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I was recently diagnosed at the same place! Luckily they were a pretty close drive for me as well. So far my lenses aren’t doing much to help me, and I understand what you mean by not wanting to go out or do anything. I’m hoping I start feeling better over time. Thank you for these videos, they help remind me I’m not alone in this nightmare

Have you heard of visual therapy? Your accommodative system is obviously in a complete state, and you can actually address the root course by working out your cilliary muscles: flipper spherical lenses are cheap and you can use them to strengthen your accommodative system to handle changes in focus distance better so you don't get visual 'whiplash'. You can also train eye tracking with saccadic movement exercises, as well as convergence strength with something as simple as pen pushups. Prism can help, but visual therapy is much faster, and cheaper. These 'neurovision' places create a lot of mysticism around these issues, but accommodation insufficiency/infacility and convergence insufficiency are the main 2 causes of all binocular disorders and it's most likely the cause of yours as well.

each time I got the cv infection. I am not jabbed. I get something wrong with me. I found out the ace2 receptor in some people hold onto the spike proteins. I started to take glutathione , milk thistle and dandelion root to help clean my liver . Each infection was something different. First one I got breast cysts and it stopped my period for 3 months . Came back then the second time I got Covid my eye sight got worse. Third time it completely killed my period and gave me a huge fibrod tumor . And then in February I started with being disoriented while driving on the freeway . I thought it was a root canal infection. Had that extracted . Healed and then started all all this neck pain and issues with my eyes . Like I can’t handle freeway because I get disoriented when people drive fast past me. Get also massive anxiety on a hill . Like in the parking lot next to my house if I am on the hill stuck at light my entire body gets this weird falling feeling. I have to put the car in park because my muscles get weak. So it’s almost like if my head is tilted it does something to me. I am hoping it is just maybe crystals in my ear . And not this eye thing . But I do have major issues seeing at night out of left eye . Feels like maybe I am getting a cataract . If anyone wants to talk to me they can dm me on instagram. Sirenmerrmaid I feel completely alone in this

My eyes were killing me today. I couldn't even look straight 😮‍💨

Blessing to you Brother Man.

Hey man have you tried plugging one of your ears? My BVD specialist put noise cancelling headphones on me and it made a bigger difference than the glasses(which did a lot) did. The test to figure out which ear is problematic was you cross your arms over your shoulders and put an earplug(they used noise cancelling headphones, but if you don't have any an earplug is probably fine) in your left ear and close your eyes and see if prevents movement while standing. Then you switch to the right ear and see if it makes your balance any better, then you try both ears and then you decide which one makes the biggest difference. It was my left ear and I was recommended Bose QuietComfort noise cancelling headphones(i put them on and instantly felt at peace) and also I use Loop Engage earplugs in my left ear only and it makes a huge difference on top of the glasses.

Hi l also have BVD and am getting my prism glasses soon. Is the plan with yours to decrease the prism after a certain amount of months? And if so how long till you do?

I feel your brother I’ve been dealing with this ever since getting the big C. I just went last week and got another check up. My vision has gotten three times worse. I’ve been dealing with this for four years this week coming up. I’m getting my new NeuroVision glasses I can’t wait. I know the pain and struggle that you’re going through. when I get the glasses, I’m also going to try to start vision therapy or some type of vision rehab to help my eyes adjust and strengthen along with the NeuroVision prisms.

Hey brother, Been diagnosed with this today. I thought I had anxiety & would get the odd panic attack because the room would start spinning and I’d feel hella dizzy. So glad to finally be getting my glasses! How long did it take to adjust?

all From past 5-6 months I'm dealing with Dizziness throughout the day, HEADACHES, MIGRAINS, Motion SICKNESS AND PANIC ATTACKS ATTENTION ISSUES, READING ISSUES, ADHD, DEREALISATION, VERTIGO WAVY vision DREAMY VISION LACK OF ENERGY,i get tired after doing minimal work Can anybody tell me is it BINOCULAR VISION DYSFUNCTION? I think it is But all of my doctors say that your eyes are totally fine I even had a migraine treatment that too didn't work for me Pls somebody help me with this I just wanna be cured

do you still struggle with dry eyes or eye strain? I am wearing prisms for 2 months and a lot of symptoms disaooeard, but I still suffer from dry eyes, eye strain, eye pain, fatigue

OMG Just yesterday I tried Googling a connection between Vertical Hetrophoria and OCULAR migraines and I could only find connections mentioning regular migraines. I’m early in my journey, not yet diagnosed. But I have an appointment with my regular eye doc to get a referral to a specialist that treats these problems. Good to know there is a connection. My main problem is I’m so clumsy I fall all the time. Ten times in the last four years. It’s like I’m not seeing things and knowing where my body is in space. A situation that freaks me out is fancy outdoor shopping areas where the sidewalk design is such that it has patterns and pavers that keep changing every, approx 15 feet. I love watching your CZcams channel. I’m learning so much every video. Thanks you guys!

getting ready to get my Neuro lenses in two weeks has anybody tried the new neuro lens

What exactly did she to do fix your Binocular Vision Dysfunction. Would have been nice for you to go into detail what exactly happened. Was your prescription too high, did she lower your sphere or cylinder?

For a while, I thought that I may have BVD, but never really considered it until you said the thing not focusing on someone’s face I had that the other day and it made me super anxious. Gonna find somewhere to get tested.

Great post. Sounds like the new glasses are doing the trick. SO GLAD TO HEAR you can get lenses at COSTCO. That’s where I’ve been getting my Rx sunglasses for years. I haven’t yet been diagnosed yet. I have an appointment with a neurologist in August. (The one who has been trying to figure out why I fall so much). I’m guessing he will know what eye doc to send me to that tests for this issue? I’m in Fort Worth so there should be a doc in this area.

I’ve just discovered this disorder on CZcams three days ago. I’ve fallen ten times in the last four years, but we cannot figure out why. They have checked everything. Neurologist said I don’t have nerve damage in my feet or legs. My regular eye doc said my peripheral vision is ok. My balance isn’t the best but it’s not horrible. But I keep tripping and falling, most often because I don’t see stuff. But this video is amazing for two reasons. First, you are awesome and so generous to share your experience. But this video is a perfect example of what I want to show the doctors. See the sidewalk in your shopping center? I was recently at a fancier shopping center in Austin that had sidewalks like that. As soon as I saw them I told my husband “I think I’m going to fall while we are here.” All those different changing brick and paving surfaces just freaked me out. The whole time we were there I kept holding on to my husband’s elbow. Does this sound anything like what people with this disorder experience? If it runs in families, I would come by it honestly. My 7yo grandson was diagnosed with this a couple of months ago. He is about to start vision therapy soon. Thank you again for opening up to others.

Can I ask what caused you BVD?

I have spent thousands on these prisms with zero results. In fact I seem to be worse. Just don't know what to do.

@BinocularVisionDysfunction My neuro optometrist just prescribed prisms (3.0 Base In left eye, 2.0 Base Out right eye) I have seen a BVD specialist in the past and she prescribed 0.25 Base Up for my right eye. They didn't really do much. I have similar symptoms to you. With these new glasses, I have much better aim (whether throwing a ball or just trying to walk straight to a point in the distance) but my doctor wants me to only wear them when moving around or driving. Switching to different (non prism) glasses for the computer is so disorienting to me. Are your computer glasses a different prescription or are they just special coatings for the computer? Thank you for your videos. I went to so many different doctors before being diagnosed with this condition and I know it is the same for so many.

i get what u mean by the distatchment i just have poor vision but when i cant make physical objects and depth between objest and even in distance it feels horrible

My story is horrific and I am just 25. I don't how this came, but in 2014 jan I moved completely out of Reality and haven't been back since. My life is filled with disorientation, dizziness, nausea, eye strain, eye pain, ball catching difficulties, academic issues, reading problem, walking difficulty, peripheral vision issues, speaking problem, cannot stare at something for a while, no focus, no concentration, always stresses and anxious. I have been seeing your videos, researching on BVD for 2 years, following Dr. Debby Feinberg, tried to come to US when I was back in India. But couldn't because of visa issues. Now I have reached Canada and a new Doctor is trained here and I am wishing to see her. I am not hoping, as all the hope lead me to disaster because there was no cure for 10 years. My mind is extremely stressed out and in parellel universe, when compared to Normal people. I am not able to do any of my Normal daily routine. I can only pray to God for a Miracle to happen to change my life. I might see the neuro visual specialist next week or maybe July.

Amazing that you got the computer specific glasses. Recon that computor work is even more straining, my optometrist recommended and let me try a green filter. It did help. Idk i might buy them but its costs a lot. AND btw. For your next pair of glasses within a couple of years perhaps. Look into Neurolens.

How about Neurolens? Heard that people feel better for a upto a year. Just back

Also, a Question: (Sorry for double post) -- What is your view and stance on finally getting surgery for BVD, assuming you could somehow afford it through medicaid/medicare, or something else, would you get the ocular muscle surgery?

Dude I've had BVD for years now and I explicitly asked one of my optometrists recently if they made crazy looking adjustable glasses for BVD like the measurement gear you have on-- The doctor admitted it was not a crazy idea for someone in the vision industry to start manufacturing and prescribing them to people with our condition. Presently I am waiting to get a job where I can afford Vision Therapy and am also slated to finally talk to my city's optical surgeon-- but you and I are probably aware surgery for BVD is a crapshoot.

How many prism pairs have you gone through? Is the rate of needing a new pair going up (need to go back sooner than last time)? This is my fear with prism glasses, they cause your eyes to get lazy faster and make it worse. The other option is vision therapy... not sure if that really works long term either?

My eyes do that a lote panick attack lote

Just came across your video, how bad was your anxiety? I’ve been diagnosed with anxiety & agoraphobia but man it really feels like my symptoms are worse when I’m in positions when my eyes are more strained. When it’s bright outside, when I’m driving, when I’m in open places, etc. wondering if this can be a real possibility for me

Where do we go to get checked for BVD?

Legit im struggling with these TBI sympthoms with vision. Ive had every sympthom. Had Prisms for some time then i quit them, did some training. But still wasnt 100% no its going downhill again. Looking at screens and reading is definetly the biggest struggle. When i look away i see verticle lines. I do eye training but i makes me very dizzy. Lowkey. Stemcells is our biggest hope. They are tested for TBI related neurological problems and also for Neuro-optic problems, so its promising.

FYI to anyone who has been treated with glasses. My symptoms came back after a year of having new glasses. My prescription changed significantly in that time, and now I need new ones. Im not trying to discourage anyone from getting glasses. Rather, I want people to know the symptoms can return. So if you have prism glasses but still feel sick, dizzy, have neck pain, and most importantly, feel anxious or panicked for no reason, return to your optometrist to recheck your prescription asap. Some glasses places have a warranty limited to within a certain time period, so you may be able to have them replaced at no charge if you are quick enough.

Yes me just found out yesterday through my own research

You know. I also had eyeproblems for almost 3 years now. It started after a traunatic event. And all our sympthoms do correlate with TBI. At first a lot of sudden reasonless anxiety, flickering lights in my vision and disassociation. Then after half a year I got Prism glasses, the anxiety went away 100% but i had to adjust to the glasses for 2 plus weeks. Than after it felt like this was IT. But after twoo months it started going downhill again. I would play basketball and the increased movement caused sensory overlaod which caused me severe dizzyness and feeling overwhelmed and disconnected. Like im stuck inside my head. After more months it became unbarable again. I felt like dying every day. (Before alp this stuff my life was amzing 10/10) But I would rate days as low as a 0,5/10 barely hanging on. Light sensitivity was to much. Dizzyness, eye pain and strain. My God. Then I eventually started taking the glasses off. And felt relieved. Taking the glasses of gives A glimpse of what Life was before. Because i feel like your field of vision and feeling of reality is way more when taking glasses off. With glasses on it feels like your brain is in a box if that makes sense. Youre just trapped. Ok after deciding to stop prisms i put back on my old glasses and went for BVD training. The dude said. Yup your vision is 100% again after a couple of weeks... I was like what the hll. And i just accepted it and lived on with my normsl glasses. It was very different and for sure not 100%. Every time it feels like a chapter with different sympthoms, ll extreme and all bad. And then we are in the Now. I feel sensory overload everyday. Its like my direct vision in fron of me is not processed correctly by my brain. Its like focussing is impossible. I cant read normally. Jesus my vision is insane when reading. And it feels like my brain is being fried so much evefyday that my senses like hearing are way less now. Its true. When i clos my eyes Its like im dead. I dont feel anything. Hearing perception is way off. Mann. Now i went to another Neuro optomitrist ans he gave my Convergience training. Which feels like its helping ever so slightly. Things that helped me to make the day OK were: Lutein, Thiamax, Cod liver oil, these three are amazing for the brainand for the eyes. These will always help. But Because of lack of understanding of our Eye brain connection by the medical field. I think eventually we will resort to Stemcell therapy as the fix. Thats what i really think based on science.

Just diagnosed. Same medical dx nothing wrong with me. Eye Dr noticed a head tilt

When I’m driving or in a grocery store it’s so bad and I have to pull over and I feel like I’m violently spinning I’ve been on meclizine for years and it doesn’t seem to help and I’m a really intelligent guy but my reading has been off for years I can’t focus and when I’m going through an intersection it takes me what feels like forever to go through when I feel it’s safe I had these issues for at least 7-8 years

I also have Vistinilar Migraines without head pain and with head pain and this BPV is or can be connected to this. Dr Michael teixido is great on migraines, see his channel

U saved my life

Ty

Hello all. Anyone who has gone to get checked please update us. We are waiting.

How did you get bvd? How long have you had it

I’m sorry you are going through this. I have had BVD both vertical and horizontal (VH and CI) since birth. I’m 50 now. I always had symptoms but early 30’s my symptoms became debilitating. Fortunately at age 48 I finally connected with a doctor after many years with no answers and have been wearing prisms ever since. So grateful and thankful for the awareness you are bringing. Blessings 🙏🏼

Im 33 years when i pregnant i started my vision problem more than one year ago when my eye very sensitive to light and started double vision I went to many other doctors we are said not any wrong to my eye only found exophoria can exophoria cause to BVD ?? Please tell me 😢

This is me! Omg I always describe it as being “in my own way”. My eyes just feel so unfocused and it really stresses me out

Hay my friend you don't know me but, your video about a year ago saved my life..the one where you was on the beach...lord I had been searching since 2020 after I had a surgery...still struggling but it's better...

EXACTLY: I have not been officially diagnosed yet, but I believe I have BINOCULAR DIPLOPIA and I noticed that getting rest helps me. Yes, turn on your blue light filter! I need to adjust the brightness on my laptop, b/c it does actually hurt. However, when I turn the brightness down, I need my glasses even though I normall do not need them for close up work. In your initial video, you had RayBans and St Laurent or something, so even with a discount, you gon pay. And, yes, you can have transitions/shades lenses. I always have the sun protection! I will also make vids about my condition in a few months. What we need in making the public aware and sharing our stories, is a list of places that actually treat this dysfunction, not just a reg ophthalmologist. We need specialists. Thank you for sharing and hiving us questions that we can ask and giving us ideas so we can talk with our care givers. We need specialists who can decrease our worry and expense. Right. If I can't see, I can't cook, I can't drive, I will lose my independence. I may as well be in a rest home. That's a great point, this condition may actually be hereditary as I believe having iron poor blood is. Keep posting.

EXACTLY: I have not been officially diagnosed yet, but I believe I have BINOCULAR DIPLOPIA and I noticed that getting rest helps me. Yes, turn on your blue light filter! I need to adjust the brightness on my laptop, b/c it does actually hurt. However, when I turn the brightness down, I need my glasses even though I normall do not need them for close up work. In your initial video, you had RayBans and St Laurent or something, so even with a discount, you gon pay. I will also make vids about my condition in a few months. What we need in making the public aware and sharing our stories, is a list of places that actually treat this dysfunction, not just a reg ophthalmologist. I've had several tests over the years and to this day, no dr has told me let's test you for this or that, b/c ot may be this or that. We need soecialists who can decrease the worry and expense.

Literally OUT OF THE BLUE I woke up one day, 3 mos ago, with dbl vision (side-by-side, not up & down). My horizontal prism is inward (meaning my eyes are trying to cross/look at my nose, in layman's speech). I thought it was due to fatigue, b/c I let my boss work me like the mule of a Hebrew slave. After some searching, I deduced that I may have BINOCULAR DIPLOPIA, b/c when either of my eyes is closed, I do not see dbl. I start a new career in a matter of days and I'm hoping to fake it 'til my benefits kick in. But until I can afford to see a specialist, I continue to pray, use lubricating eye drops to ease my dry eyes, use cold compress to help with any swelling and TRY to get more rest (HA -I'm so busy working my current job, packing and cleaning my flat). I saw a few vids that say prescribing prism glasses do more harm overall than good. Since I'm very nearsighted, I don't need glasses for close up, but I do need them to drive. Since my new glasses with the prism/progressive was no improvement AT ALL, I returned them for a refund. I wore them 2 weeks. But we're all different. I have indeed noticed that when I get a full 8 hrs of sleep my dbl vision is extremely slight or undetectable. I am praying this is my body begging me to get more rest. I have also had my blood tested and am awaiting the results to see if I have high blood sugar etc, which can also be a factor. I will update after my benefits kick in as my eyes will be the first thing I have checked.

I was diagnosed pppd but you described my symptoms I will look into this

Wow. $2,000