe God and I know he will heal me.
Are your skin problems from the medication your on? My husband had them he used really good lotion aquaphor on his hands and feet.
Your in our prayers, My wife has the gist, SDH type A. Keep your chin up. . We love you. We're here for you
Anyone with SDH A?Taking Glevac? Hows it working
It worked for my husband for 5 years. Unfortunately he lost the fight 2 weeks ago
@@pamransom4179 Hi Pam, Im so sorry to hear that. I my heart is very sad for you and your loss. I hope you are making it best as you can. I'll pray for you. Keep me updated on how your doing. I know you've been through a lot. Sincerely
@reoii8020 thanks much appreciated
I had a huge fast growing lump on my forearm removed. Fortunately, it wasn’t a sarcoma.
What was it?
My husband had an Atypical Liposarcoma after a blunt force trauma bike accident cycling up MT Diablo State Park in Danville. he soon after had a football size tumor growing out of his fracture rib. He saw several Doctors before going to UCSF. It has been a rough road for over 10 years of recovery and being able to run cross country again. He lives in Chronic pain, and is with UCDavis now. He’s been in studies, and is an anomaly for what he went through, and is doing now to fight his way back.
They removed my GIST cancer last year. Now, I struggle with the damage the tumors have done. Bloating, belching, incurable pain, trapped gas.... constpation, diarrhea It is a lonely cancer.... some days, I want to die. But I have a family... I used to be so healthy.... now I am dying.... I am only 50.
I totally understand it is a very deadly disease. My husband tumors were the size of a basketball
Hang in there, don't ever give in or up.
Same here, it seems easier to let everything go. Of course I have faith in the God of the Bible and it really is his decision.
I like to do one but will like to know if it will reveal your age and other data about you ?
At the level of your linear DNA sequence, information about your age and experiences is absent. But some kinds of sequencing, like bisulfite sequencing, can uncover patterns of "DNA methylation" which could indicate your age. But whole genome sequencing as such generally reveals nothing about age!
@@InsectsEvolvingwhat’s your instagram? I need some information about DNA sequencing? Tell me asap i’ve a presentation tomorrow
What a lovely gentleman. He would have been a good dad. So determined and compassionate.
I had a breast sarcoma removed 6 weeks ago. A Phyllodes Tumor. I have declined radiation due to age and location. I take Black Seed oil 1 t. daily. Eat garlic hummus and have no sugar but I did cave a few times. I feel fine but I need to get a CT. 9.5 cm tumor encapsulated. I want to try the Joe Tibbens treatment with Panacur de-wormer and Curcumin. I also take very small amount of THC gummy.
with all that sequencing are we any closer to finding the gnome gene
My daughter transitioned May 12, 2023 from SS she suffer for 2 years and had for 3 year was misdiagnosed I miss her she was only 32 Praying for cure 🎗️
I’m sorry for your loss, my wife is in hospital currently and is the same age, she has had a tumour removed from her brain three weeks ago which they thought was a meningioma, today they’ve found it’s already growing back and are concerned it’s a metastasis from a sarcoma in her abdomen
Was it these mutations A1298C &/or C677T?