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i am not medically trained but my wife is a doctor who doesn't practice any more she asks for my advice as i am constantly researching etc, i have a hypothesis and i am hoping to find medically trained people that can prove it in relation to mcas and long COVID . and vaccine side effects etc, when i was a young child i was a healthy child until around 11 years old i was hit by a car and received a damaged brain i still to this day have a bruise on my brain i cant spell remember names or dates etc but my brain works very different to most people it find clues or bits of puzzles and puts them together it hard to explain really, anyhow my hypothesis is mcas is a neurological condition it works on the same pathway as nicotine caffeine and vitamin b1 etc for some reason i think the biogenic amines in food are interfering with the never signalling in the autonomic nervous system etc how i come to this idea is i went 2 stories high and landed on my head , i got hay fever allergies etc after , then in my early twenties i had another accident and received bad whiplash which has damaged the discs etc in my neck , there are studies showing that neck injuries cause mcas symptoms etc, now i spent nearly 30 years doing everything i could to heal my gut you name it i have tried it, since eating only beef lamb and salt and water my diet was so clean i could add things back in one at a time different chemicals stimulate different nerves which create different symptoms in different body parts etc any way i added coffee back in my diet and reacted to it so i looked for caffeine retaliated to nerves system , etc i tried nicotine chewing gum as nicotine helps with the half life of caffeine in the body but in my case i got worse so i look at nicotine pathway etc, i found that coffee and nicotine both deplete thiamine b1 in the body , so i started to look into thiamine etc , it was used for treatment for seriously ill COVID patients and nicotine was used to treat COVID as well and smokers didn't get seriously ill from COVID so then i looked into ivermectin effects on the nervous system and you guessed it , now after my neck injury i developed psoriasis and gilberts syndrome neither of these are in my family yet are suppose to run in families i have healed both now how is that possible as i was told that cant happen. i had psoriasis for a few years i took selenium and milk thistle and it cleared up over a year or so my liver test still showed i was jaundice and you could see this in my eyes and skin etc my doctor wife would always point it out etc, just after i cleared that up the psoriasis, i got glandular fever which really effected my energy levels etc but i wasn't to bad that went on for 2 years then i got really ill and had every test they could think of they couldn't work out what was going on they gave up and sent me to a endocrinologist it was there i learnt that i had contracted the mumps and learnt about amines in food etc since going on a meat diet and drinking chlorine dioxide i never get yellow or have bowel problems or yellow stools etc which was a daily thing for me for decades also as the years went by i would be sitting on the toilet and saliva would pour out of my mouth with the pain from my bowels i have read that this is from the nervous system, lately i have been taking b1 supplements and it seems to be helping with my nerves etc as i still get pain in my left side from my neck, so i believe that COVID is a bio weapon that effects the nervous system as i have read that the same symptoms can be achieved by the nervous system and spinal injuries to the neck can cause mast cell activation . now i am not claiming that every person with mcas has had a tbi or i neck injury but i believe viruses are damaging the nervous system some how this part i cant work out as i am not a doctor that can run tests on people , maybe they deplete vitamins and minerals etc as i have researched that the modern diet eg carbs block the absorption of b1 as well so if people have low levels by our modern diet then get a virus which puts the system under stress maybe this could be enough to create a chronic condition etc, wishing you and your family all the best by the way don't ever let your daughter get morphine i died on the operating table from it maybe this is why i was sent back ?

Hello and welcome 🎉❤😊 Thanks for sharing. 😊

Good to have you join us ❤

Can u repost this with just the breath at the beginning on loop

I love your content and would love to do a fb live interview with you!

So good to see you n thanks so much

This is one of the most easiest and beneficial breathing techniques I’ve tried. Thank you for the intro to wave breathing!

So relatable

Omg the gaslighting is so real from general drs … I basically diagnosed myself and told the dr I need an epi pen that my breathing had gotten worse. He said no that I need to get skin prick test first!!!!! I was furious. If I die from anaphylactic shock then this Dr is also dead.

I’ve just recently started reacting to foods all sorts particularly gluten alcohol coffee tomato soy. Dr has no idea about allergies or even histamine intolerance… thankfully I’ve found a naturopath who’s having me tested for sibo/leaky gut - estrogen dominance looking to treat the root cause not just symptoms.

I know someone who suffered for years with similar "we don't know" and "we think it is this" from doctors. She persisted and was finally diagnosed with Mastocytosis. I think it is related to MCAS, but I do not know much about either condition.

Mast cell help

You need querctine, Vid D And zinc based food

Quercetin - The Best Natural Antihistamine - Foods With Quercetin - Dr.Berg / Dr. Eric Berg DC czcams.com/video/q5oZtFGUr1c/video.html

This sounds very similar to some of my symptoms! I’m at a point where I can’t eat anything without reacting, my heart rate shoots up as soon as I stand up with dizziness, rashes all over, fatigue, migraines etc. Regular doctors just wanted to put me on allergy shots and prednisone and Zyrtec twice a day but I knew there was a root cause. l just did some functional medicine testing like the mycotoxin test and I found out that I have high levels of toxic mold in my body.

Hi great to seethis Is it starting up again?

I've just got diagnosed with mcas but now have a fear of eating incase I'm ill

We love you, George x

Thank you for this. I am fortunate to be seen by an experienced allergist/immunologist who treats MCAS. Many patients who had MCAS triggered by Covid are not having success finding care. In many areas of the U.S. there are no experienced doctors to treat this and many patients encounter allergist/immunologists, gastroenterologist and others who dismiss them and treat them as though this is not a possible diagnosis. I see others in my LongCovid patient groups suffering because they cannot get access to standard MCAS medications like Oral Cromolyn, or Ketotifen, even. Or Low Dose Naltrexone.

I just diagnosed with MCAS today! It is a relief to know what's wrong! I'll sign!

Thank you so much for this 🙏

Thanks so much. The same thing has happened to me.

Thanks🙏

This won't cure it but may help. Have you tried Magnesium? and you are normal, for you. We are all normal for ourselves and what we live with.

Done and shared x

How do ppl manage cooking smells? I react to cooking smells in my own house...not necessarily in a restaurant...cooked on stove, in air fryer,in oven....how do you manage?

Thank you for the reminder about enjoying the things that bring us joy. Im having a tough time dealing with this right now.

I've never had the classic anaphylaxis. But my tryptase is elevated and I have many allergies including itchiness when I exercise, plus 24/7 muscle and tendon pain. My immunologist claims that allergies don't hurt, yet the email he sent to me states muscle and back pain. Anyone out there that has been diagnosed with MCAS but no anaphylaxis?

Hello, 🐒🐒🦮🐕🐶 God the Father loves you so much that He sent Holy Sinless Jesus (His Holy Son) to earth to be born of a virgin.Then, to grow up and die on a cross for our sins. He was in the tomb for 3 days, then Father God raised Holy and Sinless Jesus Christ (Y'shua) to Life! He appeared to people and went back to Heaven. We must receive Sinless Jesus sincerely to be God's child(John 1:12).After we get saved by grace through faith in Christ, if we truly love the Lord Jesus Christ, then we will obey Jesus(John 14:15). *Mark 1:15 "And saying, the time is fulfilled, and the kingdom of God is at hand: Repent ye, and believe the gospel."* Jesus said in John 14:15 "If you love Me, keep My commandments. "There's a real hell. It says in Revelation 21:8 "But for the cowardly, & unbelieving, and abominable, and murderers, & immoral persons sorcerers & idolaters & all liars, their part will be in the lake that burns with fire & brimstone..." Please sincerely receive Holy Jesus and put your true faith & trust in Him today and please repent. Will you have a Real encounter with Holy Lord Jesus (Y'shua is His Hebrew Name) and stay in a Genuine relationship with Him daily please?

Thanks!!!

What is the website address pls?

My Mom has Hashimoto’s (I do sometimes wonder if I have a latent case but my thyroid hormone always comes back normal) and this is like my life story, complete with the random issues when I was younger and I am a painter. Then I got Covid in July 2020 and started having the “panic attacks” that were not panic attacks, then I started having random lip, throat, and tongue swells daily and had all the tests including the bone marrow biopsy, then my doctor said it was probably MCAS and prescribed me cromolyn, Monteleukast, h1 and h2 blockers. My insurance denied Xolair. Now my swells are down to just occasional flares. My immunologist said the Covid probably flared up already existing mast cell/autoimmune issues. The “panic attacks” turned out to be supraventricular tachycardia caused by mast cell flares.

Who wants to live like this? I refuse to accept that I even have it something must have started it.

Amazing video, thanks so much ❤

ASIA- Autoimmune Inflammatory Syndrome Induced By Adjuvants/ Chemical Compounds Used In The Manufacturing Process Of Multiple Vaccines. And One Of The Primary Environmental Assaults Which Negatively Activates Mast Cells And Is Linked Directly To The Development Of Autoimmune Inflammatory Related Diseases Of The Gut & Bodily Organs. MISC - Multisystem Inflammatory Syndrome in Children. Multiple Vaccine Administration In Early Infancy Is Directly Related To The Development of AUTISM - An Autoimmune Mediated Inflammatory Related Disorder Of The CNS - Central Nervous System From The Acumulative Viral Toxic Effects Of Multiple Product Administration. FACT.

Amazing idea, Alice

Great idea

Thanks for all your hard work

Yesterday, I went to a follow up appointment with the hematologist oncologist, only to be rushed out in less than 5 minutes. Felt more like I was on an assembly line than being a patient. This is NOT medical care!

We should constantly call out doctors who resort to "its all in your head". It is a cop out and hardly ever a true diagnosis, whatever the problem is.

Your knowledge and skills may be useful in the Long Covid community. www.ncbi.nlm.nih.gov/pmc/articles/PMC10166245/

You are on a path that may branch out to areas not many have considered yet. www.ncbi.nlm.nih.gov/pmc/articles/PMC5601722/ Our findings suggest that infiltrating mast cells in BPH tissues could promote BPH development via IL-6/STAT3/Cyclin D1 signals. Therefore, targeting infiltrating mast cells may improve the therapeutic effect of BPH.

Great podcast.

'promosm' 😚

It’s like buzzing all over. You can feel the degranulation. And NO ONE believes you. Not one doctor!

How do you get doctors to listen and understand because I have over 35 intolerances and nobody knows how to help me .

I would love to share my story, it is so similar to this strong, empowered woman's story. Thank you for amplifying our experiences, if we "boost the signal" by getting more eyes and ears on our health issues, we increase our chances of attracting more funding for research.

This is excellent and needed. Unfortunately the slides are blurry. It would be great if slides were available on your website. Maybe they already are? Thanks

Em português: Quero que as pessoas saibam que não estou sendo difícil, apenas tentando me manter seguro Quero que as pessoas saibam que só porque posso não parecer doente por fora, não significa que não esteja lutando por dentro. Muitos dos sintomas são internos. Quero que as pessoas saibam que meus sintomas podem variar muito de um dia para outro. Posso ficar bem em um momento e de repente ficar muito doente. Quero que as pessoas saibam que sinto falta das coisas que eu fazia e das pessoas com quem fazia! Quero que as pessoas saibam que não fui eu que escolhi isso! Quero que as pessoas saibam que sua compreensão e apoio significam muito para mim. Oferecer ajuda ou simplesmente ouvir pode fazer uma diferença significativa em como lidar com o MCAS

Simple and true, so hard to tell people. I have a request, I would love share It, could you please, adds subtitles?