My Invisible Disease Podast
My Invisible Disease Podast
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Living with Lupus and The Impact of Invisible Diseases on Mental Health - with Amanda Chay
open.spotify.com/show/6s6GfKsYddcAFZbFS5495c?si=5253dce15350478d
Amanda, a resilient and determined advocate for invisible diseases, embarks on a mission to shatter misconceptions, forge connections, and reclaim her identity amidst the isolating journey of chronic illness. She has firsthand experience living with lupus, an incurable autoimmune disease. After going undiagnosed for 21 years, Amanda has gained a deep understanding of the challenges that come with seeking a diagnosis and navigating the early years of living with an invisible disease. She recently released a book called "The Girlfriend's Guide to Lupus" and is dedicated to sharing her experiences and offering support to others in similar situations. Amanda's journey is not only inspiring but also sheds light on the impact of invisible diseases on mental health. Her story serves as a reminder that even in the face of adversity, it is possible to find hope and support within a community of understanding individuals.
amandachay.com/
Link to the Book: amzn.to/47uo9oV
"We often live a reactive lifestyle when it comes to our health, but being preventative and taking care of ourselves early on can make a significant difference in our well-being." - Amanda Chay
Bio
Amanda Chay is an author, entrepreneur, and lifelong health nut who has helped countless businesses and individuals put their health first. With a master's degree in counseling and as the owner of a stress reduction and mindfulness training company, Amanda brings a wealth of expertise to her work. She is a member of the University of North Carolina Lupus Stakeholder Advisory Board and is a Lupus Foundation of American external affairs committee member for NC. When she’s not planning her next travel adventure with her daughters and husband, she’s drinking jasmine tea, teaching yoga, and giving book suggestions to anyone willing to listen. Learn more at AmandaChay.com.
In this episode, you will be able to:
Discover strategies for managing chronic illness and living a fulfilling life.
Learn the importance of community support in navigating the challenges of invisible diseases.
Explore the impact of invisible diseases on mental health and ways to prioritize self-care.
Find inspiration and encouragement from others who have built supportive communities despite their invisible diseases.
Gain insight into the unique challenges of living with invisible diseases and how to overcome them.
Understand the importance of advocating for yourself and finding the right support system.
Find validation and understanding as you hear stories from individuals who share your experiences.
Importance of community support
Community support plays a crucial role in navigating chronic illnesses. It offers a platform for sharing experiences, enhancing understanding, and cultivating validation for the daily struggles with invisible diseases. This support is vital for empowering individuals with chronic illnesses, helping them feel less alone, and providing a network of understanding that extends beyond their immediate environment.
The resources mentioned in this episode are:
Visit our website to listen to the full episode of the Invisible Disease podcast featuring Amanda Chay.
Check out Amanda Chay's book, The Girlfriend's Guide to Lupus, for valuable insights and advice on living with lupus.
If you suspect you may have an autoimmune disease like lupus, don't hesitate to seek medical advice and get a proper diagnosis.
Take preventative measures to maintain your health, such as getting regular exercise, managing stress, and eating a balanced diet.
If you're experiencing joint pain or other symptoms, consult with a rheumatologist or specialist to determine the cause and develop a treatment plan.
Consider the impact of past traumas on your overall health and seek support or counseling if needed.
Be mindful of the potential psychological impact of chronic illness and take steps to prioritize self-care and mental well-being.
zhlédnutí: 18

Video

Living with Ulcerative Colitis: Saffron Cassady's Documentary Explores Fecal Transplantation
zhlédnutí 36Před 9 měsíci
open.spotify.com/show/6s6GfKsYddcAFZbFS5495c?si=5253dce15350478d Get ready to meet Saffron Cassady, a talented filmmaker and an incredible woman who has been living with ulcerative colitis since her early twenties. With her background in filmmaking, Saffron took her personal experiences with chronic illness and turned them into a powerful documentary. She dives deep into the world of alternativ...
My Invisible Disease-Episode 19: Lyme Disease and Functional Diagnostic Nutrition: Meet Heather Gray
zhlédnutí 5Před rokem
Unlocking the Hidden Secrets of Your Health: The Power of Functional Testing with Heather Gray Struggling with relentless health issues that seemed to have no cure, Heather Gray's life was a constant battle. From Lyme disease at 13 to severe neurological problems, she felt abandoned by the Western medicine system. But just when she thought all hope was lost, a chance encounter with a podcast in...
Jenna Swanson Full Interviewrevised
zhlédnutí 11Před rokem
Jenna Swanson Full Interviewrevised
Living with Crohn's Disease & Raising Neurodivergent Children- Meet Sarah Young
zhlédnutí 20Před rokem
Managing Chronic Illness as a Special Needs Mom with Sarah Young Sarah Young's life seemed destined for struggle, from her childhood diagnosis of Crohn's disease to raising a neurodivergent child. But what's surprising is how she found the strength to persevere and thrive. Through her journey, she discovered the importance of self-care for special needs moms and the unique gifts of neurodiverge...
Creating a Supportive Community for Invisible Disease
zhlédnutí 2Před rokem
Have you ever felt lost and isolated in your journey with a chronic illness? I know I have. But then I stumbled upon a podcast that changed everything. It was like finding a hidden treasure - listening to the hosts share their personal experiences with invisible diseases gave me a sense of relief and community that I never expected. And through connecting with others who shared my struggles, I ...
Julie Fry's Journey: Living with Chronic Lymphocytic Leukemia
zhlédnutí 13Před rokem
Julie Fry's Journey: Living with Chronic Lymphocytic Leukemia Are you looking for a way to cultivate emotional wellbeing and positivity? Julie Fry is here to share her insight on how to promote joy and self-care through gratitude practices. In this episode, you will be able to: Master the complexities of chronic lymphocytic leukemia diagnosis and treatment for improved decision-making. Achieve ...
How a Supportive Community Can Help You Thrive with Invisible Diseases
zhlédnutí 5Před rokem
Are you tired of feeling alone on your journey? Learn how a supportive community can give you the boost you need to thrive! In this episode, you will be able to: Unveil the rollercoaster of emotions and breakthroughs in the journey with a chronic illness. Investigate the advantages and considerations for different liver transplant routes and their implications. Appreciate the value of cultivati...
Living with gastroparesis-a healing journey with River Staines
zhlédnutí 20Před rokem
Unlocking Emotional Healing with River Staines: A Chronic Illness Journey River Staines was just 22 and facing an incurable chronic illness. With numerous healing modalities and a newfound gift for energy work, she was determined to not accept her fate. Against all odds, her remarkable strength and resilience allowed her to heal herself and find her true calling. What was this unexpected twist ...
Surviving Guillain-Barre Syndrome- Meet Holly Frances
zhlédnutí 46Před rokem
Unraveling Guillain-Barre Syndrome with Holly Frances: A Mother's Journey Paralyzed just weeks after giving birth to her first child, Holly Frances struggles to adjust to her new reality as she courageously battles Guillain-Barre Syndrome with the help of her inspiring support system and a conquering spirit. In this episode, you will be able to: Discover the intricacies and symptoms of Guillain...
Discover the strength and resilience needed to overcome a life-threatening autoimmune disorder.
zhlédnutí 3Před rokem
Unraveling Guillain-Barre Syndrome with Holly Frances: A Mother's Journey Paralyzed just weeks after giving birth to her first child, Holly Frances struggles to adjust to her new reality as she courageously battles Guillain-Barre Syndrome with the help of her inspiring support system and a conquering spirit. In this episode, you will be able to: Discover the intricacies and symptoms of Guillain...
Living with Chronic Fatigue Syndrome- Meet Sue Jackson
zhlédnutí 88Před rokem
Suzan Jackson is a freelance writer whose work focuses on topics related to health, family, travel, and media reviews and has appeared in many magazines, websites, and anthologies. She has had ME/CFS, an immune disorder, since 2002, and also has Lyme disease. Both of her sons also became ill with ME/CFS in 2004, at ages 6 and 10. Her younger son is now fully recovered, after 10 years of mild il...
Living with MS- Meet Heather Russell-Kay
zhlédnutí 16Před rokem
Http://myinvisibledisease.com Living with chronic illness can be hard, but finding support and understanding makes all the difference. "It is one of those things that when I was first diagnosed, they were like, everyone knows someone with Ms, but I knew absolutely no one. I had no idea about the condition or that it was actually diagnosed quite young in people at all." Heather Russell-Kay is a ...
Living with Familial Adenomatous Polyposis and Short Bowel Syndrome- Meet Jenny Jones
zhlédnutí 9Před rokem
Living with Familial Adenomatous Polyposis and Short Bowel Syndrome- Meet Jenny Jones
Living with familial adenomatous polyposis and short bowel syndrome- meet Jenny Jones
zhlédnutí 2Před rokem
Living with familial adenomatous polyposis and short bowel syndrome- meet Jenny Jones
Living with Familial Adenomatous Polyposis and Short Bowel Syndrome- Meet Jenny Jones
zhlédnutí 17Před rokem
Living with Familial Adenomatous Polyposis and Short Bowel Syndrome- Meet Jenny Jones
Living with dys- Meet Ambre Minty
zhlédnutí 6Před rokem
Living with dys- Meet Ambre Minty
Jenny and Kassy Catch Up, we are officially LIVE!
zhlédnutí 9Před rokem
Jenny and Kassy Catch Up, we are officially LIVE!
My Invisible Disease- Episode 6: Bitter Bettys
zhlédnutí 19Před rokem
My Invisible Disease- Episode 6: Bitter Bettys
My Invisible Disease- Episode 3: Kassy's Story
zhlédnutí 8Před rokem
My Invisible Disease- Episode 3: Kassy's Story
My Invisible Disease- Intro Episode
zhlédnutí 39Před rokem
My Invisible Disease- Intro Episode
My Invisible Disease- Episode 2: Jenny's Story
zhlédnutí 20Před rokem
My Invisible Disease- Episode 2: Jenny's Story
My Invisible Disease- Episode 5: Asking for Help
zhlédnutí 7Před rokem
My Invisible Disease- Episode 5: Asking for Help
My Invisible Disease- Episode 4: Relationships and Chronic Illness
zhlédnutí 4Před rokem
My Invisible Disease- Episode 4: Relationships and Chronic Illness

Komentáře

  • @amandachay7466
    @amandachay7466 Před 9 měsíci

    SO much fun to be on this pod with you lovely ladies!! Thanks again for the opportunity.

  • @westonhuffman7908
    @westonhuffman7908 Před 10 měsíci

    Well, I wanna get a fecal microbiota transplant so I could enjoy the smell of the donor's feces.

  • @uj3185
    @uj3185 Před rokem

    "Promo sm" ⭐

  • @SueJacksonDE
    @SueJacksonDE Před rokem

    Thanks so much for the opportunity to be on your podcast. I so enjoyed chatting with you both!

  • @Lukas-kp4km
    @Lukas-kp4km Před rokem

    *promo sm*