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Thank you so much for sharing your story. More power to you.

Very informative

Excellent video. Living well with FL receiving Rituxan every 8 weeks as maintenance.

Thank you Dr.your video just easy my mind. I am peaceful

Es curable o solo lo desactivan ?

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I got the diagnosis of essential hemorrhagic thrombocythemia and I see my dr in two weeks to see what’s next

Thank you for sharing this video. I was diagnosed with polycythemia Vera 12 years ago at the age of 39 along with fibromyalgia. I've had gallons of blood taken but because of the economy and my financial distress. I haven't had a blood draw in 2 years and I desperately need one.

Thank you. I have Mgus which my oncologist links to long term use of an antidepressant.

I have Mgus which my oncologist links to long term use of an antidepressant.

I have CML and have had 5 BMBs. For the first two the doctor didn't even mention the option of Entonox (gas and air) and it was a most unpleasant experience not helped by his exclaiming "Goodness you've got hard bone!". I mentioned this to my Clinical Nurse Specialist and she was annoyed with the doctor that I had not been offered pain relief. My last 3 biopsies have been fine. All with the same lovely doctor who likes me to select some music of my choice to go with the Entonox! I had one done 2 days ago to the strains of "The Beautiful Blue Danube"! ...and I couldn't stop giggling, it was actually a really positive experience! Don't ever let them do it with just local anaesthetic, that just numbs the skin not for when they push into the bone and extract the marrow and a bone plug sample.

Very knowledgeable and interesting. Thank you

What do you do if you have an infection with your CLL ? Strep, flu, laryngitis, something in the mouth, etc…

You make it sound so feel-good and easy, but if stem cell was the thing that saved you, instead of your happy music you should be calling for that kind of treatment to be available to people who don’t have $100,000 for such procedures not covered by health insurance . I’m sure you spend at least $100,000 on stem cell transplants, because they’re not covered by insurance.

Dios te dé más vida gracias por el video que nos inspira a luchar

Nothing is documented...it's a nightmare out here. Las Vegas,NV.

Unfortunately, find a doctor that cares. You give up. It's exhausting trying to find to care. WEEK 5 ...still waiting to get scheduled for iron infusions for not absorbing ferritin. The fatigue and pain makes one not able to plan things. It's a life I've never known.

It is a very humanistic approach. One can have a dozen silent strokes, e.g., but in the end, he or she gets a real stroke and does not need to be treated anymore. It is really beneficial. Patients do not need to worry; they are not aware of it. The cost of treatment is also optimal. Just relax.

Why is I’m stage 4a hpv 16 jaw cancer but no spread is it because of tumor size

Can you get pain in the knees? I have been diagnosed with SMM

So many more questions… specifically about treatment of Primary refractory disease.

Very useful video. It was exactly what I was looking for. Thanks.

I was diagnosed in April 2021. I live in the Philippines where access to MM medicines is limited, unlike in the US and UK, I understand. I responded to Velcade, Lenalidomide and Dexa after almost a year of therapy, was in remission for 10 months and relapsed. I have no insurance and was subsidized by my siblings. (I'm 66 yrs old, no regular income, depleted savings,with minimal pension from the government.) It took another 3 months before I had my next round of chemo with Ninlaro, Thali and Dexa. After 4 months, tests showed I was not responding, do my doctor discontinued the Ninlaro. For the 3rd round of chemo, my doctor prescribed daratumumab with pomalidomide and dexa. The cost of dara is prohibitive for my siblings to subsidize and even pomalidomide costs $400 here, much more than Lenalidomide. As of this time, since September, I have had no major chemo (dara) and erratic treatment with Lenalidomide/Poma/Dexa). Having said all these, my concern is how can we expand the limited access to MM new treatments and drugs here in the Philippines and also make them more affordable? Can an international MM foundation help us with this?

Very informative. Excellent

and bone marrow?

Hello, I was just diagnosed with ET.. my question is why can’t I extract platelets if it’s too high?

Great Presentation. Thank you Dr. Landgren and Lisa.

Thank you. This was helpful.

What is your phone number doctor. Nee you helpl

Very helpful. Thank you

😭 hate the fact that he is right 🤯☠️

Dr. Yacoub is great. I am so glad I went to him.

Is it curable

Great info thanks!

thanks

Thank you for this explanation of ET.. 62 healthy otherwise avid walker and runner daily .. are there supplements I can take to lower my inflammation? I don’t consume sugar or alcohol .. non smoker..Thanks Again

Thank you for this video. I too live in the Charlotte NC and had a suspicious spot in my lower left lung, this was in October 2023. I immediately went to an oncologist and he referrer me to a pulmonologist to perform a biopsy. To make a long story short, I went to 3 pulmonologists before I found one I trusted. I had my biopsy in January of this year, I was diagnosed as stage 3a with KRAS g12v mutation. I'm now going through chemo and immunotherapy treatments. If anything has changed I will be scheduled for a lobectomy at Levin Cancer Institute. Your story gives me hope.

My mom has primary myelofibrosis, she gets these purple like spots on her skin and easy bleeding, I'm from India where should I get her checked? She's 51 and I'm scared to lose her, please reply

U r wonderful Dr. Philips. I am happy. I am Dr. Jyoti from India Pune.

I am diagnosed case of Follicular Lymphoma. Received RCHOP in 2014 inMumbai. Now Recently in 2023 I received six cycles of BR. I have treatment complete now. Taking Inj. Rituximap 600 mg in Nacl infusion maintainence dose. Can you sir help me to stop Recurrence of Lymphoma. 🙏Please😊

This man is divinely inspired. God bless him

Gracias

What if the jak2 617f is positive and the quantity is 8%

why can’t I find an information on Non-Hodgkins Follicular Lymphoma???? Extremely frustrated

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Excellent discussion. Thank you from patient recently diagnosed with PV.

Thank you

This is a really helpful and succinct review of side effects. Thank you!

Thank you Lori for your encouraging video. I have a question: if I am diagnosed with asymptomatic multiple myeloma and my hematologist refuses to perform FISH should I insist or not? Please I need an authoritative opinion. Thank you