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TANGO2 Research Foundation
Registrace 26. 02. 2018
Our mission is to lead the way in finding a cure for TANGO2 deficiency disorder.
For more information, go to: www.tango2research.org
Find us on: Facebook: tango2research/
X/Twitter: TANGO2Research
Instagram: tango2research
LinkedIn: www.linkedin.com/company/tango2-research-foundation/
For more information, go to: www.tango2research.org
Find us on: Facebook: tango2research/
X/Twitter: TANGO2Research
Instagram: tango2research
LinkedIn: www.linkedin.com/company/tango2-research-foundation/
Patient Journey Stories [Part Five]: Metabolic Crisis & Impact
Ashley Wiley shares about her child's metabolic crisis and the impact it had on their family.
SUBSCRIBE to the TANGO2 Research Foundation CZcams channel for more videos.
About the TANGO2 Research Foundation:
Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.
For more information, go to: www.tango2research.org
Find us on Facebook: tango2research
Find us on X: tango2research
Find us on Instagram: tango2researchfoundation
Find us on LinkedIn: www.linkedin.com/company/tango2-research-foundation/
SUBSCRIBE to the TANGO2 Research Foundation CZcams channel for more videos.
About the TANGO2 Research Foundation:
Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.
For more information, go to: www.tango2research.org
Find us on Facebook: tango2research
Find us on X: tango2research
Find us on Instagram: tango2researchfoundation
Find us on LinkedIn: www.linkedin.com/company/tango2-research-foundation/
zhlédnutí: 28
Video
![Patient Journey Stories [Part Six]: Sibling Symptom Variability](http://i.ytimg.com/vi/PkEgKwN81m4/mqdefault.jpg)
![Patient Journey Stories [Part Six]: Sibling Symptom Variability](/img/tr.png)
Patient Journey Stories [Part Six]: Sibling Symptom Variability
zhlédnutí 43Před 2 měsíci
The Pochettino family discusses having two children diagnosed with TANGO2 and how much their symptoms vary despite having the same condition. SUBSCRIBE to the TANGO2 Research Foundation CZcams channel for more videos. About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scienti...
![Patient Journey Stories [Part Four]: Early Diagnosis](http://i.ytimg.com/vi/9vkM75vhTtc/mqdefault.jpg)
Patient Journey Stories [Part Four]: Early Diagnosis
zhlédnutí 19Před 2 měsíci
Angelique van der Haar shares the experience of getting her young child diagnosed with TANGO2 in the Netherlands, showcasing early symptoms and signs that lead to diagnosis. SUBSCRIBE to the TANGO2 Research Foundation CZcams channel for more videos. About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fu...
![Patient Journey Stories [Part Three]: 22q & TANGO2](http://i.ytimg.com/vi/wQb5hUdAQNc/mqdefault.jpg)
Patient Journey Stories [Part Three]: 22q & TANGO2
zhlédnutí 32Před 2 měsíci
Hannah Humphrey discusses her child's journey to getting diagnosed with TANGO2 and 22q. SUBSCRIBE to the TANGO2 Research Foundation CZcams channel for more videos. About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of h...
![TANGO2 Patient Journey Stories [PART TWO]: Family Impact](http://i.ytimg.com/vi/j-WpRlOaM6A/mqdefault.jpg)
TANGO2 Patient Journey Stories [PART TWO]: Family Impact
zhlédnutí 37Před 4 měsíci
Dr. Chaya Murali interviews Kasha Morris about her son and their family's experience with TANGO2 deficiency disorder. SUBSCRIBE to the TANGO2 Research Foundation CZcams channel for more videos. About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads ...
![TANGO2 Patient Journey Stories [PART ONE]: The Diagnostic Journey](http://i.ytimg.com/vi/zOWaJ472Ip0/mqdefault.jpg)
TANGO2 Patient Journey Stories [PART ONE]: The Diagnostic Journey
zhlédnutí 35Před 4 měsíci
Dr. Chaya Murali interviews the Mitchell family about their decades-long diagnostic journey. SUBSCRIBE to the TANGO2 Research Foundation CZcams channel for more videos. About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding...
2023 - Shine a Light on TANGO2: The Fryar Family Story
zhlédnutí 756Před 6 měsíci
A video about the Fryar Family Created by the Fryar Family SUBSCRIBE to the TANGO2 Research Foundation CZcams channel for more videos. About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect pe...
2023 TANGO2 Research Symposium
zhlédnutí 144Před 7 měsíci
SHARING THE LATEST TANGO2 RESEARCH & BROADENING OUR RESEARCH NETWORK Led by leading TANGO2 deficiency disorder (TDD) researchers and healthcare professionals, this symposium provides a program of information-rich sessions spotlighting current research efforts propelling scientific advancements in TDD. This agenda will also underscore recent progress in TDD clinical care, including prospective r...
Diet and Nutrition for individuals living with TANGO2 deficiency disorder
zhlédnutí 97Před 8 měsíci
Diet and Nutrition for individuals living with TANGO2 deficiency disorder
2023 Shine a Light on TANGO2 Celebration
zhlédnutí 47Před 11 měsíci
2023 Shine a Light on TANGO2 Celebration
2023 Shine a Light on TANGO2 Kickoff Recording from February 25, 2023.
zhlédnutí 58Před rokem
2023 Shine a Light on TANGO2 Kickoff Recording from February 25, 2023.
Thank you for your support - from the Mitchell family
zhlédnutí 113Před rokem
Thank you for your support - from the Mitchell family
Giving Tuesday - Hanna Mitchell's story
zhlédnutí 144Před rokem
Giving Tuesday - Hanna Mitchell's story
Giving Tuesday - Introducing Hanna Mitchell
zhlédnutí 154Před rokem
Giving Tuesday - Introducing Hanna Mitchell
Drug Screening for TANGO Deficiency & Emergency Certificate
zhlédnutí 71Před rokem
Drug Screening for TANGO Deficiency & Emergency Certificate
Mitochondrial Dysfunction in TANGO2-Related Disorder; What is Next?
zhlédnutí 77Před rokem
Mitochondrial Dysfunction in TANGO2-Related Disorder; What is Next?
Question and Answer Session Moderated by Dr. Seema Lalani
zhlédnutí 52Před rokem
Question and Answer Session Moderated by Dr. Seema Lalani
Assessment of Metabolic Studies in TANGO2-Related Disorder
zhlédnutí 35Před rokem
Assessment of Metabolic Studies in TANGO2-Related Disorder
About the TANGO2 Research Foundation with Kasha & Mike Morris
zhlédnutí 49Před rokem
About the TANGO2 Research Foundation with Kasha & Mike Morris
It Takes Two to TANGO: The Search for Partners for TANGO2
zhlédnutí 126Před rokem
It Takes Two to TANGO: The Search for Partners for TANGO2
2022 Shine a Light onTANGO2 Celebration at the TANGO2 Family Conference in Orlando, Florida.
zhlédnutí 35Před rokem
2022 Shine a Light onTANGO2 Celebration at the TANGO2 Family Conference in Orlando, Florida.
Building Our Understanding of TANGO2-Related Disorder from Gene to Child
zhlédnutí 59Před rokem
Building Our Understanding of TANGO2-Related Disorder from Gene to Child
ACTH > Vigabatrine
My son has intractable epilepsy. It’s so sad when they have a seizure and there’s nothing you can do but keep them safe from injury. God bless this little one and all who have epilepsy.
Why is my son there?
She got the mma helmet on
As a parent with adult son suffering suddenly from this. My heart hurts for this child. Healing prayers
Lmao
Poor baby 😢
Ghit Laggin' FR
Inshallah! She will persevere and prevail
I love you Hannah and I'm so sorry you have to go through this you're not alone
I have seizures too get well soon baby
Prayers for your family, I know how much pain this can cause, we are currently going through it, started when my daughter had covid at 5 months and shes two years now. Praying for your daughter's full recovery.
That is heartbreaking
God Bless you dear❤
I feel sooooo bad 🥺🥺🥺🥺🥺🥺
AWWWWW BLESS HIS HEART
Her
Lmfao 😂😂😂
Faking for attention. If not your bad for letting that live
You're an awful human.
Youll be ok kidder.
I was diagnosed with Epilepsy when I was 2 and had a Brain Tumor surgically removed when I was 8. 23 almost 24 years seizure free. Does she have a Tumor?
ya no salvar el bebé spasmas,
Pobrecito el bebé está salud
I feel bad so this what it look like when I was little having a seizure 😢
Poor baby ❤ God bless
Isn't it dangerous to have a soother in his mouth, What if he chokes or so?
Praying 🙏
That's actually not a seizure The parents are giving that child Sexual Pleasuring Some kind of toys
Poor baby I know how it feels my heart goes out to you. ❤
I am off seizure medicines are used to have absence seizures, and I think she would recover
Are you her Dr? Not everyone is so lucky and Epilepsy doesn't have a cure.
this happens to me once or twice a month , do you know this happens?
Thank you for showing us your little boys gait. It has helped me get help for my son ❤
Why is your hand there?
He's trying to keep her in recovery position (on her side) so that if she throws up, she won't choke
Yeah, but keeping her on her side isnt in between her crotch
Shark seizure?
Actually it's orgasmic That's what's really going on with the girl It's a cover-up
GOT SEM DANCE MOVES 🕺
Fire 🔥🔥🔥
Get your hand out of her butt
God bless you baby girl
Move your hand
No. He's keeping her on her side. It's exactly what he should be doing
That is so fake
Actually asshole, no. It's not.
bro its a baby, how tf is a baby gonna fake a seizure
@@miimiikyuu Because if you look at it carefully The baby is having orgies To cover up story
Are you okay? My son is having them seizures, the postures, sounds, movement of the lips and eyes, looks exactly the same. So if i may ask what's fake about what is shown here?
That's not fake.
My friend has seizures and I am proud of you for doing this putting a helmet and watching your kid you are certified best parents.
Isn't that clonic only?
The tonic part probably already occurred before the filming. But, this is the clonic stage.
Poor little thing 😮 feel bad for her But she'll be fine
You don't know that. Epilepsy and seizures kill a lot of people
Prayers going out to your whole family, and thank you for this video because it helped me identify exactly what to tell my son’s neurologist what he’s been doing
I’m confused
Kisi acche hospital mein dikhao.
Yah bless you mama I hope and pray you heal from this condition. Please try cbd oil on her with Nuleaf ❤
Prayers🙏❤️
😢😢😢🥺🥺🥺
🫂🙌🏽❤️
Prayers going up for your baby!!
How this baby now?
Such a great family!! Hanna has the best smile!❤